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Dry eye syndrome
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Plaquenil
Hi. I am AMA positive, pbc diagnosis. Chronic sinusitis and autoimmunehypothyroidism. Recent arthralgia and myalgia and raised crp, esr, and platelets for last 4 months. Rheumatologist feels it may be lupus, wegeners or sirgons. ANA , ANCA negative. On vimovo then arcoxia. They helped for a short
Hi. I am AMA positive, pbc diagnosis. Chronic sinusitis and autoimmunehypothyroidism. Recent arthralgia and myalgia and raised crp, esr, and platelets for last 4 months. Rheumatologist feels it may be lupus, wegeners or sirgons. ANA , ANCA negative. On vimovo then arcoxia. They helped for a short
Nellies47
in
Vasculitis UK
3 years ago
Paper on meds that help DA withdrawal
Hello, can anyone please point me to a paper that details the drugs that can assist with dopamine agonist withdrawal, so that I can share with my doctor? I am stepping down from ropinirole now (due to augmentation, of course) and it is horrible. My doctor, who doesn’t know a lot about RLS (but is open
Hello, can anyone please point me to a paper that details the drugs that can assist with dopamine agonist withdrawal, so that I can share with my doctor? I am stepping down from ropinirole now (due to augmentation, of course) and it is horrible. My doctor, who doesn’t know a lot about RLS (but is open
Frustrated-RLS
in
Restless Legs Syndrome
3 years ago
Post dental extraction
I had a molar removed yesterday afternoon due to severe pain and swelling. In my ignorant bliss I thought tooth out, pain and facial swelling will be gone, how wrong was I. Swelling worse and more widespread and pain is building back up. Has anyone suffered the same and found Prednisolone helped ?
I had a molar removed yesterday afternoon due to severe pain and swelling. In my ignorant bliss I thought tooth out, pain and facial swelling will be gone, how wrong was I. Swelling worse and more widespread and pain is building back up. Has anyone suffered the same and found Prednisolone helped ?
ParsnipSoup
in
PMRGCAuk
3 years ago
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Supplement to restore joint health
I’ve been buying this for my dog for quite a while for his joints and the webpage says it is for humans too so I thought I would try it. https://wedeliver.nz/products/efac I have been taking it at 3 per day for a while and I swear it is helping. So if you have sore achy body it might be worth a try
I’ve been buying this for my dog for quite a while for his joints and the webpage says it is for humans too so I thought I would try it. https://wedeliver.nz/products/efac I have been taking it at 3 per day for a while and I swear it is helping. So if you have sore achy body it might be worth a try
LAJ12345
in
Cure Parkinson's
3 years ago
Superior Limbic Keratoconjunctivitis
Went to see my Consultant Ophthalmologist today (great chap who sorted my floaters, which were the size of icebergs, a couple of years ago and said that I would need cataracts sorted sooner or later so elected to do them at the same time as the floaters and all on the NHS – perfect) as I have some discomfort
Went to see my Consultant Ophthalmologist today (great chap who sorted my floaters, which were the size of icebergs, a couple of years ago and said that I would need cataracts sorted sooner or later so elected to do them at the same time as the floaters and all on the NHS – perfect) as I have some discomfort
Flivoless
in
PMRGCAuk
3 years ago
So guys, after some advice. My, what I called bad eye has been a bit sore the last couple of days, Im a total panicker always.....
I saw my consultant back in July after having quite regular lucentis injections and he said it was all good and didn't need anymore. Looking to see me in 3 months for a follow up and sign me off. I had a macular oedema, brvo. Now, should I get in touch again with him immediately. No vision changes
I saw my consultant back in July after having quite regular lucentis injections and he said it was all good and didn't need anymore. Looking to see me in 3 months for a follow up and sign me off. I had a macular oedema, brvo. Now, should I get in touch again with him immediately. No vision changes
MillieT
in
Macular Society
3 years ago
Eye problems
So this must be about my third post in as many days… 🙄 Anyone else suffer from blurry eyes? And sore eyes?? For a while now I’ve had issues getting my eyes to focus when moving from close up (esp my phone) to further away. I know this isn’t unusual and as I’m mid 40s it’s probably expected if not overdue
So this must be about my third post in as many days… 🙄 Anyone else suffer from blurry eyes? And sore eyes?? For a while now I’ve had issues getting my eyes to focus when moving from close up (esp my phone) to further away. I know this isn’t unusual and as I’m mid 40s it’s probably expected if not overdue
Murphysmum
in
Thyroid UK
3 years ago
Systemic sclerosis and vein
Good day, everyone. I'm curious whether anyone with scleroderma or systemic sclerosis has trouble opening veins for IV drugs?, And if anyone has established a cvp line for IV medications?
Good day, everyone. I'm curious whether anyone with scleroderma or systemic sclerosis has trouble opening veins for IV drugs?, And if anyone has established a cvp line for IV medications?
Lo1234
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Cataracts.
I have ET, diagnosed 3years ago , on Hydrea and Aspirin. I have ocular pain and cataracts now diagnosed . Wondering if this is common in ET? Having cataract surgery end of this month.
I have ET, diagnosed 3years ago , on Hydrea and Aspirin. I have ocular pain and cataracts now diagnosed . Wondering if this is common in ET? Having cataract surgery end of this month.
Sopretty
in
MPN Voice
3 years ago
FEAR OF DIAGNOSIS
Tomorrow is my OCT RNFL test scheduled due to Steroid induced OHT diagnosis which causes my IOP rises to 24.....And till than I am using timolol once a day so that The IOP will remain below 20....Few days back all routine eye tests and OPtic nerve is fine....But this RNFL test is creating havoc inside
Tomorrow is my OCT RNFL test scheduled due to Steroid induced OHT diagnosis which causes my IOP rises to 24.....And till than I am using timolol once a day so that The IOP will remain below 20....Few days back all routine eye tests and OPtic nerve is fine....But this RNFL test is creating havoc inside
Gurjar
in
Glaucoma UK
3 years ago
Meds and rls
Was on pramipexole for over 15 years was up to 3mg. Have slowly tapered off of it and switched to a lower dose of requip hopefully don't have to deal with as many side effects mostly hypersexuality. My rls symptoms seem to be starting earlier in the day by 3 in the afternoon. Is it worth it to start
Was on pramipexole for over 15 years was up to 3mg. Have slowly tapered off of it and switched to a lower dose of requip hopefully don't have to deal with as many side effects mostly hypersexuality. My rls symptoms seem to be starting earlier in the day by 3 in the afternoon. Is it worth it to start
Usedtocook
in
Restless Legs Syndrome
3 years ago
Hyperreflexia
I would love to hear others' experience with hyperreflexia as result of PA. I have periods (often in the last days before my injection), when I get low-level random muscle twitches, mostly in my arms and back, then they subside. I have been found to be hyperreflexive in reflex tests since my PA diagnosis
I would love to hear others' experience with hyperreflexia as result of PA. I have periods (often in the last days before my injection), when I get low-level random muscle twitches, mostly in my arms and back, then they subside. I have been found to be hyperreflexive in reflex tests since my PA diagnosis
Bellmore2089
in
Pernicious Anaemia Society
3 years ago
Open Angle
Hi everyone just always melting down Listen to the zoom from glaucoma uk and that even says 10% of people go blind. I’m so down I don’t want a future. I worry for my sons. How many of you on here have open angle and had it for lots of years and still drive. I know I’ve asked this before but I’m so so
Hi everyone just always melting down Listen to the zoom from glaucoma uk and that even says 10% of people go blind. I’m so down I don’t want a future. I worry for my sons. How many of you on here have open angle and had it for lots of years and still drive. I know I’ve asked this before but I’m so so
Hidden
in
Glaucoma UK
3 years ago
Alcohol on same day as Pegasys shot, yay or nay?
Has anyone consumed alcohol prior to taking pegasys, on the same day? I’m normally well behaved but on holiday tonight and the cocktail menu looks hard to resist 😂 Can’t delay peg injection for logistical reasons.
Has anyone consumed alcohol prior to taking pegasys, on the same day? I’m normally well behaved but on holiday tonight and the cocktail menu looks hard to resist 😂 Can’t delay peg injection for logistical reasons.
IrishSarah
in
MPN Voice
3 years ago
Measuring fasting blood glucose on waking in the morning
I want to measure my fasting blood glucose and figured that taking a reading after getting (but before food or medication) is a good time. However I have read that various overnight effects can cause a "dawn phenomenon" in which blood glucose is artificially raised. How long should I wait after waking
I want to measure my fasting blood glucose and figured that taking a reading after getting (but before food or medication) is a good time. However I have read that various overnight effects can cause a "dawn phenomenon" in which blood glucose is artificially raised. How long should I wait after waking
Cetus
in
Diabetes & Hypertension Help Society
3 years ago
Marginal keratitis
Hello I have had marginal keratitis 4 times since November 2020, each time I have gone to Moorfields A&E, they have been great, prescribed antibiotic & steroid drops which cleared it up. I’ve been referred to the corneal clinic, waiting for an appointment. Have any of you lovely people with SLE had
Hello I have had marginal keratitis 4 times since November 2020, each time I have gone to Moorfields A&E, they have been great, prescribed antibiotic & steroid drops which cleared it up. I’ve been referred to the corneal clinic, waiting for an appointment. Have any of you lovely people with SLE had
Laurajoy
in
LUPUS UK
3 years ago
Sticky dry eyes and itchy skin- is this hypo or hyper?
Hello helpful people It’s been a little while since I posted a question. I had been over replacing with metavive earlier in the year and came off it rather suddenly which was not a good idea. I was very tired, gained a few pounds, slept poorly , even more hair loss, lack of motivation & 2 viral infections
Hello helpful people It’s been a little while since I posted a question. I had been over replacing with metavive earlier in the year and came off it rather suddenly which was not a good idea. I was very tired, gained a few pounds, slept poorly , even more hair loss, lack of motivation & 2 viral infections
Polly91
in
Thyroid UK
3 years ago
Sodium Butyrate: Conflicting Studies
So I read one study from 2021 that said Sodium Butyrate was good for PD, lowered inflammation, and improved symptoms and then read another from 2020 that said Sodium Butyrate increases inflammation and makes PD symptoms worse. I have e-mailed both teams for an explanation. I put the abstracts side by
So I read one study from 2021 that said Sodium Butyrate was good for PD, lowered inflammation, and improved symptoms and then read another from 2020 that said Sodium Butyrate increases inflammation and makes PD symptoms worse. I have e-mailed both teams for an explanation. I put the abstracts side by
Bolt_Upright
in
Cure Parkinson's
3 years ago
Gabapentin not working as yet
Hi Ive been on gabapentin for 5 weeks now. I previously posted saying my doctor had prescribed 100mgs 3 times daily. I was advised on forum as I thought, that this dose was useless, and I'd be better taking at night and upping dose gradually. So I'm now to to 900mgs at night but still not seeing
Hi Ive been on gabapentin for 5 weeks now. I previously posted saying my doctor had prescribed 100mgs 3 times daily. I was advised on forum as I thought, that this dose was useless, and I'd be better taking at night and upping dose gradually. So I'm now to to 900mgs at night but still not seeing
Lizzybuz27
in
Restless Legs Syndrome
3 years ago
Transvaginal ultrasound scan
Hello, I had a transvaginal ultrasound scan today to look at my lining, general health and follicles today in preparation for my next ivf cycle. I had the scan on day 2, when the report has come back the report states multiple follicles! The ivf Centre want to know the amount and cannot believe it wasn
Hello, I had a transvaginal ultrasound scan today to look at my lining, general health and follicles today in preparation for my next ivf cycle. I had the scan on day 2, when the report has come back the report states multiple follicles! The ivf Centre want to know the amount and cannot believe it wasn
Tilly8135
in
Fertility Network UK
3 years ago
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