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cochlear implants
Hello , I have been away from the tInnitus group but thought I would just put a message out there . I have had really bad tinnitus for 7 years now as a result of a grommet being put in my ear. I have had 8 operations on my ear …a grommet put in and out twice , a stapadectomy ( bone removed) and I am
Hello , I have been away from the tInnitus group but thought I would just put a message out there . I have had really bad tinnitus for 7 years now as a result of a grommet being put in my ear. I have had 8 operations on my ear …a grommet put in and out twice , a stapadectomy ( bone removed) and I am
1Dar
in
Tinnitus UK
6 months ago
Somatic tinnitus
Hi All, I have had T for 7 months. It isn’t hearing related. However, as I have been on this journey, I have noticed that I have the T constant 24/7 that often changes with random spikes. However, I am also experiencing somatic T that I wasn’t fully aware of before. I was diagnosed with TMD and have
Hi All, I have had T for 7 months. It isn’t hearing related. However, as I have been on this journey, I have noticed that I have the T constant 24/7 that often changes with random spikes. However, I am also experiencing somatic T that I wasn’t fully aware of before. I was diagnosed with TMD and have
Sassyjax1
in
Tinnitus UK
6 months ago
Propafenone Back!!!
JimF here in the U.S. A while back I posted regarding the critical shortages of Propafenone, which then bled over to shortages of Flecainide and Tikosyn.......which may continue until February. I'm happy to say that my 90 day supply of propafenone has just been refilled by my pharmacy, a truly "thank
JimF here in the U.S. A while back I posted regarding the critical shortages of Propafenone, which then bled over to shortages of Flecainide and Tikosyn.......which may continue until February. I'm happy to say that my 90 day supply of propafenone has just been refilled by my pharmacy, a truly "thank
frazeej
in
AF Association
6 months ago
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Is blood pressure medication making your tinnitus worse?
Hi all, I have had tinnitus for 30 years after playing in a loud band. I've recently been diagnosed with high blood pressure and been prescribed Doxazosin which has sent the volume of my tinnitus through the roof. I was wondering if anyone else had similar experiences?
Hi all, I have had tinnitus for 30 years after playing in a loud band. I've recently been diagnosed with high blood pressure and been prescribed Doxazosin which has sent the volume of my tinnitus through the roof. I was wondering if anyone else had similar experiences?
Greenman2019
in
Tinnitus UK
6 months ago
Inner Ear condition
Hi Does anyone have another autoimmune condition affecting inner ear? I’ve had a couple of bouts of ‘acute labyrinthitis’ often have itching in one ear that can get quite sore, constant tinnitus and intermittent hearing loss in same ear. GP dismissive but now I’m wondering if it’s another auto immune
Hi Does anyone have another autoimmune condition affecting inner ear? I’ve had a couple of bouts of ‘acute labyrinthitis’ often have itching in one ear that can get quite sore, constant tinnitus and intermittent hearing loss in same ear. GP dismissive but now I’m wondering if it’s another auto immune
DebatDG9
in
PBC Foundation
6 months ago
Bisoprolol
Hi, I've been feeling dizzy, lightheaded and was wondering if Bisoprolol Fumarate 5 mg that I have been taking every day for a few years could be the cause of my discomfort. I would appreciate any comments and advice.
Hi, I've been feeling dizzy, lightheaded and was wondering if Bisoprolol Fumarate 5 mg that I have been taking every day for a few years could be the cause of my discomfort. I would appreciate any comments and advice.
Martgai
in
Arrhythmia Alliance
6 months ago
Habituation
I have had T since January of 2023 - Started off light, had days of not hearing it and then awful days and then constant since the end of March - As of late I do have a few decent days, it's the emotional part of it that is the worst for me because I know it's something I can't control, and I like being
I have had T since January of 2023 - Started off light, had days of not hearing it and then awful days and then constant since the end of March - As of late I do have a few decent days, it's the emotional part of it that is the worst for me because I know it's something I can't control, and I like being
mf101704
in
Tinnitus UK
6 months ago
Likelihood of hearing loss after gamma knife
Hi All, I’m a 40y/o woman diagnosed with an AN a year ago. I have had a follow up MRI and unfortunately the AN is growing and I’ve been recommended to undergo gamma knife surgery within the next year. I had very mild hearing loss upon diagnosis but surprising it improved and my hearing is technically
Hi All, I’m a 40y/o woman diagnosed with an AN a year ago. I have had a follow up MRI and unfortunately the AN is growing and I’ve been recommended to undergo gamma knife surgery within the next year. I had very mild hearing loss upon diagnosis but surprising it improved and my hearing is technically
SSC14
in
Acoustic Neuroma Support
6 months ago
Questions about experience with rinvoq
Have had to stop rinvoq a few times lately due to infections, this last time I stopped rinvoq for ear infection for 5 days. The infection has not cleared up so they're giving me another antibiotic for 10 days. I was just wondering if most people have a flare when stopping rinvoq for that length of
Have had to stop rinvoq a few times lately due to infections, this last time I stopped rinvoq for ear infection for 5 days. The infection has not cleared up so they're giving me another antibiotic for 10 days. I was just wondering if most people have a flare when stopping rinvoq for that length of
gnstric66
in
NRAS
6 months ago
Noise in my head
I think I developed Tinnitus as a result of going on blood pressure tablets years ago.A couple of years ago I complained to my GP that my tinnitus was getting louder so I was sent for CT scan on my left ear which is where I thought it was coming from,but the results showed no abnormalities so I was
I think I developed Tinnitus as a result of going on blood pressure tablets years ago.A couple of years ago I complained to my GP that my tinnitus was getting louder so I was sent for CT scan on my left ear which is where I thought it was coming from,but the results showed no abnormalities so I was
Jvb74
in
Tinnitus UK
6 months ago
No more propafenone!!!! What???
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
frazeej
in
AF Association
6 months ago
Awaiting hospital appt
Hi I've had a letter through the post saying I have a small AN and now awaiting specialist appointment at Salford. I've had symptoms of tinnitus my referral to ENT was my ask not GPs and I was surprised when the ENT consultant offered me an MRI to put my mind at ease. I was expecting it to come back
Hi I've had a letter through the post saying I have a small AN and now awaiting specialist appointment at Salford. I've had symptoms of tinnitus my referral to ENT was my ask not GPs and I was surprised when the ENT consultant offered me an MRI to put my mind at ease. I was expecting it to come back
Ranikhan
in
Acoustic Neuroma Support
6 months ago
Polychromasia in peripheral smear?
I'm 23 M Jak2 negative, bmb inconclusive, done in 2018 Recent peripheral smear shows anisocytosis and polychromasia. Is this worrisome feature? Am i landing up in something serious?
I'm 23 M Jak2 negative, bmb inconclusive, done in 2018 Recent peripheral smear shows anisocytosis and polychromasia. Is this worrisome feature? Am i landing up in something serious?
Xuzy
in
MPN Voice
6 months ago
2nd short term Ginkgo trial underway
The 1st was around 10 days ago. 1 tablet taken evening of purchase, and 3 over the following day. The day after that T was not around in the afternoon for a few hours. I thought I had been cured (!) but did come back around 6pm. 3 tablets also taken over that day. The following day T was around and it
The 1st was around 10 days ago. 1 tablet taken evening of purchase, and 3 over the following day. The day after that T was not around in the afternoon for a few hours. I thought I had been cured (!) but did come back around 6pm. 3 tablets also taken over that day. The following day T was around and it
Ray200
in
Tinnitus UK
6 months ago
Sleep aids
Hoping that people can pass on what they use to help sleep with T. Realise there are likely to be a number of replies through various posts, but be good to hear what works for people on this thread if possible. ..on another note are steroids likely to spike tinnitus? Just finishing a 5 day course prescribed
Hoping that people can pass on what they use to help sleep with T. Realise there are likely to be a number of replies through various posts, but be good to hear what works for people on this thread if possible. ..on another note are steroids likely to spike tinnitus? Just finishing a 5 day course prescribed
Cityfan1
in
Tinnitus UK
6 months ago
My Last (IFN) Dose, my Fateful Decision One Year Ago
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
This is a long and not cheerful post, I understand if you don’t wish to wade fully or at all thru it. Sections are marked for easy reference. The thoughts are my opinions only. -- I wrote a few months ago on my botched flu vax anniversary. Today is the one year mark for my Last Dose of Besremi
EPguy
in
MPN Voice
4 months ago
Glue ear leaking
Hi,I have glue ear in my left ear, for quite a while it has been oozing a thick fluid, I have had 2 courses of antibiotics over the past 6 or 7 months, it clears up but comes back. It has started again now, I have no pain and feel fine, my hearing is much better to, is this actually an infection or
Hi,I have glue ear in my left ear, for quite a while it has been oozing a thick fluid, I have had 2 courses of antibiotics over the past 6 or 7 months, it clears up but comes back. It has started again now, I have no pain and feel fine, my hearing is much better to, is this actually an infection or
Chrissie82
in
PCD Family Support Group (UK)
7 months ago
Vertigo or dizziness?
Just reducing from 6.5mg Pred to 6mg. All seems well but yesterday evening, as I was sitting and reading a book, I started to feel 'out of it' so to speak. A bit dizzy and as though I needed to take a large breath as I had forgotten to breathe. This morning I felt dizzy when I got up in that I wanted
Just reducing from 6.5mg Pred to 6mg. All seems well but yesterday evening, as I was sitting and reading a book, I started to feel 'out of it' so to speak. A bit dizzy and as though I needed to take a large breath as I had forgotten to breathe. This morning I felt dizzy when I got up in that I wanted
Miserere
in
PMRGCAuk
7 months ago
Roflumilast/Daxas
Dear all, I just wanted to let all of you with severe COPD that I was given the opportunity last year, March 2022 to start this medication, Roflimilast. I had to request the outpatient appointment to be able to bring the possibility of being prescribed it. HealthUnlocked It wasn’t even mentioned to me
Dear all, I just wanted to let all of you with severe COPD that I was given the opportunity last year, March 2022 to start this medication, Roflimilast. I had to request the outpatient appointment to be able to bring the possibility of being prescribed it. HealthUnlocked It wasn’t even mentioned to me
PaulineHM
in
Lung Conditions Community Forum
7 months ago
b12 purchase
Hi I was treated by GP for low B12 for a year but once my levels were midway on “normal range” the injections were discontinued and I struggle to find ways to boost my intake orally. I have just purchased Hydroxocobalamin online but am unsure if the dosage is similar to that I was previously prescribed
Hi I was treated by GP for low B12 for a year but once my levels were midway on “normal range” the injections were discontinued and I struggle to find ways to boost my intake orally. I have just purchased Hydroxocobalamin online but am unsure if the dosage is similar to that I was previously prescribed
Maximus2222
in
Pernicious Anaemia Society
7 months ago
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