Search
Search
About
Log in
Join
Experiences with
Eczema and dermatitis
Posts
Communities
37,666 public posts
Filter results
Decision time!
After finding out I had progression to my liver in July and acute side effects to Everolimus after only 6 weeks, I have been advised there is further progression to my liver. So I now face the dilemma of no treatment and at best 6 months, or choice of chemo. My oncologist has given me 3 options, oral
After finding out I had progression to my liver in July and acute side effects to Everolimus after only 6 weeks, I have been advised there is further progression to my liver. So I now face the dilemma of no treatment and at best 6 months, or choice of chemo. My oncologist has given me 3 options, oral
Rafflesbabe
in
SHARE Metastatic Breast Cancer
8 months ago
Buprenorphine and Nausea
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
Basically I successfully use buprenorphine (0.4mg/da) to block RLS but the resultant nausea is a serious well known side affect. I have been well guided by many on this site as to how to combat the nausea and have tried many of the suggested solutions except for me the last resort medical cannabis.
davchar23
in
Restless Legs Syndrome
4 months ago
Private specialist recommendation?
I’m not sure if this is allowed? I’m looking for a private Lupus specialist in the Gloucestershire / Wales area. Is there anyone that can be recommended? Despite positive ANA & ANCA my gp says she won’t refer me because other tests were ok and I saw one a few years ago that diagnosed fibromyalgia. Most
I’m not sure if this is allowed? I’m looking for a private Lupus specialist in the Gloucestershire / Wales area. Is there anyone that can be recommended? Despite positive ANA & ANCA my gp says she won’t refer me because other tests were ok and I saw one a few years ago that diagnosed fibromyalgia. Most
Puckster01
in
LUPUS UK
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Oral Thrush
Hi Apert from intense oral hygiene, keto diet, no alcohol, using doctor prescribed oral mouth rinse for at least 10 days can anyone suggest anything that will work and get rid of this awful feeling in my mouth. . Was pre diabetic before steroids now awaiting next bloods so suspecting steroid induced
Hi Apert from intense oral hygiene, keto diet, no alcohol, using doctor prescribed oral mouth rinse for at least 10 days can anyone suggest anything that will work and get rid of this awful feeling in my mouth. . Was pre diabetic before steroids now awaiting next bloods so suspecting steroid induced
merle1010
in
PMRGCAuk
6 months ago
Varying side effects or formulations?
I started on exemestane in September. Since then, the side effects keep morphing. The first month it was pretty good. My mouth was really dry, odd. I had some fatigue. (I wasn't taking anything else.) The sore joints I had on anastrazole weren't gone, but much improved. I thought this was going to be
I started on exemestane in September. Since then, the side effects keep morphing. The first month it was pretty good. My mouth was really dry, odd. I had some fatigue. (I wasn't taking anything else.) The sore joints I had on anastrazole weren't gone, but much improved. I thought this was going to be
TammyCross
in
SHARE Metastatic Breast Cancer
8 months ago
May be deciding between Afinitor and Enhertu. Thoughts?
Hi! I had a mixd scan, so may be moving on from Orserdu. A shame as I feel great. I am on the fence between Afinitor and Enhertu. I am HER2Low. I know Enhertu is supposed to be very effective, but I am concerned about side effects (nausea, fatigue, hair loss etc.) so thought I would try one last
Hi! I had a mixd scan, so may be moving on from Orserdu. A shame as I feel great. I am on the fence between Afinitor and Enhertu. I am HER2Low. I know Enhertu is supposed to be very effective, but I am concerned about side effects (nausea, fatigue, hair loss etc.) so thought I would try one last
Pbsoup
in
SHARE Metastatic Breast Cancer
8 months ago
PSMA RESULTS
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
I’m five years Post surgery including removal of prostate & lymph nodes. Gleason 8 with Intraductal. Sepsis, DVT/PE after surgery which left me with chronic fatigue, brain fog and bad overactive bladder with incontinence. Four years post stereotactic radiotherapy to the left iliac area following a PSMA
Bcgkelly
in
Advanced Prostate Cancer
8 months ago
Recovery from colds/flu whilst on Adalimumab
Hello,I was diagnosed with Crohn's 18 months ago and have been on Adalimumab for the last 12 months. In that time I have managed to avoid colds/flu until a couple of weeks ago. Have felt quite unwell and presently doesn't seem to be ending. My question is really to other people who have a reduced immune
Hello,I was diagnosed with Crohn's 18 months ago and have been on Adalimumab for the last 12 months. In that time I have managed to avoid colds/flu until a couple of weeks ago. Have felt quite unwell and presently doesn't seem to be ending. My question is really to other people who have a reduced immune
UmaDaisy
in
Crohn's and Colitis Support
6 months ago
Reason for constipation
Is there much research or understanding about why children and toddlers are getting constipated so much? It seems so many are being treated for constipation but I haven't seen any discussions on why this constipation is happening to try and avoid it. I understand low fibre and reduced fluid intake can
Is there much research or understanding about why children and toddlers are getting constipated so much? It seems so many are being treated for constipation but I haven't seen any discussions on why this constipation is happening to try and avoid it. I understand low fibre and reduced fluid intake can
Pinkcords
in
ERIC
6 months ago
Metastasis Pain
Hello Brothers and Sisters , as I will be having a PSMA-Pet , Pyl coming up at my 2 yr mark soon I was wondering at what size a metastasis starts to cause pain . I had a pain under my my left rib cage at about 7 o'clock off and on for 14 months . I had a X-ray , ct-scan and a MRI all negative . The
Hello Brothers and Sisters , as I will be having a PSMA-Pet , Pyl coming up at my 2 yr mark soon I was wondering at what size a metastasis starts to cause pain . I had a pain under my my left rib cage at about 7 o'clock off and on for 14 months . I had a X-ray , ct-scan and a MRI all negative . The
reconjj
in
Advanced Prostate Cancer
8 months ago
Advice
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
Just started chemo again mastactiic high grade serious carcidoma on ovarian mass after 18m break recurrence had letter saying it spread I have chronic kidney disease ca123 195 right enlarged mass on ovary may have to have spleen removed not good read I am trying to decide as the letter says chemo
PaumicB123
in
My Ovacome
8 months ago
CT scan instead of gastroscopy / colonoscopy with all PA tests normal
My Active B12 was just about into the sufficient range. My H Pylorii was negative, as was anti IFAB and coeliac. Homocysteine was fine too. My neurologist’s physical exam was normal ( though the sharp stimulus was a little less sharp on the feet. ) I have been taking sublingual B12 and the tingling
My Active B12 was just about into the sufficient range. My H Pylorii was negative, as was anti IFAB and coeliac. Homocysteine was fine too. My neurologist’s physical exam was normal ( though the sharp stimulus was a little less sharp on the feet. ) I have been taking sublingual B12 and the tingling
Applethorpe
in
Pernicious Anaemia Society
6 months ago
is this hemorrhoids or should I be right to be worried
I’m a 31 year old female. I went to the bathroom yesterday and after a.. sizeable bowel movement noticed some blood in the toilet. This has happened before so I wasn’t too concerned, but I just went to the restroom again today and after I flushed the first time I thought I noticed blood. This was a normal
I’m a 31 year old female. I went to the bathroom yesterday and after a.. sizeable bowel movement noticed some blood in the toilet. This has happened before so I wasn’t too concerned, but I just went to the restroom again today and after I flushed the first time I thought I noticed blood. This was a normal
GLH1209
in
Colon Cancer Connected
6 months ago
Yellowy /Orange Poo
Hi I am normally a constipated individual, but over the last week I have suffered twice with severe diarrhoea with extremely painful spasms. Following the first bout I didn’t go to the toilet for a week, even after taking two separate doses of Laxido. Well last night it all kicked off again - pain
Hi I am normally a constipated individual, but over the last week I have suffered twice with severe diarrhoea with extremely painful spasms. Following the first bout I didn’t go to the toilet for a week, even after taking two separate doses of Laxido. Well last night it all kicked off again - pain
heartmatters1
in
IBS Network
6 months ago
Royal Free visit
Hi all, I just thought I would give a quick update. I attended the Royal Free Hospital last Thursday ,I was seen in the Scleroderma clinic by a member of the team. She asked questions and examined me, she then went and got a senior colleague,(not Prof Denton) unfortunately can’t remember their names
Hi all, I just thought I would give a quick update. I attended the Royal Free Hospital last Thursday ,I was seen in the Scleroderma clinic by a member of the team. She asked questions and examined me, she then went and got a senior colleague,(not Prof Denton) unfortunately can’t remember their names
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
Here we go.......
FULL DISCLOSURE, LONG POST Had a TRUS biopsy end of September after AS of a rising PSA. Had a 3T MRI in November 2021 which showed a PIRADS 3 left base and PIRADS 2 right mid, prostate volume 40mL. 4K in August of this year was 57.1 with PSA of 7.8. DICIPHER from biopsy was .84. Clinical stage
FULL DISCLOSURE, LONG POST Had a TRUS biopsy end of September after AS of a rising PSA. Had a 3T MRI in November 2021 which showed a PIRADS 3 left base and PIRADS 2 right mid, prostate volume 40mL. 4K in August of this year was 57.1 with PSA of 7.8. DICIPHER from biopsy was .84. Clinical stage
ToolBeltZia
in
Prostate Cancer Network
8 months ago
potty training - difficulty pooping (2.5 yo)
my son started potty training about 2.5yo; he will be 3 in around 4 months time. He took to doing wees very well. He intially pooped on the potty but intermittently. He then became quite anxious about it and would have frequent bowel movement accidents or would hold. He goes through waves of having
my son started potty training about 2.5yo; he will be 3 in around 4 months time. He took to doing wees very well. He intially pooped on the potty but intermittently. He then became quite anxious about it and would have frequent bowel movement accidents or would hold. He goes through waves of having
Mumralalalaa
in
ERIC
6 months ago
If you have a Chat GPT 4 account, please read
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
If you have a (paid) Chat GPT 4 account, please be so kind as to try out the two GPT's that I built and are now in the public GPT area Patient Navigator, developed to help patients find payment assistance programs. https://chat.openai.com/g/g-GlKean217-patient-navigator and Clinical Trial Navigator
Darryl
Partner
in
Advanced Prostate Cancer
8 months ago
reassurance needed please
I’m a 33 year old female, went recently for ct scan on kidney as was having a bit of pain. Came back all clear for kidneys and other organs but a large low density area measuring 5x7 cm was found on liver, radiologists suggested : could be focal fat, cyst or other lesion. I am terrified and haven’t eaten
I’m a 33 year old female, went recently for ct scan on kidney as was having a bit of pain. Came back all clear for kidneys and other organs but a large low density area measuring 5x7 cm was found on liver, radiologists suggested : could be focal fat, cyst or other lesion. I am terrified and haven’t eaten
Hannahthom
in
British Liver Trust
8 months ago
Fine needle aspiration 🤔
Hi everyone ❤️ As some will know through my posts, I recently had a diagnosis of primary hyperparathyroidism by a lovely endocrinologist in Liverpool who I'm at present under for this condition. However to get to see this endo I had to go private to see a parathyroid specialist in bambary, he did a
Hi everyone ❤️ As some will know through my posts, I recently had a diagnosis of primary hyperparathyroidism by a lovely endocrinologist in Liverpool who I'm at present under for this condition. However to get to see this endo I had to go private to see a parathyroid specialist in bambary, he did a
birkie
in
Thyroid UK
8 months ago
1
...
82
83
84
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
3345 results
My Ovacome
2925 results
IBS Network
2813 results
View top 10 communities
Sort by
Most Relevant
Newest