Search
Search
About
Log in
Join
Experiences with
Factor X deficiency
Posts
Communities
4,865 public posts
Filter results
Thyroid levels advice for friend with newly dx Hashi and P.A please?
Hi, a friend has been supporting me in getting a Pernicious Anaemia diagnosis, as she also has it. She also has a recent Hashimoto's dx (like me, plus I'm hypothyroid too) but I've been trying to help her with it as it's all very new and overwhelming and she's been really ill with P.A for a long time
Hi, a friend has been supporting me in getting a Pernicious Anaemia diagnosis, as she also has it. She also has a recent Hashimoto's dx (like me, plus I'm hypothyroid too) but I've been trying to help her with it as it's all very new and overwhelming and she's been really ill with P.A for a long time
Opal79
in
Thyroid UK
1 year ago
Am I really lacking B12?
I was diagnosed with PA around 2018, I had the camera down which confirmed atrophic gastritis, I had positive tests for anti parietal cells and intrinsic factor; so classic PA. My B12 levels were around 300 at the time and not considered low but i was given loading doses and monthly injections. However
I was diagnosed with PA around 2018, I had the camera down which confirmed atrophic gastritis, I had positive tests for anti parietal cells and intrinsic factor; so classic PA. My B12 levels were around 300 at the time and not considered low but i was given loading doses and monthly injections. However
expatkerry
in
Pernicious Anaemia Society
1 year ago
Provisional diagnosis...does it sound like allergic asthma?
Is daily, chronic phlegm a feature that many people here experience with asthma? I have a provisional asthma diagnosis from GP, and have been on the lowest dose of reliever and preventer inhalers for three months. I am also taking an antihistamine (allergic to pet dander- I have two pets and have done
Is daily, chronic phlegm a feature that many people here experience with asthma? I have a provisional asthma diagnosis from GP, and have been on the lowest dose of reliever and preventer inhalers for three months. I am also taking an antihistamine (allergic to pet dander- I have two pets and have done
IrisLion
in
Asthma Community Forum
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Positive IFA, Negative Parietal Cell, B-12 injections affect IFA test
Hello, I recently tested positive for intrinsic factor blocking antibody but the result of my parietal cell antibody test was negative. I’m curious if other members have had this same experience? My doctors have suspected a PA diagnosis for several years. An IFA test about five years ago produced
Hello, I recently tested positive for intrinsic factor blocking antibody but the result of my parietal cell antibody test was negative. I’m curious if other members have had this same experience? My doctors have suspected a PA diagnosis for several years. An IFA test about five years ago produced
mcg-woo
in
Pernicious Anaemia Society
1 year ago
Advice on test results
Hi I'm new here and after a bit of advice please. I was diagnosed with hypothyroidism about 20 years ago (I was 22at the time) and have been on 75 mcg levothyroxine for most of that time.Since diagnosis I have continued to suffer with fatigue, depression, brain fog, and in the past 10 years neurological
Hi I'm new here and after a bit of advice please. I was diagnosed with hypothyroidism about 20 years ago (I was 22at the time) and have been on 75 mcg levothyroxine for most of that time.Since diagnosis I have continued to suffer with fatigue, depression, brain fog, and in the past 10 years neurological
Lita22
in
Thyroid UK
1 year ago
Blood results
HiI'm just looking some advice on recent NHS b12 and folate results: B12 284 (197-779) Folate. 4.6 (3-26) Of course GP receptionist said all 'normal " on phone but I have asked for a print out of results and will pick them up tomorrow. I had asked my GP if I could be tested for intrinsic factor
HiI'm just looking some advice on recent NHS b12 and folate results: B12 284 (197-779) Folate. 4.6 (3-26) Of course GP receptionist said all 'normal " on phone but I have asked for a print out of results and will pick them up tomorrow. I had asked my GP if I could be tested for intrinsic factor
Hollybushroad
in
Pernicious Anaemia Society
1 year ago
Blue Horizon Results - High Cortisol
Hi, I have just received my results, I took the blood test as I am experiencing symptoms which are not normal for me. Hashimotos is common within my family but I have never had any blood tests which show I have any thyroid issue. I do have PA and self inject - I have the intrinsic factor missing and
Hi, I have just received my results, I took the blood test as I am experiencing symptoms which are not normal for me. Hashimotos is common within my family but I have never had any blood tests which show I have any thyroid issue. I do have PA and self inject - I have the intrinsic factor missing and
Filsmoos
in
Thyroid UK
1 year ago
Storm in a teacup.
On Tuesday I had overnight chest pain - hx of unstable angina which cardiologist thinks may be small vessel angina, but has not investigated yet. It all started after AVR went wrong 4 years ago, I suffered circulatory collapse post surgery and needed an emergency triple by pass. I ended up with
On Tuesday I had overnight chest pain - hx of unstable angina which cardiologist thinks may be small vessel angina, but has not investigated yet. It all started after AVR went wrong 4 years ago, I suffered circulatory collapse post surgery and needed an emergency triple by pass. I ended up with
francesw47
in
British Heart Foundation
1 year ago
PPI complications
I've now had my endoscopy. I wanted to find out what state my stomach was in after taking PPIs (Omeprazol) for over 5 years and an H2 Blocker for 15 years before that (the now withdrawn Ranitidine of carcinogenic fame). What the endoscopy revealed were fundic polyps which are 'accepted' as a standard
I've now had my endoscopy. I wanted to find out what state my stomach was in after taking PPIs (Omeprazol) for over 5 years and an H2 Blocker for 15 years before that (the now withdrawn Ranitidine of carcinogenic fame). What the endoscopy revealed were fundic polyps which are 'accepted' as a standard
Orchard33
in
IBS Network
1 year ago
Hi Yet Another Update
Good morning, yes another update quick recap, awaiting blood and X-ray results before staring MTX. Yesterday the rheumy’s secretary emailed me as follows. Bloods ok. X-rays ok to start MTX chest X-ray clear showed no lesions. WHAT I didn’t have a chest X-ray I even asked the radiologist a chest X-ray
Good morning, yes another update quick recap, awaiting blood and X-ray results before staring MTX. Yesterday the rheumy’s secretary emailed me as follows. Bloods ok. X-rays ok to start MTX chest X-ray clear showed no lesions. WHAT I didn’t have a chest X-ray I even asked the radiologist a chest X-ray
Wonderfullifeandmore
in
PMRGCAuk
1 year ago
Your thyroid and iron deficiency stories, please
My ferritin is now 7. (Safe levels being 13 and above). Haemoglobin is 114 (Safe levels used to be 120 and above but now all of a sudden are 115. Surely just a coincidence that it’s women who experience lower iron levels, as a rule. Surely). MCHC, transferrin, serum iron etc all out of whack, too
My ferritin is now 7. (Safe levels being 13 and above). Haemoglobin is 114 (Safe levels used to be 120 and above but now all of a sudden are 115. Surely just a coincidence that it’s women who experience lower iron levels, as a rule. Surely). MCHC, transferrin, serum iron etc all out of whack, too
HowNowWhatNow
in
Thyroid UK
1 year ago
Vitamins
Hi allI posted here last week my vitamin test results from medichecks. My active B12 and folate were low so as per advice on the forum I have held off supplementing until my GP tests for pernicious anaemia. My mother had PA and I certainly do have some symptoms of B12 deficiency. I'm due to get my bloods
Hi allI posted here last week my vitamin test results from medichecks. My active B12 and folate were low so as per advice on the forum I have held off supplementing until my GP tests for pernicious anaemia. My mother had PA and I certainly do have some symptoms of B12 deficiency. I'm due to get my bloods
Hollybushroad
in
Thyroid UK
1 year ago
One week on
hi everybody, tomorrow it is a week since I saw my new Rheumy who diagnosed Inflammatory arthritis gave me a methylprednisolone injection and ordered lots of X rays and blood tests which I haven’t had results back from as yet. He never ordered a chest X-ray but as I had one 3 weeks ago which showed
hi everybody, tomorrow it is a week since I saw my new Rheumy who diagnosed Inflammatory arthritis gave me a methylprednisolone injection and ordered lots of X rays and blood tests which I haven’t had results back from as yet. He never ordered a chest X-ray but as I had one 3 weeks ago which showed
Wonderfullifeandmore
in
PMRGCAuk
1 year ago
Ectopic beats and sinus tachycardia
Hi all! I wondered if anyone has ever experienced what I have, for years I have had ectopic beats with no other symptoms. 6 weeks ago I went to bed with ectopics, didn’t take much notice as it happens most days, suddenly I woke in the middle of the night feeling out of breathe and very weak a feeling
Hi all! I wondered if anyone has ever experienced what I have, for years I have had ectopic beats with no other symptoms. 6 weeks ago I went to bed with ectopics, didn’t take much notice as it happens most days, suddenly I woke in the middle of the night feeling out of breathe and very weak a feeling
Klllls
in
British Heart Foundation
1 year ago
Breathlessness
hi everyone, I wonder if I could have some advice! I’m having what I assume is a lupus flare (although my pain isn’t as bad as it sometimes gets), my main issue is over the last week I’ve become increasingly breathless. My blood pressure, pulse rate and blood oxygen is all normal. I have no temperature
hi everyone, I wonder if I could have some advice! I’m having what I assume is a lupus flare (although my pain isn’t as bad as it sometimes gets), my main issue is over the last week I’ve become increasingly breathless. My blood pressure, pulse rate and blood oxygen is all normal. I have no temperature
Alexia01
in
LUPUS UK
1 year ago
serum iron
While seeing a Dr at Leicester hospital I was asked to have a blood test, it wasn’t a fasting one. I have just had a letter, my serum iron was 12 there is no mention of anything else. The registrar has written “ Low iron can make restless legs worse and therefore I would be grateful if you could investigate
While seeing a Dr at Leicester hospital I was asked to have a blood test, it wasn’t a fasting one. I have just had a letter, my serum iron was 12 there is no mention of anything else. The registrar has written “ Low iron can make restless legs worse and therefore I would be grateful if you could investigate
Elsie77
in
Restless Legs Syndrome
1 year ago
Clarification of blood results
Hi Could anyone give me some clarity on my anaemia test results received today. Test was done by Monitor My Health but no reference ranges included so all components just say "normal" which is very uninformative and irritating. I know from this forum results need to be optimal. Results: Haemoglobin 128g
Hi Could anyone give me some clarity on my anaemia test results received today. Test was done by Monitor My Health but no reference ranges included so all components just say "normal" which is very uninformative and irritating. I know from this forum results need to be optimal. Results: Haemoglobin 128g
Hollybushroad
in
Thyroid UK
1 year ago
Uncertain PMR or EORA?
Good morning, My first visit to see the Rheumatologist referred by GP and taking Naproxen for three months. Hip pain much better but not doing much walking, shoulders heavy with impaired mobility and last four weeks hands stiff and tight feeling. ESR was 50 in March, 76 in April. CRP was 22 March
Good morning, My first visit to see the Rheumatologist referred by GP and taking Naproxen for three months. Hip pain much better but not doing much walking, shoulders heavy with impaired mobility and last four weeks hands stiff and tight feeling. ESR was 50 in March, 76 in April. CRP was 22 March
Woollyback1
in
PMRGCAuk
1 year ago
Iron low
Hello, I just got back my blood work test and the iron read a little low, so I was wondering if anyone else here on the panel with pernicious anemia has had low iron. My iron binding is within range. Iron level is in range but iron percent transferring saturation is reading slightly low
Hello, I just got back my blood work test and the iron read a little low, so I was wondering if anyone else here on the panel with pernicious anemia has had low iron. My iron binding is within range. Iron level is in range but iron percent transferring saturation is reading slightly low
25092
in
Pernicious Anaemia Society
1 year ago
blood test back - any thoughts?
So now I am off all my meds, and started taking 200mg iron a night a month ago, my ferritin level just came back as 80, which I was quite surprised. The last one in 2020 was over 120. Should I double the dose and split it through the day or take 2 tabs before bed? Also my white blood count came back
So now I am off all my meds, and started taking 200mg iron a night a month ago, my ferritin level just came back as 80, which I was quite surprised. The last one in 2020 was over 120. Should I double the dose and split it through the day or take 2 tabs before bed? Also my white blood count came back
Phantom38
in
Restless Legs Syndrome
1 year ago
1
...
24
25
26
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
1172 results
Thyroid UK
1001 results
Lung Conditions Community Forum
435 results
View top 10 communities
Sort by
Most Relevant
Newest