Has anyone had orbital decompression for graves eye disease?

[Naples21]

Hi I have Graves eye disease and I am considering orbital decompression. I also have Graves. Will it leave scars? Will it cause numbness due to nerve damage on my face? I am told this is likely. I would like to hear from anyone who has had this surgery. Do you recommend? Thanks

[pennyannie]

Hello Naples and welcome to the forum :

I too have Graves but was told my eye issues not severe enough.

I'm truly sorry for all you have likely gone through with this poorly understood and badly treated auto immune disease.

I only started my research into Graves some 10 years post RAI thyroid ablation when i became extremely unwell and found no answers in mainstream medical.

I do recommend reading around Graves on Elaine Moore's website -

elaine-moore.com

and am linking in a fellow New Zealander who could be more knowledgeable about your local support network NIKEGIRL