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Update - Not Polymyalgia?
Update - First had Polymyalgia 2018 tapered off successfully 2020 CRP10 ESR 26. Diagnosed again July 2023 CRP4 ESR 26. Symptoms completely different (all neck, shoulders, arms) Put back on 20mg steroids. I wasn’t convinced on 2nd diagnosis so GP agreed I should taper off. Began taper, had blood tests
Update - First had Polymyalgia 2018 tapered off successfully 2020 CRP10 ESR 26. Diagnosed again July 2023 CRP4 ESR 26. Symptoms completely different (all neck, shoulders, arms) Put back on 20mg steroids. I wasn’t convinced on 2nd diagnosis so GP agreed I should taper off. Began taper, had blood tests
Purplelamp
in
PMRGCAuk
6 months ago
Fluid at back of eye
Hello everyone, I have advanced glaucoma in both eyes only diagnosed six months ago after a very late eye test at the opticians, and use monopost once a day. My left eye is the weakest by far and I have lost some central vision. I have fluid at the back of this eye and was told it looked like diabetic
Hello everyone, I have advanced glaucoma in both eyes only diagnosed six months ago after a very late eye test at the opticians, and use monopost once a day. My left eye is the weakest by far and I have lost some central vision. I have fluid at the back of this eye and was told it looked like diabetic
Hidden
in
Glaucoma UK
7 months ago
Painful knee
Hi, I've recently joined this forum. I started doing the couch to 5k in November. Finding it quite hard as rather out of condition but I persevered. I'm on week 5 now, though I have missed a few runs due to Christmas and New year. I've also for that reason stuck to run 1 for the last few times. However
Hi, I've recently joined this forum. I started doing the couch to 5k in November. Finding it quite hard as rather out of condition but I persevered. I'm on week 5 now, though I have missed a few runs due to Christmas and New year. I've also for that reason stuck to run 1 for the last few times. However
marigold60
in
Couch to 5K
6 months ago
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struggling 6 weeks after diagnosis
hi I recently posted with a bit of background after PMR diagnosis in November 15mg pred almost removed all symptoms of stiffness and body pains Have had recurrent dull headaches throughout , I put down to side effects of pred and tried to eat better and drink more fluids blood tests after 3 weeks
hi I recently posted with a bit of background after PMR diagnosis in November 15mg pred almost removed all symptoms of stiffness and body pains Have had recurrent dull headaches throughout , I put down to side effects of pred and tried to eat better and drink more fluids blood tests after 3 weeks
Emilydarby
in
PMRGCAuk
6 months ago
Hip & abdomen problems with endometriosis
I got diagnosed with endometriosis in February 2023 but I've been on a crutch since 2022 with severe hip/abdomen pain that goes across my back and down my leg on the right side. I've been seeing my GP since February 2022 and even after my laparoscopy and diagnosis of endo in Feb 2023 I've not had much
I got diagnosed with endometriosis in February 2023 but I've been on a crutch since 2022 with severe hip/abdomen pain that goes across my back and down my leg on the right side. I've been seeing my GP since February 2022 and even after my laparoscopy and diagnosis of endo in Feb 2023 I've not had much
orchid007
in
Endometriosis UK
6 months ago
Have you faced something simillar?
What exactly is a problem: Causes Shortly before this situation started, I was sick with something like a cold with a fever of 39 degrees and severe
pain
in my
eye
muscles, I couldn't even move them. I almost recovered within a week, but the
eye
pain
lasted about a month.
What exactly is a problem: Causes Shortly before this situation started, I was sick with something like a cold with a fever of 39 degrees and severe
pain
in my
eye
muscles, I couldn't even move them. I almost recovered within a week, but the
eye
pain
lasted about a month.
PuzzleheadedBowl510
in
Encephalitis Society
2 months ago
Unexpected endometriosis
Has anyone got any advice for me please? I've just been in for a laproscopy to remove what they told me was a simple cyst on my ovary, only to find out they couldn't remove it because they found endometriosis so they have referred me to a specialist surgeon and are sending me for an MRI.The surgeon said
Has anyone got any advice for me please? I've just been in for a laproscopy to remove what they told me was a simple cyst on my ovary, only to find out they couldn't remove it because they found endometriosis so they have referred me to a specialist surgeon and are sending me for an MRI.The surgeon said
Madanza
in
Endometriosis UK
6 months ago
Blood test results.. 🤦♀️
Hi everyone 😠 Well this merry-go-round never seems to end, and with everything else going on with my health at the moment ( diagnosis of primary hyperparathyroidism in June 2023 and recently an inferior hemiretinal vein occlusion, with clots and inflammation in optic disc) the thyroid medication thing
Hi everyone 😠 Well this merry-go-round never seems to end, and with everything else going on with my health at the moment ( diagnosis of primary hyperparathyroidism in June 2023 and recently an inferior hemiretinal vein occlusion, with clots and inflammation in optic disc) the thyroid medication thing
birkie
in
Thyroid UK
8 months ago
Ptosis
Hello, This post is going to sound really trivial and vain, however I promise I am not at all in the slightest. I am 33 and have recently had double presserflo micro shunts fitted and we are 9 months on and my eyes still feel tender when I touch my eye lids. My consultants response was not to
Hello, This post is going to sound really trivial and vain, however I promise I am not at all in the slightest. I am 33 and have recently had double presserflo micro shunts fitted and we are 9 months on and my eyes still feel tender when I touch my eye lids. My consultants response was not to
Bec8891
in
Glaucoma UK
8 months ago
anticoagulants-or not..
I have read a number of articles which I think say that the protocol for when to add to the CHaDs s score for prescribing anticoagulants with AF was based on patients who were very obviously symptomatic whereas many newer patients have fewer symptoms and discover AF through smart watches / other devices
I have read a number of articles which I think say that the protocol for when to add to the CHaDs s score for prescribing anticoagulants with AF was based on patients who were very obviously symptomatic whereas many newer patients have fewer symptoms and discover AF through smart watches / other devices
OldJane
in
Atrial Fibrillation Support
6 months ago
How to increase scarring after trabeculectomy
My husband (30m) had a trabeculectomy in his left eye in August 2023. It is now November 2023 and the IOP is only up to 7. His vision in that eye has never recovered (it does temporarily if he does something a little strenuous like walking up a steep hill). The consultant has said that to prevent
My husband (30m) had a trabeculectomy in his left eye in August 2023. It is now November 2023 and the IOP is only up to 7. His vision in that eye has never recovered (it does temporarily if he does something a little strenuous like walking up a steep hill). The consultant has said that to prevent
CurioK
in
Glaucoma UK
8 months ago
How long for Leflunomide to work?
Hi, Just wondering other people’s experience with Leflunomide as in how long it started to work (if it worked).. I finally came off MTX about 10 weeks ago as could no longer tolerate the side effects.. was severely affecting my mental health.. I had a gap of about 6 weeks with no medication, and symptoms
Hi, Just wondering other people’s experience with Leflunomide as in how long it started to work (if it worked).. I finally came off MTX about 10 weeks ago as could no longer tolerate the side effects.. was severely affecting my mental health.. I had a gap of about 6 weeks with no medication, and symptoms
Sapphire1701
in
NRAS
6 months ago
Prednisolone!
I take Pred, Methotrexate 25mg a week, Hydroxychloroquine @400mg a day, and 2700mg of Gabapentin a day. My weight has skyrocketed. I am the heaviest I have ever been in my life, and it's all down to how much junk food, chocolate and crisps I am eating. As I am also suffering from Trigeminal nerve pain
I take Pred, Methotrexate 25mg a week, Hydroxychloroquine @400mg a day, and 2700mg of Gabapentin a day. My weight has skyrocketed. I am the heaviest I have ever been in my life, and it's all down to how much junk food, chocolate and crisps I am eating. As I am also suffering from Trigeminal nerve pain
StateOfPlay
in
NRAS
6 months ago
Oral care tip
Just to share in case it helps someone: My mother has very advanced disease and her tongue doesn’t move well; she has difficulty swallowing and her mouth is usually open, so she mouth-breathes all day. She is immobile and nonverbal and stays in a care facility. On her last trip to the dentist (a caregiver
Just to share in case it helps someone: My mother has very advanced disease and her tongue doesn’t move well; she has difficulty swallowing and her mouth is usually open, so she mouth-breathes all day. She is immobile and nonverbal and stays in a care facility. On her last trip to the dentist (a caregiver
Martina_MP
in
PSP Association
8 months ago
Advice needed please!
Hi all, I am 51 years old and have suffered from Endo for the past 7 years approx and had an op to remove some about 4 years ago. This seemed to help for a while but it came back as I believe is often the case. I have been on the mini pill since the op and the condition has been almost manageable and
Hi all, I am 51 years old and have suffered from Endo for the past 7 years approx and had an op to remove some about 4 years ago. This seemed to help for a while but it came back as I believe is often the case. I have been on the mini pill since the op and the condition has been almost manageable and
Husky777
in
Endometriosis UK
6 months ago
Hashimotos, low TSH, normal t4, Feeling so ill
I have had Hashimotos for 25 years, GP advised that is hypothyroidism, and have been on T4 levothyroxine replacement for 25 years. Before that I was ok for 2 years Before that I had raging Graves hyperthyroidism for 2 years ( they gave me 200% recommend dose of carbimazole my resting heart rate went
I have had Hashimotos for 25 years, GP advised that is hypothyroidism, and have been on T4 levothyroxine replacement for 25 years. Before that I was ok for 2 years Before that I had raging Graves hyperthyroidism for 2 years ( they gave me 200% recommend dose of carbimazole my resting heart rate went
Brn2BWild
in
Thyroid UK
6 months ago
QoL: "The berries remain, though the leaves are gone."
I travelled to Scotland to see my father for an early Christmas, and then to West Yorkshire to see my mum. My dad had requested a couple of paintings to hang on his wall as a reminder for when I am no longer here, this being part of his adjustment that I am now receiving care for pain management only
I travelled to Scotland to see my father for an early Christmas, and then to West Yorkshire to see my mum. My dad had requested a couple of paintings to hang on his wall as a reminder for when I am no longer here, this being part of his adjustment that I am now receiving care for pain management only
BrentW
in
Advanced Prostate Cancer
6 months ago
Shingrix vaccine for immunosuppressed people aged 50+
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
Sharitone
in
PMRGCAuk
8 months ago
Why do I always ache
Does anybody else have constant body aches? I posted about rib pain recently but if the pains not in my ribs it’s my chest or I ache all around the top of my arms into my chest area. It’s daily now & the pain gets worse as the day goes on. Someone on here recently suggested it might be costochondritis
Does anybody else have constant body aches? I posted about rib pain recently but if the pains not in my ribs it’s my chest or I ache all around the top of my arms into my chest area. It’s daily now & the pain gets worse as the day goes on. Someone on here recently suggested it might be costochondritis
Gilly61
in
Pain Concern
6 months ago
narrow angles
Hi, first post on this forum, new to all of this. On a recent trip to the opticians, my wife (56) was referred to our local eye clinic with narrow drainage angles. Her ocular pressure is ok and there are no other abnormalities. The referral was quick and she had an appointment at the clinic within
Hi, first post on this forum, new to all of this. On a recent trip to the opticians, my wife (56) was referred to our local eye clinic with narrow drainage angles. Her ocular pressure is ok and there are no other abnormalities. The referral was quick and she had an appointment at the clinic within
AAJJTt
in
Glaucoma UK
8 months ago
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