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Please help 🙏 Im trying to find HOPE. Has anyone had successful surgical treatments following very long standing AF due to Cardiomyopathy.
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Hello everyone. I'm new to this ..and im desperately looking for any help anyone can offer on theor experience of positive outcomes following surgical treatments when you've had the condition for 30 years but has become life limiting in the last 9 years. I'm on Riveroxiban and Betablockers at 7.5 per
Yellowmango99
in
AF Association
8 months ago
Is tinnitus seen as having hearing loss.
Hi, I wanted to ask if anyone in the forum uses hearing aids for Tinnitus, or bilateral tinnitus. And would using such hearing aids be classed as an aid like as if someone has hearing loss. Thanks
Hi, I wanted to ask if anyone in the forum uses hearing aids for Tinnitus, or bilateral tinnitus. And would using such hearing aids be classed as an aid like as if someone has hearing loss. Thanks
Tinkerchat
in
Tinnitus UK
1 year ago
Hair issues
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
hi I forgot to ask my rheum nurse about my hair. I’m on methotrexate and seems to be ok with no abnormal hair loss but since taking it I haven’t had my hair highlighted . Anybody advice with this ? I have left message on advice line but wondering others people’s experience. Thanks
Teddyboy17
in
NRAS
8 months ago
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Bladder Cancer Update,
A most will know. Besides my COPD and heart problems I have Bladder Cancer which is Hight Grade, Six weeks ago I had a Rigid cystoscopy to see how my last ditch treatment on BCG would go and told, would be the last time I could have that. I had heard nothing and was 6 weeks ago Sunday. I phoned
A most will know. Besides my COPD and heart problems I have Bladder Cancer which is Hight Grade, Six weeks ago I had a Rigid cystoscopy to see how my last ditch treatment on BCG would go and told, would be the last time I could have that. I had heard nothing and was 6 weeks ago Sunday. I phoned
Ern007
in
Lung Conditions Community Forum
8 months ago
Feeling a bit like a train wreck !!
Hi everyone, so just a quick one. Wonder if anyone else feels a bit like me ?? I'm really struggling to get motivated at the moment. It's not helping when it's dark, cold and wet in the evenings. I love running, but time with everything (work, homelife, general everything life) is just flying by
Hi everyone, so just a quick one. Wonder if anyone else feels a bit like me ?? I'm really struggling to get motivated at the moment. It's not helping when it's dark, cold and wet in the evenings. I love running, but time with everything (work, homelife, general everything life) is just flying by
adnewg73
Graduate
in
Couch to 5K
8 months ago
UK Cabazitaxel/Carboplatin availability
I have a fairly urgent decision to make regarding my treatment. For the benefit of our US warriors, the UK National Health Service means that the overwhelming majority of patients do not have private healthcare insurance. I'm one of those. Now, with the decision to switch from Docetaxel to Cabazataxel
I have a fairly urgent decision to make regarding my treatment. For the benefit of our US warriors, the UK National Health Service means that the overwhelming majority of patients do not have private healthcare insurance. I'm one of those. Now, with the decision to switch from Docetaxel to Cabazataxel
CrocodileShoes
in
Advanced Prostate Cancer
8 months ago
Severe reaction to Targinact - please help
Thanks everyone for your help with my last post re: Targinact. I think I am having severe side-effects from the drug, all of which are listed in the leaflet. I thought I was ill due to a seasonal flu/cold, but I now think the sickness, shaking, diarrhoea, nausea, rapid breathing and complete loss of
Thanks everyone for your help with my last post re: Targinact. I think I am having severe side-effects from the drug, all of which are listed in the leaflet. I thought I was ill due to a seasonal flu/cold, but I now think the sickness, shaking, diarrhoea, nausea, rapid breathing and complete loss of
Claire_lc
in
Restless Legs Syndrome
6 months ago
Biotin and ESR/CRP Testing
Good evening. I have been taking supplements - AdCalD3 (of course!), Vit K2, VitB complex magnesium glycerine/malate and fish oil - fairly religiously since starting on pred. To help with hair/skin/bone thinning, I have also taken collagen and biotin. I was alarmed to discover tonight that biotin can
Good evening. I have been taking supplements - AdCalD3 (of course!), Vit K2, VitB complex magnesium glycerine/malate and fish oil - fairly religiously since starting on pred. To help with hair/skin/bone thinning, I have also taken collagen and biotin. I was alarmed to discover tonight that biotin can
Burroughs123
in
PMRGCAuk
8 months ago
biologic therapy
I have been on methotrexate for 20 years for RA. I started at 10 mg. Went to 15mg fairly promptly and then 20mg last year. In general I had no side effects and good quality of life. Recently I started to have a lot of flares and my rheumatologist has recommended a biologic. He said I could try upping
I have been on methotrexate for 20 years for RA. I started at 10 mg. Went to 15mg fairly promptly and then 20mg last year. In general I had no side effects and good quality of life. Recently I started to have a lot of flares and my rheumatologist has recommended a biologic. He said I could try upping
Barrcroom
in
NRAS
1 year ago
QOL gone
Prostatectomy followed 8 months later with ADT and radiation. Mostly incontinent since. Always had overactive bladder before cancer. Urologist did cystoscope and said everything looked normal. Its been > 2 weeks and I am in constant misery. Bladder hurts and have strong feeling of needing to urinate
Prostatectomy followed 8 months later with ADT and radiation. Mostly incontinent since. Always had overactive bladder before cancer. Urologist did cystoscope and said everything looked normal. Its been > 2 weeks and I am in constant misery. Bladder hurts and have strong feeling of needing to urinate
rfgh20
in
Advanced Prostate Cancer
8 months ago
tips on covid and newborn
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
so i found out i have Covid day after my son was born. I v been so scared to pass it on to him, iv been sleeping in a different room and cleaning up and washing real well before breastfeeding. With all the postpartum pain Covid symptoms and lack of sleep is making everything harder. Anyone been in a
Chantysal
in
Pregnancy and Parenting Support
8 months ago
Ibrutinib resistance
Resistance to IB after 6 yrs.. mutations c481 & Plcg2. Still on IB until progression. 13q, zap 70. What's next? No definitive answers from Onco/Hema Doc except watch & wait. Very anxious.
Resistance to IB after 6 yrs.. mutations c481 & Plcg2. Still on IB until progression. 13q, zap 70. What's next? No definitive answers from Onco/Hema Doc except watch & wait. Very anxious.
Rogerinhorn2015
in
CLL Support
8 months ago
Pseudomonas colonised.
Morning all, l have been on nebulised Colomycin since last August. Although it has kept infections at bay, l am more breathless than l used to be and energy levels are very low. I have told that l will be on this medication for a long time as my lungs are very badly damaged. I cannot walk any length
Morning all, l have been on nebulised Colomycin since last August. Although it has kept infections at bay, l am more breathless than l used to be and energy levels are very low. I have told that l will be on this medication for a long time as my lungs are very badly damaged. I cannot walk any length
falcon68
in
Lung Conditions Community Forum
5 months ago
B12 injections impact on other medical tests
Hello all I recently posted about this and only got one reply so carried on researching and ….. I have stumbled across this pdf on the New Zealand govt website. It is a Panpharma pdf for hydroxycobalamin. https://www.medsafe.govt.nz/profs/Datasheet/h/HydroxocobalaminPanpharmainj.pdf It specifies
Hello all I recently posted about this and only got one reply so carried on researching and ….. I have stumbled across this pdf on the New Zealand govt website. It is a Panpharma pdf for hydroxycobalamin. https://www.medsafe.govt.nz/profs/Datasheet/h/HydroxocobalaminPanpharmainj.pdf It specifies
Rosydawn
in
Pernicious Anaemia Society
8 months ago
For patients with GCA vasculitis
Dear fellow vascies, can I ask you to complete this very short survey?
I know that PMR causes fatigue as well, but please only do the survey if you are diagnosed with GCA.
The aim of this project is to explore and discover how individuals with vasculitis, manage with fatigue in everyday life
Dear fellow vascies, can I ask you to complete this very short survey?
I know that PMR causes fatigue as well, but please only do the survey if you are diagnosed with GCA.
The aim of this project is to explore and discover how individuals with vasculitis, manage with fatigue in everyday life
zoe69
in
PMRGCAuk
8 months ago
Dry mouth
Thank you all for the sugg for coping with dry mouth and throat. Lots to choose from. I will try the sugar free chewing gum and Boots throat spray. I also have dry eyes and use a gel prescribed from the GP. I will ask to be checked for diabeties. All your help is much appreciated.
Thank you all for the sugg for coping with dry mouth and throat. Lots to choose from. I will try the sugar free chewing gum and Boots throat spray. I also have dry eyes and use a gel prescribed from the GP. I will ask to be checked for diabeties. All your help is much appreciated.
veggiefan70
in
Fibromyalgia Action UK
8 months ago
B6 - advice
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
I’m confused about B6. is the advice with Co-Careldopa not to take, at all. Or to take after Co-Careldopa has been absorbed. my recent blood tests showed me deficient in B6. thanks
Nb11
in
Cure Parkinson's
8 months ago
Rainbows in the morning
Hello all, I have my next appointment with the consultant at the hospital on the 28th November. I have been on various eye drops, tablets since my iridotomy… 1st one in November 2022 and then an enlargement in March due the original holes sealing over. Since then my pressure has been on the high side
Hello all, I have my next appointment with the consultant at the hospital on the 28th November. I have been on various eye drops, tablets since my iridotomy… 1st one in November 2022 and then an enlargement in March due the original holes sealing over. Since then my pressure has been on the high side
KBIOW
in
Glaucoma UK
8 months ago
Low BP Meds With Doxazosin
Hi Everyone.Currently taking Perindoprol and Bisoprolol every morning for BP. Any thoughts on adding the 12mg Doxazosin to the above in the mornings as well?
Hi Everyone.Currently taking Perindoprol and Bisoprolol every morning for BP. Any thoughts on adding the 12mg Doxazosin to the above in the mornings as well?
Ilovemuesli
in
High Blood Pressure Support
8 months ago
Bloodshot eyes
I've accidentally got shampoo in my dry eyes and made them bloodshot I'm really fatigued today and yesterday
I've accidentally got shampoo in my dry eyes and made them bloodshot I'm really fatigued today and yesterday
Oldbloke1
in
PBC Foundation
8 months ago
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