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Scary PSA results
I was diagnosed in October 2023 with Gleason 4+5=9. Tissue came from TURP. PSA was 11.8. PSMA Pet was negative for METS. Started ADT on November 9. Did 28 sessions of IMRT from Feb 12, 2024, to Mar 21, 2024. Nadir was .8 on Mar 26 and then the last two have been 1.5 and 3.1. RO said 2.8 was the
I was diagnosed in October 2023 with Gleason 4+5=9. Tissue came from TURP. PSA was 11.8. PSMA Pet was negative for METS. Started ADT on November 9. Did 28 sessions of IMRT from Feb 12, 2024, to Mar 21, 2024. Nadir was .8 on Mar 26 and then the last two have been 1.5 and 3.1. RO said 2.8 was the
7OaksTom
in
Advanced Prostate Cancer
2 months ago
Using Enzalutamide, Darolutamide, Apalutamide only.
I've seen a number of posters here and there who say they use one of the "mides" listed above with no ADT like Lupron, Eligard, Firmagan, or Orgovyx, etc. If so, did you begin that regimen after being on first level ADT for a while along with the 'mide," or did you start on the "mide" alone at the start
I've seen a number of posters here and there who say they use one of the "mides" listed above with no ADT like Lupron, Eligard, Firmagan, or Orgovyx, etc. If so, did you begin that regimen after being on first level ADT for a while along with the 'mide," or did you start on the "mide" alone at the start
dhccpa
in
Prostate Cancer Network
4 months ago
Studies re: PSA > 0.5% after RT
Can anyone interpret the gist of these studies? Correct me if I am wrong (and I sure hope to be) but from what I am gleaning, it seems that for those who have RT and a concurrent round of ADT: 1) Researchers and studies are showing that waiting 18 months to reach a post RT nadir isn't necessary to determine
Can anyone interpret the gist of these studies? Correct me if I am wrong (and I sure hope to be) but from what I am gleaning, it seems that for those who have RT and a concurrent round of ADT: 1) Researchers and studies are showing that waiting 18 months to reach a post RT nadir isn't necessary to determine
quietcorner
in
Advanced Prostate Cancer
4 months ago
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6 Month Eligard
I got my results from PSA/PET last week, showing no metastatic activity anywhere, bones and lymph nodes clear. My last Gleason score was 4+3 in 1 sample, 3+3 in 2 more same side, but focus of intraductal cancer in 2 cores on other side. Last PSA 5.3 in February, stable between 5.0 and 5.8 last 2 years
I got my results from PSA/PET last week, showing no metastatic activity anywhere, bones and lymph nodes clear. My last Gleason score was 4+3 in 1 sample, 3+3 in 2 more same side, but focus of intraductal cancer in 2 cores on other side. Last PSA 5.3 in February, stable between 5.0 and 5.8 last 2 years
SherpaT
in
Prostate Cancer Network
4 months ago
To those newly diagnosed! There is hope!
I was diagnosed with Parkinson’s in Dec 2018. My form of Parkinson’s has a huge psychological element that many of you can relate to. It’s obvious because of how quickly I progressed while I was getting diagnosed . My Dad who was my best friend and business partner died unexpectedly in 2013, which destroyed
I was diagnosed with Parkinson’s in Dec 2018. My form of Parkinson’s has a huge psychological element that many of you can relate to. It’s obvious because of how quickly I progressed while I was getting diagnosed . My Dad who was my best friend and business partner died unexpectedly in 2013, which destroyed
38yroldmale
in
Cure Parkinson's
9 months ago
CBD - my Mum's journey so far
Hello - I am so grateful to have found this group as I have felt alone given this disease is rare and even the health care professionals are not aware of it. I've detailed her journey which may help others trying to get a diagnosis. In 2019 my Mum's speech became slurred (only the family at this
Hello - I am so grateful to have found this group as I have felt alone given this disease is rare and even the health care professionals are not aware of it. I've detailed her journey which may help others trying to get a diagnosis. In 2019 my Mum's speech became slurred (only the family at this
Lalamccoy
in
PSP Association
9 months ago
3year Updates w/PSA Graph
Hi Everyone, I'd like to report my 3 year journey. Initial PSA 27 in 6/20. Diagnosed w/PC 10/20. Gleason score is 3+4 (high-risk). My T-stage is T2a/T2b. CT Scan showed no lymph node & Bone Scan showed some indication of met. PSMA/PET in 1/12/21 showed no met outside. Started ADT (Lupron
Hi Everyone, I'd like to report my 3 year journey. Initial PSA 27 in 6/20. Diagnosed w/PC 10/20. Gleason score is 3+4 (high-risk). My T-stage is T2a/T2b. CT Scan showed no lymph node & Bone Scan showed some indication of met. PSMA/PET in 1/12/21 showed no met outside. Started ADT (Lupron
brucesam
in
Advanced Prostate Cancer
4 months ago
Length of Treatment for Orgovyx (Relugolix) versus Lupron and other Longer Acting ADT drugs as Adjuvant to RT or Used for IADT?
I'm curious if anyone has had any discussion with their MO or Radiation Oncologist about having to take a longer course of Orgovyx compared to Lupron or other longer acting ADT drugs because Testosterone comes back so much quicker on Orgovyx? It would seem to me, 6 months of Orgovyx is like the equivalent
I'm curious if anyone has had any discussion with their MO or Radiation Oncologist about having to take a longer course of Orgovyx compared to Lupron or other longer acting ADT drugs because Testosterone comes back so much quicker on Orgovyx? It would seem to me, 6 months of Orgovyx is like the equivalent
jazj
in
Advanced Prostate Cancer
4 months ago
Bupropion/Zyban/Wellbutrin and sleep?
Hello, I started 150mg over a month ago. I had sleep issues previously but now they seem to be getting worse. Psychiatrist has recently asked me to take 300mg as apparently I haven’t responded that well to 150mg. Feeling reluctant to do so. My HRT was adjusted at the same time by an endocrinologist.
Hello, I started 150mg over a month ago. I had sleep issues previously but now they seem to be getting worse. Psychiatrist has recently asked me to take 300mg as apparently I haven’t responded that well to 150mg. Feeling reluctant to do so. My HRT was adjusted at the same time by an endocrinologist.
Serendipitious
in
Anxiety and Depression Support
1 year ago
Red Light Therapy
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
Defiance
in
Cure Parkinson's
9 months ago
do you feel like you are two people
just a question really as I feel like I am two people . I remember the old me confident ,multi tasking, focused , self motivated physical active then I woke up in someone else’s body . The motivated person was still there and did anything I could do to improve my body and brain . With the brain side
just a question really as I feel like I am two people . I remember the old me confident ,multi tasking, focused , self motivated physical active then I woke up in someone else’s body . The motivated person was still there and did anything I could do to improve my body and brain . With the brain side
Teazymaid
in
Headway
4 months ago
One post post decapeptyl injection
I've randomly started bleeding I'm one month post injection my pains have been so bad and ramped up this week even more to point I was being sick and now I been to toilet and I'm bleeding not loads but like start of period amount. But I'm confused I have pcos and can't even tell you last time I had a
I've randomly started bleeding I'm one month post injection my pains have been so bad and ramped up this week even more to point I was being sick and now I been to toilet and I'm bleeding not loads but like start of period amount. But I'm confused I have pcos and can't even tell you last time I had a
En89
in
Endometriosis UK
7 months ago
Decipher Results
I now know I’m in the 10% worst category for genomic results. 20% chance of Mets in 10 years 25% chance of death in 15. Not happy. It’s out of my hands. They will ADT me then prostate bed and lymph node radiation. I guess I kinda always knew. I’m assuming someone has determined these steps are required
I now know I’m in the 10% worst category for genomic results. 20% chance of Mets in 10 years 25% chance of death in 15. Not happy. It’s out of my hands. They will ADT me then prostate bed and lymph node radiation. I guess I kinda always knew. I’m assuming someone has determined these steps are required
Elbers123
in
Advanced Prostate Cancer
4 months ago
after iADT and recurrence: SATURN trial
Upshot. Intense short term ADT and radiation therapy for "oligorecurrence" after iADT https://www.sciencedirect.com/science/article/abs/pii/S0302283824000587 The reason you have to like it is that it should not require new drug development and trials etc. I wonder if it would be applicable to oligorecurrence
Upshot. Intense short term ADT and radiation therapy for "oligorecurrence" after iADT https://www.sciencedirect.com/science/article/abs/pii/S0302283824000587 The reason you have to like it is that it should not require new drug development and trials etc. I wonder if it would be applicable to oligorecurrence
Derf4223
in
Advanced Prostate Cancer
4 months ago
How to convince a GP to prescribe estradiol patches?
I've been busy with ADT for almost 5 years and one of the most insidious SE has always been hot flushes. I find them quite debilitating as, when they hit (and that's often), I'm briefly incapable to concentrate/perform any task. After reading about some of you guys experiences with estradiol patches
I've been busy with ADT for almost 5 years and one of the most insidious SE has always been hot flushes. I find them quite debilitating as, when they hit (and that's often), I'm briefly incapable to concentrate/perform any task. After reading about some of you guys experiences with estradiol patches
R1166
in
Advanced Prostate Cancer
4 months ago
RANDOMIZED CONTROLLED TRIAL EVALUATING THE CARDIO-METABOLIC EFFECTS OF LEVOTHYROXINE AND LIOTHYRONINE
An interesting preprint paper re liothyronine. (Apologies for SHOUTING - using capitals - but I usually try to copy exactly.) [i]Thyroid. 2023 Sep 19.[/i] [i]doi: 10.1089/thy.2023.0135. Online ahead of print.[/i] [i]
PRELIMINARY RESULTS OF A DOUBLE-BLIND RANDOMIZED CONTROLLED TRIAL EVALUATING THE
An interesting preprint paper re liothyronine. (Apologies for SHOUTING - using capitals - but I usually try to copy exactly.) [i]Thyroid. 2023 Sep 19.[/i] [i]doi: 10.1089/thy.2023.0135. Online ahead of print.[/i] [i]
PRELIMINARY RESULTS OF A DOUBLE-BLIND RANDOMIZED CONTROLLED TRIAL EVALUATING THE
helvella
Thyroid UK
in
Thyroid UK
9 months ago
Shalom316
my story begins with my left hip replacement over two years ago and virtually started having symptoms afterwards primarily a very slight tremor in my left hand . I tried chiropractors, Acupuncture, and eventually went to a neurologist and received a Parkinson‘s diagnosis. I am on C/L and have been researching
my story begins with my left hip replacement over two years ago and virtually started having symptoms afterwards primarily a very slight tremor in my left hand . I tried chiropractors, Acupuncture, and eventually went to a neurologist and received a Parkinson‘s diagnosis. I am on C/L and have been researching
Shililly
in
Cure Parkinson's
11 months ago
Seasonal Affective Disorder and photosensitive retinal ganglion cells
I think I suffer from Seasonal Affective Disorder (SAD) and it has got much worse since I lost most. of trhe vision in my left eye and some peripheral vision in both eyes in 2021. I've seen some interesting reports into the recently discovered third set of photoreceptive cells in teh retina "photosensitive
I think I suffer from Seasonal Affective Disorder (SAD) and it has got much worse since I lost most. of trhe vision in my left eye and some peripheral vision in both eyes in 2021. I've seen some interesting reports into the recently discovered third set of photoreceptive cells in teh retina "photosensitive
Tarsius
in
Anxiety and Depression Support
9 months ago
Msa 7 months on
The symptoms still kicking on 7 months in. Still out of wheelchair (I'd say just)I've bought a mobility scooter. The council have been really helpful and speech therapy have been excellent. Old friends have been good to catch up with for an hour or so but I don't know if it's common but insomnia and
The symptoms still kicking on 7 months in. Still out of wheelchair (I'd say just)I've bought a mobility scooter. The council have been really helpful and speech therapy have been excellent. Old friends have been good to catch up with for an hour or so but I don't know if it's common but insomnia and
thedjsupreme
in
Multiple System Atrophy Trust
9 months ago
Disappointing GP visit…referral for talking therapy and poss CFS, no increase in levo
As I’m still very symptomatic (hypothyroidism with history of results in bio) I went back to the GP to explain this, share my Blue Horizon test results and ask for a trial increase to 125mg of levothyroxine. Not a great appointment- apparently I shouldn’t lay everything at the door of my thyroid! GP
As I’m still very symptomatic (hypothyroidism with history of results in bio) I went back to the GP to explain this, share my Blue Horizon test results and ask for a trial increase to 125mg of levothyroxine. Not a great appointment- apparently I shouldn’t lay everything at the door of my thyroid! GP
Slowrunner1208
in
Thyroid UK
1 year ago
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