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Doctor won't diagnose PMR
I'm absolutely certain that I have PMR. But my blood tests all came back normal, including the erythrocyte sedimentation rate and the inflammatory marker test, and I'm only 56. My GP has just left me on NSAIDS and paracetamol with physio. It's not working. How common is it to have PMR with no obvious
I'm absolutely certain that I have PMR. But my blood tests all came back normal, including the erythrocyte sedimentation rate and the inflammatory marker test, and I'm only 56. My GP has just left me on NSAIDS and paracetamol with physio. It's not working. How common is it to have PMR with no obvious
Creas
in
PMRGCAuk
1 year ago
Questions about experience with rinvoq
Have had to stop rinvoq a few times lately due to infections, this last time I stopped rinvoq for ear infection for 5 days. The infection has not cleared up so they're giving me another antibiotic for 10 days. I was just wondering if most people have a flare when stopping rinvoq for that length of
Have had to stop rinvoq a few times lately due to infections, this last time I stopped rinvoq for ear infection for 5 days. The infection has not cleared up so they're giving me another antibiotic for 10 days. I was just wondering if most people have a flare when stopping rinvoq for that length of
gnstric66
in
NRAS
10 months ago
Noise in my head
I think I developed Tinnitus as a result of going on blood pressure tablets years ago.A couple of years ago I complained to my GP that my tinnitus was getting louder so I was sent for CT scan on my left ear which is where I thought it was coming from,but the results showed no abnormalities so I was
I think I developed Tinnitus as a result of going on blood pressure tablets years ago.A couple of years ago I complained to my GP that my tinnitus was getting louder so I was sent for CT scan on my left ear which is where I thought it was coming from,but the results showed no abnormalities so I was
Jvb74
in
Tinnitus UK
10 months ago
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No more propafenone!!!! What???
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
frazeej
in
AF Association
10 months ago
Hip Pain
Hi, I am 21 years old and have been suffering with Endometriosis for 10 years now (although I was diagnosed in 2021). I have been on Prostap injections and Tibolone HRT since July 2021 as previous to this I was wheelchair bound on 3 occasions due to the severity of the pain and nothing else worked. Prostap
Hi, I am 21 years old and have been suffering with Endometriosis for 10 years now (although I was diagnosed in 2021). I have been on Prostap injections and Tibolone HRT since July 2021 as previous to this I was wheelchair bound on 3 occasions due to the severity of the pain and nothing else worked. Prostap
Football3018
in
Endometriosis UK
6 months ago
Awaiting hospital appt
Hi I've had a letter through the post saying I have a small AN and now awaiting specialist appointment at Salford. I've had symptoms of tinnitus my referral to ENT was my ask not GPs and I was surprised when the ENT consultant offered me an MRI to put my mind at ease. I was expecting it to come back
Hi I've had a letter through the post saying I have a small AN and now awaiting specialist appointment at Salford. I've had symptoms of tinnitus my referral to ENT was my ask not GPs and I was surprised when the ENT consultant offered me an MRI to put my mind at ease. I was expecting it to come back
Ranikhan
in
Acoustic Neuroma Support
10 months ago
PMR Flare
Blood
test
yesterday to check Hba1c and
ESR
, not that I am expecting a raised ESR as it never has been throughout. Thanks in advance. x
Blood
test
yesterday to check Hba1c and
ESR
, not that I am expecting a raised ESR as it never has been throughout. Thanks in advance. x
Gimme
in
PMRGCAuk
4 months ago
I feel so silly
feeling so silly and embarrassed right now. We have just found out that our close friends are pregnant and I have spent the last hour crying uncontrollably in the bathroom. How can I deal with this time and time again. I feel like every one around us is getting pregnant and I’m just here crying and dreading
feeling so silly and embarrassed right now. We have just found out that our close friends are pregnant and I have spent the last hour crying uncontrollably in the bathroom. How can I deal with this time and time again. I feel like every one around us is getting pregnant and I’m just here crying and dreading
Brie889
in
Fertility Network UK
6 months ago
Thickened uterine lining and vascular cysts
Has anyone any experience with the following I had an ultrasound a few weeks ago I thought I felt a small lump and just wanted some reassurance. I have been on prostap for 2 years recently switched to letrozole and norehisterone a week before the scan. The results have shown that my uterus lining is
Has anyone any experience with the following I had an ultrasound a few weeks ago I thought I felt a small lump and just wanted some reassurance. I have been on prostap for 2 years recently switched to letrozole and norehisterone a week before the scan. The results have shown that my uterus lining is
Rach1701
in
Endometriosis UK
6 months ago
Angular Cheilitis?
Just wondering if anyone suffers from Angular Cheilitis with their RA keep getting it and mentioning to the GP but he just ignored it. I've had my B12 checked and it was ok. I've read sulfasalazine can cause it. I'm also on Benepali jab once a week. Ive also read it could be folate levels but I think
Just wondering if anyone suffers from Angular Cheilitis with their RA keep getting it and mentioning to the GP but he just ignored it. I've had my B12 checked and it was ok. I've read sulfasalazine can cause it. I'm also on Benepali jab once a week. Ive also read it could be folate levels but I think
Haz58
in
NRAS
5 months ago
Polychromasia in peripheral smear?
I'm 23 M Jak2 negative, bmb inconclusive, done in 2018 Recent peripheral smear shows anisocytosis and polychromasia. Is this worrisome feature? Am i landing up in something serious?
I'm 23 M Jak2 negative, bmb inconclusive, done in 2018 Recent peripheral smear shows anisocytosis and polychromasia. Is this worrisome feature? Am i landing up in something serious?
Xuzy
in
MPN Voice
10 months ago
2nd short term Ginkgo trial underway
The 1st was around 10 days ago. 1 tablet taken evening of purchase, and 3 over the following day. The day after that T was not around in the afternoon for a few hours. I thought I had been cured (!) but did come back around 6pm. 3 tablets also taken over that day. The following day T was around and it
The 1st was around 10 days ago. 1 tablet taken evening of purchase, and 3 over the following day. The day after that T was not around in the afternoon for a few hours. I thought I had been cured (!) but did come back around 6pm. 3 tablets also taken over that day. The following day T was around and it
Ray200
in
Tinnitus UK
10 months ago
hearing aids
hi I’m Hegg suffered with tinnitis for years off and on am now 68 and after taking amitriplin have got worse tinnitis constant I had a hearing test which showed 50% loss in left ear I bought expensive hearing aid has not helped the tinnitis and still have hearing problems. Anyone els had similar &
hi I’m Hegg suffered with tinnitis for years off and on am now 68 and after taking amitriplin have got worse tinnitis constant I had a hearing test which showed 50% loss in left ear I bought expensive hearing aid has not helped the tinnitis and still have hearing problems. Anyone els had similar &
Hegg
in
Tinnitus UK
5 months ago
Coming off Prostap & Tibolone?
Hello all. Wondering if anyone could tell me their experience of coming off a course of Prostap (with or without Tibolone/HRT) please? If you’ve been through this, can I ask whether you just stop cold turkey? Or is it done gradually? Do you need to let your gynae know? Or was it just done on your
Hello all. Wondering if anyone could tell me their experience of coming off a course of Prostap (with or without Tibolone/HRT) please? If you’ve been through this, can I ask whether you just stop cold turkey? Or is it done gradually? Do you need to let your gynae know? Or was it just done on your
Purple_Badgers
in
Endometriosis UK
6 months ago
Sleep aids
Hoping that people can pass on what they use to help sleep with T. Realise there are likely to be a number of replies through various posts, but be good to hear what works for people on this thread if possible. ..on another note are steroids likely to spike tinnitus? Just finishing a 5 day course prescribed
Hoping that people can pass on what they use to help sleep with T. Realise there are likely to be a number of replies through various posts, but be good to hear what works for people on this thread if possible. ..on another note are steroids likely to spike tinnitus? Just finishing a 5 day course prescribed
Cityfan1
in
Tinnitus UK
10 months ago
Definitely a flare. Stiffness now making itself known. Increase dose to where and for how long?
I increased to 11.5 yesterday and had
esr
test
. However will not get result till next week and we know it is not necessarily a guide. As the two weeks on 12mg did not get rid of stiffnes completely I should have probably waited longer and not dropped to 9mg. My guess is to go to 12.5mg daily.
I increased to 11.5 yesterday and had
esr
test
. However will not get result till next week and we know it is not necessarily a guide. As the two weeks on 12mg did not get rid of stiffnes completely I should have probably waited longer and not dropped to 9mg. My guess is to go to 12.5mg daily.
Ebiker
in
PMRGCAuk
2 years ago
new to forum
hi there, I acquired tinnitus 3 months ago and had a hearing test last week resulting partially moderate to severe hearing loss. considering hearing aids as I am only 52. they are expensive though 3k for the cheapest ones. wondering how people have found the tinnitus reduction with aids?
hi there, I acquired tinnitus 3 months ago and had a hearing test last week resulting partially moderate to severe hearing loss. considering hearing aids as I am only 52. they are expensive though 3k for the cheapest ones. wondering how people have found the tinnitus reduction with aids?
TriumphT100
in
Tinnitus UK
6 months ago
Prostap long protocol
Hi everyone,I'm due to have a scan tomorrow to confirm whether we can proceed to egg collection on Monday (5th Feb) I am doing a long protocol and my prostap injection runs out on Saturday (3rd Feb) do any of you know if I'll have to do another one? It's a slow release injection so lasts for 28 days
Hi everyone,I'm due to have a scan tomorrow to confirm whether we can proceed to egg collection on Monday (5th Feb) I am doing a long protocol and my prostap injection runs out on Saturday (3rd Feb) do any of you know if I'll have to do another one? It's a slow release injection so lasts for 28 days
SarahHit
in
Fertility Network UK
7 months ago
Improved?
Had investigations for right ear polyp that had been present for over 20 years but making routine ear micro suctioning difficult (long standing over production of ear wax). Had hearing test but waited for results (October 2023). Went to concert 3rd Nov and mistakenly did not wear ear plugs. Very loud
Had investigations for right ear polyp that had been present for over 20 years but making routine ear micro suctioning difficult (long standing over production of ear wax). Had hearing test but waited for results (October 2023). Went to concert 3rd Nov and mistakenly did not wear ear plugs. Very loud
GlenM12
in
Tinnitus UK
6 months ago
Prostap and spotting
Hi I have endometriosis, adenomyosis, fibroids and cysts, I'm currently trying out prostrap injections. Anyway after the first injection I had bleeding for the and a half weeks. Then nothing for twenty weeks, but on Sunday I started spotting, it keeps stopping and starting too. I'm wondering if it's
Hi I have endometriosis, adenomyosis, fibroids and cysts, I'm currently trying out prostrap injections. Anyway after the first injection I had bleeding for the and a half weeks. Then nothing for twenty weeks, but on Sunday I started spotting, it keeps stopping and starting too. I'm wondering if it's
Rainbow2468
in
Endometriosis UK
7 months ago
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