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Recently diagnosed
I was diagnosed about a month ago. I was hospitalized with bilateral PEs. I have been on eliquis since but my pulmonologist is putting me on warfarin which I read is what I should have been on. At my follow up with him yesterday, he said I was triple positive. I know I still need another round of testing
I was diagnosed about a month ago. I was hospitalized with bilateral PEs. I have been on eliquis since but my pulmonologist is putting me on warfarin which I read is what I should have been on. At my follow up with him yesterday, he said I was triple positive. I know I still need another round of testing
Vmarti
in
Hughes Syndrome APS Forum
1 month ago
Ikervis (Cyclosporin)
Has anyone been prescribed this for dry eye/corneal issues? I was referred to an iritis clinic and prescribed this drop mid June x 2 drops in right eye per day. Though I don't see out of my right, vision in my left was pretty good up till then (had cataract op in left last year) but it started getting
Has anyone been prescribed this for dry eye/corneal issues? I was referred to an iritis clinic and prescribed this drop mid June x 2 drops in right eye per day. Though I don't see out of my right, vision in my left was pretty good up till then (had cataract op in left last year) but it started getting
whitedog
in
Glaucoma UK
1 month ago
Experiences with Solefenacin / Vesicare?
Does anyone have experience with this drug Solefenacin ? I've been prescribed it but reading the common side effects I am reluctant to take it especially as I'm on holiday in France for a few weeks! The leaflet says there's a 1 in 10 chance of diarrhoea, nausea, dry mouth, raised blood pressure, which
Does anyone have experience with this drug Solefenacin ? I've been prescribed it but reading the common side effects I am reluctant to take it especially as I'm on holiday in France for a few weeks! The leaflet says there's a 1 in 10 chance of diarrhoea, nausea, dry mouth, raised blood pressure, which
Coco51
in
Bladder Health UK
1 month ago
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Taking extra Hydrea on weekends
Hi all, Hope everybody is keeping as well as possible and you can enjoy the summer days, even with the strange weather this year :) Personally, I have been enjoying the cooler temperatures as I can get out 😊 I have ET and PV and have been on Hydrea for 7 months now (interferon didn't work). Initially
Hi all, Hope everybody is keeping as well as possible and you can enjoy the summer days, even with the strange weather this year :) Personally, I have been enjoying the cooler temperatures as I can get out 😊 I have ET and PV and have been on Hydrea for 7 months now (interferon didn't work). Initially
JustKeepSw1mming
in
MPN Voice
1 month ago
June Webinar follow-up: NAC & Methylene Blue
June Webinar follow-up: NAC & Methylene Blue By Dr. Jess Armine For information on LDN, go to https://linktr.ee/ldnrt How do you recommend tapering of botanicals? Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-courses
June Webinar follow-up: NAC & Methylene Blue By Dr. Jess Armine For information on LDN, go to https://linktr.ee/ldnrt How do you recommend tapering of botanicals? Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections/webinars-and-training-courses
Shewulf
Administrator
in
LDN Research Trust
1 month ago
Should I reduce my desogestrel dose?
Hi everyone I'm new here, sorry if this seems like a bit of an essay - I am after some advice about desogestrel. I have been on desogestrel for almost 10 months now (8 months at double dose). It's not been an easy ride, constant bleeding everyday (very heavy to start with). Finally at 9 months
Hi everyone I'm new here, sorry if this seems like a bit of an essay - I am after some advice about desogestrel. I have been on desogestrel for almost 10 months now (8 months at double dose). It's not been an easy ride, constant bleeding everyday (very heavy to start with). Finally at 9 months
bryoccoli
in
Endometriosis UK
1 month ago
Endo & Pelvic Adhesions
Hi all, I'm a newbie to this site although i have had endo for over 30 years. At my initial diagnosis, i was stage 4. 10 years ago I had a sub-total hysterectomy (they could not remove my cervix as it was stuck to my bladder with endo cysts). Since then, on and off, i have a spot in my lower right side
Hi all, I'm a newbie to this site although i have had endo for over 30 years. At my initial diagnosis, i was stage 4. 10 years ago I had a sub-total hysterectomy (they could not remove my cervix as it was stuck to my bladder with endo cysts). Since then, on and off, i have a spot in my lower right side
helterskelter123
in
Endometriosis UK
1 month ago
UTI experience with Imbruvica
hello, when I was on Imbruvica I had many UTI. This is side effects of Imbruvica. I asked my doctor to switch me for another medication and now they m on Venclecta. This is even worse. I do not have UTI anymore , but I’m already sick for Ramsay Hunt this is like Bels Pasley. All these pills for CLL have
hello, when I was on Imbruvica I had many UTI. This is side effects of Imbruvica. I asked my doctor to switch me for another medication and now they m on Venclecta. This is even worse. I do not have UTI anymore , but I’m already sick for Ramsay Hunt this is like Bels Pasley. All these pills for CLL have
farber
in
CLL Support
1 month ago
ATP and NAD+ Deficiency in Parkinson’s Disease
Laurie Mischley authored... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9961646/#abstract-a.l.b.stitle Results from this pilot study contribute to a growing body of evidence that PD is not a brain disease, but a systemic metabolic syndrome with disrupted cellular energetics and function in peripheral
Laurie Mischley authored... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9961646/#abstract-a.l.b.stitle Results from this pilot study contribute to a growing body of evidence that PD is not a brain disease, but a systemic metabolic syndrome with disrupted cellular energetics and function in peripheral
JayPwP
in
Cure Parkinson's
1 month ago
Need advice and direction
I need help trying to figure out how many carbs I should be eating a day … does anyone know of a reliable calculator …. I can find calculators for every type of health issue just not hypothyroidism …. My weight is out of control and Im tired of it and exercising is important but proving nearly impossible
I need help trying to figure out how many carbs I should be eating a day … does anyone know of a reliable calculator …. I can find calculators for every type of health issue just not hypothyroidism …. My weight is out of control and Im tired of it and exercising is important but proving nearly impossible
Batty1
in
Thyroid UK
1 month ago
Are there any diet choices or supplements which help ?
Are there any particular diets like whole food plant based or low carb etc which affect prostate cancer progression ? Is Dairy ok ? Also , any supplements which might be useful like Lycopene etc ? Any studies ? Thanks 😊🙏🏻
Are there any particular diets like whole food plant based or low carb etc which affect prostate cancer progression ? Is Dairy ok ? Also , any supplements which might be useful like Lycopene etc ? Any studies ? Thanks 😊🙏🏻
Tinkudi
in
Advanced Prostate Cancer
1 month ago
Eye symptoms
Has any one been told they have early onset macular degeneration? Also weak retina? I was given a Amsler grid last eye test/scan and told to go straight to A & E if lines go curved. I have had a bad cellulitis infection in 2021 which I had a cyst also, antibiotics and drops eventually sorted this.
Has any one been told they have early onset macular degeneration? Also weak retina? I was given a Amsler grid last eye test/scan and told to go straight to A & E if lines go curved. I have had a bad cellulitis infection in 2021 which I had a cyst also, antibiotics and drops eventually sorted this.
Missyjasper
in
Behçet's UK
1 month ago
What do you think about Methylene Blue if one has an MAO inhibitor enzyme?
What do you think about Methylene Blue if one has an MAO inhibitor enzyme? Answered by Dr. Jess Armine https://youtu.be/FdkJBq-fXt0?si=pvmIXcdsd0ya57lz For information on LDN, go to https://linktr.ee/ldnrt Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections
What do you think about Methylene Blue if one has an MAO inhibitor enzyme? Answered by Dr. Jess Armine https://youtu.be/FdkJBq-fXt0?si=pvmIXcdsd0ya57lz For information on LDN, go to https://linktr.ee/ldnrt Our webinars and training courses can be purchased from https://www.ldnrtevents.com/collections
Shewulf
Administrator
in
LDN Research Trust
1 month ago
Health anxiety
I m having health anxiety since 15 years. I lost my very precious 15 years almost sitting in one corner. It's very difficult to write everything at once. Pls any one here help.I m under medication Daxid 100mg - 2 tablets per day ( sertraline) Clonotril 2mg - 2 tablets per day (Clonazapam) One glucose
I m having health anxiety since 15 years. I lost my very precious 15 years almost sitting in one corner. It's very difficult to write everything at once. Pls any one here help.I m under medication Daxid 100mg - 2 tablets per day ( sertraline) Clonotril 2mg - 2 tablets per day (Clonazapam) One glucose
Blackandwhite1
in
Anxiety Support
1 month ago
Dry Mouth and Methotrexate
I started s.c. Methotrexate a couple of months ago and am increasingly developing a dry mouth. This aggravates my erosive oral lichen planus. Is this common with Methotrexate??
I started s.c. Methotrexate a couple of months ago and am increasingly developing a dry mouth. This aggravates my erosive oral lichen planus. Is this common with Methotrexate??
13Lab
in
NRAS
1 month ago
Squint surgery
Hi all today i had surgery for a squint in my left eye which is my weak eye. I have wet AMD in both eyes and have Eyelea injections. Also have ocular hypertension in both eyes and use drops. What fun! I have been given Maxitrol drops 4 x times daily for 2 week then 2 x times daily for the following
Hi all today i had surgery for a squint in my left eye which is my weak eye. I have wet AMD in both eyes and have Eyelea injections. Also have ocular hypertension in both eyes and use drops. What fun! I have been given Maxitrol drops 4 x times daily for 2 week then 2 x times daily for the following
EthelPledge94
in
Macular Society
1 month ago
PV , Rux, and Cardiovascular issues
Hi, I am undergoing tests on my heart and have been diagnosed with pulmonary hypertension. The tests are not yet complete so I shall continue on 20 mg Rux and aspirin until they are. My haemotologist thinks it has not been caused by the Rux but maybe PV.I would like to hear from anybody else who has
Hi, I am undergoing tests on my heart and have been diagnosed with pulmonary hypertension. The tests are not yet complete so I shall continue on 20 mg Rux and aspirin until they are. My haemotologist thinks it has not been caused by the Rux but maybe PV.I would like to hear from anybody else who has
JP1952
in
MPN Voice
1 month ago
what to do now ?
Hi All Confused what to do next ? These are my results after 6 weeks on new regime Bloods taken 8am and 12 hours after last dose of T3 125 mcg Tirosint 2.5 mcg T3 I’m feeling much warmer and brain fog is better although I do feel a little angst and teary at times ? Energy is much better.
Hi All Confused what to do next ? These are my results after 6 weeks on new regime Bloods taken 8am and 12 hours after last dose of T3 125 mcg Tirosint 2.5 mcg T3 I’m feeling much warmer and brain fog is better although I do feel a little angst and teary at times ? Energy is much better.
joskie
in
Thyroid UK
1 month ago
Feeling Powerless in the Face of Change
I have been trying so hard to improve my situation. I have been advocating for myself professionally. I have been prioritizing my mental health needs by attending an intensive outpatient program and regularly attending sessions with my outside therapist and psychiatrist. I have dedicated time towards
I have been trying so hard to improve my situation. I have been advocating for myself professionally. I have been prioritizing my mental health needs by attending an intensive outpatient program and regularly attending sessions with my outside therapist and psychiatrist. I have dedicated time towards
beehappy2day
in
Mental Health Support
2 months ago
clopidogrel
hello, I’m on clopidogrel and aspirin third week post my op (I have aneurysm secured by stent)and as I was warned I’m bruising a lot but also have severe pain inside my arms ,at times. It might sound a bit weird, but it’s like my bones rotted inside. Is anyone heard something similar?
hello, I’m on clopidogrel and aspirin third week post my op (I have aneurysm secured by stent)and as I was warned I’m bruising a lot but also have severe pain inside my arms ,at times. It might sound a bit weird, but it’s like my bones rotted inside. Is anyone heard something similar?
Hidden
in
MPN Voice
2 months ago
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