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Enzyme Replacement Therapy
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51 public communities
Chronic Pancreatitis Support
873 members
Welcome to the Chronic Pancreatitis Support community, here to support anyone impacted by chronic pancreatitis and related conditions, such as EPI (Exocrine Pancreatic Insufficiency). Whether you are looking for a diagnosis or currently on Pancreatic Enzyme Replacement Therapy (PERT), here you will find peers with whom you can share experiences, information and participate in research events within the community. This community is offered by Mission: Cure on the HealthUnlocked platform. We serve the patients & communities affected by recurrent acute and chronic pancreatitis. Our impact extends to disease research and healthcare, applying innovative financing models to advance new therapies and cures. Beginning with chronic pancreatitis, we are committed to advancing new therapies and accelerating a cure for debilitating and untreatable diseases—within ten years. This community has been funded in part by Aimmune Therapeutics, Inc., a Nestlé Health Science Company. Anonymous data from the content shared in this community is used to improve the understanding of this condition.
Anticoagulation Support
3,824 members
The Anticoagulation Support community is for anyone impacted by a health condition such as atrial fibrillation, stroke, deep vein thrombosis (DVT) and pulmonary embolism (PE), aortic heart valve replacement, antiphospholipid syndrome and thrombotic disorders. These conditions can increase the risk of blood clots or thrombosis and may require anticoagulation therapy to treat or prevent blood clots from happening. Anticoagulant therapy is sometimes described as a blood thinner and can be given for a short period of time (to prevent clots after hip and knee replacement surgery) or long term for people with thrombotic disorders to prevent recurrence of clotting episodes. Some people may be offered anticoagulation medication when they are being treated for cancer. Anyone requiring anticoagulation therapy should discuss medication options with a health care provider and be given adequate information around the duration and monitoring of the treatment provided. In the UK, there are several oral anticoagulant medications available - Apixaban, Dabigatran, Edoxaban, Rivaroxaban and Warfarin. Heparin is given by injection. Anticoagulation Support aims to help individuals engage with people who have lived experience of living with a condition and being treated with anticoagulants. The site is moderated by HealthUnlocked with input from an anticoagulation patient expert and an anticoagulation healthcare professional. For information about anticoagulation therapy and related conditions visit.... NHS website - https://www.nhs.uk/ National Institute of Health and Care Excellence(NICE) - https://www.nice.org.uk
The Children's Trust
239 members
The Children’s Trust, Tadworth is a national charity working with children with brain injury. We are based at a 24 acre site in Tadworth, Surrey but offer our services to children from across the UK. We provide expert rehabilitation, education, therapy and care to support children and their families. The Children's Trust has also developed The Brain Injury Hub which is an online information and advice service for parents and other family members and includes as well as developing an online community and includes Health Unlocked.
Arthritis New Zealand
86 members
Cure Arthritis Community
2,808 members
We’re a US-based non-profit searching for a cure to help an estimated 50 million Americans and 300,000 children afflicted with various forms of arthritis. This arthritis foundation is focused entirely on research. The Arthritis National Research Foundation is committed to funding cutting-edge research and pushing the field of arthritis research forward!
Arthritis Ireland
457 members
Arthritis Ireland works to reduce the pain and improve the lives of almost one million children and adults in Ireland with arthritis.
Arthritis Action
7,591 members
Arthritis Action is a UK charity helping people with arthritis to live fuller lives with less pain. The charity offers a ‘self-management’ approach, providing services and resources on diet and nutrition, weight management, exercise and staying active, mental and emotional wellbeing, and pain management. Our approach helps people gain the knowledge and confidence to better manage their condition. For more information, visit www.arthritisaction.org.uk
Osteoarthritis Action
1,840 members
We aim to have a friendly community that provides information and support for those with osteoarthritis. We believe in public health prevention strategies as a way to manage and prevent OA. We work everyday to ensure that people with OA have the access, skills, and capacity to benefit from effective and proven interventions that help to manage symptoms. We encourage you to join us and learn how you can StandUp2OA!
Tenovus
589 members
We are the leading cancer charity focusing on supporting those affected by cancer. We help patients and their families get access to treatment, advice and support.
Cancer Journeys Foundation
380 members
The Cancer Journeys Foundation is a registered non-Profit Charity with the mission of providing cancer survivors and their supporters information, tools, and a community to create and implement cancer survivor programs. Our vision is a world where no one dies from cancer because they did not know they had the disease early enough for effective treatment or because they did not know what steps they personally could take to keep their cancer at bay. A world where every cancer survivor has the information and support they need to develop and implement their own unique self-help cancer survivor journey plan. Our goal for our community here in HealthUnlocked is to tap into the past experiences of cancer survivors and caregivers to pay it forward in helping survivors just beginning their cancer journeys. Our community leader, Robert Hess, is a 13-year prostate cancer survivor. Welcome!
Wessex Cancer Trust
71 members
Welcome to Wessex Cancer Trust online community. Here you can openly talk to other people affected by cancer – whether you are going through your own cancer journey or supporting a family member or friend. We will support you through the highs and lows, help you prepare for surgery or treatment, and give you the confidence to talk to your loved ones about cancer. We can empower you to feel strong enough to make your own choices, whether you are moving on from cancer or making difficult decisions about a terminal diagnosis. We offer practical, emotional and physical support at a time when nothing seems to be in your control. All of our Support Centres will welcome you into a calm and non-clinical space in your local community, somewhere familiar and safe.
Youth Cancer Trust
140 members
We are an online support community for young cancer patients. Join us to share your experience, ask questions and support one another! Talking about your disease can be a powerful tool in learning to cope with it! So why not to start now? This community is run by the Youth Cancer Trust.
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