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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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1st Rituximab went like a dream
I'm not gloating, just giving heart to those yet to face
FCR
that there can be good experiences here. djg
I'm not gloating, just giving heart to those yet to face
FCR
that there can be good experiences here. djg
djgolding
in
CLL Support
10 years ago
Diagnosed Dec 2013 I have been told I need to start FCR treatment; based on blood results and mild night sweats. Otherwise I feel fine.
I would like to know if I ask to postpone treatment whether I am taking a risk. I am told early treatment is good if they can catch active cancer cells.... but during and after treatment my immunity will be further compromised. Surely it is better wait till I feel ill, or symptoms combine to make it
I would like to know if I ask to postpone treatment whether I am taking a risk. I am told early treatment is good if they can catch active cancer cells.... but during and after treatment my immunity will be further compromised. Surely it is better wait till I feel ill, or symptoms combine to make it
romarin
in
CLL Support
10 years ago
I'm looking for resources re: when/if to stop FCR, what information should the patient discuss with the medical provider? Thank you!
LAinNYC
in
CLL Support
10 years ago
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Cllcanada just posted trial commencing in Mass.USA of Ibrutinib + R v FCR. Can anyone answer the question 'What has happened to the Flair T
Trial ( same drugs ) which was intended to start at Cambridge UK(possibly elsewhere) early 2014 also for previously untreated patients'?
Trial ( same drugs ) which was intended to start at Cambridge UK(possibly elsewhere) early 2014 also for previously untreated patients'?
SimplyauburnUK
in
CLL Support
10 years ago
clinical trial done at MD Anderson on Cll patients giving high doses of Curcumin c3 complex and green tea extract. Input. Anyone?
Going to ask my Oncologist if I can do this on my own while having g
fcr
treatments.
Going to ask my Oncologist if I can do this on my own while having g
fcr
treatments.
becks1111
in
CLL Support
10 years ago
iwCLL 2013: Dr. Michael Hallek Discusses Clinical Trials in Germany versus the USA and BR versus FCR
Hi friends, After a holiday break, I am back posting interviews about CLL on my blog: http://bkoffman.blogspot.com I line the way Prof. Hallek thinks about these issues Happy New Year to all. Brian
Hi friends, After a holiday break, I am back posting interviews about CLL on my blog: http://bkoffman.blogspot.com I line the way Prof. Hallek thinks about these issues Happy New Year to all. Brian
bkoffman
CLL CURE Hero
in
CLL Support
10 years ago
Musicguy's finished 6 month's treatment with FCR
Completed 6 month's of
FCR
, went well no real problems. Thanks for everyone's advice on going through chemo it really helped me prepare for treatment. Never really got sick throughout the process, just a bit of flu like symptoms, feeling very blessed.
Completed 6 month's of
FCR
, went well no real problems. Thanks for everyone's advice on going through chemo it really helped me prepare for treatment. Never really got sick throughout the process, just a bit of flu like symptoms, feeling very blessed.
Musicguy
in
CLL Support
10 years ago
I would be interested to hear if anyone else in the community has heard of any link between CLL and Osteopetrosis - "Marble Bone".
Mine developed soon after CLL was diagnosed and midway through
FCR
treatment. It would be interesting to know if it is simply coincidence, or related to CLL, or even stimulated into action by the treatment.
Mine developed soon after CLL was diagnosed and midway through
FCR
treatment. It would be interesting to know if it is simply coincidence, or related to CLL, or even stimulated into action by the treatment.
jiajia
in
CLL Support
10 years ago
Holiday Insurance - my recent finding
Background: CLL and Hypertension for me, treated with
FCR
second half 2012. Plus second person (my wife) with no declared problems. Travelling to USA for 2.5 weeks in November. Of the companies I checked no-one would do multi-trip (I think because I have two declared issues and USA).
Background: CLL and Hypertension for me, treated with
FCR
second half 2012. Plus second person (my wife) with no declared problems. Travelling to USA for 2.5 weeks in November. Of the companies I checked no-one would do multi-trip (I think because I have two declared issues and USA).
Oleboyredw-uk
in
CLL Support
10 years ago
Pneumonia vaccines -- Is there any qualified report to show GPs CLL suffers need it every 5 years?
I had 5 doses of
FCR
in 2010/11 with success.
I had 5 doses of
FCR
in 2010/11 with success.
Mick491
in
CLL Support
10 years ago
FCR versus BR in frontline CLL - Dr Sharman's comments on the upcoming German CLL10 ASH paper
Read more at: http://www.cll-nhl.com/2013/11/
fcr
-versus-br-in-front-line-cll.html Hopefully BR or even better BR+? will soon be available for those of us where
FCR
is perhaps not the better choice due to our age or other factors such as renal function and medical comorbidities. Neil
Read more at: http://www.cll-nhl.com/2013/11/
fcr
-versus-br-in-front-line-cll.html Hopefully BR or even better BR+? will soon be available for those of us where
FCR
is perhaps not the better choice due to our age or other factors such as renal function and medical comorbidities. Neil
AussieNeil
Administrator
in
CLL Support
11 years ago
FCR Round One Down - 5 to go....
On my final visit to my consultant before giving the go-ahead for
FCR
, my spleen was so enlarged as to reduce my lung capacity on the left side - I literally couldn't get enough breath in, and felt as if my chest was being constantly squeezed.
On my final visit to my consultant before giving the go-ahead for
FCR
, my spleen was so enlarged as to reduce my lung capacity on the left side - I literally couldn't get enough breath in, and felt as if my chest was being constantly squeezed.
jibs60
in
CLL Support
10 years ago
Does anyone have any reliable information about ZANDOPA?
I have been on Sinemet for six years - 800 mg currently - and now that the s/e are severely impacting on my life I am keen to find a way of reducing it. In particular, the dyskinesias are getting much worse. I can't be prescribed a dopamine agonist because of ICD previously. I have received a 200g
I have been on Sinemet for six years - 800 mg currently - and now that the s/e are severely impacting on my life I am keen to find a way of reducing it. In particular, the dyskinesias are getting much worse. I can't be prescribed a dopamine agonist because of ICD previously. I have received a 200g
batwing7
in
Cure Parkinson's
10 years ago
Has anyone had experience with cyclosporin A? My husband has pure red cell aplasia along w/cll & fcr is being suspended for cyclosporin.
LAinNYC
in
CLL Support
10 years ago
Autoimmune haemolytic anaemia - AIHA
In July I began
FCR
- the plan was for a cycle of six treatments. Following my second treatment, my haemoglobin level fell, necessitating a blood transfusion. I had my third treatment a week later than originally scheduled.
In July I began
FCR
- the plan was for a cycle of six treatments. Following my second treatment, my haemoglobin level fell, necessitating a blood transfusion. I had my third treatment a week later than originally scheduled.
School3
in
CLL Support
11 years ago
Who is Getting the IGHV (formerly known as IgVH) Mutational Status Tests in UK?
As IGHV mutational status is acknowledged to be a good indicator of likely response to
FCR
treatment, including potential clonal evolution, I'd quite like to have the test done now as I approach treatment.
As IGHV mutational status is acknowledged to be a good indicator of likely response to
FCR
treatment, including potential clonal evolution, I'd quite like to have the test done now as I approach treatment.
jibs60
in
CLL Support
11 years ago
Making Peace with FCR in the Squeezed Middle: Response to another very hopeful video from Steven Rosen
Alternatively , I could get
FCR
now whilst I still stand some chance of getting a durable remission (given that there's a 50% chance that's what I'd end up with anyway).
Alternatively , I could get
FCR
now whilst I still stand some chance of getting a durable remission (given that there's a 50% chance that's what I'd end up with anyway).
jibs60
in
CLL Support
11 years ago
I am nearly 6 months after FCR. My WBC and ALC are just below specification.
Would a FISH test (it's on my blood form) be accurate considering the low number of leukemic cells or lymphocytes?
Would a FISH test (it's on my blood form) be accurate considering the low number of leukemic cells or lymphocytes?
keepfit123
in
CLL Support
11 years ago
Extended Release Medications
I have read some posts where Extended Release medication forms such as Sinemet CR and Stalevo are being cut in half. These medications are meant to be swallowed whole as cutting them (or chewing them) defeats the purpose of the dose.....a gradual slow release of the active medication so that large "spikes
I have read some posts where Extended Release medication forms such as Sinemet CR and Stalevo are being cut in half. These medications are meant to be swallowed whole as cutting them (or chewing them) defeats the purpose of the dose.....a gradual slow release of the active medication so that large "spikes
ozepook47
in
Cure Parkinson's
10 years ago
Is Long-Term CLL Remission with FCR a Cure?
William Wierda of MD Anderson discusses the recent data releases at ASH this year Offering some interesting thoughts about some of those still in remission after 9 years post
FCR
. http://www.patientpower.info/video/is-long-term-cll-remission-with-
fcr
-a-cure?
William Wierda of MD Anderson discusses the recent data releases at ASH this year Offering some interesting thoughts about some of those still in remission after 9 years post
FCR
. http://www.patientpower.info/video/is-long-term-cll-remission-with-
fcr
-a-cure?
HAIRBEAR_UK
Administrator
in
CLL Support
11 years ago
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