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PSMA PET Scan Frequency?
Hello forum members. This is my first post but have learned so much here, thanks to the contributors on this site. My husband’s last and only PSMA PET scan was 1.5 years ago showing 6 mets in small bones after PSA consistently rose a year after radiation. The standard ADT treatment was prescribed
Hello forum members. This is my first post but have learned so much here, thanks to the contributors on this site. My husband’s last and only PSMA PET scan was 1.5 years ago showing 6 mets in small bones after PSA consistently rose a year after radiation. The standard ADT treatment was prescribed
EatLovePray
in
Advanced Prostate Cancer
3 months ago
A Neophyte's Experience with a Gummy
Some of you might be interested in my gummy experience. I do not advocate anything here, but just want to share a new experience. Outside of four episodes in my eighty-four plus years, I have not used marijuana or other drugs beyond alcohol, coffee, maté from the Pampas of Argentina, and whatever uppers
Some of you might be interested in my gummy experience. I do not advocate anything here, but just want to share a new experience. Outside of four episodes in my eighty-four plus years, I have not used marijuana or other drugs beyond alcohol, coffee, maté from the Pampas of Argentina, and whatever uppers
Worked_the_World
in
Advanced Prostate Cancer
3 months ago
Breathing Problems
Hello everyone, I'm a long term severe asthmatic, chronic pain and spasms sufferer with many other medical conditions, I just wanted ask a question, I currently suffer from chronic pain and severe asthma, I sometimes get the following symptoms, shortness of breath, tight chest, ect, when I get up on
Hello everyone, I'm a long term severe asthmatic, chronic pain and spasms sufferer with many other medical conditions, I just wanted ask a question, I currently suffer from chronic pain and severe asthma, I sometimes get the following symptoms, shortness of breath, tight chest, ect, when I get up on
Giggles-Wig
in
Lung Conditions Community Forum
6 months ago
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Full body MRI?
We’ve been reading about full body MRIs and wonder if anyone has had one after radiation treatment for prostate cancer? Can this type of test pick up micro metastases? If the full body scan was “all clear” could ADT be shortened from 2 years to a lower amount?
We’ve been reading about full body MRIs and wonder if anyone has had one after radiation treatment for prostate cancer? Can this type of test pick up micro metastases? If the full body scan was “all clear” could ADT be shortened from 2 years to a lower amount?
Oatmeal2
in
Advanced Prostate Cancer
3 months ago
Ding Ding…Round Three.
I’m not sure if there is anyone out there that remembers me…or is prepared to admit it…but after a 12 month gap I am lacing up my shoes again. I graduated C25k six years ago and went on to graduate 10k aged 60 ish. I made some good friends on here and had great support. However a central ruke of my
I’m not sure if there is anyone out there that remembers me…or is prepared to admit it…but after a 12 month gap I am lacing up my shoes again. I graduated C25k six years ago and went on to graduate 10k aged 60 ish. I made some good friends on here and had great support. However a central ruke of my
Pm3eak
Graduate
in
Couch to 5K
3 months ago
Diagnosed almost 3 years ago
I am a 70 year old diagnosed in 8/21 with G9 on biopsy with initial imaging negative for metastatic disease. Underwent RP in 10/21 with seminal vesicle involvement. A few sampled nodes were negative. 5 months after surgery PSA climbed to 0.39 from 0.016 in first post op test. PSMA PET revealed a solitary
I am a 70 year old diagnosed in 8/21 with G9 on biopsy with initial imaging negative for metastatic disease. Underwent RP in 10/21 with seminal vesicle involvement. A few sampled nodes were negative. 5 months after surgery PSA climbed to 0.39 from 0.016 in first post op test. PSMA PET revealed a solitary
Retireddoc
in
Advanced Prostate Cancer
3 months ago
SBRT for radiorecurrent PCa
Does anyone know of current studies on this treatment? Which centers have the most expertise? Also, any studies which report on increased effectiveness with a short term course of ADT before SBRT?
Does anyone know of current studies on this treatment? Which centers have the most expertise? Also, any studies which report on increased effectiveness with a short term course of ADT before SBRT?
hwrjr
in
Advanced Prostate Cancer
3 months ago
Could Psychedelics help in Parkinsons Disease treatment?
Long read. Promises hope for stroke victims. https://www.wired.com/story/the-psychedelic-scientist-who-sends-brains-back-to-childhood/ ----------------- Here is the responses from AI when fed this article. I asked Claude to summarize the article and hypothetically project possible treatment options
Long read. Promises hope for stroke victims. https://www.wired.com/story/the-psychedelic-scientist-who-sends-brains-back-to-childhood/ ----------------- Here is the responses from AI when fed this article. I asked Claude to summarize the article and hypothetically project possible treatment options
pdpatient
in
Cure Parkinson's
9 months ago
Thinking about stopping Xgeva
When my urologist suggested I see an oncologist I was immediately put on Abi and had a Dexa bone scan scheduled. That was August and scan was done Dec. In the meantime he started me on Xgeva because I had been on adt for 16 months. He agreed to 1 injection every 3 months after 6 months even though my
When my urologist suggested I see an oncologist I was immediately put on Abi and had a Dexa bone scan scheduled. That was August and scan was done Dec. In the meantime he started me on Xgeva because I had been on adt for 16 months. He agreed to 1 injection every 3 months after 6 months even though my
Professorgary
in
Advanced Prostate Cancer
3 months ago
Next step
x Summer of 2020.59 yr old. Spent 2021 on AS eventually psa went from 6.5 to 10 day of RALP. 2/14/22 GL 7a T3aN0M0 post psa at 3 months .04. Stayed until at one year .08 . At 18 months .1 now 2 years out .22 I had a neg psma scan but psa is low so false neg is very real. I have continually asked
x Summer of 2020.59 yr old. Spent 2021 on AS eventually psa went from 6.5 to 10 day of RALP. 2/14/22 GL 7a T3aN0M0 post psa at 3 months .04. Stayed until at one year .08 . At 18 months .1 now 2 years out .22 I had a neg psma scan but psa is low so false neg is very real. I have continually asked
Elbers123
in
Advanced Prostate Cancer
3 months ago
On treating micro-metastatic disease
I watched a video posted by PCRI recently on YouTube. In the video entitled "Treating micro-metastatic disease", Dr Mark Scholz mentioned that undergoing one year of ADT is sufficient post radiation. Thereafter just monitor the PSA for any rise, and use PSMA PET scan to locate any cancer and to radiate
I watched a video posted by PCRI recently on YouTube. In the video entitled "Treating micro-metastatic disease", Dr Mark Scholz mentioned that undergoing one year of ADT is sufficient post radiation. Thereafter just monitor the PSA for any rise, and use PSMA PET scan to locate any cancer and to radiate
John347
in
Advanced Prostate Cancer
3 months ago
PSA uptick
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
mediocra
in
Advanced Prostate Cancer
3 months ago
NovoThor
Has anyone tried or have any knowledge of NovoThor PBM Therapy light beds? A friend saw a leaflet in a waiting room recently, so I’ve done a bit of research and it looks very interesting and if the stats are true good be very helpful for fibromyalgia sufferers, no mention of cost though! My fibromyalgia
Has anyone tried or have any knowledge of NovoThor PBM Therapy light beds? A friend saw a leaflet in a waiting room recently, so I’ve done a bit of research and it looks very interesting and if the stats are true good be very helpful for fibromyalgia sufferers, no mention of cost though! My fibromyalgia
Onlymeandyou
in
Fibromyalgia Action UK
9 months ago
Reason for ADT
Why is ADT used after SBRT? If radiation kills the cancer or makes it impossible to reproduce, then why do some doctors recommend ADT?
Why is ADT used after SBRT? If radiation kills the cancer or makes it impossible to reproduce, then why do some doctors recommend ADT?
Victor615
in
Prostate Cancer Network
3 months ago
Five weeks in
Was rushed to hospital with stroke symptoms and no speach whatsoever. Spent two weeks in Warrington hospital B14 ward and was treated for brain infection with various IV antibiotics. Had various scans one at the Walton centre. Have been left with brocas aphasia and some other symptoms like drooling
Was rushed to hospital with stroke symptoms and no speach whatsoever. Spent two weeks in Warrington hospital B14 ward and was treated for brain infection with various IV antibiotics. Had various scans one at the Walton centre. Have been left with brocas aphasia and some other symptoms like drooling
Wheelchairdave
in
Headway
9 months ago
biochemical recurrence after RP. +post leukemia
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
RP surgery 3/2020. Psa levels stable less than .01 for two years. 6/23 thru 12/23 levels have been .18 to .41. Complication 8/22 diagnosed with AML Leukemia. 5 rounds of chemo and a bone marrow transplant on 1/5/2023. Leukemia is now in complete remission, my blood dna is my donor’s - 40 year
junkwerc
in
Prostate Cancer Network
3 months ago
6 months after MRI Guided SBRT at MSK
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
rosenjpj
in
Advanced Prostate Cancer
3 months ago
Anyone tried hyperbaric Oxygen therapy?
My bestie who is battling ovarian cancer is using this as part of her overcoming cancer plan and reckons it really helps. It gives her a boost of energy and seemes to have helped get her through the chemo stages with hardly any fatigue or sickness. It seems to be endorsed at least unofficially by many
My bestie who is battling ovarian cancer is using this as part of her overcoming cancer plan and reckons it really helps. It gives her a boost of energy and seemes to have helped get her through the chemo stages with hardly any fatigue or sickness. It seems to be endorsed at least unofficially by many
tangocharlie
in
PMRGCAuk
6 months ago
Recent Pulse article for GPS. 😡
Updated guidance from NHS England on treating hypothyroidism warns liothyronine should only be initiated by a consultant endocrinologist and patients taking it should be reviewed be a specialist if they have not been already. It follows a joint position statement from the British Thyroid Association
Updated guidance from NHS England on treating hypothyroidism warns liothyronine should only be initiated by a consultant endocrinologist and patients taking it should be reviewed be a specialist if they have not been already. It follows a joint position statement from the British Thyroid Association
Mollyfan
in
Thyroid UK
9 months ago
A Clinical Trial saved my Life ..12 years a Survivor of Advanced Metastatic Prostate Cancer, Stage 4.
When Alfred Samuels was diagnosed with advanced prostate cancer in 2012, it felt as if his world had fallen apart overnight. Doctors said surgery wasn’t an option for him because the cancer had spread beyond his prostate, and he started to lose hope. But then he joined a clinical trial and began treatment
When Alfred Samuels was diagnosed with advanced prostate cancer in 2012, it felt as if his world had fallen apart overnight. Doctors said surgery wasn’t an option for him because the cancer had spread beyond his prostate, and he started to lose hope. But then he joined a clinical trial and began treatment
alsam
in
Understanding Clinical Trials
3 months ago
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