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Factor X deficiency
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PA tests negative... how accurate are they?
After my PA tests came back negative, my doctor was convinced I had celiac. Got my results yesterday and celiac was negative. It's my understanding these tests are pretty accurate. They tested endomysial antibodies, transglutaminase IGA and IGG and they were all negative. The only odd thing that has
After my PA tests came back negative, my doctor was convinced I had celiac. Got my results yesterday and celiac was negative. It's my understanding these tests are pretty accurate. They tested endomysial antibodies, transglutaminase IGA and IGG and they were all negative. The only odd thing that has
username7
in
Pernicious Anaemia Society
5 years ago
Could this be PA? And side effects of B12 shots?
Hi, I am new here. I have a Vit B12 deficiency but no anaemia, and because I am symptomatic, my GP has prescribed VitB12 injection 1 x month for 3 months. I am early 60s and have autoimmune Hashimotos thyroid disease, and take levothyroxine. My thyroid blood tests are all good. I have taken B12 oral
Hi, I am new here. I have a Vit B12 deficiency but no anaemia, and because I am symptomatic, my GP has prescribed VitB12 injection 1 x month for 3 months. I am early 60s and have autoimmune Hashimotos thyroid disease, and take levothyroxine. My thyroid blood tests are all good. I have taken B12 oral
chicolini
in
Pernicious Anaemia Society
5 years ago
Endocrinologist test results - please help me! (And ferritin not going up)
Hi everyone, I received some blood test results from my endocrinologist. She had said in my last appointment that if these tests didn't show anything up then it's "just chronic fatigue". I've attached a photo of my results and wondered what you all thought. I know that she hasn't run some tests which
Hi everyone, I received some blood test results from my endocrinologist. She had said in my last appointment that if these tests didn't show anything up then it's "just chronic fatigue". I've attached a photo of my results and wondered what you all thought. I know that she hasn't run some tests which
Sick-and-Tired
in
Thyroid UK
5 years ago
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B12 injection dosage
I'm a 60 year old man living in the US. Despite always exercising & eating a very good junk-free diet, I have basically felt like **** every day of my life since I was about 20. No doctor has ever been able to do much to help me. I've recently had some testing which has indicated low levels of red blood
I'm a 60 year old man living in the US. Despite always exercising & eating a very good junk-free diet, I have basically felt like **** every day of my life since I was about 20. No doctor has ever been able to do much to help me. I've recently had some testing which has indicated low levels of red blood
SouthSounder
in
Pernicious Anaemia Society
5 years ago
Update on new anti-VEGF
I had a review and by-monthly injection on my left eye yesterday that is my good eye! I received good news to say that it it was dry and Eyelea was working well for me, 10 days ago I had new of the deterioration of the wet right eye, so that must be seen each month promptly. I thought I would ask the
I had a review and by-monthly injection on my left eye yesterday that is my good eye! I received good news to say that it it was dry and Eyelea was working well for me, 10 days ago I had new of the deterioration of the wet right eye, so that must be seen each month promptly. I thought I would ask the
Annsandra13
in
Macular Society
5 years ago
Naltrexone
I have just found this product on the website 'endo resolved'. I like their moto. Naltrexone is type drug called an “opiate antagonist”, meaning it blocks opioid receptors. Opioid receptors are related to pain, pleasure and endorphins. Taken in low doses LDN blocks opioid receptors only for a couple
I have just found this product on the website 'endo resolved'. I like their moto. Naltrexone is type drug called an “opiate antagonist”, meaning it blocks opioid receptors. Opioid receptors are related to pain, pleasure and endorphins. Taken in low doses LDN blocks opioid receptors only for a couple
Anastasia17
in
Endometriosis UK
5 years ago
Bunch of Test Results Came Back. Help Needed.
Hey everybody, Been posting on this forum for a month now since learning I was very deficient on B12 (159) and have been supplementing ever since. I've experienced a lot of benefit since beginning supplementation but I got some test results from the hematologist back that I was hoping you guys could
Hey everybody, Been posting on this forum for a month now since learning I was very deficient on B12 (159) and have been supplementing ever since. I've experienced a lot of benefit since beginning supplementation but I got some test results from the hematologist back that I was hoping you guys could
lownskater52
in
Pernicious Anaemia Society
5 years ago
Dryness
What type of lotion do you find works best for dry skin? For my scalp I only shampoo twice weekly and use a castor oil shampoo. No blow drying. (I’m 55 so I’m drying anyway.) I was doing well with cetaphil but that’s not helping anymore. Any good ideas. I, probably like most of you, cant have lots of
What type of lotion do you find works best for dry skin? For my scalp I only shampoo twice weekly and use a castor oil shampoo. No blow drying. (I’m 55 so I’m drying anyway.) I was doing well with cetaphil but that’s not helping anymore. Any good ideas. I, probably like most of you, cant have lots of
NeuronerdDoaty
in
LUPUS UK
5 years ago
Update on Lymph Node Metastatic Prostate cancer
Today, I had bloodwork, CT Scan, Bone Scan, and Chest Xray. First, my PSA is down from 0.17 on Feb 28 to 0.1 today, a decrease by 41%. Previously, my PSA was 4.48 at the start of Casodex and Lupron in Nov '18. It went down by 96% by end of Feb '19. Should my PSA gone down to undetectable by now? The
Today, I had bloodwork, CT Scan, Bone Scan, and Chest Xray. First, my PSA is down from 0.17 on Feb 28 to 0.1 today, a decrease by 41%. Previously, my PSA was 4.48 at the start of Casodex and Lupron in Nov '18. It went down by 96% by end of Feb '19. Should my PSA gone down to undetectable by now? The
dac500
in
Advanced Prostate Cancer
5 years ago
PA or anxiety?
Please help. Does anyone else get vertigo/dizzy sensations whilst out and have to hold onto clothes rails in shops or similar?? I can't handle it anymore and have just managed to come home in tears. I'm pernicious anaemic with no intrinsic factor, and had hysterectomy 4 weeks ago. Please advise :(
Please help. Does anyone else get vertigo/dizzy sensations whilst out and have to hold onto clothes rails in shops or similar?? I can't handle it anymore and have just managed to come home in tears. I'm pernicious anaemic with no intrinsic factor, and had hysterectomy 4 weeks ago. Please advise :(
sanstarr
in
Pernicious Anaemia Society
5 years ago
B12 and folate deficient but negative intrinsic factor.
Please help me. Last September bloods showed I was B12 and folate deficient and was given loading doses then every 12 weeks. I was self injecting for 6 months but still had lots of neurological symptoms. I’ve not had an injection now for a month and have felt worse. The doctor won’t increase injections
Please help me. Last September bloods showed I was B12 and folate deficient and was given loading doses then every 12 weeks. I was self injecting for 6 months but still had lots of neurological symptoms. I’ve not had an injection now for a month and have felt worse. The doctor won’t increase injections
Badboybob
in
Pernicious Anaemia Society
5 years ago
Gastroenterologist low b12 positive antiparietal antibody screen
Hi, am asking for some advice, last year ended up ventilated on ITU with sepsis. My Hb had dropped to 6.1 and was transfused I was given one of injection of b12 evening though I am out of reference range on b12 vit d iron folate. My hb is 9.3 and has not climbed since last August. They are talking about
Hi, am asking for some advice, last year ended up ventilated on ITU with sepsis. My Hb had dropped to 6.1 and was transfused I was given one of injection of b12 evening though I am out of reference range on b12 vit d iron folate. My hb is 9.3 and has not climbed since last August. They are talking about
Ferrett1
in
Pernicious Anaemia Society
5 years ago
All Information and suggestions welcome
Hello guys, I am new to this all and I am trying not to get discouraged to say the least. I am a married mother of six, and I am only 35 years old. I just recently got this diagnosis after seeing my GP about many bouts of fatigue and joint pain. We were looking to rule out Lupus, and confirm a diagnosis
Hello guys, I am new to this all and I am trying not to get discouraged to say the least. I am a married mother of six, and I am only 35 years old. I just recently got this diagnosis after seeing my GP about many bouts of fatigue and joint pain. We were looking to rule out Lupus, and confirm a diagnosis
PBCNewbie32
in
PBCers Organization
5 years ago
Please help! I'm in need of answers..
Hello guys, I am new to this all and I am trying not to get discouraged to say the least. I am a married mother of six, and I am only 35 years old. I just recently got this diagnosis after seeing my GP about many bouts of fatigue and joint pain. We were looking to rule out Lupus, and confirm a diagnosis
Hello guys, I am new to this all and I am trying not to get discouraged to say the least. I am a married mother of six, and I am only 35 years old. I just recently got this diagnosis after seeing my GP about many bouts of fatigue and joint pain. We were looking to rule out Lupus, and confirm a diagnosis
PBCNewbie32
in
PBC Foundation
5 years ago
Shortness of breath
Hi all, for the last 3 months I’ve been having shortness of breath and a really tight chest. It occasionally goes for about a day or two then comes back. I’ve had a Chest x-ray, an ECG, a blood test and an Astmha test and they have all come back fine. My GP said that it could be anxiety but I am convinced
Hi all, for the last 3 months I’ve been having shortness of breath and a really tight chest. It occasionally goes for about a day or two then comes back. I’ve had a Chest x-ray, an ECG, a blood test and an Astmha test and they have all come back fine. My GP said that it could be anxiety but I am convinced
Hammond485
in
Lung Conditions Community Forum
5 years ago
Constantly feeling like I've got adrenaline flowing through me from the moment I wake up
Hi, I've got a really weird feeling of adrenaline all the time no matter what I'm doing, it started when I was falling asleep before but now it seems always to be there, I've had blood tests, ECG, chest x-ray from my Dr but everything came back normal, I've tried CBT in the past didn't really help me
Hi, I've got a really weird feeling of adrenaline all the time no matter what I'm doing, it started when I was falling asleep before but now it seems always to be there, I've had blood tests, ECG, chest x-ray from my Dr but everything came back normal, I've tried CBT in the past didn't really help me
Lee1988
in
Anxiety and Depression Support
5 years ago
B12 deficient?
Hello - I've been here before asking for advice and hopefully someone can help. I'm 44 (as of last week) and have Hashimotos disease. I'm currently on 50mcg Levothyroxine and have been on this starter dose since January. My GP won't increase it despite my showing symptoms of being undermedicated. I
Hello - I've been here before asking for advice and hopefully someone can help. I'm 44 (as of last week) and have Hashimotos disease. I'm currently on 50mcg Levothyroxine and have been on this starter dose since January. My GP won't increase it despite my showing symptoms of being undermedicated. I
Hidden
in
Pernicious Anaemia Society
5 years ago
Grey Area hypothyroidism / Anemia not on levothyroxine at present by choice as my husbands on them and had problems ,
Hi everyone I was told after 4 blood tests I was in a very grey area ! Apparently I tested positive for antibodies . Also I have had a diagnosis for anemia , which wasn't a suprise as I suffered since 12 years old on and off when I was 18 I was pregnant with pernicious anemia and rushed in for a blood
Hi everyone I was told after 4 blood tests I was in a very grey area ! Apparently I tested positive for antibodies . Also I have had a diagnosis for anemia , which wasn't a suprise as I suffered since 12 years old on and off when I was 18 I was pregnant with pernicious anemia and rushed in for a blood
Greyarea73
in
Thyroid UK
5 years ago
Waiting for results of Lung Biopsy - Scared!
I'm a newbie! Would love some reassurance or to hear from those who've been through similar. I've been getting recurrent chest infections the last few years which always clear up with antibiotocs but after the last severe one a couple of months ago the GP referred me for a chest x-ray which was clear
I'm a newbie! Would love some reassurance or to hear from those who've been through similar. I've been getting recurrent chest infections the last few years which always clear up with antibiotocs but after the last severe one a couple of months ago the GP referred me for a chest x-ray which was clear
Savanna01
in
The Roy Castle Lung Cancer Foundation
5 years ago
What are a large blood vessels in chest area?
I’m currently under Kings as have to have aortic valve replaced. Numerous tests and scans have been undertaken. I went to A and E because of a strange symptom that turned out to be anxiety ( not surprising) ?. However summoned by GP bcos he was told by A and E as a follow up that the chest x ray showed
I’m currently under Kings as have to have aortic valve replaced. Numerous tests and scans have been undertaken. I went to A and E because of a strange symptom that turned out to be anxiety ( not surprising) ?. However summoned by GP bcos he was told by A and E as a follow up that the chest x ray showed
Numberone1
in
British Heart Foundation
5 years ago
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