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Experiences with
Factor X deficiency
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Stop Prednisone completely?
I was diagnosed with PMR about one year ago and placed on 13mg of P. It hit me most in the shoulders and hips: e.g., I could not pull up my trousers because the action of doing so naturally moves your elbows towards the rear of the center line of one's body and that caused great pain. Could also
I was diagnosed with PMR about one year ago and placed on 13mg of P. It hit me most in the shoulders and hips: e.g., I could not pull up my trousers because the action of doing so naturally moves your elbows towards the rear of the center line of one's body and that caused great pain. Could also
Mansplainer101
in
PMRGCAuk
11 months ago
Intrinsic factor antibody
I'm posting on here as I been advised to. I've just been back to my GP because I had a blood test done the other week for intrinsic factor antibody. I had a result of 3.66 which I thought was positive but my GP just said it's negative ? I had the test done because my vitamins b12 is 211.
I'm posting on here as I been advised to. I've just been back to my GP because I had a blood test done the other week for intrinsic factor antibody. I had a result of 3.66 which I thought was positive but my GP just said it's negative ? I had the test done because my vitamins b12 is 211.
suzybear
in
Pernicious Anaemia Society
11 months ago
Intrinsic factor antibodys
Hi I recently had bloods done at GP which one of them was b12. It came back as no action required but I told GP that I think it still to low at 211.. range (180-800) she said about doing another test that might effect the absorbtion of b12 intrinsic factor antibody. My result was 3.66. was prescribed
Hi I recently had bloods done at GP which one of them was b12. It came back as no action required but I told GP that I think it still to low at 211.. range (180-800) she said about doing another test that might effect the absorbtion of b12 intrinsic factor antibody. My result was 3.66. was prescribed
suzybear
in
Thyroid UK
11 months ago
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Correct me if I am wrong. Please
There are four forms of cobalamin commercially available for injection. Cynocabalamin which in tests of a non cobalamin deficient human has been tested for retention times. There is no comparative testing of the efficacy of Cynocabalamin versus other forms including no test of the effect on symptoms
There are four forms of cobalamin commercially available for injection. Cynocabalamin which in tests of a non cobalamin deficient human has been tested for retention times. There is no comparative testing of the efficacy of Cynocabalamin versus other forms including no test of the effect on symptoms
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
Au/ml help
The range for intrinsic factor test result is any result below 1.21u/ml (negative )and above 1.53u/ml (positive). I was informed my result was 1.63. Yes, no measurements of u/ml. When I asked for B12 injections (local GP Wales) as I believed I'd proved I was deficient by these tests coming back high
The range for intrinsic factor test result is any result below 1.21u/ml (negative )and above 1.53u/ml (positive). I was informed my result was 1.63. Yes, no measurements of u/ml. When I asked for B12 injections (local GP Wales) as I believed I'd proved I was deficient by these tests coming back high
AlmWales
in
Pernicious Anaemia Society
11 months ago
Examining the Pathology of the Parietal cells
Just read from a post by Rexz , that in the U.S.A. a diagnosis of Pernicious Anaemia can be confirmed by examining the pathology of the parietal cells .( by endoscopic ultra-sound ) This seems an excellent method for confirming such a serious condition as P.A.Which can lead to serious health problems
Just read from a post by Rexz , that in the U.S.A. a diagnosis of Pernicious Anaemia can be confirmed by examining the pathology of the parietal cells .( by endoscopic ultra-sound ) This seems an excellent method for confirming such a serious condition as P.A.Which can lead to serious health problems
wedgewood
in
Pernicious Anaemia Society
11 months ago
Correctly written prescription...do they exist? 🫤
My pharmacist requested that I get my prescription altered to state Vencamil now that Aristo has been dropped by Alliance to stave of future confusion ( it currently mentions both)... I did say that I had tried in the past to get it named but they say that they can't... So I spoke with the Surgery and
My pharmacist requested that I get my prescription altered to state Vencamil now that Aristo has been dropped by Alliance to stave of future confusion ( it currently mentions both)... I did say that I had tried in the past to get it named but they say that they can't... So I spoke with the Surgery and
TiggerMe
in
Thyroid UK
1 year ago
Good news re. blood tests
Good evening , Well the good news is I have had blood test results today and there is improvement in the haemoglobin, now normal and normal white cell count also normal ! Several of the other results which were abnormal seem to have settled down. Red platelet count is still quite high 479 and
Good evening , Well the good news is I have had blood test results today and there is improvement in the haemoglobin, now normal and normal white cell count also normal ! Several of the other results which were abnormal seem to have settled down. Red platelet count is still quite high 479 and
gillsky8
in
PMRGCAuk
1 year ago
Do I have P.A
Hi,good day all,I am confused whether I have P.A.or not.My intrinsic factor test came back as negative but reading other people's post I am not sure is that the test that determines whether you have P.A.or not...In a nutshell what is the test that determines whether you have P.A or not..thanks
Hi,good day all,I am confused whether I have P.A.or not.My intrinsic factor test came back as negative but reading other people's post I am not sure is that the test that determines whether you have P.A.or not...In a nutshell what is the test that determines whether you have P.A or not..thanks
Ralphylyn123
in
Pernicious Anaemia Society
1 year ago
Depression and PA
HelloI started the PA journey in 2021, positive intrinsic factor and gastric parietal cell antibodies. I am hypothyroid. I thought my low mood would resolve after starting injections and at first it seemed to. I was taking B1 and B2, but stopped. I'm not sure that stopping the extra Bs has caused the
HelloI started the PA journey in 2021, positive intrinsic factor and gastric parietal cell antibodies. I am hypothyroid. I thought my low mood would resolve after starting injections and at first it seemed to. I was taking B1 and B2, but stopped. I'm not sure that stopping the extra Bs has caused the
Aumshantii
in
Pernicious Anaemia Society
1 year ago
Taking Metformin?
This MHRA advice was published last year: [i]
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
[/i] [i]Decreased vitamin B12 levels, or vitamin B12 deficiency, is now considered to be a common side effect in patients on metformin treatment, especially in those
This MHRA advice was published last year: [i]
Metformin and reduced vitamin B12 levels: new advice for monitoring patients at risk
[/i] [i]Decreased vitamin B12 levels, or vitamin B12 deficiency, is now considered to be a common side effect in patients on metformin treatment, especially in those
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Iron results help
Good Morning, i had these done this week by medichecks as my gp only does ferritin and that goes up and down too much i cant use that to see how im at with my actual iron stores which i believe im lacking as my diet hardly contains iron rich foods especially this year my ferritin test by my Gp June
Good Morning, i had these done this week by medichecks as my gp only does ferritin and that goes up and down too much i cant use that to see how im at with my actual iron stores which i believe im lacking as my diet hardly contains iron rich foods especially this year my ferritin test by my Gp June
Nellie2016
in
Thyroid UK
1 year ago
Overdosing bisoprolol- can anyone offer advice?
I don’t know whether it is where I live ( the NW) but I really struggle to get appropriate treatment. Anyway I picked up my meds on Saturday. Opened them in the car and noticed my bisoprolol was suddenly in 5 mg tablets not 2.5 mg. I went back into the pharmacy to be told that I have been on 5 mg tablets
I don’t know whether it is where I live ( the NW) but I really struggle to get appropriate treatment. Anyway I picked up my meds on Saturday. Opened them in the car and noticed my bisoprolol was suddenly in 5 mg tablets not 2.5 mg. I went back into the pharmacy to be told that I have been on 5 mg tablets
Rhiannonimity1
in
AF Association
11 months ago
Chemorads/Brachytherapy late side effects
Just wondering if anyone else experiencing the same? I’m now 4.5 years out of Chemorad treatment with all clear scans. (Stage 2B early advanced squamous cell) Since early part of this year I’ve had stinging in my rib cage, and occasionally pain in the bones of my pelvis (dull ache) pretty similar to
Just wondering if anyone else experiencing the same? I’m now 4.5 years out of Chemorad treatment with all clear scans. (Stage 2B early advanced squamous cell) Since early part of this year I’ve had stinging in my rib cage, and occasionally pain in the bones of my pelvis (dull ache) pretty similar to
Derry71
in
Pelvic Radiation Disease Association
11 months ago
iron supplements
hello just enquiring if you think I should take iron supplements, my serum iron was 10 (5.83/34.5) it has now gone up a bit to 13.6 same range,saturated 20% folate 3.3 (3/26-8) drs say everything is fine I do get restless leg syndrome and am on ropinerole but have started getting it in the daytime as
hello just enquiring if you think I should take iron supplements, my serum iron was 10 (5.83/34.5) it has now gone up a bit to 13.6 same range,saturated 20% folate 3.3 (3/26-8) drs say everything is fine I do get restless leg syndrome and am on ropinerole but have started getting it in the daytime as
Kowbie
in
Pernicious Anaemia Society
1 year ago
RSL - has anyone had severe side effects
hi all it’s me again regarding the horrible time my husband and I have went through due to the side affects of in our case pramixepole , or any other dopamine agonist which may have affected you. I am not looking to sue anyone although many many cases have been taken to court in the USA and Canada but
hi all it’s me again regarding the horrible time my husband and I have went through due to the side affects of in our case pramixepole , or any other dopamine agonist which may have affected you. I am not looking to sue anyone although many many cases have been taken to court in the USA and Canada but
Paul2905
in
Restless Legs Syndrome
1 year ago
Iron Bisglycinate
I have been taking Nutravita iron bisglycinate 28mg x 2 tabs on alternate days for 3 1/2 months. My ferritin levels were originally 50 and have only risen to 67. I’m confused about the dose of the iron. Is 28mg of iron bisglycinate equivalent to 28mg elemental iron? Sue said the two tablets (equaling
I have been taking Nutravita iron bisglycinate 28mg x 2 tabs on alternate days for 3 1/2 months. My ferritin levels were originally 50 and have only risen to 67. I’m confused about the dose of the iron. Is 28mg of iron bisglycinate equivalent to 28mg elemental iron? Sue said the two tablets (equaling
Dires
in
Restless Legs Syndrome
1 year ago
Oral Iron supplements, doing it wrong!
Well, I got my full blood test back and after some analysis, I think I messed up. I have been supplementing daily with 36 milligrams of ferrous bisglysinate. Here are my lab results that concern me. Ferritin was 72! This is my lowest since my infusion in 2016. Eight weeks after my infusion
Well, I got my full blood test back and after some analysis, I think I messed up. I have been supplementing daily with 36 milligrams of ferrous bisglysinate. Here are my lab results that concern me. Ferritin was 72! This is my lowest since my infusion in 2016. Eight weeks after my infusion
WideBody
in
Restless Legs Syndrome
1 year ago
This is me
I am a 60 year old female I have been type 2 diabetic for 12 years was diet controlled until 3 years ago was put on Sitagliptin and later dapagliflozin was added but this was stopped due to side effects In April this year I was diagnosed with Coronary artery disease I have had all the usual tests CT
I am a 60 year old female I have been type 2 diabetic for 12 years was diet controlled until 3 years ago was put on Sitagliptin and later dapagliflozin was added but this was stopped due to side effects In April this year I was diagnosed with Coronary artery disease I have had all the usual tests CT
Arghhwhatnext
in
British Heart Foundation
11 months ago
8 months on pred - Update from recent bloods
I saw the nice lady GP today about my recent blood results from 5 Sept 2023: CRP less than 5 mg/l ERS 14 mm/h Rheumatoid factor less than 10 iu/ml Anti-nuclear factor negative (less than 1/100) Iron, B12, folate and Vit D levels OK. T4 and TSH normal Hb a1c 39 mmol/mol - so 9 months pred hasn't
I saw the nice lady GP today about my recent blood results from 5 Sept 2023: CRP less than 5 mg/l ERS 14 mm/h Rheumatoid factor less than 10 iu/ml Anti-nuclear factor negative (less than 1/100) Iron, B12, folate and Vit D levels OK. T4 and TSH normal Hb a1c 39 mmol/mol - so 9 months pred hasn't
Gimme
in
PMRGCAuk
1 year ago
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