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Enzyme Replacement Therapy
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Which treatment option best for recurrent oligo?
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
Purple-Bike
in
Advanced Prostate Cancer
3 months ago
zoladex/HRT pending hysterectomy
I started on Zoladex a week ago, alongside HRT. I am on the surgical waiting list for a hysterectomy with a view to keeping my ovaries as I am 34. Since the injection I have had a horrible stomach ache (alongside the usual crippling pain) but I can’t eat, I feel nauseous and I can’t open my bowels
I started on Zoladex a week ago, alongside HRT. I am on the surgical waiting list for a hysterectomy with a view to keeping my ovaries as I am 34. Since the injection I have had a horrible stomach ache (alongside the usual crippling pain) but I can’t eat, I feel nauseous and I can’t open my bowels
Ccn2018
in
Endometriosis UK
1 year ago
knee miserable
hello Am a 58 year old guy and five years on from my RA diagnosis it became evident that my left knee had deterioration to bone on bone Osteoarthritis. My RA is under control sun Amgevita and Methotrexate I also have blood pressure and take bisoprolol. I saw the NHS consultant in May and he said
hello Am a 58 year old guy and five years on from my RA diagnosis it became evident that my left knee had deterioration to bone on bone Osteoarthritis. My RA is under control sun Amgevita and Methotrexate I also have blood pressure and take bisoprolol. I saw the NHS consultant in May and he said
TheBoys
in
Arthritis Action
10 months ago
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Is thyroid hormone replacement allowed to take when you are on a BTK inhibitor?
Hello, beautiful community. My thyroid replacement therapy is finally stable after years of struggling and I'm afraid the BTK inhabitor can affect either treatment?. The new challenge is, that, I'll start treatment for Lymphoma/CLL. As you know, here is a guideline for not taking some medications
Hello, beautiful community. My thyroid replacement therapy is finally stable after years of struggling and I'm afraid the BTK inhabitor can affect either treatment?. The new challenge is, that, I'll start treatment for Lymphoma/CLL. As you know, here is a guideline for not taking some medications
sunsetssr
in
CLL Support
1 year ago
New memeber intro
Hi community, I am 30 year old female I had a valve replacement two years ago born with a bicuspid aortic valve. I have also recently been diagnosed with recurring Pericarditis, I am really struggling adjusting with my mental health and my physical health and wanted to out reach to see how others were
Hi community, I am 30 year old female I had a valve replacement two years ago born with a bicuspid aortic valve. I have also recently been diagnosed with recurring Pericarditis, I am really struggling adjusting with my mental health and my physical health and wanted to out reach to see how others were
Liss-x30
in
British Heart Foundation
10 months ago
Is Thyroid hormone replacement contraindicated with Chemo./Immunotherapy/BTK Inhabitor Drug for treatment of Blod Cancer?
Hello, beautiful community. Thanks to all of you for helping me to learn how to manage my hypothyroidism. The new challenge is to get treated for Lymphoma(cancer of the lymph system. There is a guideline about some medications like any anti-inflammatory medications and some hormone replacement therapy
Hello, beautiful community. Thanks to all of you for helping me to learn how to manage my hypothyroidism. The new challenge is to get treated for Lymphoma(cancer of the lymph system. There is a guideline about some medications like any anti-inflammatory medications and some hormone replacement therapy
sunsetssr
in
Thyroid UK
1 year ago
thyroxine drug interactions
hello, had a bad run of viruses/ infections over the last 4 months. Including a chest infection and then covid. Do various antibiotics interfere with thyroxine? I’m so brainfogged I can’t work out what google is saying. Clarithomycin for tonsillitis last week - feel v v thyroidy this week. Can’
hello, had a bad run of viruses/ infections over the last 4 months. Including a chest infection and then covid. Do various antibiotics interfere with thyroxine? I’m so brainfogged I can’t work out what google is saying. Clarithomycin for tonsillitis last week - feel v v thyroidy this week. Can’
haggisplant
in
Thyroid UK
1 year ago
Xeris subcutaneous levothyroxine
Slow at getting round to noticing this article and then posting about it! Given the numerous issues due to oral levothyroxine (whether solid or liquid), like tolerability, effects on gut, absorption, interference with food, drink, supplements and medicines, severe spiking of blood levels, and on and
Slow at getting round to noticing this article and then posting about it! Given the numerous issues due to oral levothyroxine (whether solid or liquid), like tolerability, effects on gut, absorption, interference with food, drink, supplements and medicines, severe spiking of blood levels, and on and
helvella
Thyroid UK
in
Thyroid UK
1 year ago
stage 4 prostrate cancer
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
bubbacora
in
Advanced Prostate Cancer
3 months ago
Treatment going forward
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
good2go
in
Advanced Prostate Cancer
3 months ago
ArteraAI Test
it seems that all prostate cancer patients with localized tumor(s) with Intermediate Risk should receive the ArteraAI test to prognosticate/predict how ADT would impact 5, 10, 15 years metastasis. It seems about 2/3 of these patients do not receive any added benefit from ADT therapy. There are many
it seems that all prostate cancer patients with localized tumor(s) with Intermediate Risk should receive the ArteraAI test to prognosticate/predict how ADT would impact 5, 10, 15 years metastasis. It seems about 2/3 of these patients do not receive any added benefit from ADT therapy. There are many
Bourbon2024
in
Prostate Cancer Network
3 months ago
knee replacement post transplant
Good morning all, I wonder if any one has experience of a total knee replacement post transplant please? My husband has needed this operation for about the last two years but because his liver was so damaged couldn’t have until his health improved. When came to the top of the waiting list last Christmas
Good morning all, I wonder if any one has experience of a total knee replacement post transplant please? My husband has needed this operation for about the last two years but because his liver was so damaged couldn’t have until his health improved. When came to the top of the waiting list last Christmas
Lavender-Pearl
in
British Liver Trust
10 months ago
Rising PSA on ADT
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
MGBman
in
Advanced Prostate Cancer
3 months ago
FDA approves niraparib and abiraterone acetate plus prednisone for BRCA-mutated metastatic castration-resistant prostate cancer - 08/11/2023
On August 11, 2023, the Food and Drug Administration approved the fixed dose combination of niraparib and abiraterone acetate (Akeega, Janssen Biotech, Inc.), with prednisone, for adult patients with deleterious or suspected deleterious BRCA-mutated castration-resistant prostate cancer (mCRPC), as determined
On August 11, 2023, the Food and Drug Administration approved the fixed dose combination of niraparib and abiraterone acetate (Akeega, Janssen Biotech, Inc.), with prednisone, for adult patients with deleterious or suspected deleterious BRCA-mutated castration-resistant prostate cancer (mCRPC), as determined
cujoe
in
Fight Prostate Cancer
9 months ago
HRT patches
Hello , i am 42 and started suffering with peri menopause about 4 years ago after i had my son. It took a good while to get anybody to take me seriously but i then started on HRT patches even though the drs said i was too young and that my hormone levels are fine. The problem i have is lately my patches
Hello , i am 42 and started suffering with peri menopause about 4 years ago after i had my son. It took a good while to get anybody to take me seriously but i then started on HRT patches even though the drs said i was too young and that my hormone levels are fine. The problem i have is lately my patches
cleaningfairy
in
Menopause and Perimenopause Support
1 year ago
Anxiety and no sleep
Hello, its been a while since i last came on here roughly 2 years. I have had mild anxiety during this time but nothing this bad since then. You see the dr gave me some medication Venlafaxine and it has been working well for me normally on lately the GP has been playing silly monkey's with my meds
Hello, its been a while since i last came on here roughly 2 years. I have had mild anxiety during this time but nothing this bad since then. You see the dr gave me some medication Venlafaxine and it has been working well for me normally on lately the GP has been playing silly monkey's with my meds
cleaningfairy
in
Anxiety and Depression Support
1 year ago
THC Gummies and psilocybin
Has anyone tried THC/CBD gummies or psilocybin for mitigating some of the side effects of ADT and Orgovyx? Were they beneficial?
Has anyone tried THC/CBD gummies or psilocybin for mitigating some of the side effects of ADT and Orgovyx? Were they beneficial?
Worked_the_World
in
Advanced Prostate Cancer
3 months ago
considering stopping adt/abiraterone to see what happens
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
Nowhereman9
in
Advanced Prostate Cancer
3 months ago
Prescription costs
Hi, I've lived with lupus for more than 25 years, most of my major issues have been caused by blood clots, infarction to lungs and heart as well as dvt and pe, I've had a mitral valve replacement and just had a difribualtor fitted, I've worked and paid for my prescription charges via a pre payment cirtificate
Hi, I've lived with lupus for more than 25 years, most of my major issues have been caused by blood clots, infarction to lungs and heart as well as dvt and pe, I've had a mitral valve replacement and just had a difribualtor fitted, I've worked and paid for my prescription charges via a pre payment cirtificate
Gooneruk
in
LUPUS UK
11 months ago
Levothyroxine and arrhythmia
Diagnosed with hypothyroidism in infancy. Been on treatment my entire life. Currently 200mcg levo daily. Last few years been having ectopic heartbeats and arrhythmia. Anybody else had this and is it linked to thyroid hormone treatment?
Diagnosed with hypothyroidism in infancy. Been on treatment my entire life. Currently 200mcg levo daily. Last few years been having ectopic heartbeats and arrhythmia. Anybody else had this and is it linked to thyroid hormone treatment?
SolihullMan
in
Thyroid UK
3 months ago
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