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Factor X deficiency
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ECG Results
Good news my ECG results are good but GP is still concerned as my heart rate is still slower than they would like so appointment to see GP in a couple of weeks for examination and he said may also have a 24 hour monitor fitted and if that doesn't yield results will need chest x-ray also he said move
Good news my ECG results are good but GP is still concerned as my heart rate is still slower than they would like so appointment to see GP in a couple of weeks for examination and he said may also have a 24 hour monitor fitted and if that doesn't yield results will need chest x-ray also he said move
Coopergirl52
in
British Heart Foundation
1 year ago
interesting find
has anyone tried grass fed beef liver supplements. I’m wondering if these freeze dried capsules would be beneficial because of the vitamins and minerals in them as I don't seem to be able to keep my levels of anything up without supplementing. As soon as I stop they seem to drop again quite quickly ,
has anyone tried grass fed beef liver supplements. I’m wondering if these freeze dried capsules would be beneficial because of the vitamins and minerals in them as I don't seem to be able to keep my levels of anything up without supplementing. As soon as I stop they seem to drop again quite quickly ,
Thrones12
in
Pernicious Anaemia Society
1 year ago
Can GPs only test thyroid once a year?
I've had a really irritated (not sore) windpipe and what I term low battery (no power in my muscles) for the past week and finally plucked up courage to battle GP system and report my issue. I've become 'aware' of my front throat area (thyroid) and can now feel it ifkwim. I've got a terrible irritated
I've had a really irritated (not sore) windpipe and what I term low battery (no power in my muscles) for the past week and finally plucked up courage to battle GP system and report my issue. I've become 'aware' of my front throat area (thyroid) and can now feel it ifkwim. I've got a terrible irritated
Flaxjax
in
Thyroid UK
1 year ago
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Iron Deficiency Without Anemia (IDWA)
In my "I'm Alive!" post yesterday I discussed my crashing with effectively no iron in my system with a condition called Iron Deficiency Without Anemia (IDWA). As promised here is a more detail discussion of that condition that anyone with autoimmune PA/AIG should keep their eye on. Knowing that iron
In my "I'm Alive!" post yesterday I discussed my crashing with effectively no iron in my system with a condition called Iron Deficiency Without Anemia (IDWA). As promised here is a more detail discussion of that condition that anyone with autoimmune PA/AIG should keep their eye on. Knowing that iron
Rexz
in
Pernicious Anaemia Society
1 year ago
castor, oil patch
hi was wondering if anyone has ever done this it keeps popping up on my phone that it reduces inflammation and detox his liver. I’m not sure if we can do this being on pegasys just interested if anyone has done this
hi was wondering if anyone has ever done this it keeps popping up on my phone that it reduces inflammation and detox his liver. I’m not sure if we can do this being on pegasys just interested if anyone has done this
Nc3500
in
MPN Voice
1 year ago
Cystocele/Rectocele repair all done
I'm almost 6 weeks after my repair surgery. Recovery not to bad. First two weeks I was warned were crucial and told not to do anything except rest, which I did. Luckily we had hot sunny weather so I literally layed outside sunbathing in-between medication, meals and sleeping. No pain as I kept taking
I'm almost 6 weeks after my repair surgery. Recovery not to bad. First two weeks I was warned were crucial and told not to do anything except rest, which I did. Luckily we had hot sunny weather so I literally layed outside sunbathing in-between medication, meals and sleeping. No pain as I kept taking
Jasparswim
in
Pelvic Pain Support Network
1 year ago
biologics
just had an appointment to Rheumatologist that was scheduled for last October but cancelled three times. After complaining with pain issues got an appointment and rheumatology has suggested I add Adalimumab to my methotrexate 25 mg injections . Did bloods and chest X-ray whilst I was there. I have
just had an appointment to Rheumatologist that was scheduled for last October but cancelled three times. After complaining with pain issues got an appointment and rheumatology has suggested I add Adalimumab to my methotrexate 25 mg injections . Did bloods and chest X-ray whilst I was there. I have
Amb1xkr
in
NRAS
1 year ago
everyday a massive stuggle
I’m struggling so badly with my mental health which in turn affects my physical health. I’m in such a vicious circle and don’t know how to deal with it. I’ve posted so many time and I’m sure I’m getting on everybody’s nerves because I’m getting on my own nerves. Another trip to A&E on Saturday night
I’m struggling so badly with my mental health which in turn affects my physical health. I’m in such a vicious circle and don’t know how to deal with it. I’ve posted so many time and I’m sure I’m getting on everybody’s nerves because I’m getting on my own nerves. Another trip to A&E on Saturday night
Cimmy
in
Anxiety and Depression Support
1 year ago
Sourcing advice please
Hi I went to my GP in April with this problem. My GP practice give you forms for self booking for Rheumatology at choice of 2 hospitals. Both have no appointments available. I rang and was told 18 to 34 week wait but even then you have to go on a waiting list to get the appointment before that. I booked
Hi I went to my GP in April with this problem. My GP practice give you forms for self booking for Rheumatology at choice of 2 hospitals. Both have no appointments available. I rang and was told 18 to 34 week wait but even then you have to go on a waiting list to get the appointment before that. I booked
Wonderfullifeandmore
in
PMRGCAuk
1 year ago
Iron tabs.help
Hi fellow suffererers, I've just been reading the posts re.Iron supplements. I take two Gentle Iron 20mg every other night, I notice that the first ingredient listed on the bottle is a Bulking Agent(Microcrystalline Cellulose),I was wondering if I can purchase a Gentle Iron without any Bulking Agent,
Hi fellow suffererers, I've just been reading the posts re.Iron supplements. I take two Gentle Iron 20mg every other night, I notice that the first ingredient listed on the bottle is a Bulking Agent(Microcrystalline Cellulose),I was wondering if I can purchase a Gentle Iron without any Bulking Agent,
Whymelord
in
Restless Legs Syndrome
1 year ago
Does anyone use ‘Active Iron’ in UK?
I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron 25mg. I’ve now received it and found it contains ferrous sulfate 25mg! Now I don’t know if this is the right product or dose. Can anyone help?
I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron 25mg. I’ve now received it and found it contains ferrous sulfate 25mg! Now I don’t know if this is the right product or dose. Can anyone help?
Dires
in
Restless Legs Syndrome
1 year ago
Pmr for 2nd time!
Hi, just a question for Members who have had PMR twice. Where your symptoms exactly the same the second time. I am feeling very poorly at the moment and am banging my head up against the wall with my Doctor. I feel as if it is PMR again. My ESR is 32. The only difference this time is that my fingers
Hi, just a question for Members who have had PMR twice. Where your symptoms exactly the same the second time. I am feeling very poorly at the moment and am banging my head up against the wall with my Doctor. I feel as if it is PMR again. My ESR is 32. The only difference this time is that my fingers
Attic
in
PMRGCAuk
1 year ago
Iron supplements dosage
Is 20mg of gentle iron each night enough? It worked well the first night. What a wonderful relief it was. The second night it did work within 70 mins but returned within 3 hours.. I wonder why it didn't last as long? Would a slow release be better, like ferrous sulphate 325mg? Or will it need to be
Is 20mg of gentle iron each night enough? It worked well the first night. What a wonderful relief it was. The second night it did work within 70 mins but returned within 3 hours.. I wonder why it didn't last as long? Would a slow release be better, like ferrous sulphate 325mg? Or will it need to be
pennygates
in
Restless Legs Syndrome
1 year ago
Minoxidil
As most of you can relate to, I have given up so much in my life due to RLS. Every possible RLS trigger is in fact a trigger for me. I have given up HRT, SSRIs, statins, caffeine, alcohol, spicy foods (I used to put fresh jalapeno peppers on EVERYTHING), sugar, all processed foods, most carbs, and the
As most of you can relate to, I have given up so much in my life due to RLS. Every possible RLS trigger is in fact a trigger for me. I have given up HRT, SSRIs, statins, caffeine, alcohol, spicy foods (I used to put fresh jalapeno peppers on EVERYTHING), sugar, all processed foods, most carbs, and the
Birdland
in
Restless Legs Syndrome
1 year ago
PA in a child?
Does anybody have any experience of PA in children? My almost 6 year old daughter has been suffering with mouth ulcers for the past 6 months and I’m just wondering if she might have PA? I was diagnosed at 23 (now 40). My sister, brother and nephew (14) have recently tested positive for intrinsic factor
Does anybody have any experience of PA in children? My almost 6 year old daughter has been suffering with mouth ulcers for the past 6 months and I’m just wondering if she might have PA? I was diagnosed at 23 (now 40). My sister, brother and nephew (14) have recently tested positive for intrinsic factor
Murfie276
in
Pernicious Anaemia Society
1 year ago
Covid and the NHS
Late april this year I contracted Covid again (previous time was just before the first lockdown). I slept for 4 days feeling cold and exhausted with lack of appetite I lost a stone in weight in 4 weeks. It did not seem to effect my chest so much this time (I have emphysema) but here I am 6 weeks later
Late april this year I contracted Covid again (previous time was just before the first lockdown). I slept for 4 days feeling cold and exhausted with lack of appetite I lost a stone in weight in 4 weeks. It did not seem to effect my chest so much this time (I have emphysema) but here I am 6 weeks later
Daisytime
in
Lung Conditions Community Forum
1 year ago
Has anyone ever had an Iron infusion?
Having suffered from underactive thyroid for years and taking Levothyroxine with mixed results, I also suffer from low iron and ferritin and Vitamin D. I find it hard to get my levels of iron up despite eating red meat and green veg and supplementing, and wondered if anyone had tried an iron infusion
Having suffered from underactive thyroid for years and taking Levothyroxine with mixed results, I also suffer from low iron and ferritin and Vitamin D. I find it hard to get my levels of iron up despite eating red meat and green veg and supplementing, and wondered if anyone had tried an iron infusion
doingitfordad
in
Thyroid UK
1 year ago
Blood results
Hi, i have now received my blood results and would like some advice please Sue/Jools. Transferrin Saturation 44% Serum Iron 25umol/l (normal 14-29) Serum Transferrin 2.28g/l Serum Ferritin 50 I hopefully have an appointment today
Hi, i have now received my blood results and would like some advice please Sue/Jools. Transferrin Saturation 44% Serum Iron 25umol/l (normal 14-29) Serum Transferrin 2.28g/l Serum Ferritin 50 I hopefully have an appointment today
Dires
in
Restless Legs Syndrome
1 year ago
fobbed off by Drs
ok, so wrote letter to practice manager quoting and linking the NICE protocol for B12…get a call from a dr saying “Your B12 is in range and take supplements not retesting you til october” I tried to explain my intrinsic factor was 2.2Au/l The reference for positive PA is 1.53 Au/l but not according
ok, so wrote letter to practice manager quoting and linking the NICE protocol for B12…get a call from a dr saying “Your B12 is in range and take supplements not retesting you til october” I tried to explain my intrinsic factor was 2.2Au/l The reference for positive PA is 1.53 Au/l but not according
Bumblebee02
in
Pernicious Anaemia Society
1 year ago
Long Shot
morning all, so I know this is not the place to seek medical answers but I’m more after anyone who has experienced similar and what was the outcome. I’ll try to keep it brief, 40 year old fit and we’ll slightly overweight non smoker, social drinker. Mid April following bouts of chest pain taken to
morning all, so I know this is not the place to seek medical answers but I’m more after anyone who has experienced similar and what was the outcome. I’ll try to keep it brief, 40 year old fit and we’ll slightly overweight non smoker, social drinker. Mid April following bouts of chest pain taken to
Echo24uk
in
British Heart Foundation
1 year ago
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