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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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My CLL journey with a bone marrow thingie and FCR thrown in.
After being referred, by my GP, to a consultant haematologist in 2010. She set me down and with little preamble proceeded to tell me that I had CLL. There is no cure she said, but I was in the early stages and no treatment was needed at that time. Shocked and Relieved I took the news like a good trooper
After being referred, by my GP, to a consultant haematologist in 2010. She set me down and with little preamble proceeded to tell me that I had CLL. There is no cure she said, but I was in the early stages and no treatment was needed at that time. Shocked and Relieved I took the news like a good trooper
Bribin
in
CLL Support
10 years ago
Headaches
Prior to having successful
FCR
treatment for CLL in 2010 I was suffering with severe headaches up to 15 times a month. After the
FCR
treatment they disappeared. In December last year a CT Scan showed that the lymph nodes under my arms had enlarged and were just over 2 cm.
Prior to having successful
FCR
treatment for CLL in 2010 I was suffering with severe headaches up to 15 times a month. After the
FCR
treatment they disappeared. In December last year a CT Scan showed that the lymph nodes under my arms had enlarged and were just over 2 cm.
Mick491
in
CLL Support
10 years ago
Fingers crossed!
Diagnosed in Oct 2009 at age 47 with 'Watch & Wait' (lymphocyte count 16) ..... however by Jan 2011 my lymphocyte count was around 130 so was offered treatment on a Clinical Trial at Southampton General Hospital and I was randomly selected for the 'Gold Star'
FCR
which I started in March 2011 - and finished
Diagnosed in Oct 2009 at age 47 with 'Watch & Wait' (lymphocyte count 16) ..... however by Jan 2011 my lymphocyte count was around 130 so was offered treatment on a Clinical Trial at Southampton General Hospital and I was randomly selected for the 'Gold Star'
FCR
which I started in March 2011 - and finished
Timobeanie
in
CLL Support
10 years ago
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Complete Remission!
We then had the bombshell that no watch and wait,
FCR
was starting the following week... Well we are through the other side and on Wednesday we got the fantastic news that Mark is in Complete Remission!
We then had the bombshell that no watch and wait,
FCR
was starting the following week... Well we are through the other side and on Wednesday we got the fantastic news that Mark is in Complete Remission!
Summer5
in
CLL Support
10 years ago
ASH 2013: Dr. Jeff Sharman Discusses FCR versus BR in CLL
Sharman where we discussed the data on
FCR
versus BR. While this is less the exciting news it would have been a few years back before the emerging era of targeted therapies,, it is still important for a significant segment of us who will need or chose chemo-immunotherapy.
Sharman where we discussed the data on
FCR
versus BR. While this is less the exciting news it would have been a few years back before the emerging era of targeted therapies,, it is still important for a significant segment of us who will need or chose chemo-immunotherapy.
bkoffman
CLL CURE Hero
in
CLL Support
10 years ago
Explainer: What is Cancer Immunotherapy?
Most of us would be familiar with the term monoclonal antibody, with several in use in regular treatment or in trial use for the treatment of CLL, with the most familiar being Rituximab (the R in
FCR
).
Most of us would be familiar with the term monoclonal antibody, with several in use in regular treatment or in trial use for the treatment of CLL, with the most familiar being Rituximab (the R in
FCR
).
AussieNeil
Partner
in
CLL Support
10 years ago
Update on my status 3 month post chemo (FCR)- doing well - no malignant B cells in my MRD test
Had my 3 month post
FCR
visit with my oncologist. MY numbers are all normal, neutrophils are going up, red blood cells and platelets going up since last visit 3 months ago. I feel like I did 5 years ago and am in good health.
Had my 3 month post
FCR
visit with my oncologist. MY numbers are all normal, neutrophils are going up, red blood cells and platelets going up since last visit 3 months ago. I feel like I did 5 years ago and am in good health.
Musicguy
in
CLL Support
10 years ago
1st Rituximab went like a dream
I'm not gloating, just giving heart to those yet to face
FCR
that there can be good experiences here. djg
I'm not gloating, just giving heart to those yet to face
FCR
that there can be good experiences here. djg
djgolding
in
CLL Support
10 years ago
Diagnosed Dec 2013 I have been told I need to start FCR treatment; based on blood results and mild night sweats. Otherwise I feel fine.
I would like to know if I ask to postpone treatment whether I am taking a risk. I am told early treatment is good if they can catch active cancer cells.... but during and after treatment my immunity will be further compromised. Surely it is better wait till I feel ill, or symptoms combine to make it
I would like to know if I ask to postpone treatment whether I am taking a risk. I am told early treatment is good if they can catch active cancer cells.... but during and after treatment my immunity will be further compromised. Surely it is better wait till I feel ill, or symptoms combine to make it
romarin
in
CLL Support
10 years ago
I'm looking for resources re: when/if to stop FCR, what information should the patient discuss with the medical provider? Thank you!
LAinNYC
in
CLL Support
10 years ago
Cllcanada just posted trial commencing in Mass.USA of Ibrutinib + R v FCR. Can anyone answer the question 'What has happened to the Flair T
Trial ( same drugs ) which was intended to start at Cambridge UK(possibly elsewhere) early 2014 also for previously untreated patients'?
Trial ( same drugs ) which was intended to start at Cambridge UK(possibly elsewhere) early 2014 also for previously untreated patients'?
SimplyauburnUK
in
CLL Support
10 years ago
clinical trial done at MD Anderson on Cll patients giving high doses of Curcumin c3 complex and green tea extract. Input. Anyone?
Going to ask my Oncologist if I can do this on my own while having g
fcr
treatments.
Going to ask my Oncologist if I can do this on my own while having g
fcr
treatments.
becks1111
in
CLL Support
11 years ago
iwCLL 2013: Dr. Michael Hallek Discusses Clinical Trials in Germany versus the USA and BR versus FCR
Hi friends, After a holiday break, I am back posting interviews about CLL on my blog: http://bkoffman.blogspot.com I line the way Prof. Hallek thinks about these issues Happy New Year to all. Brian
Hi friends, After a holiday break, I am back posting interviews about CLL on my blog: http://bkoffman.blogspot.com I line the way Prof. Hallek thinks about these issues Happy New Year to all. Brian
bkoffman
CLL CURE Hero
in
CLL Support
11 years ago
Musicguy's finished 6 month's treatment with FCR
Completed 6 month's of
FCR
, went well no real problems. Thanks for everyone's advice on going through chemo it really helped me prepare for treatment. Never really got sick throughout the process, just a bit of flu like symptoms, feeling very blessed.
Completed 6 month's of
FCR
, went well no real problems. Thanks for everyone's advice on going through chemo it really helped me prepare for treatment. Never really got sick throughout the process, just a bit of flu like symptoms, feeling very blessed.
Musicguy
in
CLL Support
11 years ago
I would be interested to hear if anyone else in the community has heard of any link between CLL and Osteopetrosis - "Marble Bone".
Mine developed soon after CLL was diagnosed and midway through
FCR
treatment. It would be interesting to know if it is simply coincidence, or related to CLL, or even stimulated into action by the treatment.
Mine developed soon after CLL was diagnosed and midway through
FCR
treatment. It would be interesting to know if it is simply coincidence, or related to CLL, or even stimulated into action by the treatment.
jiajia
in
CLL Support
11 years ago
Holiday Insurance - my recent finding
Background: CLL and Hypertension for me, treated with
FCR
second half 2012. Plus second person (my wife) with no declared problems. Travelling to USA for 2.5 weeks in November. Of the companies I checked no-one would do multi-trip (I think because I have two declared issues and USA).
Background: CLL and Hypertension for me, treated with
FCR
second half 2012. Plus second person (my wife) with no declared problems. Travelling to USA for 2.5 weeks in November. Of the companies I checked no-one would do multi-trip (I think because I have two declared issues and USA).
Oleboyredw-uk
in
CLL Support
11 years ago
Pneumonia vaccines -- Is there any qualified report to show GPs CLL suffers need it every 5 years?
I had 5 doses of
FCR
in 2010/11 with success.
I had 5 doses of
FCR
in 2010/11 with success.
Mick491
in
CLL Support
11 years ago
FCR versus BR in frontline CLL - Dr Sharman's comments on the upcoming German CLL10 ASH paper
Read more at: http://www.cll-nhl.com/2013/11/
fcr
-versus-br-in-front-line-cll.html Hopefully BR or even better BR+? will soon be available for those of us where
FCR
is perhaps not the better choice due to our age or other factors such as renal function and medical comorbidities. Neil
Read more at: http://www.cll-nhl.com/2013/11/
fcr
-versus-br-in-front-line-cll.html Hopefully BR or even better BR+? will soon be available for those of us where
FCR
is perhaps not the better choice due to our age or other factors such as renal function and medical comorbidities. Neil
AussieNeil
Partner
in
CLL Support
11 years ago
FCR Round One Down - 5 to go....
On my final visit to my consultant before giving the go-ahead for
FCR
, my spleen was so enlarged as to reduce my lung capacity on the left side - I literally couldn't get enough breath in, and felt as if my chest was being constantly squeezed.
On my final visit to my consultant before giving the go-ahead for
FCR
, my spleen was so enlarged as to reduce my lung capacity on the left side - I literally couldn't get enough breath in, and felt as if my chest was being constantly squeezed.
jibs60
in
CLL Support
11 years ago
Does anyone have any reliable information about ZANDOPA?
I have been on Sinemet for six years - 800 mg currently - and now that the s/e are severely impacting on my life I am keen to find a way of reducing it. In particular, the dyskinesias are getting much worse. I can't be prescribed a dopamine agonist because of ICD previously. I have received a 200g
I have been on Sinemet for six years - 800 mg currently - and now that the s/e are severely impacting on my life I am keen to find a way of reducing it. In particular, the dyskinesias are getting much worse. I can't be prescribed a dopamine agonist because of ICD previously. I have received a 200g
batwing7
in
Cure Parkinson's
11 years ago
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