hi again everyone, I just want to give a quick update for anyone who may be considering methadone.
After trying many other drugs, and after augmentation and withdrawal from dopamine agonists, I started mid Feb on 2.5 mg methadone and have titrated slowly over 4 months to allow my body to get used to it, to 10 mg. It’s not perfect - I do have to carefully manage constipation, go to bed super early, and feel I have lost a lot of my “drive”. I don’t feel my brain is as sharp as it was - experienced severe cognitive decline during my long period of sleeplessness and may still be suffering the consequences. This has improved but not as much as I had hoped and i have a suspicion it won’t improve much more on methadone. My appetite is returning and my weight loss slowing. I have lost the feelings of hopelessness and feel almost normal again.
And I the prize - I CAN SLEEP!!!
I am sleeping 7-9 hours most nights with only minor breakthrough symptoms.
I’m in New Zealand and have a young GP who is happy to accept the information I take him from RLS.org and the Mayo clinic etc.
So a big THANK YOU to everyone here who has shown me how to educate my doctor ( and myself).
Hope this helps someone who may be considering what to do.