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PMR flare or something else?
I posted a couple weeks ago about pain and stiffness in my hips, shoulders, and hands/wrists, starting when I reduced to 3 mg from 3.5 mgprednisone using DSNS (diagnosed in 2018 PMR/GCA) and also had a great deal of stess and activity. The rheumatologist thought it was carpal tunnel and trochanter hip
I posted a couple weeks ago about pain and stiffness in my hips, shoulders, and hands/wrists, starting when I reduced to 3 mg from 3.5 mgprednisone using DSNS (diagnosed in 2018 PMR/GCA) and also had a great deal of stess and activity. The rheumatologist thought it was carpal tunnel and trochanter hip
Viola1
in
PMRGCAuk
8 months ago
Unexplained vertigo
Hi everyone This morning I had vertigo all of a sudden out of nowhere . About an hour before that I experienced very minimal blurred vision when I was looking at my phone which lasted for about a minute . I’m newly diagnosed with Lupus and I’ve been taking hydroxychloroquine for 6 weeks now .Any ideas
Hi everyone This morning I had vertigo all of a sudden out of nowhere . About an hour before that I experienced very minimal blurred vision when I was looking at my phone which lasted for about a minute . I’m newly diagnosed with Lupus and I’ve been taking hydroxychloroquine for 6 weeks now .Any ideas
sunmoon_
in
LUPUS UK
8 months ago
How do I tune this out?
Hi. It’s nearly a year since this thing started. I have bilateral tinnitus and hear 3 or 4 different sounds. Although I’m well past the seriously deranged early days, I can’t seem to get to the bit where you tune it out. I’ve done a mindfulness course and use meditation to relax when needed, been fitted
Hi. It’s nearly a year since this thing started. I have bilateral tinnitus and hear 3 or 4 different sounds. Although I’m well past the seriously deranged early days, I can’t seem to get to the bit where you tune it out. I’ve done a mindfulness course and use meditation to relax when needed, been fitted
ViolinP
in
Tinnitus UK
8 months ago
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Feeling thoroughly miserable - full time musician, first time tinnitus
Hi folks, hoping to get some more positive ways to deal with this. I've built everything around playing music in my life. It's my entire income, and I feel I need all the money I can get from it. I don't really know any other way I can make the same money. I now have my teenage daughter living with
Hi folks, hoping to get some more positive ways to deal with this. I've built everything around playing music in my life. It's my entire income, and I feel I need all the money I can get from it. I don't really know any other way I can make the same money. I now have my teenage daughter living with
Fulltimemuso
in
Tinnitus UK
8 months ago
Old Musician With Tinnitus.
Hi all, here is my story. Having been a rock musician since I was a teenager, I'm now in my 60's. And my Tinnitus has got progressively worse over the last few years. During this 'heatwave' in the UK my Tinnitus suddenly got a louder. I have visited two audiologists in the past one with very surprising
Hi all, here is my story. Having been a rock musician since I was a teenager, I'm now in my 60's. And my Tinnitus has got progressively worse over the last few years. During this 'heatwave' in the UK my Tinnitus suddenly got a louder. I have visited two audiologists in the past one with very surprising
VonAdder
in
Tinnitus UK
8 months ago
PiP - Aids being 'prescribed'
This appears to be coming up a few times from reading previous posts regarding PiP claims. People who have bought their own aids to facilitate an easier existence are being told they cannot count as proof of either disability/change in disability, because they have not been 'prescribed' by the GP. Yet
This appears to be coming up a few times from reading previous posts regarding PiP claims. People who have bought their own aids to facilitate an easier existence are being told they cannot count as proof of either disability/change in disability, because they have not been 'prescribed' by the GP. Yet
Alanna012
in
Fibromyalgia Action UK
8 months ago
BPPV ADVICE
Just wanted to ask how you cope living with bppv ? I have had it a long time but only mildly had episodes of balance and dizziness just today I had sudden dizzy spell just by taking washing out of the dryer turning my head I came really dizzy I managed to hold on to the kitchen work surface till it passed
Just wanted to ask how you cope living with bppv ? I have had it a long time but only mildly had episodes of balance and dizziness just today I had sudden dizzy spell just by taking washing out of the dryer turning my head I came really dizzy I managed to hold on to the kitchen work surface till it passed
Glenkerry40
in
Tinnitus UK
8 months ago
three weeks of ear infection now at breaking point
hi, I’ve not written on this site for a long time so long I don’t remember the last post but I’ve had tinnitus in my left ear for years now and learnt to live with it but I’m hitting 3 weeks of an ear infection and I’m reaching the end of my rope. I’ve had medication her feels like it’s doing the
hi, I’ve not written on this site for a long time so long I don’t remember the last post but I’ve had tinnitus in my left ear for years now and learnt to live with it but I’m hitting 3 weeks of an ear infection and I’m reaching the end of my rope. I’ve had medication her feels like it’s doing the
djv1985
in
Tinnitus UK
8 months ago
Help first timer
it’s been months now I have been suffering with fullness in my ear and the most annoying whooshing sound. Google tells me if it sounds like my heart beating to seek urgent medical advice. I have been to see ENT and they scoped my nasal cavity and I had a hearing test and pressure test done in audiology
it’s been months now I have been suffering with fullness in my ear and the most annoying whooshing sound. Google tells me if it sounds like my heart beating to seek urgent medical advice. I have been to see ENT and they scoped my nasal cavity and I had a hearing test and pressure test done in audiology
Whooshingmedown
in
Tinnitus UK
8 months ago
suspected etd
2 years ago my left side of neck suddenly became inflamed and burned. Two weeks later it happened again and brought on a screaming high pitch ringing in ear. I’ve had it 24/7 ever since . My y left ear hums but I can leave the humming for as long as I like and can turn off by either swallowing or even
2 years ago my left side of neck suddenly became inflamed and burned. Two weeks later it happened again and brought on a screaming high pitch ringing in ear. I’ve had it 24/7 ever since . My y left ear hums but I can leave the humming for as long as I like and can turn off by either swallowing or even
BigDazz
in
Tinnitus UK
8 months ago
I can’t take my tinnitus no more..
I can’t take my tinnitus no more Hi everyone, Sorry for my english but i’m not fluent so i’ll try my best to be understood. First, I am 25. I had tinnitus on my right ear since i was a teenager (ENT said that was because of the loud music on earpods) since, i haven’t listen to loud music no
I can’t take my tinnitus no more Hi everyone, Sorry for my english but i’m not fluent so i’ll try my best to be understood. First, I am 25. I had tinnitus on my right ear since i was a teenager (ENT said that was because of the loud music on earpods) since, i haven’t listen to loud music no
Lola77921
in
Tinnitus UK
8 months ago
Menieres disease making me ill or suppresses tsh
Re my last post, all indications are that I have menieres disease; dizzy, tinnitus, nausea, vomiting etc, but my gp can't understand why I'm so exhausted too and has suggested it's because of my suppressed tsh. I have had a blood test and will attach them (can't upload more than one so will put the rest
Re my last post, all indications are that I have menieres disease; dizzy, tinnitus, nausea, vomiting etc, but my gp can't understand why I'm so exhausted too and has suggested it's because of my suppressed tsh. I have had a blood test and will attach them (can't upload more than one so will put the rest
JBLOVELL
in
Thyroid UK
8 months ago
GCA and Ear Swelling, Pressure
Can GCA cause ear swelling ? I have GCA and constant ear pressure, soreness. My general practitioner couldn’t find any thing that would cause it, nor could an ear-nose-throat doctor. Even did a hearing test and all said everything is good. Would this be a flare? I’m on Actemra and 4 mg prednisone
Can GCA cause ear swelling ? I have GCA and constant ear pressure, soreness. My general practitioner couldn’t find any thing that would cause it, nor could an ear-nose-throat doctor. Even did a hearing test and all said everything is good. Would this be a flare? I’m on Actemra and 4 mg prednisone
Pamk1949
in
PMRGCAuk
8 months ago
vertigo
does anyone suffer with really bad Vertigo? I have been in bed for four days with horrendous vertigo and being physically sick…I seem to be taking these episodes much more often and can’t get out of bed with each episode…..can’t even lift my head off the pillow, just wondering if anyone else has these
does anyone suffer with really bad Vertigo? I have been in bed for four days with horrendous vertigo and being physically sick…I seem to be taking these episodes much more often and can’t get out of bed with each episode…..can’t even lift my head off the pillow, just wondering if anyone else has these
Beverley1956
in
Fibromyalgia Action UK
8 months ago
sudden hearing loss
I woke up on 24 July this year with fullness and partial hearing in my right ear. Saw doc 4 days later who prescribed steroid tablets for 12 days. During that time I got a small improvement however when I stopped taking them the problems returned. I had spikes of high temperature so perhaps virus
I woke up on 24 July this year with fullness and partial hearing in my right ear. Saw doc 4 days later who prescribed steroid tablets for 12 days. During that time I got a small improvement however when I stopped taking them the problems returned. I had spikes of high temperature so perhaps virus
Hamsterfun
in
Tinnitus UK
8 months ago
Headache and earache
While it has no medical evidence to prove they re caused by tinnitus But since after i got tinnitus and then got both And is it true even if u ignore the sound there are still excessice stimulatation in the brain with the sound
While it has no medical evidence to prove they re caused by tinnitus But since after i got tinnitus and then got both And is it true even if u ignore the sound there are still excessice stimulatation in the brain with the sound
vincentchan
in
Tinnitus UK
8 months ago
Hearing loss and tinnitus and driving
Hi everyone, I am new to this forum so would just like to relate my journey. I started in June with sudden unilateral hearing loss, vertigo and terrible tinnitus.The first couple of months have been horrendous, not helped by the fact that I could not be seen in a timely manner by the NHS. I eventually
Hi everyone, I am new to this forum so would just like to relate my journey. I started in June with sudden unilateral hearing loss, vertigo and terrible tinnitus.The first couple of months have been horrendous, not helped by the fact that I could not be seen in a timely manner by the NHS. I eventually
roorockle
in
Tinnitus UK
8 months ago
manual ear wax removal?
Hello everyone Having hyperacusis & tinnitus makes microsuction & irrigation a no no for me. Can anyone recommend somewhere in uk that does manual wax removal using hand tools & a ear camera? I have searched old links to similar questions on here but they all lead to dead links. Thanks
Hello everyone Having hyperacusis & tinnitus makes microsuction & irrigation a no no for me. Can anyone recommend somewhere in uk that does manual wax removal using hand tools & a ear camera? I have searched old links to similar questions on here but they all lead to dead links. Thanks
bournville
in
Tinnitus UK
8 months ago
Reply from GP Surgery to medical record access
After ten weeks plus my MP's senior researcher has finally received a reply to my request for full online access to my medical records using my hearing loss and the Equality Act 2010 is below. I have not received any acknowledgement of my private and confidential hand delivered letters to my named
After ten weeks plus my MP's senior researcher has finally received a reply to my request for full online access to my medical records using my hearing loss and the Equality Act 2010 is below. I have not received any acknowledgement of my private and confidential hand delivered letters to my named
2pence
in
Thyroid UK
8 months ago
Barking!
Hello all, I’m a nearly 73yr old woman and I’m going mad. I have had tinnitus as long as I can remember, also suffer with hypercusis (not sure of spelling). We have a ten month old border collie pup who is incredibly vocal. I find his bark extremely painful and was wondering if noise cancelling headphones
Hello all, I’m a nearly 73yr old woman and I’m going mad. I have had tinnitus as long as I can remember, also suffer with hypercusis (not sure of spelling). We have a ten month old border collie pup who is incredibly vocal. I find his bark extremely painful and was wondering if noise cancelling headphones
Rainydaysuzy
in
Tinnitus UK
9 months ago
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