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DBS and waiting lists
I was seen by a nurosurgeon in May 2010. He said, admitt for investigations etc in autumn, maybe operation in spring next year, mind you, he didn't say which year. After many phone calls to Lund's neuro clinic and to be told by the RN, you're not on the list. I complained to my "Parkie" doctor at the
I was seen by a nurosurgeon in May 2010. He said, admitt for investigations etc in autumn, maybe operation in spring next year, mind you, he didn't say which year. After many phone calls to Lund's neuro clinic and to be told by the RN, you're not on the list. I complained to my "Parkie" doctor at the
Aussie
in
Cure Parkinson's
11 years ago
Evening all - knees feeling better
Week 9 run 2, seems that it has been a long time even though I only rested for an additional two days. been using '
Deep
Freeze
Gel' on my knees, good stuff but smells of menthol.
Week 9 run 2, seems that it has been a long time even though I only rested for an additional two days. been using '
Deep
Freeze
Gel' on my knees, good stuff but smells of menthol.
alcopop
Graduate
in
Couch to 5K
11 years ago
DBS on BBC
http://www.bbc.co.uk/news/health-22667597
http://www.bbc.co.uk/news/health-22667597
rons
in
Cure Parkinson's
11 years ago
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Linseed oil capsules/ seeds
A friend of mine who also has severe arthritis told me the other day that she swears that taking Linseed oil capsules has changed her life,and she had passed this on to another friend who has since fed back to her that already her pain has lessened. Are we, APS patients, allowed to take Linseeds,
A friend of mine who also has severe arthritis told me the other day that she swears that taking Linseed oil capsules has changed her life,and she had passed this on to another friend who has since fed back to her that already her pain has lessened. Are we, APS patients, allowed to take Linseeds,
Hidden
in
Hughes Syndrome APS Forum
11 years ago
DBS for gait freezing
Has anyone had DBS for gait freezing only (no tremor) and if so what was the outcome.
Has anyone had DBS for gait freezing only (no tremor) and if so what was the outcome.
camper
in
Cure Parkinson's
11 years ago
New DBS without surgery!
Hope so! Brain stimulation maths boost link http://www.bbc.co.uk/news/health-225567 Ron
Hope so! Brain stimulation maths boost link http://www.bbc.co.uk/news/health-225567 Ron
rons
in
Cure Parkinson's
11 years ago
Im determined to do this. Wish me well!
Anyway, I got home, put the
deep
freeze
gel on my legs (ouch) and got a good 10.5 hours sleep. Woke up with the most mightiest headache (no, I wasnt on the vino!) so set off to the supermarket before worK. I am now sipping tonic water with lime, and ate a banana (thanks oldgirl).
Anyway, I got home, put the
deep
freeze
gel on my legs (ouch) and got a good 10.5 hours sleep. Woke up with the most mightiest headache (no, I wasnt on the vino!) so set off to the supermarket before worK. I am now sipping tonic water with lime, and ate a banana (thanks oldgirl).
k6daisy
Graduate
in
Couch to 5K
11 years ago
Is it wise to cycle after DBS?
I'm in a dilemma here; I have a friend who has had DBS and wants to cycle. He bought a two wheel bicycle after a test run on an unused car park where he was quite safe. However, on his first cycle, he fell off twice into the road which fortunately did not result in a serious injury. Intuitively,
I'm in a dilemma here; I have a friend who has had DBS and wants to cycle. He bought a two wheel bicycle after a test run on an unused car park where he was quite safe. However, on his first cycle, he fell off twice into the road which fortunately did not result in a serious injury. Intuitively,
Norton1
in
Cure Parkinson's
11 years ago
DIAGNOSED HASHIMOS AND PITUITORY TUMOUR
Hi at last got diagnosis after 5 years of first presenting with thyroid antibodies to be told by GP it's nothing and 1 year with a useless Endo. Went to new Endo and within a month diagnosed. Only person that actually felt my neck. Had ultrasound yesterday thyroiid enlarged and there is a nodule on
Hi at last got diagnosis after 5 years of first presenting with thyroid antibodies to be told by GP it's nothing and 1 year with a useless Endo. Went to new Endo and within a month diagnosed. Only person that actually felt my neck. Had ultrasound yesterday thyroiid enlarged and there is a nodule on
Hidden
in
Thyroid UK
11 years ago
Teething problems
I was diagnosed late in life and since being on a gluten-free diet problems with my teeth have increased dramatically. When first on the diet I took Calcium for about a year. I wondered if there is any benefit in taking calcium on a continuous basis and if this would help, or maybe the damage has been
I was diagnosed late in life and since being on a gluten-free diet problems with my teeth have increased dramatically. When first on the diet I took Calcium for about a year. I wondered if there is any benefit in taking calcium on a continuous basis and if this would help, or maybe the damage has been
greyton
in
Gluten Free Guerrillas
11 years ago
Constipation Considerations
Lovely topic, I know. But a common concern amongst us parkies, especially those of us who are heavily medicated. I've been having trouble with constipation for quite a while. Even had an emergency room visit (which was SUPER lovely!). I was even starting to think I'd better push for DBS so I could cut
Lovely topic, I know. But a common concern amongst us parkies, especially those of us who are heavily medicated. I've been having trouble with constipation for quite a while. Even had an emergency room visit (which was SUPER lovely!). I was even starting to think I'd better push for DBS so I could cut
MichaelOM
in
Cure Parkinson's
11 years ago
i need to hear from people who have had dbs i am considering it i am scared but need relief from my symptoms my sister had it .
salon
in
Cure Parkinson's
11 years ago
Can anyone help?
Being a twice diagnosed coeliac with a 45 year gap between the un-diagnosis and the re-diagnosis I had been advised by the Professor that my Prognosis : Is excellent if I remain on the gluten free diet, why I ask. 1.0 The gluten free diet that contains derivatives, makes me an insomniac with night sweats
Being a twice diagnosed coeliac with a 45 year gap between the un-diagnosis and the re-diagnosis I had been advised by the Professor that my Prognosis : Is excellent if I remain on the gluten free diet, why I ask. 1.0 The gluten free diet that contains derivatives, makes me an insomniac with night sweats
pretender
in
Gluten Free Guerrillas
11 years ago
Has anyone tried a gluten free diet to control RA inflammation? How well did it work?
milcomas
in
NRAS
11 years ago
Doctor Skinner
Hi Can anyone tell me if Doctor Skinner just deals with Thyroid Issues as I am hypo and I am thinking of seeing him, but I would possible like to make an appt. also for my daughter who has hypo symptoms last test for TSH 4.1 but Doctor says shes in range and has put it down CFS She was diagniosed 4
Hi Can anyone tell me if Doctor Skinner just deals with Thyroid Issues as I am hypo and I am thinking of seeing him, but I would possible like to make an appt. also for my daughter who has hypo symptoms last test for TSH 4.1 but Doctor says shes in range and has put it down CFS She was diagniosed 4
lucylocks
in
Thyroid UK
11 years ago
Is my daughter hypothyroid
Hi I was diagnoised with hypo 2 years ago and still my TSH is 4.3 I have received lots of great info on this site and I am off back to the Doctors on Friday but my question is about my daughter. She is 31 with 2 children one age 5 one age 2 A year after her first child was born she was diagnoised with
Hi I was diagnoised with hypo 2 years ago and still my TSH is 4.3 I have received lots of great info on this site and I am off back to the Doctors on Friday but my question is about my daughter. She is 31 with 2 children one age 5 one age 2 A year after her first child was born she was diagnoised with
lucylocks
in
Thyroid UK
11 years ago
Free Seminar about Coeliac Disease and Gluten Sensitivity in Knebworth on 23rd June - should be amazing!
Hi everyone, Just to let you know that an expert researcher from the USA, Dr.Thomas O'Bryan, will be giving a free seminar for healthcare professionals and members of the public at Odyssey Health Club in Knebworth on 23rd June. The title of the seminar is 'Gluten Sensitivity With or Without
Hi everyone, Just to let you know that an expert researcher from the USA, Dr.Thomas O'Bryan, will be giving a free seminar for healthcare professionals and members of the public at Odyssey Health Club in Knebworth on 23rd June. The title of the seminar is 'Gluten Sensitivity With or Without
GlutenFreeBee
in
Gluten Free Guerrillas
11 years ago
Botox for feet/toe and calf dystonia
Hi everyone I have read that a lot of you have botox treatment for dystonia. I was told that I could not have it as I do not have dystonia all the time and it would make my legs and feet go very floppy so I would not be able to walk. The pain, sensation and discomfort is driving me nuts. What
Hi everyone I have read that a lot of you have botox treatment for dystonia. I was told that I could not have it as I do not have dystonia all the time and it would make my legs and feet go very floppy so I would not be able to walk. The pain, sensation and discomfort is driving me nuts. What
Yogibear
in
Cure Parkinson's
11 years ago
Is it me? or does everyone with PD ride this rollercoaster daily?
Everyday every two hours I go from nauseous and fuzzy to right as rain and back again. When I'm up I'm up and when I'm down I'm down. In the evening when I stop the meds I feel better but less mobile. I'm 47, dx'd 3 years, 3 kids at home (15, 12 and 6), self-empoloyed whew! What I'm on: stalevo
Everyday every two hours I go from nauseous and fuzzy to right as rain and back again. When I'm up I'm up and when I'm down I'm down. In the evening when I stop the meds I feel better but less mobile. I'm 47, dx'd 3 years, 3 kids at home (15, 12 and 6), self-empoloyed whew! What I'm on: stalevo
rons
in
Cure Parkinson's
11 years ago
DBS
I would appreciate ANY info on DBS!
I would appreciate ANY info on DBS!
maidar
in
Cure Parkinson's
11 years ago
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