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Enzyme Replacement Therapy
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uncontrollable head (only)sweating
Im in my mid 50's have probably gone through menopause by now, but GP insists i still use HRT, i have used tablets single dose , patchs now use a gel on my thighs daily, i honestly do not think this is a hot flush. If i get hot from normal everyday activities including exercise it is guaranteed my head
Im in my mid 50's have probably gone through menopause by now, but GP insists i still use HRT, i have used tablets single dose , patchs now use a gel on my thighs daily, i honestly do not think this is a hot flush. If i get hot from normal everyday activities including exercise it is guaranteed my head
caz1967
in
Healthy Happy Woman
1 year ago
question for those who have stopped Lupron after many years of ADT
I have been on Lupron for 8 years with the short-term exception of a high/T clinical trial,( but even during the trial I stayed on Lupron). Anyway I’m undetectable and decided to stop Lupron. 3 months after not getting my shot my T is now a whopping 37. I am curious to hear from some of you who
I have been on Lupron for 8 years with the short-term exception of a high/T clinical trial,( but even during the trial I stayed on Lupron). Anyway I’m undetectable and decided to stop Lupron. 3 months after not getting my shot my T is now a whopping 37. I am curious to hear from some of you who
Chugach
in
Advanced Prostate Cancer
3 months ago
hrt complications
hiya i have tried hrt patches and then moved onto elleste duet and have all.the side effects and tios on what works wi5 with stage 4 endo main thing is low mood and sweats. recebt gynae said its the hrt causing the increased bloating and pain anybody else struggling with this??
hiya i have tried hrt patches and then moved onto elleste duet and have all.the side effects and tios on what works wi5 with stage 4 endo main thing is low mood and sweats. recebt gynae said its the hrt causing the increased bloating and pain anybody else struggling with this??
ocke2030
in
Endometriosis UK
1 year ago
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ADHD-PI dad + ADHD-PH 4yo boy = Chaos
I’ll try to be brief. We both have ADHD with different classifications. All family goes to therapy. He takes Methylphenidate since 3 months ago and goes to occupational therapy. Also 1mg melatonin for sleep since he started those meds. He showed issues at school since over a year ago. Been kicked out
I’ll try to be brief. We both have ADHD with different classifications. All family goes to therapy. He takes Methylphenidate since 3 months ago and goes to occupational therapy. Also 1mg melatonin for sleep since he started those meds. He showed issues at school since over a year ago. Been kicked out
ADHDLatino
in
CHADD's ADHD Parents Together
9 months ago
Letrozole
I saw the oncologist yesterday to discuss radiotherapy and hormone therapy.The plan for radiotherapy is on hold ATM because I have an ongoing issue with a seroma on the breast and underarm. During the meeting she said she would give me a prescription for Letrozole, I told her I wasn't happy to start
I saw the oncologist yesterday to discuss radiotherapy and hormone therapy.The plan for radiotherapy is on hold ATM because I have an ongoing issue with a seroma on the breast and underarm. During the meeting she said she would give me a prescription for Letrozole, I told her I wasn't happy to start
LindaLittleBear
in
My Breast Cancer Community
3 months ago
Treatment
My dears, after RP (Gleason 7, 4+3, infected 3 lymph nodes) and lymphadetectomy, radiation and hormone therapy for 39 months, my oncologist took me off hormone therapy with the recommendation of PSA control every 3 months. The last three PSA readings (every three months) were 0.01 / 0.00 / 0.00, I expect
My dears, after RP (Gleason 7, 4+3, infected 3 lymph nodes) and lymphadetectomy, radiation and hormone therapy for 39 months, my oncologist took me off hormone therapy with the recommendation of PSA control every 3 months. The last three PSA readings (every three months) were 0.01 / 0.00 / 0.00, I expect
adam1967adam
in
Advanced Prostate Cancer
3 months ago
Expectations
I have undergone 45 radiation treatments and am on my last month of Eligard. PSA is undetectable and my T is barely existent. No mets detected on prior pet scans. My Urologist and Oncologist are giving me congrats. I understand this is probably a temporary remission (g 4+3 - stage 2/3) but I wonder
I have undergone 45 radiation treatments and am on my last month of Eligard. PSA is undetectable and my T is barely existent. No mets detected on prior pet scans. My Urologist and Oncologist are giving me congrats. I understand this is probably a temporary remission (g 4+3 - stage 2/3) but I wonder
Eadgbe
in
Advanced Prostate Cancer
3 months ago
What does it mean?
I'm slightly embarrassed to be asking strangers on the internet, but I'm a little frustrated by the lack of information given by the doctors. My dad (63) just got diagnosed - Gleason score 8 - and after a new scan they've concluded there's two mets - one in the pelvic lymph node and one in the seminal
I'm slightly embarrassed to be asking strangers on the internet, but I'm a little frustrated by the lack of information given by the doctors. My dad (63) just got diagnosed - Gleason score 8 - and after a new scan they've concluded there's two mets - one in the pelvic lymph node and one in the seminal
TerribleAtInternet
in
Advanced Prostate Cancer
3 months ago
Pain post SBRT
I'm 59 w/ aPC (4+5) and 7 mets - all bone mets. Started on ADT (Firmagon and Nubeqa) in October 2023. Completed 6 cycles of docetaxel 4 wks ago. Started SBRT yesterday. My side effects thus far were all expected and I was prepared for them. Last night had severe back pain (8 out of 10) which lasted
I'm 59 w/ aPC (4+5) and 7 mets - all bone mets. Started on ADT (Firmagon and Nubeqa) in October 2023. Completed 6 cycles of docetaxel 4 wks ago. Started SBRT yesterday. My side effects thus far were all expected and I was prepared for them. Last night had severe back pain (8 out of 10) which lasted
Eggdoc
in
Advanced Prostate Cancer
3 months ago
New Member
HI everyone. I have another scan next month, and I am not looking forward to what it will say. I found out in 2018 I have osteopenia. My doctor believes I am in stage 2/3 now. I fell 2 years ago on the ground next to my car. I rebroke my foot in the same spot as 4 years earlier from a head on collision
HI everyone. I have another scan next month, and I am not looking forward to what it will say. I found out in 2018 I have osteopenia. My doctor believes I am in stage 2/3 now. I fell 2 years ago on the ground next to my car. I rebroke my foot in the same spot as 4 years earlier from a head on collision
numbercruncherak
in
PMRGCAuk
10 months ago
ADT IS DONE. NEXT?
Lupron and Zytiga will have completed 2 years of each in June. I've read some continue Lupron for 3 years or longer. How do you know how long to take? Monitor testosterone and PSA how often? 2 or 3 months?
Lupron and Zytiga will have completed 2 years of each in June. I've read some continue Lupron for 3 years or longer. How do you know how long to take? Monitor testosterone and PSA how often? 2 or 3 months?
rfgh20
in
Advanced Prostate Cancer
3 months ago
Had Davinci RP w/ LNR 8 Reoccurrence in Bed, PSA Rising 0.77 CANNOT Do Radiation active Crohn Disease / Colitis, What about Cryotherapy?
Please Help Me Out, What Can I Do? After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team
Please Help Me Out, What Can I Do? After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team
Shorehousejam
in
Advanced Prostate Cancer
3 months ago
Constipation is a known issue with the Orgovyx
I've been on Orgovyx (Relugolix) for around 2.5 years now. and find myself getting increasingly constipated. It's the most tenacious SE. My labs are all stable and my PSA is stable at <0.02. But I'm now on 4 types of laxatives and next am planning on getting an enema and trying that. I have an appt with
I've been on Orgovyx (Relugolix) for around 2.5 years now. and find myself getting increasingly constipated. It's the most tenacious SE. My labs are all stable and my PSA is stable at <0.02. But I'm now on 4 types of laxatives and next am planning on getting an enema and trying that. I have an appt with
NewPotatoCaboose
in
Advanced Prostate Cancer
3 months ago
How do you know if you're developing cysts?
I've just been diagnosed with PCOS with a low SHBG, <12 follicles in both ovaries, normal FAI and ovaries are normal size and volume.I just had a few questions... What does the amount of follicles mean? Are this mini cysts? How do you know if a cyst is growing? Is painful and is there any way of reducing
I've just been diagnosed with PCOS with a low SHBG, <12 follicles in both ovaries, normal FAI and ovaries are normal size and volume.I just had a few questions... What does the amount of follicles mean? Are this mini cysts? How do you know if a cyst is growing? Is painful and is there any way of reducing
hani0902
in
PCOS UK (Verity)
3 months ago
Does this mark the beginning of castration resistance?
Hi all, I have been quietly reading all of your posts and comments in the background since my dad's diagnosis with Stage IV adenocarcinoma (Gleason 9 (4+5)) with distal bone metastases in September 2022. My dad's PSA at diagnosis was 150. He is 64. Since May 2023, dad has been on monthly Degarelix
Hi all, I have been quietly reading all of your posts and comments in the background since my dad's diagnosis with Stage IV adenocarcinoma (Gleason 9 (4+5)) with distal bone metastases in September 2022. My dad's PSA at diagnosis was 150. He is 64. Since May 2023, dad has been on monthly Degarelix
Agh-2022
in
Advanced Prostate Cancer
3 months ago
Diet for ADT
(Duplicate post from Advanced Prostate Cancer). What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9
(Duplicate post from Advanced Prostate Cancer). What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9
Worked_the_World
in
Prostate Cancer Network
3 months ago
Diet for duration of ADT?
What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9. My Gleason Score is 9 in six cores and 6 in one
What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9. My Gleason Score is 9 in six cores and 6 in one
Worked_the_World
in
Advanced Prostate Cancer
3 months ago
Preparing For Fistula Removal Surgery: What You Need To Know?
Fistula elimination surgical procedure is an extensive medical process that calls for cautious education to make certain the great feasible final results. Whether you're facing an anal rectal or urinary fistula understanding the steps you need to take before the surgery can help alleviate anxiety and
Fistula elimination surgical procedure is an extensive medical process that calls for cautious education to make certain the great feasible final results. Whether you're facing an anal rectal or urinary fistula understanding the steps you need to take before the surgery can help alleviate anxiety and
Dr_sucheta
in
Finding a Living Donor: From Home
10 months ago
One post post decapeptyl injection
I've randomly started bleeding I'm one month post injection my pains have been so bad and ramped up this week even more to point I was being sick and now I been to toilet and I'm bleeding not loads but like start of period amount. But I'm confused I have pcos and can't even tell you last time I had a
I've randomly started bleeding I'm one month post injection my pains have been so bad and ramped up this week even more to point I was being sick and now I been to toilet and I'm bleeding not loads but like start of period amount. But I'm confused I have pcos and can't even tell you last time I had a
En89
in
Endometriosis UK
6 months ago
Ryeqo, anyone on it or tried it?
Just started this today, apparently it's a new drug similar to prostap but in tablet form with hrt included, to be taken once a day for six months. When I picked my prescription up the chemist said the 3 month supply of tablets were very expensive and cost over £200 apparently! I work but i'm on universal
Just started this today, apparently it's a new drug similar to prostap but in tablet form with hrt included, to be taken once a day for six months. When I picked my prescription up the chemist said the 3 month supply of tablets were very expensive and cost over £200 apparently! I work but i'm on universal
jull
in
Endometriosis UK
1 year ago
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