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And so it begins......home dialysis
This is a hard post to write. I am headed for dialysis within the next month or two. NO getting around it now. No chance for reversal or improvement at this point. It was a good fight. I have some questions to start learning about this process. I will be doing home hemodialysis. I am already did the
This is a hard post to write. I am headed for dialysis within the next month or two. NO getting around it now. No chance for reversal or improvement at this point. It was a good fight. I have some questions to start learning about this process. I will be doing home hemodialysis. I am already did the
Bassetmommer
in
Kidney Dialysis
11 months ago
Swollen painful hand
I've had PMR for 2 years. Was started on 40 mg of prednisone. I have slowly gotten down to 13 mg. Recently I tapered to 12 mg but have not felt very well & suddenly my right hand fingers are swollen & very painful. This has never happened before. Is this some kind of flare?
I've had PMR for 2 years. Was started on 40 mg of prednisone. I have slowly gotten down to 13 mg. Recently I tapered to 12 mg but have not felt very well & suddenly my right hand fingers are swollen & very painful. This has never happened before. Is this some kind of flare?
noslak
in
PMRGCAuk
9 months ago
Changes at 6.5
Tiptoeing my way down from 7mg (started in Dec. 2022 at 20) to 6.5, I noticed that I no longer bruise so easily (yay!) and my allergic contact dermatitis has returned (boo). But more significantly, I feel fatigued much of the day (I've been very active) and a bit depressed (I'm usually optimistic) until
Tiptoeing my way down from 7mg (started in Dec. 2022 at 20) to 6.5, I noticed that I no longer bruise so easily (yay!) and my allergic contact dermatitis has returned (boo). But more significantly, I feel fatigued much of the day (I've been very active) and a bit depressed (I'm usually optimistic) until
papadapadoo
in
PMRGCAuk
8 months ago
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Preventing IBS diarrhea before plane travel
Does anyone have any tips on how to avoid embarrassing accidents on planes? Is it okay to use Imodium proactively?
Does anyone have any tips on how to avoid embarrassing accidents on planes? Is it okay to use Imodium proactively?
MrsSJO
in
IBS Network
10 months ago
LDN Questions Answered
Have a question about Low Dose Naltrexone? Use the search feature on this page and find the answer https://www.facebook.com/ldnrt
Have a question about Low Dose Naltrexone? Use the search feature on this page and find the answer https://www.facebook.com/ldnrt
Shewulf
Administrator
in
LDN Research Trust
8 months ago
naltrexone
Has anyone out there tried low dose Naltrexone for their RLS? My doctor is considering this as part of a long term rotation plan to manage dependence and augmentation. I haven’t found a lot of information yet, but interested in having as many options
Has anyone out there tried low dose Naltrexone for their RLS? My doctor is considering this as part of a long term rotation plan to manage dependence and augmentation. I haven’t found a lot of information yet, but interested in having as many options
teakabeagle
in
Restless Legs Syndrome
8 months ago
Monocular Vision Pain
Good evening, I lost sight in my right eye from a freak accident in January. I'm having constant eye pain in the good eye, I have seen many consultants that have examined the eye and unable to identify anything that could be causing the pain. I use eye drops daily, eye gel and many pain killers
Good evening, I lost sight in my right eye from a freak accident in January. I'm having constant eye pain in the good eye, I have seen many consultants that have examined the eye and unable to identify anything that could be causing the pain. I use eye drops daily, eye gel and many pain killers
ItsBrandon
in
Pain Concern
10 months ago
We would like LDN patients to participate
We would like LDN patients to participate and for everyone to share the link. https://form.ldnresearchtrust.org/232178515095055 Thank you so much for your attention and participation. The effects of low dose Naltrexone (LDN) on diseases of aging. A retrospective cross-sectional study into the off-label
We would like LDN patients to participate and for everyone to share the link. https://form.ldnresearchtrust.org/232178515095055 Thank you so much for your attention and participation. The effects of low dose Naltrexone (LDN) on diseases of aging. A retrospective cross-sectional study into the off-label
Shewulf
Administrator
in
LDN Research Trust
9 months ago
low dose naltrexone
hello all, i have not posted in a long time, but i want to report that i have been working with low dose naltrexone since may. I started on 0.5mg each night. i titrated up by 0.5mg a night, each week until i was at 3 mg. At that point 90% of my RLS symptoms were gone. In october i titrated up to 4 mg
hello all, i have not posted in a long time, but i want to report that i have been working with low dose naltrexone since may. I started on 0.5mg each night. i titrated up by 0.5mg a night, each week until i was at 3 mg. At that point 90% of my RLS symptoms were gone. In october i titrated up to 4 mg
collageartist52
in
Restless Legs Syndrome
9 months ago
New therapies for RLS!! New research finally!
I have had RLS for 30 years, but when prescribed pramaprexole, of course, it made the monster worse. I did some research and there are two new therapies coming out. One is a new drug discovered by professor Dr. Stefan Clemens at Brody school of medicine...he discovered why augmentation happens...
I have had RLS for 30 years, but when prescribed pramaprexole, of course, it made the monster worse. I did some research and there are two new therapies coming out. One is a new drug discovered by professor Dr. Stefan Clemens at Brody school of medicine...he discovered why augmentation happens...
beartoothgirl406
in
Restless Legs Syndrome
9 months ago
Constipation
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Groda
in
PMRGCAuk
11 months ago
bed wetting has stopped but now child is highly emotional?
hi, just wondering if anyone here that’s had a child that wets the bed had any emotional problems when they stopped? I certainly didn’t expect that stopping bed wetting would cause us any problems 🤦🏼♀️. So this last wee my 9 year old girl has been dry at night. Great news… but now she’s so emotional
hi, just wondering if anyone here that’s had a child that wets the bed had any emotional problems when they stopped? I certainly didn’t expect that stopping bed wetting would cause us any problems 🤦🏼♀️. So this last wee my 9 year old girl has been dry at night. Great news… but now she’s so emotional
Skyfullofstars1
in
ERIC
11 months ago
New to T3, advice please
Hello there, help please! Results listed below....I have always been symptomatic with Hashimoto's, diagnosed 2019. Was on just levo for years but after DIO2 testing and conversion rate of t4 to t3 being low I was started on a trial of T3 in march 2023. I always have blood testing between 8am and 9am.
Hello there, help please! Results listed below....I have always been symptomatic with Hashimoto's, diagnosed 2019. Was on just levo for years but after DIO2 testing and conversion rate of t4 to t3 being low I was started on a trial of T3 in march 2023. I always have blood testing between 8am and 9am.
Sammy333
in
Thyroid UK
9 months ago
anyone tried low dose naltrexone for fertility?
Hi there, I'm just come across Low Dose Naltrexone and the LDN Research Trust and it seems to work miracles on both fertility and autoimmune conditions (I have hashimoto's - auto immune underactive thyroid) and have been trying to conceive naturally for almost three years. I wondered if it's something
Hi there, I'm just come across Low Dose Naltrexone and the LDN Research Trust and it seems to work miracles on both fertility and autoimmune conditions (I have hashimoto's - auto immune underactive thyroid) and have been trying to conceive naturally for almost three years. I wondered if it's something
Becsf
in
Fertility Network UK
9 months ago
Sources and experiences of LDN
Hi again, Just one more sourcing question - does anyone have any recommendations of UK sources of low dose naltrexone? I would also love to hear of anyone's experiences of taking LDN. I have hashimoto's underactive thyroid and am also trying to conceive and have read that it could be v beneficial
Hi again, Just one more sourcing question - does anyone have any recommendations of UK sources of low dose naltrexone? I would also love to hear of anyone's experiences of taking LDN. I have hashimoto's underactive thyroid and am also trying to conceive and have read that it could be v beneficial
Becsf
in
Thyroid UK
9 months ago
Low dose naltrexone for PMR?
Has anyone tried LDN for PMR? One of my doctors suggested it.
Has anyone tried LDN for PMR? One of my doctors suggested it.
emmamom
in
PMRGCAuk
10 months ago
Feeling very unwell - do my blood results explain why? What to do next?
Hi Mid August My NDT was increased from 2.5 to 3 grains. By the last week in September I began to feel what I describe as a 'bit off' , these feelings come and go. My partner had covid , I tested negative a couple of times. I did have a bit of cough and sore throat but that lasted only a couple
Hi Mid August My NDT was increased from 2.5 to 3 grains. By the last week in September I began to feel what I describe as a 'bit off' , these feelings come and go. My partner had covid , I tested negative a couple of times. I did have a bit of cough and sore throat but that lasted only a couple
Divine1990
in
Thyroid UK
10 months ago
Dental problems
I have over the past couple of years had trouble with a dry burning mouth , which has caused gum problems which I have never had before also just recently my eyes have been very dry and itchy does anyone else suffer with these symptoms are they another Fibromyalgia gift !
I have over the past couple of years had trouble with a dry burning mouth , which has caused gum problems which I have never had before also just recently my eyes have been very dry and itchy does anyone else suffer with these symptoms are they another Fibromyalgia gift !
Thornthorpe
in
Fibromyalgia Action UK
1 year ago
Mum with CBD
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Good morning It's been a while since I wrote on here. My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a care home for palliative care. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6
Bobbiejo21
in
PSP Association
1 year ago
one final chance of survival
hi, Yesterday I posted an update about my mum and her icu journey. I have a further update I would like to share. From her ct the original infection is finally clearing up. She has a lot of fluid around her lungs and pneumonia at the bottom that the antibiotics are not clearing. They said the chance
hi, Yesterday I posted an update about my mum and her icu journey. I have a further update I would like to share. From her ct the original infection is finally clearing up. She has a lot of fluid around her lungs and pneumonia at the bottom that the antibiotics are not clearing. They said the chance
Westbeginners1
in
ICUsteps
1 year ago
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