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Experiences with
Fludarabine, cyclophosphamide and rituximab (FCR)
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Wendy
My husband was diagnosed in 2010 at the age of 40. 2013 he had
FCR
. 11 years later, he is in week 5 of venteclax, Rituximab to follow next month. Swollen lymph nodes have disappeared.
My husband was diagnosed in 2010 at the age of 40. 2013 he had
FCR
. 11 years later, he is in week 5 of venteclax, Rituximab to follow next month. Swollen lymph nodes have disappeared.
Fluxthecat10
in
CLL Support
5 months ago
Is it the time for initial treatment?
I'd also like to know which form of treatment would be preferable:
FCR
, oral targeted medicines,
FCR
, or anything else? I am asking you to share your experiences and information, which I will utilize to discuss with the physician. I wish you all the best. God bless you all.
I'd also like to know which form of treatment would be preferable:
FCR
, oral targeted medicines,
FCR
, or anything else? I am asking you to share your experiences and information, which I will utilize to discuss with the physician. I wish you all the best. God bless you all.
Sagarcanada
in
CLL Support
5 months ago
Allograft
In the ten yrs he's had CLL He's had
FCR
, IBRUTINIB AND VENTACLAX. Thanks
In the ten yrs he's had CLL He's had
FCR
, IBRUTINIB AND VENTACLAX. Thanks
sue6741
in
CLL Support
2 months ago
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Apparent PD on Ven
Hi I had 3 rounds
FCR
in Winter 2018 stopped for Neutropenia. My doc did NO testing for mrd or even flow. Ignorance was bliss til release 2 years later. Started V + O March 2023 for R/R.
Hi I had 3 rounds
FCR
in Winter 2018 stopped for Neutropenia. My doc did NO testing for mrd or even flow. Ignorance was bliss til release 2 years later. Started V + O March 2023 for R/R.
skipro
in
CLL Support
1 month ago
Burning tongue and metallic taste .
Had
FCR
, Ibrutinib, and Venetoclax. I am on Venetoclax now for 18 months after 6 times of V+O. A year ago I lost my taste sense and everything tastes metallic,but the worse is a burning tongue sensation. Does it have any connetion to CLL or Venetoclax ?Gidi
Had
FCR
, Ibrutinib, and Venetoclax. I am on Venetoclax now for 18 months after 6 times of V+O. A year ago I lost my taste sense and everything tastes metallic,but the worse is a burning tongue sensation. Does it have any connetion to CLL or Venetoclax ?Gidi
GIDI
in
CLL Support
5 months ago
Median PFS for FCR treated CLL patients with IGHV-M was 14.6 years vs 4.2 years for patients with IGHV-UM. V+O and I+R look to be superior
An update of the long-term follow-up results from the original 300-patient
FCR
(fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline
treatment with very-long-term follow-up, reports ~47% of patients with mutated IGHV
An update of the long-term follow-up results from the original 300-patient
FCR
(fludarabine, cyclophosphamide, and rituximab) study initiated at MD Anderson in 1999,
Sustained remissions in CLL after frontline
treatment with very-long-term follow-up, reports ~47% of patients with mutated IGHV
AussieNeil
Partner
in
CLL Support
3 months ago
CLL & skin infection
Treatment with
FCR
is imminent but only after a severe skin infection has cleared up. Dermatologist took 2 biopsies which the Pathologist reported skin infection/rash was Hypersensitive Dermatitis. I had an IV when I had a CT scan & the thought is this could be a cause.
Treatment with
FCR
is imminent but only after a severe skin infection has cleared up. Dermatologist took 2 biopsies which the Pathologist reported skin infection/rash was Hypersensitive Dermatitis. I had an IV when I had a CT scan & the thought is this could be a cause.
Happy-Daze
in
CLL Support
29 days ago
STEM CELL TRANSPLANT FINALLY SCHEDULED (WE HOPE)
As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of
FCR
, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred.
As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of
FCR
, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred.
dwolden
in
CLL Support
3 months ago
Swollen lymph node in my neck & armpit
I’ve had three courses of chemo over the years:
FCR
, twice and not sure what the third dose was (CVR?) though it didn’t work anyway. 4 yrs of Ibrutinib then 2 yrs on Venetoclex which finished in March this year. Had a bone marrow which had markers (3) of Mylodysplasia (?)
I’ve had three courses of chemo over the years:
FCR
, twice and not sure what the third dose was (CVR?) though it didn’t work anyway. 4 yrs of Ibrutinib then 2 yrs on Venetoclex which finished in March this year. Had a bone marrow which had markers (3) of Mylodysplasia (?)
Veebeegeebee
in
CLL Support
2 months ago
V + O for R/R CLL post FCR
[/u] I had 3 rounds of
FCR
in 2018 stopped because of profound neutropenia. I relapsed exactly 2 years later and though I did not start Tx until the 5 year point in 2023, would have gladly started it 9 months ealier due to B symptoms.
[/u] I had 3 rounds of
FCR
in 2018 stopped because of profound neutropenia. I relapsed exactly 2 years later and though I did not start Tx until the 5 year point in 2023, would have gladly started it 9 months ealier due to B symptoms.
skipro
in
CLL Support
4 months ago
splashsplash
UK based, CLL for 15 years, Treatments: FC,
FCR
, Ibrutinib, Venetoclax for 2.5 years, 6 month break now back on Venetoclax
UK based, CLL for 15 years, Treatments: FC,
FCR
, Ibrutinib, Venetoclax for 2.5 years, 6 month break now back on Venetoclax
splashsplash
in
CLL Support
9 months ago
Shingrix side effects
Reminds me of going through
FCR
! This is day four after the second vaccine and I’ve finally started to improve, but still pressure in my head, wobbly legs and tiredness. ☹️
Reminds me of going through
FCR
! This is day four after the second vaccine and I’ve finally started to improve, but still pressure in my head, wobbly legs and tiredness. ☹️
Mandy56
in
CLL Support
7 months ago
End of the road for PBS-available treaments for me.
Starting in 2019 I've had
FCR
, Nov 2022 splenomegaly and other leukemia symptoms so January 2023 I started on Ibrutinib, giving partial remission but with colitis side effects. Sept 2023 Zanbrutinib but with even worse colitis (diarrhrea). I chose to go back to Ibrutinib.
Starting in 2019 I've had
FCR
, Nov 2022 splenomegaly and other leukemia symptoms so January 2023 I started on Ibrutinib, giving partial remission but with colitis side effects. Sept 2023 Zanbrutinib but with even worse colitis (diarrhrea). I chose to go back to Ibrutinib.
Jotame
in
CLL Support
2 months ago
Solutions needed to manage nerve pains ( Post herpetic neuralgia ) after shingles .
Had
FCR
as first line treatment. Was on remission for about a year before relapse. Currently on Ibrutinib since 5 months now. I had shingles on my left leg about 3 months ago. Was treated with Acyclovir.
Had
FCR
as first line treatment. Was on remission for about a year before relapse. Currently on Ibrutinib since 5 months now. I had shingles on my left leg about 3 months ago. Was treated with Acyclovir.
Oldscores1
in
CLL Support
7 months ago
Venetoclax
In 2012 I got
FCR
for six rounds. After that I was stuffy and it occurred that I had heart failure because of the chemo therapy. It took me years to recover from that. In 2017 I started with Ibrutinib and stayed on that for 4 years.
In 2012 I got
FCR
for six rounds. After that I was stuffy and it occurred that I had heart failure because of the chemo therapy. It took me years to recover from that. In 2017 I started with Ibrutinib and stayed on that for 4 years.
jroon08
in
CLL Support
25 days ago
Asymptomatic Trandmission
I am on months 15 of V+ O Relapsed 2 years after 3 months
FCR
stopped due to profound neutropenia for nine months.
I am on months 15 of V+ O Relapsed 2 years after 3 months
FCR
stopped due to profound neutropenia for nine months.
skipro
in
CLL Support
4 months ago
uMRD 6
Technically, I consider myself partially treated rather than relapsed or refractory, because I only received three of the six cycles of
FCR
due to profound neutropenia. I just learned from my oncologist that I can’t get the UMRD6 test because we had no bone marrow biopsy done before treatment.
Technically, I consider myself partially treated rather than relapsed or refractory, because I only received three of the six cycles of
FCR
due to profound neutropenia. I just learned from my oncologist that I can’t get the UMRD6 test because we had no bone marrow biopsy done before treatment.
skipro
in
CLL Support
6 months ago
Chronic Lymphocytic Leukemia Therapy Guided by Measurable Residual Disease
at 3 years); results for overall survival also favored ibrutinib–venetoclax over
FCR
(98.0% vs. 93.0% at 3 years).
at 3 years); results for overall survival also favored ibrutinib–venetoclax over
FCR
(98.0% vs. 93.0% at 3 years).
Jm954
Administrator
in
CLL Support
10 months ago
Ibrutinib stopped working, what’s next
Morning all,a quick recap on journey so far,
FCR
treatment which kept things at bay for 14 months, then onto Ibrutinib for 6 years approximately, currently lymph nodes at 5cm , next treatment starts in January Rituximab and Ventoclax for 2 years, just wondering if there are any alternatives?
Morning all,a quick recap on journey so far,
FCR
treatment which kept things at bay for 14 months, then onto Ibrutinib for 6 years approximately, currently lymph nodes at 5cm , next treatment starts in January Rituximab and Ventoclax for 2 years, just wondering if there are any alternatives?
Stacky66
in
CLL Support
9 months ago
Epithelial Haemangiendothelioma - has anyone else been diagnosed with this rare cancer please?
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with
FCR
from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018.
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with
FCR
from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018.
alipali
in
CLL Support
7 months ago
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