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Msa 7 months on
The symptoms still kicking on 7 months in. Still out of wheelchair (I'd say just)I've bought a mobility scooter. The council have been really helpful and speech therapy have been excellent. Old friends have been good to catch up with for an hour or so but I don't know if it's common but insomnia and
The symptoms still kicking on 7 months in. Still out of wheelchair (I'd say just)I've bought a mobility scooter. The council have been really helpful and speech therapy have been excellent. Old friends have been good to catch up with for an hour or so but I don't know if it's common but insomnia and
thedjsupreme
in
Multiple System Atrophy Trust
9 months ago
Chemo or no/not yet?
59 years old. Metastatic/high volume. PSA hit 366 before starting Abiraterone and Degarelix. Start Lupron next week. Negative on DNA test. Will see what PSA looks like next week after a month of ADT. My question chemo, no chemo or wait on chemo? Onco and Rad Onco both seemed to have a very soft attitude
59 years old. Metastatic/high volume. PSA hit 366 before starting Abiraterone and Degarelix. Start Lupron next week. Negative on DNA test. Will see what PSA looks like next week after a month of ADT. My question chemo, no chemo or wait on chemo? Onco and Rad Onco both seemed to have a very soft attitude
4tunate1
in
Advanced Prostate Cancer
4 months ago
Was there ever really a chance for a cure?
When I began the Stampede protocol 1 1/2 yrs ago, it was my understanding that two years of Zytiga/Prednisone and three years of Lupon with radiation to the pelvic area at the 7 mo - 1 yr mark gave a chance for a "cure" under my conditions (3+4 gleason, etc). Now, my non-medical view of things is convincing
When I began the Stampede protocol 1 1/2 yrs ago, it was my understanding that two years of Zytiga/Prednisone and three years of Lupon with radiation to the pelvic area at the 7 mo - 1 yr mark gave a chance for a "cure" under my conditions (3+4 gleason, etc). Now, my non-medical view of things is convincing
duxlubber
in
Advanced Prostate Cancer
4 months ago
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Self Anthem - Music therapy
So, I was remembering when I had a major breakdown when my life was falling apart everywhere I turned - after I realized that the life/relationship that I had invested so much of everything into was a big fat lie ... And I started to pick myself up and I heard this song and kept playing it over and over
So, I was remembering when I had a major breakdown when my life was falling apart everywhere I turned - after I realized that the life/relationship that I had invested so much of everything into was a big fat lie ... And I started to pick myself up and I heard this song and kept playing it over and over
HopeforMiami
in
Anxiety and Depression Support
9 months ago
update
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Hidden
in
Neuropathy Support
9 months ago
update
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Hidden
in
Restless Legs Syndrome
9 months ago
Brain Fog or Dimentia?
Hey warriors! So how do you know if you have brain fog or the beginning of dementia? Is it possible to blame ADT and Zytiga? My husband has been on Ellegaard for five years and Zytiga for 2 1/2. Years, he seems to have a lot of memory issues lately, and I fear it’s only getting worse Any thoughts or
Hey warriors! So how do you know if you have brain fog or the beginning of dementia? Is it possible to blame ADT and Zytiga? My husband has been on Ellegaard for five years and Zytiga for 2 1/2. Years, he seems to have a lot of memory issues lately, and I fear it’s only getting worse Any thoughts or
Keeper70
in
Advanced Prostate Cancer
4 months ago
Weighing the pros and possible risks of treatment holiday.
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
I am looking for reliable articles (not too scientific please). We will be discussing w oncologist this week and again with his clinical trial people next month. My husband's only treatment has been 1st & 2nd generation hormone therapy (Eligard & Darolutamide) for 20 months. He reached >.1 nadar
Decktime
in
Advanced Prostate Cancer
4 months ago
PSA on the way up again
I am getting a little concerned about a increase in my PSA, and not just the increase, but also the increase in the rate of increase. Short history. Diagnosed March 2021 by MRI and biopsy Gleason 4 + 3, Stage T3B, ISUP 3 ADT (Zoladex) started June 2021 EBRT 60Gy in 20 fractions December 2021 Last
I am getting a little concerned about a increase in my PSA, and not just the increase, but also the increase in the rate of increase. Short history. Diagnosed March 2021 by MRI and biopsy Gleason 4 + 3, Stage T3B, ISUP 3 ADT (Zoladex) started June 2021 EBRT 60Gy in 20 fractions December 2021 Last
ParrotY
in
Prostate Cancer Network
4 months ago
Struggling with impact on older children
When I was in hospital after PP last summer, I had amazing counselling on offer for me, for my partner, for my bonding with my baby. But, nothing for how my PP episode had impacted my older child. my son, who is now six, started to become very anxious about being left alone. This started when I was
When I was in hospital after PP last summer, I had amazing counselling on offer for me, for my partner, for my bonding with my baby. But, nothing for how my PP episode had impacted my older child. my son, who is now six, started to become very anxious about being left alone. This started when I was
MotherOfBears
in
Action on Postpartum Psychosis
9 months ago
Dutasteride Monotherapy is effective for Newly Diagnosed PCa men not on ADT
This plot shows men that either don't have PCa (Group A) or newly diagnosed men with PCa by biopsy (Group B). Neither group is on ADT. Dutasteride monotherapy (0.5 mg/day) causes an average drop in PSA of about 50% in both Groups, and an average drop of about 20% in prostate volume. In one man, his
This plot shows men that either don't have PCa (Group A) or newly diagnosed men with PCa by biopsy (Group B). Neither group is on ADT. Dutasteride monotherapy (0.5 mg/day) causes an average drop in PSA of about 50% in both Groups, and an average drop of about 20% in prostate volume. In one man, his
janebob99
in
Prostate Cancer Network
4 months ago
Osteoporosis worsening
I was diagnosed Breast Cancer in April 2021 and had to come off hormone replacement therapy. The following Jan. 2022, I had a Dexa scan and they found osteoporosis of my left hip eventhough I had started weight training in April of 2021. My gynecologist started me on oral bisphosphanate, Actonel. I
I was diagnosed Breast Cancer in April 2021 and had to come off hormone replacement therapy. The following Jan. 2022, I had a Dexa scan and they found osteoporosis of my left hip eventhough I had started weight training in April of 2021. My gynecologist started me on oral bisphosphanate, Actonel. I
WarriorOne
in
Osteoporosis Support
1 year ago
A heads up regards being in hospital and on thyroid medication
Hi all, I was in hospital recently (came down with flu, pneumonia and sepsis and was kept in a coma for about a month). I was in an Intensive Care Unit and as I was coming out of the coma, I started asking them about my thyroid medication. . The nurses were vague about the details so eventually I asked
Hi all, I was in hospital recently (came down with flu, pneumonia and sepsis and was kept in a coma for about a month). I was in an Intensive Care Unit and as I was coming out of the coma, I started asking them about my thyroid medication. . The nurses were vague about the details so eventually I asked
helen_m
in
Thyroid UK
1 year ago
High PSA upon diagnosis, treatment , and outcome
Hello, Diagnosed 9 months ago with Gleason 7 unfavorable… 2 4+3 ,2 3+4, and 1 3+3 ..on one side only ..I guess my high PSA score made it unfavorable , PSA 18. As a result had aggressive tri modality treatment .. brachytherapy seeds, 15 linac radiation sessions, and 9 months o ADT ..just stopped
Hello, Diagnosed 9 months ago with Gleason 7 unfavorable… 2 4+3 ,2 3+4, and 1 3+3 ..on one side only ..I guess my high PSA score made it unfavorable , PSA 18. As a result had aggressive tri modality treatment .. brachytherapy seeds, 15 linac radiation sessions, and 9 months o ADT ..just stopped
Yokohama2023
in
Prostate Cancer Network
4 months ago
Negative self-esteem and trying on self-respect for size.. I don't know what to do please Help me!! 🤞
This is a very long story. And it would be so very helpful if you could stick it out but I understand if you don't. I tried to edit and I keep re reading, it's rambling kind of but I'm that distressed.I have clinical diagnosis of major depressive disorder, anxiety, PTSD, for over 40 years. I have been
This is a very long story. And it would be so very helpful if you could stick it out but I understand if you don't. I tried to edit and I keep re reading, it's rambling kind of but I'm that distressed.I have clinical diagnosis of major depressive disorder, anxiety, PTSD, for over 40 years. I have been
Montana136
in
Major Depressive Disorder (MDD) Support
9 months ago
My iron and Vit/Mineral results for interpretation please.
Hello everyone, I posted recently about my daughter's results and will get back with an update soon. But here are mine! Hypothyroid for about 18 years, on Levothyroxine 75mcg. Menopausal but not quite through it yet, on HRT patches and Mirena.
Folate
is awful, dropped from March level (when
Hello everyone, I posted recently about my daughter's results and will get back with an update soon. But here are mine! Hypothyroid for about 18 years, on Levothyroxine 75mcg. Menopausal but not quite through it yet, on HRT patches and Mirena.
Folate
is awful, dropped from March level (when
Sneedle
in
Pernicious Anaemia Society
1 year ago
Acute Autonomic Crisis
Hi everyone, I hope that you are having as pain free a day as possible. Just an update on my follow up appointment. I had probably one of the worst weeks of my life last week. Weaning off morphine and Citalopram, side effects from the Duloxitine and then such a bad flare up of the burning pain that
Hi everyone, I hope that you are having as pain free a day as possible. Just an update on my follow up appointment. I had probably one of the worst weeks of my life last week. Weaning off morphine and Citalopram, side effects from the Duloxitine and then such a bad flare up of the burning pain that
CecilyParsley
in
Pelvic Pain Support Network
11 months ago
First MO visit
Prostectomy in 2017 and radiation in 2020 with no further treatment. PSMA test in November 2023 was negative with PSA of 0.14 at that time. My PSA has now increased to 0.34. I have my first visit with an MO in a couple weeks. Any suggestions or hints as to what to expect for treatments following
Prostectomy in 2017 and radiation in 2020 with no further treatment. PSMA test in November 2023 was negative with PSA of 0.14 at that time. My PSA has now increased to 0.34. I have my first visit with an MO in a couple weeks. Any suggestions or hints as to what to expect for treatments following
RedBird713
in
Advanced Prostate Cancer
4 months ago
Hypogonadal - 4 months Orgovyxx- 1 year later- No recovery to baseline 286 only at 98- No libido- TRT?
Gleason 7 4-3..IMRT 20 txs finished 2/28 No after effects went fine except for 4 months adt (orgovyxx) ..still little recovery (T-98) 1 year after ending adt 5/23 recovery only to 98 in one year , baseline before adt 286 with everything working fine. Stopped 5/23 Orgovyxx Still Hypogonadal ( T-98) 1
Gleason 7 4-3..IMRT 20 txs finished 2/28 No after effects went fine except for 4 months adt (orgovyxx) ..still little recovery (T-98) 1 year after ending adt 5/23 recovery only to 98 in one year , baseline before adt 286 with everything working fine. Stopped 5/23 Orgovyxx Still Hypogonadal ( T-98) 1
JWS13
in
Advanced Prostate Cancer
2 months ago
Prostab monthly injections for endometriosis
Hi just wanted to ask whether anyone is experiencing an increase in facial hair after taking prostab injection with hrt patches I have had 4 injections so far and don't know whether it's the injections or hrt? Any information would be helpful.
Hi just wanted to ask whether anyone is experiencing an increase in facial hair after taking prostab injection with hrt patches I have had 4 injections so far and don't know whether it's the injections or hrt? Any information would be helpful.
Deedee112345
in
Endometriosis UK
1 year ago
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