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Enzyme Replacement Therapy
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Need advice on thyroid and HRT issues
I’ve got a TSH stuck close to 0 for some time now. Currently on 75/100. GPs just want to keep lowering Levo. NHS Endo not interested. However I have a follow up with them later this month. Previous private Endo doesn’t specialise in female hormones and was a private consultant so not attached to a hospital
I’ve got a TSH stuck close to 0 for some time now. Currently on 75/100. GPs just want to keep lowering Levo. NHS Endo not interested. However I have a follow up with them later this month. Previous private Endo doesn’t specialise in female hormones and was a private consultant so not attached to a hospital
Serendipitious
in
Thyroid UK
1 year ago
CBC test anemia: high MCV, MCH, low RBC and leukocytes?
Writing for my partner, who is exhausted and down after 5 months ADT and 28x radiation. Returning home he went for CBC, and it came back high MCV MCH, low RBC and leukocytes. His primary w/0 knowledge of cancer tx says nothing. I'm not content with this, I hate to see my partner so tired and unenthused
Writing for my partner, who is exhausted and down after 5 months ADT and 28x radiation. Returning home he went for CBC, and it came back high MCV MCH, low RBC and leukocytes. His primary w/0 knowledge of cancer tx says nothing. I'm not content with this, I hate to see my partner so tired and unenthused
quietcorner
in
Advanced Prostate Cancer
4 months ago
QoL Rest Ye Merry Gentlemen/women :-)
https://youtu.be/HGVNzgUxE-g?si=xy8PUcVuFg__Q7ym
JOY Alert
!! Tis the Season... I "borrowed" the above from the Web, printed them up as photos at Walgreens and mailed them to HU members to whom I mailed things before, hope they arrived. HMU if you want one 😁 or just copy the image Here are
https://youtu.be/HGVNzgUxE-g?si=xy8PUcVuFg__Q7ym
JOY Alert
!! Tis the Season... I "borrowed" the above from the Web, printed them up as photos at Walgreens and mailed them to HU members to whom I mailed things before, hope they arrived. HMU if you want one 😁 or just copy the image Here are
dockam
in
Advanced Prostate Cancer
4 months ago
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happy holidays …. And a quick update
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, I’m off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
Just a quick note to wish all the warriors here a happy holidays with friends and family. As an update, I’m off all treatments and my psa remains <0.014. I remain grateful for the respite. My last degeralix injection and darolutamide was in May, and the SBRT to my ribs and neck about 2 years ago
PGDuan
in
Advanced Prostate Cancer
4 months ago
Radiation PSA, Orgovyx, Bone density
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
Rouge clone radiation on 10/31/23 has PSA continuing to drop to 0.85. MO plans to monitor PSA before requesting PSMA scan (insurance) unless it is increasing. Considering switch from Eligard to Orgovyx if PSA looks good in early Feb since Orgovyx apparently has less severe SE and doesn't tie me to
alperk
in
Advanced Prostate Cancer
4 months ago
Newly diagnosed researching lifestyle changes
Hi there, Had a overall physical of everything which included PSA which was 6 in 2016 and didn't put any attention to it and ignored it, nobody I spoke with who saw the report said to do anything. No family history of prostate cancer that I know of. Now 7 years later age 64, PSA 18, Free PSA 11%
Hi there, Had a overall physical of everything which included PSA which was 6 in 2016 and didn't put any attention to it and ignored it, nobody I spoke with who saw the report said to do anything. No family history of prostate cancer that I know of. Now 7 years later age 64, PSA 18, Free PSA 11%
Nwdx
in
Advanced Prostate Cancer
2 months ago
Staring at my unopened bottle of Orgovyx
Well, D-day (or maybe O-day) has arrived (thank you FED-X). I'm about to do a swan dive into my battle against my PCa. After a week of searching for this stuff, my clinic found it in Louisville Kentucky at a pharmacy called Onco360. Not exactly a neighborhood corner market with me living on an island
Well, D-day (or maybe O-day) has arrived (thank you FED-X). I'm about to do a swan dive into my battle against my PCa. After a week of searching for this stuff, my clinic found it in Louisville Kentucky at a pharmacy called Onco360. Not exactly a neighborhood corner market with me living on an island
mababa
in
Advanced Prostate Cancer
2 months ago
Life Changing
Hi, this is my first time posting although I have been reading everyone's posts for weeks. Somehow it feels more real now I am writing about it! My husband was diagnosed with Alzheimer's in Dec 2021 at the age of 60. Over the last year other symptom's started to present, slow blinking, choking when
Hi, this is my first time posting although I have been reading everyone's posts for weeks. Somehow it feels more real now I am writing about it! My husband was diagnosed with Alzheimer's in Dec 2021 at the age of 60. Over the last year other symptom's started to present, slow blinking, choking when
Old_Hall
in
PSP Association
9 months ago
Does anyone else over 60 with Glaucoma pay for eye lubrication in the UK ?
Apparently North East Essex patients have to pay for eye lubricants, also some areas of Somerset. Does anyone else ? It would be very useful to know. HRT now only costs £20 a year available to all women (probably only needed for a few years), so why not all Gaucoma medications ? Is lifetime conservation
Apparently North East Essex patients have to pay for eye lubricants, also some areas of Somerset. Does anyone else ? It would be very useful to know. HRT now only costs £20 a year available to all women (probably only needed for a few years), so why not all Gaucoma medications ? Is lifetime conservation
muddledme
in
Glaucoma UK
1 year ago
ERLEADA brain dead
Hey guys, everyone has been truly helpful on this site I keep posting as I endure my 18-24 months of hormone therapy that I have remaining. The last leg based on the Stampede Trial. I started on Lupron and Zytiga after successful radiation to my lymph node. This was seven years after proton radiation
Hey guys, everyone has been truly helpful on this site I keep posting as I endure my 18-24 months of hormone therapy that I have remaining. The last leg based on the Stampede Trial. I started on Lupron and Zytiga after successful radiation to my lymph node. This was seven years after proton radiation
icanwintwice
in
Advanced Prostate Cancer
4 months ago
Once again it's time to help keep Malecare afloat and thriving. Please give.
It's the time of the year when people put aside differences and unite for common causes. Aren't the holiday seasons wonderful? I really don't know who coined the phrase "It's the season of giving," but I do know the words ring true. Much of Malecare's operating budget comes from individual donations
It's the time of the year when people put aside differences and unite for common causes. Aren't the holiday seasons wonderful? I really don't know who coined the phrase "It's the season of giving," but I do know the words ring true. Much of Malecare's operating budget comes from individual donations
Hidden
in
Advanced Prostate Cancer
4 months ago
Prostate-Kidney and BPH Decision for treatment.
Hi everyone. Hoping to get some input from the collective experience and knowledge of the helpful people on this forum in making a decision on course of treatment. I apologize for length of post, but, with two issues (prostate and kidney) it took a bit to accurately explain. Newly diagnosed with Prostate
Hi everyone. Hoping to get some input from the collective experience and knowledge of the helpful people on this forum in making a decision on course of treatment. I apologize for length of post, but, with two issues (prostate and kidney) it took a bit to accurately explain. Newly diagnosed with Prostate
Seminole0412
in
Advanced Prostate Cancer
4 months ago
Can Biased Beliefs Play a Positive Role in Some Circumstances?
A mother who comes, with only a stick, to the rescue of her child being attacked by a mountain-lion may be willing to believe she’ll drive the animal away even if objectively the odds are not in her favor. She draws her strength from her biased belief. So, depending on circumstances and what is at
A mother who comes, with only a stick, to the rescue of her child being attacked by a mountain-lion may be willing to believe she’ll drive the animal away even if objectively the odds are not in her favor. She draws her strength from her biased belief. So, depending on circumstances and what is at
deValentin
in
My OCD Community
4 months ago
Brain lesion
anybody here who experienced brain lesions that might be from PCa? Current PSA is 0.025. It’s just confusing that after ADT works to remove all the symptoms including bone pain from bone mets, my dad was diagnosed with brain lesion after an MRI since he had mild stroke symptoms(slurred speech). Does
anybody here who experienced brain lesions that might be from PCa? Current PSA is 0.025. It’s just confusing that after ADT works to remove all the symptoms including bone pain from bone mets, my dad was diagnosed with brain lesion after an MRI since he had mild stroke symptoms(slurred speech). Does
dnmrk
in
Advanced Prostate Cancer
4 months ago
results- helped needed to understand what I could maximise please 🙏
I’ve posted a lot of results here as I don’t know what you would need for a clear understanding. Sorry I’m new here and have been in surgical menopause ages 37 so I’m trying to keep and eye on my health since then and adding back HRT I’ll try and add the extra results from bloods in comments?? Xx
I’ve posted a lot of results here as I don’t know what you would need for a clear understanding. Sorry I’m new here and have been in surgical menopause ages 37 so I’m trying to keep and eye on my health since then and adding back HRT I’ll try and add the extra results from bloods in comments?? Xx
Kath2022
in
Thyroid UK
1 year ago
Treatment and Prevention Strategies for Cognitive Function in PCa
Treatment and Prevention strategies for cognitive function in men being treated for advanced prostate cancer. Mild cognitive impairment (“brain fog” chemo-brain”) is common and widely recognized in those being treated with ADT and androgen signaling drugs, as well as with taxane chemotherapy. I am highlighting
Treatment and Prevention strategies for cognitive function in men being treated for advanced prostate cancer. Mild cognitive impairment (“brain fog” chemo-brain”) is common and widely recognized in those being treated with ADT and androgen signaling drugs, as well as with taxane chemotherapy. I am highlighting
MateoBeach
in
Fight Prostate Cancer
4 months ago
Adcal-D3
I have been prescribed Adcal- D3 because the aromatase inhibitor I’ve been prescribed as part of my treatment plan for breast cancer has been known to cause osteoporosis. (Anastrozole). I have been referred for a Dexa scan but advised to start meds as the scan may not be anytime soon. I have several
I have been prescribed Adcal- D3 because the aromatase inhibitor I’ve been prescribed as part of my treatment plan for breast cancer has been known to cause osteoporosis. (Anastrozole). I have been referred for a Dexa scan but advised to start meds as the scan may not be anytime soon. I have several
Lost_Girl
in
Thyroid UK
1 year ago
Anastrozole and Adcal-D3 - hypothyroidism and hormone positive breast cancer
I have been prescribed Adcal- D3 as the medication I have been prescribed for breast cancer has been known to cause osteoporosis. (Anastrozole). I have several questions: 1. Adcal-D3 contains soy oil - I thought soy contained plant oestrogen which was similar to human? Is it safe to take given my
I have been prescribed Adcal- D3 as the medication I have been prescribed for breast cancer has been known to cause osteoporosis. (Anastrozole). I have several questions: 1. Adcal-D3 contains soy oil - I thought soy contained plant oestrogen which was similar to human? Is it safe to take given my
Lost_Girl
in
Bone Health and Osteoporosis UK
1 year ago
Why has my TSH increased after several years of taking the same dose of Thyroxine?
Background - following RI treatment for an overactive thyroid I have been taking 75mcg Levothyroxine daily since 2015. At that time the consultant endocrinologist said that I should aim for a TSH of around 2. I have annual blood tests and the previous two years the readings have been 2.7 and 2.9
Background - following RI treatment for an overactive thyroid I have been taking 75mcg Levothyroxine daily since 2015. At that time the consultant endocrinologist said that I should aim for a TSH of around 2. I have annual blood tests and the previous two years the readings have been 2.7 and 2.9
IndigoRazzle
in
Thyroid UK
11 months ago
My PSA tripled in 8 months
I had my RP in Jan 31, 2023, started hormonal therapy from April 17 with Diphereline every 28 days plus one Casodex daily. My PSA went down to 0.005 from May to November. Yesterday I had my blood test again and the report indicated my PSA has jumped to 0.159. I am panic. Can you explain what does
I had my RP in Jan 31, 2023, started hormonal therapy from April 17 with Diphereline every 28 days plus one Casodex daily. My PSA went down to 0.005 from May to November. Yesterday I had my blood test again and the report indicated my PSA has jumped to 0.159. I am panic. Can you explain what does
Formosan
in
Advanced Prostate Cancer
4 months ago
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