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biliary atresia post kasai at 102 days after born
my baby is now 50 days post kasai, in Japan Juntendo hospital shizuoka, is on 4 cycle of steroids with prednisolone, before the surgery it was T bilirubin 7,4 and D bilirubin 5,6 , after one week of surgery it decreased to t bilirubin 4,2 d bilirrubin 3,2 . Then in one week got t bilirubin 4,5 and d
my baby is now 50 days post kasai, in Japan Juntendo hospital shizuoka, is on 4 cycle of steroids with prednisolone, before the surgery it was T bilirubin 7,4 and D bilirubin 5,6 , after one week of surgery it decreased to t bilirubin 4,2 d bilirrubin 3,2 . Then in one week got t bilirubin 4,5 and d
Babyjunten
in
Children's Liver Disease Foundation
8 months ago
Zona vaccine for CLL patients on Alcalabrutinib (CALQUENCE)
I had my Zona vaccine first dose 4 monhs ago with a reaction, swellin of the biceps part of my arm for about 10 days, treated with 15 minutes ice cold compresses to cool off. Does anyone knows if it is safe to take the second dose? I also have a cataract removal on one eye a few days later. If it
I had my Zona vaccine first dose 4 monhs ago with a reaction, swellin of the biceps part of my arm for about 10 days, treated with 15 minutes ice cold compresses to cool off. Does anyone knows if it is safe to take the second dose? I also have a cataract removal on one eye a few days later. If it
unairdefamille
in
CLL Support
8 months ago
Kidney Stones
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
Parlorman
in
Advanced Prostate Cancer
8 months ago
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Warfarin not raising inr....why?
I've been taking warfarin for 4 weeks trying to get to inr level between 2-3. Even though I'm taking higher dose 8mg my INR is staying at 1.3. I thought by 4 weeks it would have gone up on that dose. It's a pain because I got to have bloods taken every 3 days to see if it goes up. I'm not taking any
I've been taking warfarin for 4 weeks trying to get to inr level between 2-3. Even though I'm taking higher dose 8mg my INR is staying at 1.3. I thought by 4 weeks it would have gone up on that dose. It's a pain because I got to have bloods taken every 3 days to see if it goes up. I'm not taking any
Charts
in
Hughes Syndrome APS Forum
8 months ago
Bowel inflammation - any link to PMR/GCA?
I have had problems with diarrhoea for several years now. I have had bad reactions in the past to sertraline (antidepressant) and amoxillin, with constant diarrhoea for several months. However my calprotectin levels (measuring gut inflammation) were normal. Since diagnosis I have been getting frequent
I have had problems with diarrhoea for several years now. I have had bad reactions in the past to sertraline (antidepressant) and amoxillin, with constant diarrhoea for several months. However my calprotectin levels (measuring gut inflammation) were normal. Since diagnosis I have been getting frequent
Broseley
in
PMRGCAuk
6 months ago
Heart Calcium Score scan scare
Hello all. Last week I had a scan done that my Dr ordered because I am diabetic and over 50. I can exercise fine with my heart rate to 170 at times. I don't have any heart disease in my family on both sides. My cholesterol and triglycerides are all well within normal range but..........this score
Hello all. Last week I had a scan done that my Dr ordered because I am diabetic and over 50. I can exercise fine with my heart rate to 170 at times. I don't have any heart disease in my family on both sides. My cholesterol and triglycerides are all well within normal range but..........this score
Slickrock
in
Anxiety Support
8 months ago
Cystitis post endometriosis surgery
Hi, I had stage 3 endometriosis surgery just over 4 months ago. Endo was removed from bowel, bladder, ovaries etc. Prior to my surgery I used to get cystitis only after intercourse which would go away after a course of antibiotics. However, since my surgery I keep on getting cystitis(mostly constantly
Hi, I had stage 3 endometriosis surgery just over 4 months ago. Endo was removed from bowel, bladder, ovaries etc. Prior to my surgery I used to get cystitis only after intercourse which would go away after a course of antibiotics. However, since my surgery I keep on getting cystitis(mostly constantly
Ayesfreen
in
Endometriosis UK
8 months ago
MAJOR CANCER CURE! (yeah, I know it's not PD)
Somehow (and i watch, listen, and skim DOZENS of health videos weekly) i missed this one from a YEAR ago! Even though it is a miracle treatment for "cancer" and not "PD" -- the point is that SCIENCE is working VERY HARD to cure, stop, prevent, slow down ... PD! SO DON'T GIVE UP! ------------------
Somehow (and i watch, listen, and skim DOZENS of health videos weekly) i missed this one from a YEAR ago! Even though it is a miracle treatment for "cancer" and not "PD" -- the point is that SCIENCE is working VERY HARD to cure, stop, prevent, slow down ... PD! SO DON'T GIVE UP! ------------------
PDWarrior1900
in
Cure Parkinson's
8 months ago
Update 7.7.5 = Benign
Thanks to all who responded to my last post. The news on the growth removed from my face was good news. It was benign, a Seborrheic Keratosis that suddenly had become inflamed. Due to the coloration, it looked a possible malignant growth, which is why I had it checked out. I would encourage everyone
Thanks to all who responded to my last post. The news on the growth removed from my face was good news. It was benign, a Seborrheic Keratosis that suddenly had become inflamed. Due to the coloration, it looked a possible malignant growth, which is why I had it checked out. I would encourage everyone
hunter5582
in
MPN Voice
5 months ago
Pulsatile Tinnitus complications
I have been recently diagnosed with Pulsatile Tinnitus, and when trying to get to sleep my left ear (where the pulsing is located) trembles occasionally and in addition I seem to get a seperate clicking sound, both of which wake me back up when I am dropping off. Has anyone else had anything like these
I have been recently diagnosed with Pulsatile Tinnitus, and when trying to get to sleep my left ear (where the pulsing is located) trembles occasionally and in addition I seem to get a seperate clicking sound, both of which wake me back up when I am dropping off. Has anyone else had anything like these
Skippyboy
in
British Tinnitus Association
1 year ago
PMR and the effect on mental health.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I have moments of absolute overwhelming sadness? I have never welled up to this extent and can even feel it coming on, which is very odd indeed.
Markandevie
in
PMRGCAuk
5 months ago
Hyperhomocysteinemia or lack of vitamin 12
has anyone suffered from inability to absorb vitamin B12 due to either the Lupus or Methotrexate injections? I’m really struggling with pins and needs and total exhaustion and I’m wondering if this is my problem. It’s impossible getting to speak to dr or rheumy or nurse so could do with advice please
has anyone suffered from inability to absorb vitamin B12 due to either the Lupus or Methotrexate injections? I’m really struggling with pins and needs and total exhaustion and I’m wondering if this is my problem. It’s impossible getting to speak to dr or rheumy or nurse so could do with advice please
BK47
in
LUPUS UK
8 months ago
Update on Dipyridamole
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
Talked to my Doctor and he felt that taking Dipyridamole as needed was OK. In two months I have had three bad nights. To me a bad night is going to bed and getting back up in 10 minutes, when ya know ya know. So that is the good news. I am also going for a blood test next week, that should be
WideBody
in
Restless Legs Syndrome
8 months ago
Cataract removal
I had a cataract removed on Friday last and make the stupid mistake of putting the wrong post op drops in my eye. I had to ring the emergency services and between them and my daughter I managed to get to the emergency room. They sluiced my eye out after administering antiseptic and rang the consultant
I had a cataract removed on Friday last and make the stupid mistake of putting the wrong post op drops in my eye. I had to ring the emergency services and between them and my daughter I managed to get to the emergency room. They sluiced my eye out after administering antiseptic and rang the consultant
Stoneferry8
in
Macular Society
8 months ago
cystitisy like feelings
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Norelo8
in
My Ovacome
8 months ago
IBS and wind
I have had IBS for years and I am really suffering at the moment not only with the unpredictability of BMs but also terrible bloating and wind. It seems to be worse as soon as I go out shopping or to social events. I wonder if anxiety is partly to blame. I keep a food diary and am really careful
I have had IBS for years and I am really suffering at the moment not only with the unpredictability of BMs but also terrible bloating and wind. It seems to be worse as soon as I go out shopping or to social events. I wonder if anxiety is partly to blame. I keep a food diary and am really careful
Starry56
in
IBS Network
6 months ago
Update on Nuclear Scan and where I am at now.
First: thank you all for the kind support I have received since - Much appreciated. To the Nuclear Scan ordered by my GP for suspect spread from bladder cancer to the bones. I got a call from my GP surgery today telling me Dr wanted to let me know, NO bone cancer found. Thant's one worry gone.
First: thank you all for the kind support I have received since - Much appreciated. To the Nuclear Scan ordered by my GP for suspect spread from bladder cancer to the bones. I got a call from my GP surgery today telling me Dr wanted to let me know, NO bone cancer found. Thant's one worry gone.
Ern007
in
Lung Conditions Community Forum
8 months ago
colonoscope
Just wondering if anybody had deep sedation with this procedure and how was it thanks Sue. Just anxious about it all with Emphysema.
Just wondering if anybody had deep sedation with this procedure and how was it thanks Sue. Just anxious about it all with Emphysema.
soul-123
in
Lung Conditions Community Forum
5 months ago
Improvement in Heraing
This is an update on my earlier post regarding hearing loss. First of all I am able to report marked improvement in my hearing. My visit to audiologist confirmed that my left ear (better one) had returned to earlier measured levels but that my right ear was below those levels taking it into 'severe'
This is an update on my earlier post regarding hearing loss. First of all I am able to report marked improvement in my hearing. My visit to audiologist confirmed that my left ear (better one) had returned to earlier measured levels but that my right ear was below those levels taking it into 'severe'
Hihohiho
in
CLL Support
1 year ago
Neurological processing disorder from bacterial meningitis
morning, I was just wondering if anyone has had any experience with neurological processing disorders please? I went to the hospital recently for an auditory processing disorder but it’s now thought that this is wider neurological processing disorder that I need to be referred to a brain trauma specialist
morning, I was just wondering if anyone has had any experience with neurological processing disorders please? I went to the hospital recently for an auditory processing disorder but it’s now thought that this is wider neurological processing disorder that I need to be referred to a brain trauma specialist
ElephantLover2023
in
Meningitis Now
8 months ago
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