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Inner Ear condition
Hi Does anyone have another autoimmune condition affecting inner ear? I’ve had a couple of bouts of ‘acute labyrinthitis’ often have itching in one ear that can get quite sore, constant tinnitus and intermittent hearing loss in same ear. GP dismissive but now I’m wondering if it’s another auto immune
Hi Does anyone have another autoimmune condition affecting inner ear? I’ve had a couple of bouts of ‘acute labyrinthitis’ often have itching in one ear that can get quite sore, constant tinnitus and intermittent hearing loss in same ear. GP dismissive but now I’m wondering if it’s another auto immune
DebatDG9
in
PBC Foundation
9 months ago
First time Ruxolitinib and what to make note of, from Vietnam - a case of interest/study
I am writing on behalf of my mother who was diagnosed with PV back in 2002. The symptoms started with her in 2001 but it took over 1 year for my mother to get to the right hospital, a specialized Hematologic hospital of the Ho Chi Minh City and she was put on HU since then, until recently, as a BMB showed
I am writing on behalf of my mother who was diagnosed with PV back in 2002. The symptoms started with her in 2001 but it took over 1 year for my mother to get to the right hospital, a specialized Hematologic hospital of the Ho Chi Minh City and she was put on HU since then, until recently, as a BMB showed
Cranston3x
in
MPN Voice
1 year ago
How Long For A Referral?
I had a hearing test some years ago and was told there was between 10% and 30% loss in my left ear depending on frequency. Two years ago I had a bad bout of the Delta variant. I was bedridden for two weeks. At the same time my voice changed and my hearing deteriorated. My voice returned to normal (I
I had a hearing test some years ago and was told there was between 10% and 30% loss in my left ear depending on frequency. Two years ago I had a bad bout of the Delta variant. I was bedridden for two weeks. At the same time my voice changed and my hearing deteriorated. My voice returned to normal (I
MichaelJH
in
Tinnitus UK
9 months ago
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Bisoprolol
Hi, I've been feeling dizzy, lightheaded and was wondering if Bisoprolol Fumarate 5 mg that I have been taking every day for a few years could be the cause of my discomfort. I would appreciate any comments and advice.
Hi, I've been feeling dizzy, lightheaded and was wondering if Bisoprolol Fumarate 5 mg that I have been taking every day for a few years could be the cause of my discomfort. I would appreciate any comments and advice.
Martgai
in
Arrhythmia Alliance
9 months ago
Habituation
I have had T since January of 2023 - Started off light, had days of not hearing it and then awful days and then constant since the end of March - As of late I do have a few decent days, it's the emotional part of it that is the worst for me because I know it's something I can't control, and I like being
I have had T since January of 2023 - Started off light, had days of not hearing it and then awful days and then constant since the end of March - As of late I do have a few decent days, it's the emotional part of it that is the worst for me because I know it's something I can't control, and I like being
mf101704
in
Tinnitus UK
9 months ago
Likelihood of hearing loss after gamma knife
Hi All, I’m a 40y/o woman diagnosed with an AN a year ago. I have had a follow up MRI and unfortunately the AN is growing and I’ve been recommended to undergo gamma knife surgery within the next year. I had very mild hearing loss upon diagnosis but surprising it improved and my hearing is technically
Hi All, I’m a 40y/o woman diagnosed with an AN a year ago. I have had a follow up MRI and unfortunately the AN is growing and I’ve been recommended to undergo gamma knife surgery within the next year. I had very mild hearing loss upon diagnosis but surprising it improved and my hearing is technically
SSC14
in
Acoustic Neuroma Support
9 months ago
Any fertility accupuncture recommendations in London please
We are going to embark on a round of mild IVF and I'd like to get some fertility accupuncture before and or during treatment. I've never tried accupuncture before. Any recommendations for Central London or somewhere in south east London would be great. Thank you
We are going to embark on a round of mild IVF and I'd like to get some fertility accupuncture before and or during treatment. I've never tried accupuncture before. Any recommendations for Central London or somewhere in south east London would be great. Thank you
Silverskies
in
Fertility Network UK
1 year ago
Questions about experience with rinvoq
Have had to stop rinvoq a few times lately due to infections, this last time I stopped rinvoq for ear infection for 5 days. The infection has not cleared up so they're giving me another antibiotic for 10 days. I was just wondering if most people have a flare when stopping rinvoq for that length of
Have had to stop rinvoq a few times lately due to infections, this last time I stopped rinvoq for ear infection for 5 days. The infection has not cleared up so they're giving me another antibiotic for 10 days. I was just wondering if most people have a flare when stopping rinvoq for that length of
gnstric66
in
NRAS
9 months ago
Noise in my head
I think I developed Tinnitus as a result of going on blood pressure tablets years ago.A couple of years ago I complained to my GP that my tinnitus was getting louder so I was sent for CT scan on my left ear which is where I thought it was coming from,but the results showed no abnormalities so I was
I think I developed Tinnitus as a result of going on blood pressure tablets years ago.A couple of years ago I complained to my GP that my tinnitus was getting louder so I was sent for CT scan on my left ear which is where I thought it was coming from,but the results showed no abnormalities so I was
Jvb74
in
Tinnitus UK
9 months ago
No more propafenone!!!! What???
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
I'm in the U.S., diagnosed PAF ~3 years ago. Have achieved excellent control with propafenone (Rythmol). My pharmacy informed me they cannot refill my prescription, as there is a supply side problem with propafenone. From what I have read, there is a dangerous shortage of propafenone in the U.S and
frazeej
in
AF Association
9 months ago
Neuropathy AFTER Chemo: Treatment?
I had 14 docetaxel treatments a little over a year ago with no neuropathy. Approximately two months after completing these 14 treatments, I began to have peripheral neuropathy in my fingertips and a small amount in my toes. The neuropathy is worse at night and has continued (at about the same severity
I had 14 docetaxel treatments a little over a year ago with no neuropathy. Approximately two months after completing these 14 treatments, I began to have peripheral neuropathy in my fingertips and a small amount in my toes. The neuropathy is worse at night and has continued (at about the same severity
VLBIV
in
Advanced Prostate Cancer
1 year ago
Awaiting hospital appt
Hi I've had a letter through the post saying I have a small AN and now awaiting specialist appointment at Salford. I've had symptoms of tinnitus my referral to ENT was my ask not GPs and I was surprised when the ENT consultant offered me an MRI to put my mind at ease. I was expecting it to come back
Hi I've had a letter through the post saying I have a small AN and now awaiting specialist appointment at Salford. I've had symptoms of tinnitus my referral to ENT was my ask not GPs and I was surprised when the ENT consultant offered me an MRI to put my mind at ease. I was expecting it to come back
Ranikhan
in
Acoustic Neuroma Support
9 months ago
First Time Here
Hello Dear Fellow GBMers, I was diagnosed a year ago, have done the standard protocol and am trying other things, too... Keto diet, lots of supplements, acupuncture, etc. I feel fortunate that my symptoms now are mostly low energy and digestive issues. I have an amazing team of physicians who, except
Hello Dear Fellow GBMers, I was diagnosed a year ago, have done the standard protocol and am trying other things, too... Keto diet, lots of supplements, acupuncture, etc. I feel fortunate that my symptoms now are mostly low energy and digestive issues. I have an amazing team of physicians who, except
BeLoveAndHope
in
Glioblastoma Support
1 year ago
Polychromasia in peripheral smear?
I'm 23 M Jak2 negative, bmb inconclusive, done in 2018 Recent peripheral smear shows anisocytosis and polychromasia. Is this worrisome feature? Am i landing up in something serious?
I'm 23 M Jak2 negative, bmb inconclusive, done in 2018 Recent peripheral smear shows anisocytosis and polychromasia. Is this worrisome feature? Am i landing up in something serious?
Xuzy
in
MPN Voice
9 months ago
Carin
I had hip replacement 2 1/2 years ago and after a few weeks my symptoms of PD appeared. My orthopedic doctor said my Muscles were angry, I went back one more time but same statement and no effort to help/ I want to chiropractors, acupuncturist, natural doctor and finally neurologist diagnosed me with
I had hip replacement 2 1/2 years ago and after a few weeks my symptoms of PD appeared. My orthopedic doctor said my Muscles were angry, I went back one more time but same statement and no effort to help/ I want to chiropractors, acupuncturist, natural doctor and finally neurologist diagnosed me with
Shililly
in
Cure Parkinson's
1 year ago
2nd short term Ginkgo trial underway
The 1st was around 10 days ago. 1 tablet taken evening of purchase, and 3 over the following day. The day after that T was not around in the afternoon for a few hours. I thought I had been cured (!) but did come back around 6pm. 3 tablets also taken over that day. The following day T was around and it
The 1st was around 10 days ago. 1 tablet taken evening of purchase, and 3 over the following day. The day after that T was not around in the afternoon for a few hours. I thought I had been cured (!) but did come back around 6pm. 3 tablets also taken over that day. The following day T was around and it
Ray200
in
Tinnitus UK
9 months ago
How do we get a T3 test requested?
morning, just been reading through a load of things on here as I’m not sure my figures are where they should be at the moment. I’m getting a load of problems lately especially to do with my feet, muscle aches, dry skin, anxiety, brain fog (and also what I think is pulsatile tinnitus that’s driving
morning, just been reading through a load of things on here as I’m not sure my figures are where they should be at the moment. I’m getting a load of problems lately especially to do with my feet, muscle aches, dry skin, anxiety, brain fog (and also what I think is pulsatile tinnitus that’s driving
Wagamama
in
Thyroid UK
16 days ago
Sleep aids
Hoping that people can pass on what they use to help sleep with T. Realise there are likely to be a number of replies through various posts, but be good to hear what works for people on this thread if possible. ..on another note are steroids likely to spike tinnitus? Just finishing a 5 day course prescribed
Hoping that people can pass on what they use to help sleep with T. Realise there are likely to be a number of replies through various posts, but be good to hear what works for people on this thread if possible. ..on another note are steroids likely to spike tinnitus? Just finishing a 5 day course prescribed
Cityfan1
in
Tinnitus UK
9 months ago
Blood test interpretation
Hallo everyone, I requested a blood test to cover a number of things - not sure this one covers everything or maybe there's more to come. I wonder if anyone might be willing or have the time to help with interpretation. ESR looks OK - I requested CRP as well but doesn't appear to be there unless I
Hallo everyone, I requested a blood test to cover a number of things - not sure this one covers everything or maybe there's more to come. I wonder if anyone might be willing or have the time to help with interpretation. ESR looks OK - I requested CRP as well but doesn't appear to be there unless I
Miserere
in
PMRGCAuk
1 month ago
Sciatica
I’ve had PMR for 18 months and had got down to 8mg. Pain in one hip and assumed it was a spike so went back to 12mg as advised by doctor. However symptoms still there after 3 weeks and appear to be sciatica. As only in one hip. Very painful and no painkiller helps . Could this be PMR but only in
I’ve had PMR for 18 months and had got down to 8mg. Pain in one hip and assumed it was a spike so went back to 12mg as advised by doctor. However symptoms still there after 3 weeks and appear to be sciatica. As only in one hip. Very painful and no painkiller helps . Could this be PMR but only in
Elmadon
in
PMRGCAuk
1 year ago
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