Search
Search
About
Log in
Join
Experiences with
Factor X deficiency
Posts
Communities
4,865 public posts
Filter results
Help convincing doctor to trial b12 injections
Hi im new to the forum. My 15yr old son has many b12 symptoms the worst of which are fatigue, depression, no appetite and brain fog. Also unbalanced, tinnitus, occasionally pins and needles, very disturbed sleep. He had bloods at gp b12 381 (197-771) Folate 4.5 (3.89-26.8) Vitamin D 35.6 (50-150) Ferritin
Hi im new to the forum. My 15yr old son has many b12 symptoms the worst of which are fatigue, depression, no appetite and brain fog. Also unbalanced, tinnitus, occasionally pins and needles, very disturbed sleep. He had bloods at gp b12 381 (197-771) Folate 4.5 (3.89-26.8) Vitamin D 35.6 (50-150) Ferritin
Muddywinter1
in
Pernicious Anaemia Society
4 years ago
Advice please
When I have discussions with people about p.a I know to tell them I have b12 deficiency and I know to say I have no intrinsic factor so my body can’t make the b12 I need then I usually get asked why’s that or how does that work and I really struggle to answer,I’m not completely thick I just don’t feel
When I have discussions with people about p.a I know to tell them I have b12 deficiency and I know to say I have no intrinsic factor so my body can’t make the b12 I need then I usually get asked why’s that or how does that work and I really struggle to answer,I’m not completely thick I just don’t feel
Hidden
in
Pernicious Anaemia Society
4 years ago
Low haemoglobin and iron tablets
I’m not sure where to post this. I had an operation where I suffered a bleed resulting in low haemoglobin. I had 2 blood transfusions and iron infusion. I was then given iron tablets. But my haemoglobin is back to normal now. All my iron results are high and my folate in low normal. Awaiting more blood
I’m not sure where to post this. I had an operation where I suffered a bleed resulting in low haemoglobin. I had 2 blood transfusions and iron infusion. I was then given iron tablets. But my haemoglobin is back to normal now. All my iron results are high and my folate in low normal. Awaiting more blood
RachaelInnes88
in
Thyroid UK
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Cough. Ongoing.
My “asthma cough” has been present for about 4 months now. Often during the day it’s hardly there, but at night/early morning i have a coughing fit, which means getting up, having a hot drink, and sitting up. I’ve decided I prefer coughing to feeling the breathlessness which freaks me out. With my cough
My “asthma cough” has been present for about 4 months now. Often during the day it’s hardly there, but at night/early morning i have a coughing fit, which means getting up, having a hot drink, and sitting up. I’ve decided I prefer coughing to feeling the breathlessness which freaks me out. With my cough
Hidden
in
Asthma Community Forum
4 years ago
CAN ANYONE HELP ANALYSE MY IRON PANEL RESULTS
I have just got my iron panel results back from Medichecks; CRP 1.07 [R 0-5] SERUM IRON 18.52 umol/L [R 5.8-34.5 umol/L] TIBC 55.62 umol/L [R 45-72 umol/L] UIBC 37.1 umol/L [R 24.2 -70.1 umol/L] TRANSFERRIN SATURATION 33.3% [R 20-50] FERRITIN 28 ug/L [R 13-150 ug/L] By way of context I have suffered
I have just got my iron panel results back from Medichecks; CRP 1.07 [R 0-5] SERUM IRON 18.52 umol/L [R 5.8-34.5 umol/L] TIBC 55.62 umol/L [R 45-72 umol/L] UIBC 37.1 umol/L [R 24.2 -70.1 umol/L] TRANSFERRIN SATURATION 33.3% [R 20-50] FERRITIN 28 ug/L [R 13-150 ug/L] By way of context I have suffered
Redlester
in
Thyroid UK
4 years ago
Chest and neck pain also tingling in my head
Hi have constant sternum pain and neck pain for over a year . Also I get tingling sensation in the top of my head . All bloods came back ok and endoscopy and chest X-ray clear . Please help anyone. I was diagnosed with a hiatus hernia years ago . I’m 48 year old male
Hi have constant sternum pain and neck pain for over a year . Also I get tingling sensation in the top of my head . All bloods came back ok and endoscopy and chest X-ray clear . Please help anyone. I was diagnosed with a hiatus hernia years ago . I’m 48 year old male
Darrenb321
in
Pain Concern
4 years ago
Anemia and asthma
I am finally going to see the pulmonologist on Thursday. Had another batch of testing done before my appointment. Chest X-ray, bloodwork, and pulmonary function test. My PF test showed I was still only using 57% of my predicted value. I had several tests, including the one where you are in a booth. My
I am finally going to see the pulmonologist on Thursday. Had another batch of testing done before my appointment. Chest X-ray, bloodwork, and pulmonary function test. My PF test showed I was still only using 57% of my predicted value. I had several tests, including the one where you are in a booth. My
Willow7733
in
Living with Asthma
4 years ago
Enlarged Heart.
Following a chest infection early Nov and having a negative Covid test and a chest X ray it was discovered my heart was enlarged I was referred to my GP for blood tests and heart trace which was all normal even my HBA1c for diabetes. I have now been referred to the cardiac outpatients for heart scan
Following a chest infection early Nov and having a negative Covid test and a chest X ray it was discovered my heart was enlarged I was referred to my GP for blood tests and heart trace which was all normal even my HBA1c for diabetes. I have now been referred to the cardiac outpatients for heart scan
Geoff51
Heart Star
in
British Heart Foundation
4 years ago
Iron lab values, how to interprete?
Hi everyone, Checking my iron is not part of the regular treatment I receive from the internist for my hypothyroidism. Many years ago a former internist checked my ferritin once per few years and it always seemed at the bottom of the range. He never mentioned it as problematic. I have now asked my GP
Hi everyone, Checking my iron is not part of the regular treatment I receive from the internist for my hypothyroidism. Many years ago a former internist checked my ferritin once per few years and it always seemed at the bottom of the range. He never mentioned it as problematic. I have now asked my GP
Jocelin
in
Thyroid UK
4 years ago
B12 levels pa
So started to SI have to take control as to unwell from Gp advice to stop b12 as high levels Quick question all the weight loss snd no appetite will I gain my weight back ? Hope so If I’m not absorbing from foods which isn’t to clear ref pa as intrinsic factor neg p cell neg Had Ana blood positive
So started to SI have to take control as to unwell from Gp advice to stop b12 as high levels Quick question all the weight loss snd no appetite will I gain my weight back ? Hope so If I’m not absorbing from foods which isn’t to clear ref pa as intrinsic factor neg p cell neg Had Ana blood positive
Milley2
in
Pernicious Anaemia Society
4 years ago
What to do ?
Morning All, I have just reduced my steroids from 15mg to 7.50with my doctors say so ,with no pains coming back but have been having breathing problems and extreme tiredness,so have just had blood tests and chest x ray now to be told that my blood markers have risen and I have a enlarged heart will be
Morning All, I have just reduced my steroids from 15mg to 7.50with my doctors say so ,with no pains coming back but have been having breathing problems and extreme tiredness,so have just had blood tests and chest x ray now to be told that my blood markers have risen and I have a enlarged heart will be
Fitch1
in
PMRGCAuk
4 years ago
Just wondering if this process sounds familiar?
Hi, Just wondering if this process sounds familiar and how did you cope with it? GP made erroneous diagnoses several times, I kept being sent away: it took 6 months before RA was suspected, despite worsening symmetrical pain in both feet across the toe joints, dry eyes, fatigue, massive swelling in
Hi, Just wondering if this process sounds familiar and how did you cope with it? GP made erroneous diagnoses several times, I kept being sent away: it took 6 months before RA was suspected, despite worsening symmetrical pain in both feet across the toe joints, dry eyes, fatigue, massive swelling in
BJC1980
in
NRAS
4 years ago
How long before symptoms return
My dr has stopped my B12 shots because the intrinsic factor test came back negative, even tho it was positive in 2012 which led to me being diagnosed with PA. After 8 yrs he has stopped my shots and told me he will retest me in 6 months, which will actually be 9 mths from my last shot. Its now 5 mths
My dr has stopped my B12 shots because the intrinsic factor test came back negative, even tho it was positive in 2012 which led to me being diagnosed with PA. After 8 yrs he has stopped my shots and told me he will retest me in 6 months, which will actually be 9 mths from my last shot. Its now 5 mths
wendyhoney
in
Pernicious Anaemia Society
4 years ago
B12 supplements with intrinsic factor
Has anyone tried b12 supplements with intrinsic factor ? I’m wondering if supplementing with intrinsic factor would help reduce excess methylmalonic acid or if someone with intrinsic factor antibodies would have no benefit . I have just started injecting b12 after 2 years of trying to get gp’s to find
Has anyone tried b12 supplements with intrinsic factor ? I’m wondering if supplementing with intrinsic factor would help reduce excess methylmalonic acid or if someone with intrinsic factor antibodies would have no benefit . I have just started injecting b12 after 2 years of trying to get gp’s to find
Samsungtracy
in
Pernicious Anaemia Society
4 years ago
IF test
Hello How do I go about getting an intrinsic factor test please? Is this something a GP can do on request at an appointment or do they need as advance notice? Can you get privately? Also- baby b12 test. Is it possible to do a finger prick or does a vile need to be taken? Many thanks
Hello How do I go about getting an intrinsic factor test please? Is this something a GP can do on request at an appointment or do they need as advance notice? Can you get privately? Also- baby b12 test. Is it possible to do a finger prick or does a vile need to be taken? Many thanks
BluebellPettle
in
Pernicious Anaemia Society
4 years ago
Hello long time no post!
Hello I first posted a few years back and with your help came to the conclusion that I was low in b12. Things Have moved on! But for context I continued to query my b12 with doctors, to no avail. I feel pregnant Oct 2018, again asked for my b12 to checked early in my pregnancy. It was ‘normal’
Hello I first posted a few years back and with your help came to the conclusion that I was low in b12. Things Have moved on! But for context I continued to query my b12 with doctors, to no avail. I feel pregnant Oct 2018, again asked for my b12 to checked early in my pregnancy. It was ‘normal’
BluebellPettle
in
Pernicious Anaemia Society
4 years ago
Complications after pacemaker fitting
Since having my pacemaker on November 25th which went ok 4 days after the procedure I started getting what felt like jolts in my tummy that actually made my body jump, went to A&E, ecg and chest X-ray g done, everything looked ok so I went home with instructions to call the cardiologist Monday morning
Since having my pacemaker on November 25th which went ok 4 days after the procedure I started getting what felt like jolts in my tummy that actually made my body jump, went to A&E, ecg and chest X-ray g done, everything looked ok so I went home with instructions to call the cardiologist Monday morning
Westie2012
in
Arrhythmia Alliance
4 years ago
Pacemaker fitting complications
Since having my pacemaker on November 25th which went ok 4 days after the procedure I started getting what felt like jolts in my tummy that actually made my body jump, went to A&E, ecg and chest X-ray g done, everything looked ok so I went home with instructions to call the cardiologist Monday morning
Since having my pacemaker on November 25th which went ok 4 days after the procedure I started getting what felt like jolts in my tummy that actually made my body jump, went to A&E, ecg and chest X-ray g done, everything looked ok so I went home with instructions to call the cardiologist Monday morning
Westie2012
in
British Heart Foundation
4 years ago
How much iron supplement to take?
In my latest attempt to get RLS under control I am attempting to take iron supplements (despite blood tests being normal, see attached). I've read perhaps iron levels can appear normal but are actual low in the brain. Right now I take over-the-counter 65 mg iron supplement every day on an empty stomach
In my latest attempt to get RLS under control I am attempting to take iron supplements (despite blood tests being normal, see attached). I've read perhaps iron levels can appear normal but are actual low in the brain. Right now I take over-the-counter 65 mg iron supplement every day on an empty stomach
RESTLESS4NEVER
in
Restless Legs Syndrome
4 years ago
weird test results
my first test came back positive for gastric parietal cell antibodies using the Elisa test. Second test tests 5 years later for parietal cell antibody titers, comes back negative. Ok is this something that comes and goes?
my first test came back positive for gastric parietal cell antibodies using the Elisa test. Second test tests 5 years later for parietal cell antibody titers, comes back negative. Ok is this something that comes and goes?
BumbleBeeBumble
in
Pernicious Anaemia Society
4 years ago
1
...
69
70
71
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
1172 results
Thyroid UK
1001 results
Lung Conditions Community Forum
435 results
View top 10 communities
Sort by
Most Relevant
Newest