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Factor X deficiency
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Bright yellow urine, Flank pain, Flakes in urine
Hello, I have not been diagnosed with kidney disease, and actually do not think that what I have is primarily kidney disease - although the kidneys seem to be involved. I am posting my story here (or, some of it - since it is quite long and involved) in case anyone may have some advice for me, or if
Hello, I have not been diagnosed with kidney disease, and actually do not think that what I have is primarily kidney disease - although the kidneys seem to be involved. I am posting my story here (or, some of it - since it is quite long and involved) in case anyone may have some advice for me, or if
Polaris_Ab
in
Kidney Disease
1 year ago
Restless Legs Syndrome
I have had RLS for a long time I get very little sleep and I am fairly lucky I can survive for most days without a lot of sleep I tried pregabalin which hasn't helped I had major surgery in January 2023 Since then my RLS Symptoms have increased dramatically I have moved to sheltered accommodation to
I have had RLS for a long time I get very little sleep and I am fairly lucky I can survive for most days without a lot of sleep I tried pregabalin which hasn't helped I had major surgery in January 2023 Since then my RLS Symptoms have increased dramatically I have moved to sheltered accommodation to
williamghenry
in
Restless Legs Syndrome
1 year ago
Mobitz 1 - scared
Hi everyone, I have been told my 24hr ECG has picked up second degree heart block mobitz 1 wenkebach. I have been referred to cardiology and have just now received a telephone appointment for 13th May. I began feeling palpatations around two months after having covid last March. I was diagnosed with
Hi everyone, I have been told my 24hr ECG has picked up second degree heart block mobitz 1 wenkebach. I have been referred to cardiology and have just now received a telephone appointment for 13th May. I began feeling palpatations around two months after having covid last March. I was diagnosed with
Butterfly280
in
Arrhythmia Alliance
1 year ago
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Can I eat better to aid stomach acid?
Hello, I have Parietal Cell antibodies and I am concerned about Cancer, so I have been reading up about eating better to increase stomach acid. Can anyone let me know if you can influence the production of stomach acid by changing your diet even if you have Parietal Cell anitbodies? Perhaps stomach
Hello, I have Parietal Cell antibodies and I am concerned about Cancer, so I have been reading up about eating better to increase stomach acid. Can anyone let me know if you can influence the production of stomach acid by changing your diet even if you have Parietal Cell anitbodies? Perhaps stomach
Mocha23
in
Pernicious Anaemia Society
1 year ago
success with Threearrows - for anyone struggling with LOW IRON/FERRITIN
After 6 months I am finally seeing some progress with my iron panel! I spent 3 months on 4 ferrous gluconate tablets a day and my ferritin, saturation and iron barely budged. In fact, my serum iron actually decreased. I felt completely miserable with the prospect that I wouldn’t be able to optimise
After 6 months I am finally seeing some progress with my iron panel! I spent 3 months on 4 ferrous gluconate tablets a day and my ferritin, saturation and iron barely budged. In fact, my serum iron actually decreased. I felt completely miserable with the prospect that I wouldn’t be able to optimise
Beau55
in
Thyroid UK
1 year ago
Enlarged heart
I wonder if anyone has any advice please? I am new to this forum and this is my first post. I have congenital heart disease and have had open heart surgery twice. I now have a bi-ventricular pacemaker (I am 45 years old). My mum passed away from aortic dissection a short while ago and as a result
I wonder if anyone has any advice please? I am new to this forum and this is my first post. I have congenital heart disease and have had open heart surgery twice. I now have a bi-ventricular pacemaker (I am 45 years old). My mum passed away from aortic dissection a short while ago and as a result
Maple_cakes
in
British Heart Foundation
1 year ago
Care to care for a caregiver?
I feel pretty lost today, and could use a little TLC. Even if none of you can relate to this particular situation, me just making the time to ask for support feels good to me: like I'm doing what I deserve. My Joe has not bounced back after ending chemo in December. (His second assault with chemo:
I feel pretty lost today, and could use a little TLC. Even if none of you can relate to this particular situation, me just making the time to ask for support feels good to me: like I'm doing what I deserve. My Joe has not bounced back after ending chemo in December. (His second assault with chemo:
Cateydid
in
Prostate Cancer Caregivers
1 year ago
I could use a little support, please......
I'll head over to the Caregiver site directly, but I count on you warriors for SO much information. I always start here. I updated Joe's history here but would really appreciate any thoughts you survivors can share about where we are now, realizing no one really knows........ My Joe has not bounced
I'll head over to the Caregiver site directly, but I count on you warriors for SO much information. I always start here. I updated Joe's history here but would really appreciate any thoughts you survivors can share about where we are now, realizing no one really knows........ My Joe has not bounced
Cateydid
in
Advanced Prostate Cancer
1 year ago
Unstable Angina - Male 53 years old
On Easter Sunday I attended church with my wife and about midway through mass I started to get a tight sensation in the middle of my chest. At first I thought it was just a bit of nasty heartburn and waited for it to pass, but the pain got worse and started to feel like something was being forced into
On Easter Sunday I attended church with my wife and about midway through mass I started to get a tight sensation in the middle of my chest. At first I thought it was just a bit of nasty heartburn and waited for it to pass, but the pain got worse and started to feel like something was being forced into
Daddio70
in
British Heart Foundation
1 year ago
Hi Everybody Some Advice Required Please
Hi all for a few years i have been getting out of breath when exercising, usual man thing thought it was me just getting old. Have been on medication for many years for hypertension, anyway a visit to the GP confirmed via an ECG i am suffering with A-Fib also had chest x ray and blood tests. My issue
Hi all for a few years i have been getting out of breath when exercising, usual man thing thought it was me just getting old. Have been on medication for many years for hypertension, anyway a visit to the GP confirmed via an ECG i am suffering with A-Fib also had chest x ray and blood tests. My issue
alpha666
in
British Heart Foundation
1 year ago
RF, RA, Rayos & Pain
I had a great first visit with my rheumatologist this week. She was validating and knowledgeable and respectful. She is also pretty confident I have RA (tons of tests ordered and I go back in a couple of weeks). Two things: (1) my original labs that got me referred to a rheumatologist showed a rheumatoid
I had a great first visit with my rheumatologist this week. She was validating and knowledgeable and respectful. She is also pretty confident I have RA (tons of tests ordered and I go back in a couple of weeks). Two things: (1) my original labs that got me referred to a rheumatologist showed a rheumatoid
Jojosteeler
in
NRAS
1 year ago
Epigenetics
I came across this yesterday: "
Epigenetics-based diagnostic and therapeutic strategies: shifting the paradigm in prostate cancer
" 3/28/23
Epigenomics
[1] From the intro: "[i]Clinically, PCa screening methods display [/i][u][i]low sensitivity and specificity[/i][/u][i], leading to suboptimal
I came across this yesterday: "
Epigenetics-based diagnostic and therapeutic strategies: shifting the paradigm in prostate cancer
" 3/28/23
Epigenomics
[1] From the intro: "[i]Clinically, PCa screening methods display [/i][u][i]low sensitivity and specificity[/i][/u][i], leading to suboptimal
pjoshea13
in
Fight Prostate Cancer
1 year ago
Endo 'Stroke'
15 years ago I had endo ablation and 2 x 5cm ovarian cysts aspirated with success until now. Fast forward a relatively easy time of periods but on/off PMS with an undiagnosed progesterone intolerant body I am now perimenopausal at 47 years of age in health dire straits. I started on Evorel Sequi, changed
15 years ago I had endo ablation and 2 x 5cm ovarian cysts aspirated with success until now. Fast forward a relatively easy time of periods but on/off PMS with an undiagnosed progesterone intolerant body I am now perimenopausal at 47 years of age in health dire straits. I started on Evorel Sequi, changed
Chooklady
in
Endometriosis UK
1 year ago
Just diagnosed scleroderma/myositis - any help or guidance appreciated
Hello all, First time posting…. I have noticed just how incredibly helpful and supportive this community is so figured I would be vulnerable and ask for help. I have just been diagnosed with overlap autoimmune disease- systemic sclerosis/myositis - symptoms include raynauds, interstitial lung disease
Hello all, First time posting…. I have noticed just how incredibly helpful and supportive this community is so figured I would be vulnerable and ask for help. I have just been diagnosed with overlap autoimmune disease- systemic sclerosis/myositis - symptoms include raynauds, interstitial lung disease
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
awful cough since starting suflasalazine alongside methotrexate
my husband was diagnosed with PMR over 3 years ago after a year of tapering steroids and also starting methotrexate he was still getting aches and pains and was given sulfasalazine which he has taken for a year or so and this has helped control his pains and inflammatory markers along side the methotrexate
my husband was diagnosed with PMR over 3 years ago after a year of tapering steroids and also starting methotrexate he was still getting aches and pains and was given sulfasalazine which he has taken for a year or so and this has helped control his pains and inflammatory markers along side the methotrexate
alysonkerry-
in
PMRGCAuk
1 year ago
Azithromycin
I finally received copy of my consultant report to my GP re face to face consultation on 3 March. Pleased that Azithromycin I’ve been taking 1 daily since 1 December is doing good job. Sputum sample negative. I’m to carry on taking it, and twice daily Nebulising, using Aerobika as necessary and doing
I finally received copy of my consultant report to my GP re face to face consultation on 3 March. Pleased that Azithromycin I’ve been taking 1 daily since 1 December is doing good job. Sputum sample negative. I’m to carry on taking it, and twice daily Nebulising, using Aerobika as necessary and doing
Morrison10
in
Lung Conditions Community Forum
1 year ago
anaemia
I’ve recently finished taking pred after a four year struggle. I am now diagnosed with anaemia ! I’ve had two blood tests so far, a urine check, a bowel kit done and am now waiting for a colonoscopy. This is to eliminate anything like internal bleeding. I do not have Celiac disease either. In the mean
I’ve recently finished taking pred after a four year struggle. I am now diagnosed with anaemia ! I’ve had two blood tests so far, a urine check, a bowel kit done and am now waiting for a colonoscopy. This is to eliminate anything like internal bleeding. I do not have Celiac disease either. In the mean
Gardendaffodil
in
PMRGCAuk
1 year ago
Test results advice high b12 and iron
Hi all,Have been on 25mcg levothroxine for 6 weeks so here are my review results (taken first thing before levo dose that day). I have been taking vitamin d as it was 33 in October and have managed to get it up to 77. Also take 1 x igennus b complex, zinc, biocult prebiotic and magnesium glycinate daily
Hi all,Have been on 25mcg levothroxine for 6 weeks so here are my review results (taken first thing before levo dose that day). I have been taking vitamin d as it was 33 in October and have managed to get it up to 77. Also take 1 x igennus b complex, zinc, biocult prebiotic and magnesium glycinate daily
clairel996
in
Thyroid UK
1 year ago
Adenocarcinoma lung cancer
hi my mum has just been diagnosed with possible stage3-4 Adenocarcinoma if the right lung and her lymph nodes are inflamed, the cancer is contained in the lungs currently. We are waiting for an oncologist appointment to discuss treatment. We are all in shock as the consultant says mum may only have months
hi my mum has just been diagnosed with possible stage3-4 Adenocarcinoma if the right lung and her lymph nodes are inflamed, the cancer is contained in the lungs currently. We are waiting for an oncologist appointment to discuss treatment. We are all in shock as the consultant says mum may only have months
SharonTan
in
Lung Cancer Support
1 year ago
Adenocarcinoma lung cancer
hi my mum has just been diagnosed with possible stage3-4 Adenocarcinoma if the right lung and her lymph nodes are inflamed, the cancer is contained in the lungs currently. We are waiting for an oncologist appointment to discuss treatment. We are all in shock as the consultant says mum may only have months
hi my mum has just been diagnosed with possible stage3-4 Adenocarcinoma if the right lung and her lymph nodes are inflamed, the cancer is contained in the lungs currently. We are waiting for an oncologist appointment to discuss treatment. We are all in shock as the consultant says mum may only have months
SharonTan
in
The Roy Castle Lung Cancer Foundation
1 year ago
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