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Links to some articles comparing FUS to DBS for Essential Tremors
For the time being, there's more research and development in the ET field than the PD field as it relates to tremor dominant Parkinson's. Here's a few links that compares the two. https://www.neurologyreviews-digital.com/neurologyreviews/nr_march_2019_/MobilePagedArticle.action?articleId=1470923
For the time being, there's more research and development in the ET field than the PD field as it relates to tremor dominant Parkinson's. Here's a few links that compares the two. https://www.neurologyreviews-digital.com/neurologyreviews/nr_march_2019_/MobilePagedArticle.action?articleId=1470923
pdpatient
in
Cure Parkinson's
3 years ago
DBS - yes or no?
How to decide on a DBS placement I'm gonna take the plunge. I just cant do the meds anymore, they don't work like they used to and I'm beyond miserable. Any thoughts or suggestions?
How to decide on a DBS placement I'm gonna take the plunge. I just cant do the meds anymore, they don't work like they used to and I'm beyond miserable. Any thoughts or suggestions?
Hidden
in
Anxiety and Depression Support
3 years ago
Hi, looking for advice,
Hi, looking for advice, these are my bt results: march 2021: TSH 0.21, free T3 5.23, free thyroxine 16.6 antibodies Thyroglobulin 425 Peroxidase >600 I have shortness of breath and chest pain on exertion and have difficulty sleeping Guess I need to reduce Levo to around 75 from 100 which I was on 12
Hi, looking for advice, these are my bt results: march 2021: TSH 0.21, free T3 5.23, free thyroxine 16.6 antibodies Thyroglobulin 425 Peroxidase >600 I have shortness of breath and chest pain on exertion and have difficulty sleeping Guess I need to reduce Levo to around 75 from 100 which I was on 12
lesel
in
Thyroid UK
3 years ago
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Blood Test Results from GP, very ill and no diagnosis
Hello, Sorry I know some of these bloods will be irrelevant to the thyroid forum but posting just in case someone who knows better than me spots something. Background- I’ve been ill since 14, originally diagnosed with ME/CFS. Only thing that routinely showed up in tests was extremely low blood pressure
Hello, Sorry I know some of these bloods will be irrelevant to the thyroid forum but posting just in case someone who knows better than me spots something. Background- I’ve been ill since 14, originally diagnosed with ME/CFS. Only thing that routinely showed up in tests was extremely low blood pressure
LadyLovely84
in
Thyroid UK
3 years ago
Hashimotos-Back to the doc
Hello, I am supposed to get another scan of my thyroid in April, I had an ultrasound in January and there was a nodule so the endocrinologist wants to make sure it hasn’t grown. Her assistant said she will probably order another round of thyroid bloodwork before then. Here are my thyroid results from
Hello, I am supposed to get another scan of my thyroid in April, I had an ultrasound in January and there was a nodule so the endocrinologist wants to make sure it hasn’t grown. Her assistant said she will probably order another round of thyroid bloodwork before then. Here are my thyroid results from
Estidman
in
Thyroid UK
3 years ago
Non celiac gluten sensitivity?
Hi everyone! I wanted to make a post asking about non celiac gluten sensitivity. I have been gluten free for many many years though not strictly eg worrying about cross contamination etc. I had been operating on the assumption I was on a completely gluten free diet for the last year since starting thyroid
Hi everyone! I wanted to make a post asking about non celiac gluten sensitivity. I have been gluten free for many many years though not strictly eg worrying about cross contamination etc. I had been operating on the assumption I was on a completely gluten free diet for the last year since starting thyroid
owl87
in
Thyroid UK
3 years ago
New to the forum
My wife suffers from PD. Interested in any ways of alleviateing dyskinesia via. Medication or DBS
My wife suffers from PD. Interested in any ways of alleviateing dyskinesia via. Medication or DBS
thfc1961
in
Cure Parkinson's
3 years ago
Deep Brain Stimulation
Can those who have had DBS please share their experiences
Can those who have had DBS please share their experiences
thfc1961
in
Cure Parkinson's
3 years ago
Wk 9 run 1 disaster
Went for first run of week 9 on Monday. Was going OK although one of my calfs felt tight. After 15 minutes running I experienced a sharp pain in the calf and 'felt a popping sensation. Stopped running immediately and as I was close to home walked/ hobbled back to the house. I iced it and kept it elevated
Went for first run of week 9 on Monday. Was going OK although one of my calfs felt tight. After 15 minutes running I experienced a sharp pain in the calf and 'felt a popping sensation. Stopped running immediately and as I was close to home walked/ hobbled back to the house. I iced it and kept it elevated
Holden1919
in
Couch to 5K
4 years ago
SIBO
SIBO is small intestinal bowel overgrowth x please anyone who is suffering from all my symptoms and your ibs is no better with a gluten free diet you could have SIBO please don’t leave it to get worse because I have lived with this every day for a year now. The doctor is calling me at 1 so hopefully
SIBO is small intestinal bowel overgrowth x please anyone who is suffering from all my symptoms and your ibs is no better with a gluten free diet you could have SIBO please don’t leave it to get worse because I have lived with this every day for a year now. The doctor is calling me at 1 so hopefully
Oscar091
in
Positive Wellbeing During Self-Isolation
3 years ago
Pros and Cons of Four Different Brain Surgeries For Parkinson’s Diseases
An excellent article by Ben, where he discusses the pros and cons of 4 available interventions for PD patients with advanced stage. He discusses the following 4 procedures available currently: Deep Brain Stimulation (DBS) Cell Replacement Therapy (CRT) Focused Ultrasound (FUS) Gene Therapy (GT) https
An excellent article by Ben, where he discusses the pros and cons of 4 available interventions for PD patients with advanced stage. He discusses the following 4 procedures available currently: Deep Brain Stimulation (DBS) Cell Replacement Therapy (CRT) Focused Ultrasound (FUS) Gene Therapy (GT) https
Farooqji
in
Cure Parkinson's
3 years ago
PTT trials for 50 participants at 8 locations* in the US. Out of nowhere. Bilateral will be offered if you qualify. (*Thank you Rebtar.)
Criteria Inclusion Criteria: Men and women, age 30 years and older, desiring bilateral treatment option with second side staged at 6 months. Subject is able and willing to give informed consent and able to attend all study visits Subject with a diagnosis of idiopathic PD by UK Brain Bank Criteria
Criteria Inclusion Criteria: Men and women, age 30 years and older, desiring bilateral treatment option with second side staged at 6 months. Subject is able and willing to give informed consent and able to attend all study visits Subject with a diagnosis of idiopathic PD by UK Brain Bank Criteria
MBAnderson
in
Cure Parkinson's
3 years ago
Pain threshold?
Am I being a wimp & just need to man up? I really don’t know how I’m meant to feel or if the level of aches & pain I’m experiencing is ‘normal’ or as expected - can anyone tell me how they feel and deal with this ? I’m struggling in the mornings with stiff legs, lower back pain getting out of bed. Then
Am I being a wimp & just need to man up? I really don’t know how I’m meant to feel or if the level of aches & pain I’m experiencing is ‘normal’ or as expected - can anyone tell me how they feel and deal with this ? I’m struggling in the mornings with stiff legs, lower back pain getting out of bed. Then
Stiffknees
in
PMRGCAuk
4 years ago
Any DBS prep advice?
Hi! My dad is rigidity dominant. He experiences freezing when his meds are wearing off. He didn't qualify for FUS at Sonimodul, but my dad finally has his 2nd meeting with a surgeon, Dr. Munhoz, at Toronto Western Hospital here in Toronto. We have watched Dr. Mischely's PD School on DBS, and have come
Hi! My dad is rigidity dominant. He experiences freezing when his meds are wearing off. He didn't qualify for FUS at Sonimodul, but my dad finally has his 2nd meeting with a surgeon, Dr. Munhoz, at Toronto Western Hospital here in Toronto. We have watched Dr. Mischely's PD School on DBS, and have come
pdkid
in
Cure Parkinson's
4 years ago
Parkinsons, DBS and Thyroid
Anyone with thyroid issues also have Parkinson’s ? I have both and have just had DBS (deep Brain stimulation) in an effort to eliminate my tremor on the Parkinson’s side. The issue currently seems to be that my neurosurgeon sets my pulse generator to eliminate the tremor checks my balance/ gait and
Anyone with thyroid issues also have Parkinson’s ? I have both and have just had DBS (deep Brain stimulation) in an effort to eliminate my tremor on the Parkinson’s side. The issue currently seems to be that my neurosurgeon sets my pulse generator to eliminate the tremor checks my balance/ gait and
Lr_defender
in
Thyroid UK
4 years ago
Back again with another question about spouse's DBS results
Hey folks, was on here back in Nov. - Dec. concerning my husband's DBS results. I am happy to report after much trial and error, he no longer has any noticeable Tremors!!! However, I do think it has affected his Personality, he just doesn't seem the same. I cannot say it is entirely due to the DBS,
Hey folks, was on here back in Nov. - Dec. concerning my husband's DBS results. I am happy to report after much trial and error, he no longer has any noticeable Tremors!!! However, I do think it has affected his Personality, he just doesn't seem the same. I cannot say it is entirely due to the DBS,
dhill
in
Cure Parkinson's
4 years ago
Deep Brain Stimulation for PSP ??
https://www.discovermagazine.com/health/what-is-deep-brain-stimulation-and-why-does-it-work-for-parkinsons?utm_source=dscfb&utm_medium=social&utm_campaign=dscfb&fbclid=IwAR3HO-VgxD3S97LynKzGoSifeGa6pck-V4ZHjn-ejLdGZCrStMrLeAyfOoM
https://www.discovermagazine.com/health/what-is-deep-brain-stimulation-and-why-does-it-work-for-parkinsons?utm_source=dscfb&utm_medium=social&utm_campaign=dscfb&fbclid=IwAR3HO-VgxD3S97LynKzGoSifeGa6pck-V4ZHjn-ejLdGZCrStMrLeAyfOoM
Adamxd
in
PSP Association
4 years ago
This week is real bread week. 🍞
Good morning everyone, This week is the start of
Real Bread Week
and those of you who can eat wheat you can make amazing bread so if we have any keen bread makers please share your photo's. I'm a coeliac so have to have a gluten free diet and bread is harder to make as we have to replicate the
Good morning everyone, This week is the start of
Real Bread Week
and those of you who can eat wheat you can make amazing bread so if we have any keen bread makers please share your photo's. I'm a coeliac so have to have a gluten free diet and bread is harder to make as we have to replicate the
Hidden
Administrator
in
Healthy Eating
3 years ago
Dr. Jeff Elias of U of Virginia Responds to Email Regarding Pallidothalamic Tractotomy
In my ongoing quest to bring attention to PTT in the United States, I emailed Dr. Jeff Elias, a prominent neurosurgeon at the University of Virginia, who already performs other types of focused ultrasound procedures. Here is our email exchange. It's in reverse order so it begins with my response and
In my ongoing quest to bring attention to PTT in the United States, I emailed Dr. Jeff Elias, a prominent neurosurgeon at the University of Virginia, who already performs other types of focused ultrasound procedures. Here is our email exchange. It's in reverse order so it begins with my response and
jimcaster
in
Cure Parkinson's
4 years ago
Vitamin D going down while on loading dose
Hi everyone, I'm 32 years old with hashimotos. I take 100mcg levothyroxine daily. I've always struggled with getting to an ideal vitamin D level (which I believe it very common in people with hashimotos and other autoimmune diseases), and take a pretty high supplement of 5,000iu daily. However I noticed
Hi everyone, I'm 32 years old with hashimotos. I take 100mcg levothyroxine daily. I've always struggled with getting to an ideal vitamin D level (which I believe it very common in people with hashimotos and other autoimmune diseases), and take a pretty high supplement of 5,000iu daily. However I noticed
Sick-and-Tired
in
Thyroid UK
3 years ago
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