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Experiences with
Enzyme Replacement Therapy
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After ADT
Adrenal insufficiency after stopping ADT & steroids. My 72 year old husband had radical, robotic surgery 7 years ago. PSAs were 0 until 2 years ago, then barely detectable. Had the special PET scan, 3 spots lit up in lymph nodes, (in the area, none remote.) Had 6.5 weeks radiation therapy. Had 2 years
Adrenal insufficiency after stopping ADT & steroids. My 72 year old husband had radical, robotic surgery 7 years ago. PSAs were 0 until 2 years ago, then barely detectable. Had the special PET scan, 3 spots lit up in lymph nodes, (in the area, none remote.) Had 6.5 weeks radiation therapy. Had 2 years
Catmama5
in
Advanced Prostate Cancer
3 months ago
when is enough enough
as I read the post here I am struck by the bravery and never give up attitudes of the men who share their stories here. I have not faced hardly any of the difficulties I read about yet I have already made up my mind that I’m going to stop treatment and enjoy what time I have left . Am I just a wiener
as I read the post here I am struck by the bravery and never give up attitudes of the men who share their stories here. I have not faced hardly any of the difficulties I read about yet I have already made up my mind that I’m going to stop treatment and enjoy what time I have left . Am I just a wiener
Thesledge
in
Advanced Prostate Cancer
3 months ago
Disc space narrowing at the lumbosacral level, with hypertrophy of the lower lumbar facet joints.’
Please, does anyone have ‘ disc space narrowing at the lumbosacral level, with hypertrophy of the lower lumbar facet joints.’ ?? I also have bilateral hip replacements plus, severe asthma (controlled mainly by steroid inhalers, oral steroids, antibiotics and numerous other asthma meds)….and CKD
Please, does anyone have ‘ disc space narrowing at the lumbosacral level, with hypertrophy of the lower lumbar facet joints.’ ?? I also have bilateral hip replacements plus, severe asthma (controlled mainly by steroid inhalers, oral steroids, antibiotics and numerous other asthma meds)….and CKD
DollyDutchGirl_1946
in
Pain Concern
10 months ago
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Please help us decide on next treatment
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dad’s PSA started going up. He had a PSMA Pet scan and it
Hi, my Dad was diagnosed back in 2021 with stage IV, Gleason 9, oligometastatic. He had 6 weeks of radiation at the time of diagnosis and has been for the past 2.5 years on Abiraterone, Prednisone and Lupron. As I mentioned in my prior post my Dad’s PSA started going up. He had a PSMA Pet scan and it
Simonapo
in
Advanced Prostate Cancer
3 months ago
"FAN-( )UCKIG-TASTIC RESULTS"
A prostate cancer brother who ask me to return to HU (blame him ;), recently asked me about my T levels. Mid-day today I texted him the results which came in while on a coffee break following my morning of most excellent spring skiing. He texted back what I have used for the topic of this post. Yes
A prostate cancer brother who ask me to return to HU (blame him ;), recently asked me about my T levels. Mid-day today I texted him the results which came in while on a coffee break following my morning of most excellent spring skiing. He texted back what I have used for the topic of this post. Yes
NanoMRI
in
Advanced Prostate Cancer
3 months ago
Doxycycline, small clinical trial
A few months ago, Seasid posted a study on doxycyline, however it was all lab studies. This study is a small "open-window" trial on breast cancer patients indicating eradication of cancer stem cells by doxycycline, an antibiotic. 10.3389/fonc.2018.00452 Prostate and breast cancer have similarities
A few months ago, Seasid posted a study on doxycyline, however it was all lab studies. This study is a small "open-window" trial on breast cancer patients indicating eradication of cancer stem cells by doxycycline, an antibiotic. 10.3389/fonc.2018.00452 Prostate and breast cancer have similarities
Purple-Bike
in
Advanced Prostate Cancer
9 months ago
RED LIGHT THERAPY also known as Photobiomodulation (PBM), Phototherapy, show of hands please
Could we get some idea of how many people are using Red Light Therapy for Parkinson's or other ailments . What are you treating What benefits you have received Any negative aspects How long you have been using it What type of devise , hat, belt, stand up or wall mount panel How powerful device
Could we get some idea of how many people are using Red Light Therapy for Parkinson's or other ailments . What are you treating What benefits you have received Any negative aspects How long you have been using it What type of devise , hat, belt, stand up or wall mount panel How powerful device
Gymsack
in
Cure Parkinson's
9 months ago
Anybody experience post treatment bowel issues after being ok prior ?
Brachytherapy seeds early November , LINAC radiation boost ending early Jan .. ADT ending beginning March.. had space ore ..was totally ok except for urgency to pee sporadically.. other mild side effect and started to notice .. odd bowel issues.. one time had some gas and was careful but soon notice
Brachytherapy seeds early November , LINAC radiation boost ending early Jan .. ADT ending beginning March.. had space ore ..was totally ok except for urgency to pee sporadically.. other mild side effect and started to notice .. odd bowel issues.. one time had some gas and was careful but soon notice
Yokohama2023
in
Prostate Cancer Network
3 months ago
Help!
Hello, everyone, I've an appointment to see my doctor tomorrow and would like to know what strength of buprenorphine helps rls? I'm not doing so good, rls back with a vengeance, had to go back on the hrt gel as I found my rls was way worse after stopping it, I'm crawling all over, day and night since
Hello, everyone, I've an appointment to see my doctor tomorrow and would like to know what strength of buprenorphine helps rls? I'm not doing so good, rls back with a vengeance, had to go back on the hrt gel as I found my rls was way worse after stopping it, I'm crawling all over, day and night since
Loopylegs
in
Restless Legs Syndrome
1 year ago
Red Light Therapy Pad
Dear Friends, I have ordered a red light therapy pad which I am using since yesterday, on the back of my head in the morning and top of my head in the evening for 10 mins 660nm and 10 mins 850nm, both pulsing at 10 Hz. I feel groggy after using it with a worsening of symptoms. Is this normal?
Dear Friends, I have ordered a red light therapy pad which I am using since yesterday, on the back of my head in the morning and top of my head in the evening for 10 mins 660nm and 10 mins 850nm, both pulsing at 10 Hz. I feel groggy after using it with a worsening of symptoms. Is this normal?
JayPwP
in
Cure Parkinson's
9 months ago
Side effects from Xtandi monotherapy?
after failing multiple times on regular ADT plus SBRT and finally failing LU– 177 and Provenge, my PSA went on the rise again. I’ve been on mono Xtando for six weeks and not feeling well despite trying to exercise heavily. Going in for bloodwork tomorrow. What kind of labs should I ask for? Anyone
after failing multiple times on regular ADT plus SBRT and finally failing LU– 177 and Provenge, my PSA went on the rise again. I’ve been on mono Xtando for six weeks and not feeling well despite trying to exercise heavily. Going in for bloodwork tomorrow. What kind of labs should I ask for? Anyone
SViking
in
Advanced Prostate Cancer
3 months ago
prostap and osteopenia
Morning. So, I have been on prostap about 2 years now with hrt while awaiting a lap which is luckily booked for the 6th July. I had a dexa scan in January and they only contacted me with the results last week. Apparently the bone density scan shows I have osteopenia due to the injection and I need to
Morning. So, I have been on prostap about 2 years now with hrt while awaiting a lap which is luckily booked for the 6th July. I had a dexa scan in January and they only contacted me with the results last week. Apparently the bone density scan shows I have osteopenia due to the injection and I need to
Mustang2598
in
Endometriosis UK
1 year ago
Cortisol - Dr Berg you tube video on a 26 step natural treatment plan
I really got interested in cortisol when I met 6 months back a super fit young chap who was a national standard rower who was part of the Olympic team and had to give everything up due to a nasty auto-immune disease that he has subsequently cured. As part of that he has to limit any intense exercise
I really got interested in cortisol when I met 6 months back a super fit young chap who was a national standard rower who was part of the Olympic team and had to give everything up due to a nasty auto-immune disease that he has subsequently cured. As part of that he has to limit any intense exercise
Danielj1
in
Thyroid UK
9 months ago
Embark study
Hi friends, When the Embark study came out, and the FDA approved Xtandi for its use, my MO was enthusiastic that I add Xtandi to my intermittent ADT treatment. What I'm wondering is, I can certainly understand that adding Xtandi to the intermittent ADT treatment delays average time to metastasis, but
Hi friends, When the Embark study came out, and the FDA approved Xtandi for its use, my MO was enthusiastic that I add Xtandi to my intermittent ADT treatment. What I'm wondering is, I can certainly understand that adding Xtandi to the intermittent ADT treatment delays average time to metastasis, but
billfenley2
in
Advanced Prostate Cancer
3 months ago
Losing so much weight
My husband who has had his prostate removed, radiation, chemo, hormone therapy and 5 treatments of pluvicto (this is during 8 years) is now about to either get more radiation or chemo. He is just not eating and losing so much weight! I'm giving hime Ensure and whatever else he might eat but it's just
My husband who has had his prostate removed, radiation, chemo, hormone therapy and 5 treatments of pluvicto (this is during 8 years) is now about to either get more radiation or chemo. He is just not eating and losing so much weight! I'm giving hime Ensure and whatever else he might eat but it's just
LaRue44
in
Advanced Prostate Cancer
3 months ago
Prostate cancer radiotherapy side effects.
I’m a seventy seven year old who had a radical prostatectomy eight years ago. Following one of my regular PSA tests the result showed, after scans in September 2023, a return in the prostate bed and adjacent lymph nodes. Began hormone implants straight away followed by twenty doses of targeted radiotherapy
I’m a seventy seven year old who had a radical prostatectomy eight years ago. Following one of my regular PSA tests the result showed, after scans in September 2023, a return in the prostate bed and adjacent lymph nodes. Began hormone implants straight away followed by twenty doses of targeted radiotherapy
Gingerurgent
in
Pelvic Radiation Disease Association
3 months ago
CLL AND RA
About five years ago I was diagnosed with CLL, a high WBC but it is steady, I am getting no treatment, just monitoring for now. This month I was diagnosed with severe RA ,with a sudden onset four months ago. Treatment so far is Enbrel and prednisone. I'm working on tapering off the prednisone, and now
About five years ago I was diagnosed with CLL, a high WBC but it is steady, I am getting no treatment, just monitoring for now. This month I was diagnosed with severe RA ,with a sudden onset four months ago. Treatment so far is Enbrel and prednisone. I'm working on tapering off the prednisone, and now
WLF3
in
CLL Support
10 months ago
When is PARP introduced?
Hi My husband is currently on triple therapy ( Docetaxel chemo , Zoladex every 3 months and nubeqa) he has one more chemo round left next week. He is responding well so far as PSA is declining ( see profile for PSA) . I have seen some men are talking a PARP inhibitor and nubeqa and zoladex ( or ADT
Hi My husband is currently on triple therapy ( Docetaxel chemo , Zoladex every 3 months and nubeqa) he has one more chemo round left next week. He is responding well so far as PSA is declining ( see profile for PSA) . I have seen some men are talking a PARP inhibitor and nubeqa and zoladex ( or ADT
positive-thinking
in
Advanced Prostate Cancer
3 months ago
Why do MO's continue to prescribe Lupron ADT for Castrate-Resistant men?
I've never understood why MO's continue to prescribe Lupron ADT (or equivalent ) for men who are
castrate-resistant (CRPC
). Isn't that the definition of CRPC, namely, that ADT is no longer working for those men? Why continue to prescribe a drug that no longer works and that causes such suffering
I've never understood why MO's continue to prescribe Lupron ADT (or equivalent ) for men who are
castrate-resistant (CRPC
). Isn't that the definition of CRPC, namely, that ADT is no longer working for those men? Why continue to prescribe a drug that no longer works and that causes such suffering
janebob99
in
Advanced Prostate Cancer
3 months ago
Losing my pubic hair
Recently I noticed that the skin on my inner legs in the crotch area under my scrotum turned brown and then started to peel like a sunburn. The exposed skin is a healthly pink hue and no longer brown but I lost my pubic hair from this area. Surprisingly the size and shape on the brown spots was very
Recently I noticed that the skin on my inner legs in the crotch area under my scrotum turned brown and then started to peel like a sunburn. The exposed skin is a healthly pink hue and no longer brown but I lost my pubic hair from this area. Surprisingly the size and shape on the brown spots was very
skiingfiend
in
Advanced Prostate Cancer
3 months ago
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