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Having a STEMI in mid 40's...the search for underlying causes / answers for premature CHD.
Hi Everyone, My husband had a major STEMI in March 2023 with a full blockage of his circumflex artery. He was 44 years old and playing 5-a-side football in a local sports centre when he collapsed without warning. Thank goodness it happened there of all places however, as the swift actions of his team
Hi Everyone, My husband had a major STEMI in March 2023 with a full blockage of his circumflex artery. He was 44 years old and playing 5-a-side football in a local sports centre when he collapsed without warning. Thank goodness it happened there of all places however, as the swift actions of his team
Fortunate1
in
British Heart Foundation
4 months ago
Spring COVID vaccination
Hi all, I was told when I was diagnosed with PMR last year that the condition would mean I was immuno-suppressed. Consequently I thought I would be entitled to a free spring COVID jab which is being widely advertised now for over-75s (not me yet) and people with weakened immune systems (like me, I
Hi all, I was told when I was diagnosed with PMR last year that the condition would mean I was immuno-suppressed. Consequently I thought I would be entitled to a free spring COVID jab which is being widely advertised now for over-75s (not me yet) and people with weakened immune systems (like me, I
Hedgehogfriend
in
PMRGCAuk
4 months ago
COVID jab
Is anyone wary of having another COVID jab this spring after having A F after the jab.
Is anyone wary of having another COVID jab this spring after having A F after the jab.
Myflowers2
in
Atrial Fibrillation Support
4 months ago
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Latest COVID jab.
Am in the early days of PMR and have just been notified I can get a free COVID.jab. I am a bit worried as the only other person I know who has PMR got it the day after a her jab along with diabetes. There is no rush but I wonder if you have any advice as it is a while until I see a doctor.
Am in the early days of PMR and have just been notified I can get a free COVID.jab. I am a bit worried as the only other person I know who has PMR got it the day after a her jab along with diabetes. There is no rush but I wonder if you have any advice as it is a while until I see a doctor.
tinlid
in
PMRGCAuk
4 months ago
Covid jab
I have been invited for a booster Covid jab. However I have seen that there is a connection between afib symptoms commencing after having a jab on a ,gov website. Has any one any experience of this?
I have been invited for a booster Covid jab. However I have seen that there is a connection between afib symptoms commencing after having a jab on a ,gov website. Has any one any experience of this?
Prawnsalad
in
Atrial Fibrillation Support
4 months ago
B-12 Def in Mexico (no health insurance)
Here is my (ongoing) thread to detail my B12 journey. Here goes! 2-3 years before diagnosis I began having the following symptoms. Numbness in toes which slowly spread to feet then ankles, then calves. A slow deterioration of muscle tone all over. Periods of intermittent dizziness/vertigo and fatigue
Here is my (ongoing) thread to detail my B12 journey. Here goes! 2-3 years before diagnosis I began having the following symptoms. Numbness in toes which slowly spread to feet then ankles, then calves. A slow deterioration of muscle tone all over. Periods of intermittent dizziness/vertigo and fatigue
GracePV
in
Pernicious Anaemia Society
4 months ago
People with hypothyroidism and ME
Those who suffer with both hypothyroidism and ME, do you find that your exhaustion is somewhat abated if your vitamins and minerals are optimal? I have posted previously about a friend who has had hypothyroidism for many years. But after contracting Covid she started to feel exhausted and eventually
Those who suffer with both hypothyroidism and ME, do you find that your exhaustion is somewhat abated if your vitamins and minerals are optimal? I have posted previously about a friend who has had hypothyroidism for many years. But after contracting Covid she started to feel exhausted and eventually
AnneEvo
in
Thyroid UK
4 months ago
Spring Covid booster
Have had text from my surgery offering me a Spring Booster for Covid. Have been on 4.5mg Prednisolone for a couple of months now. Would my immune system still be classed as compromised on such a low dose?
Have had text from my surgery offering me a Spring Booster for Covid. Have been on 4.5mg Prednisolone for a couple of months now. Would my immune system still be classed as compromised on such a low dose?
jaycee444
in
PMRGCAuk
4 months ago
Doxycycline long term use
Hi, I’m 11 months into my 15 month treatment for CLL. I’m on Ibrutinib with Venetoclax and it’s suited me well, and I’m really pleased that my bloods now appear to be normal. I’m also on Co-Trimoxazole antibiotic and Aciclovir antiviral to deal with any infections should they arise during my treatment
Hi, I’m 11 months into my 15 month treatment for CLL. I’m on Ibrutinib with Venetoclax and it’s suited me well, and I’m really pleased that my bloods now appear to be normal. I’m also on Co-Trimoxazole antibiotic and Aciclovir antiviral to deal with any infections should they arise during my treatment
Smiley60
in
CLL Support
1 month ago
Influenza A
So I contracted Influenza A and was pretty ill for 4 days but still not so good despite 6 days on Tamiflu. Wondering if anyone has 1 had influenza and how it went 2 if my decision to take Tamiflu for 10 instead of 5 days is reasonable ( my docs have always doubled the time for antibiotics for bacterial
So I contracted Influenza A and was pretty ill for 4 days but still not so good despite 6 days on Tamiflu. Wondering if anyone has 1 had influenza and how it went 2 if my decision to take Tamiflu for 10 instead of 5 days is reasonable ( my docs have always doubled the time for antibiotics for bacterial
skipro
in
CLL Support
1 month ago
rubella immunity blood tests
Hi I’m about to start another round of IVF after 7 cancelled transfers and 3 failed but using a new clinic. My blood tests have come back that I don’t have a rubella immunity but I have checked my results from my IVF cycle in 2020 which blessed me with my son and my pregnancy results and I did have an
Hi I’m about to start another round of IVF after 7 cancelled transfers and 3 failed but using a new clinic. My blood tests have come back that I don’t have a rubella immunity but I have checked my results from my IVF cycle in 2020 which blessed me with my son and my pregnancy results and I did have an
Chowlady14
in
Fertility Network UK
6 months ago
Spring COVID Vaccine 2024 booster eligibility
Spring COVID Vaccine 2024 booster eligibility The government has announced a Spring 2024 dose of COVID-19 vaccine for: people aged 75 years and over those in care homes those with a weakened immune system (aged 6 months and over) https://www.vasculitis.org.uk/news/covid-boosters
Spring COVID Vaccine 2024 booster eligibility The government has announced a Spring 2024 dose of COVID-19 vaccine for: people aged 75 years and over those in care homes those with a weakened immune system (aged 6 months and over) https://www.vasculitis.org.uk/news/covid-boosters
Suzi70
Administrator
in
Vasculitis UK
4 months ago
Covid booster
Hi. I am travelling abroad to Asia at the end of April and have been trying to find out if I can get my Covid booster before I go. Gp not doing them. NHS website says booking service no longer available and no Clinics open. 119 recorded message says you can’t book through that line and hangs up. Both
Hi. I am travelling abroad to Asia at the end of April and have been trying to find out if I can get my Covid booster before I go. Gp not doing them. NHS website says booking service no longer available and no Clinics open. 119 recorded message says you can’t book through that line and hangs up. Both
grumpygirl
in
NRAS
4 months ago
Tirosint
Hi, I posted earlier about Tirosint in Gel capsules possibly giving me a rash. I stopped taking them 4 weeks ago and the rash continues. Not as bad but still all down my legs and arms. My question. Can it take so long to leave the body? Or am I blaming the wrong thing for my rash? Blood tests were
Hi, I posted earlier about Tirosint in Gel capsules possibly giving me a rash. I stopped taking them 4 weeks ago and the rash continues. Not as bad but still all down my legs and arms. My question. Can it take so long to leave the body? Or am I blaming the wrong thing for my rash? Blood tests were
jand123
in
Thyroid UK
6 months ago
Breastfeeding, skin on skin and contractions (c-section)
Hey everyone, I gave birth about 10 days ago (emergency c section at 29+3 due to HELLP/Pre eclampsia/slowinf fetus heart) and I now have 2 kids in NICU. They encourage us to do skin on skin and after I started doing that, I have been having severe contractions even when I am very far from them; i am
Hey everyone, I gave birth about 10 days ago (emergency c section at 29+3 due to HELLP/Pre eclampsia/slowinf fetus heart) and I now have 2 kids in NICU. They encourage us to do skin on skin and after I started doing that, I have been having severe contractions even when I am very far from them; i am
Tryinglate
in
Pregnancy and Parenting Support
4 months ago
Gods beautiful creations
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
Last week I was able to ski with a bunch of my grandkids and all my pics were of them. Some days I felt ill but it was so worth it Today I went snowshoeing in a snow storm. What a peaceful serene setting on those snow covered paths nestled in the pines. Even the village where the trail system begins
skipro
in
CLL Support
6 months ago
ITP SUPPORT - KEEPING IT LOCAL
This is the recording of the England and Wales ITP Support Group Meeting that took place on Thursday 1st August 2024 with Dr. Will Lester, plus Mervyn Morgan ITPSA CEO and members of the ITPSA Board. Among the items discussed were the outputs of the I-WISh Survey regarding fatigue, you can download
This is the recording of the England and Wales ITP Support Group Meeting that took place on Thursday 1st August 2024 with Dr. Will Lester, plus Mervyn Morgan ITPSA CEO and members of the ITPSA Board. Among the items discussed were the outputs of the I-WISh Survey regarding fatigue, you can download
Anthonyh7
in
ITP Support Association
14 days ago
Treatment for fibro, MCAS, hypermobility syndrom (after catching covid) and long term covid sufferers
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Divinesoul
in
Fibromyalgia Action UK
4 months ago
Started peginterferon alpha 2a treatment
Just recently started the above treatment on the 31st January this year but my oldest daughter has just found out shes 9weeks pregnant and i forgot to ask my consultant if it was ok that on my treatment day is it ok to be around her eg as in she comes to my house to visit or is it similar to chemo treatments
Just recently started the above treatment on the 31st January this year but my oldest daughter has just found out shes 9weeks pregnant and i forgot to ask my consultant if it was ok that on my treatment day is it ok to be around her eg as in she comes to my house to visit or is it similar to chemo treatments
Purplechoclover
in
MPN Voice
6 months ago
Has anyone gone from Pegasys to Besremi?
Hi all, I am a 65 year old woman in the US with ET. My hematologist has had me on Pegasys for 2 years now, starting with 45 mcg, then 90 mcg injected once a week. Originally my platelets were in the high 400's and have crept up even with the injections and are now at 610. He had me go up to 135 mcg
Hi all, I am a 65 year old woman in the US with ET. My hematologist has had me on Pegasys for 2 years now, starting with 45 mcg, then 90 mcg injected once a week. Originally my platelets were in the high 400's and have crept up even with the injections and are now at 610. He had me go up to 135 mcg
ET625
in
MPN Voice
6 months ago
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