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What if DBS played the same?
“Using computer simulations, Tass and his team discovered that a patterned stimulus that vibrates at a frequency of 100 to 300 hertz (cycles per second) can desynchronize neuron-firing.” I think **desynchronized** may be a poor choice of a word – (Calming the) neuron-firing might be better. Now what
“Using computer simulations, Tass and his team discovered that a patterned stimulus that vibrates at a frequency of 100 to 300 hertz (cycles per second) can desynchronize neuron-firing.” I think **desynchronized** may be a poor choice of a word – (Calming the) neuron-firing might be better. Now what
Gcf51
in
Cure Parkinson's
3 years ago
Did anyone's symptoms return after going gluten free?
Hi everyone, I was diagnosed with coeliac disease in December 2019 and have been on a gluten free diet ever since. I originally went to the Dr as I was having real problems with dropping things, balance, brain fog, tiredness and memory as well as having trouble explaining things and finding the correct
Hi everyone, I was diagnosed with coeliac disease in December 2019 and have been on a gluten free diet ever since. I originally went to the Dr as I was having real problems with dropping things, balance, brain fog, tiredness and memory as well as having trouble explaining things and finding the correct
Sparkstar2
in
Ataxia UK
3 years ago
MY DOCTOR SAYS I AM DUE FOR DBS. THIS REALLY SCARED THE SH.......... OUT OF ME. PLEASE HELP! I NEED YOUR ADVICE.
I am a young onset non tremor dominant PWP,in my fifties, on Rytary and I have reached the stage where my medication does not work well like before anymore, a stage where it has become very unpredictable, whether I will get "off" period or dyskinesia, unless I increase my medication dosage. However
I am a young onset non tremor dominant PWP,in my fifties, on Rytary and I have reached the stage where my medication does not work well like before anymore, a stage where it has become very unpredictable, whether I will get "off" period or dyskinesia, unless I increase my medication dosage. However
OREOLU
in
Cure Parkinson's
3 years ago
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DBS - what if, stimulation was a symphony
DBS - What if they played a symphony (Say HFS of 140 Hz and LFS of 70 Hz at the same time), A tone Generator playing at 140 Hz and a second playing at 70 doesn't sound bad, And, for fun a 3rd at 35 (turn volume of 35 Hz down to 18%). But, I am not sure I would want in my head 24/7 !!!!! Back when I was
DBS - What if they played a symphony (Say HFS of 140 Hz and LFS of 70 Hz at the same time), A tone Generator playing at 140 Hz and a second playing at 70 doesn't sound bad, And, for fun a 3rd at 35 (turn volume of 35 Hz down to 18%). But, I am not sure I would want in my head 24/7 !!!!! Back when I was
Gcf51
in
Cure Parkinson's
3 years ago
Hypo, anaemic or both?
I would love some advice from this group since I trust this more than the doctors I've seen! Last March (2021) I was diagnosed with hypothyroidism but after a year of suffering I think I should also have been diagnosed with anaemia too. I came to this conclusion by comparing my December tests to the
I would love some advice from this group since I trust this more than the doctors I've seen! Last March (2021) I was diagnosed with hypothyroidism but after a year of suffering I think I should also have been diagnosed with anaemia too. I came to this conclusion by comparing my December tests to the
KE12
in
Thyroid UK
3 years ago
DBS and weight gain
For those who have had DBS, did you gain weight after the surgery? I have read it is possible to gain weight as the “ reward or impulsive part” of our brain is affected.
For those who have had DBS, did you gain weight after the surgery? I have read it is possible to gain weight as the “ reward or impulsive part” of our brain is affected.
Sherry1960
in
Cure Parkinson's
3 years ago
Immunolgist consultation and results
Good morning all, I had quite an upsetting consultation yesterday. I was advised to switch to strictly gluten free diet (!!!!!) and that I will need steroids and G CSF for my transfer.... Has anyone any experience with G CSF? Cost and most importantly , side effects?
Good morning all, I had quite an upsetting consultation yesterday. I was advised to switch to strictly gluten free diet (!!!!!) and that I will need steroids and G CSF for my transfer.... Has anyone any experience with G CSF? Cost and most importantly , side effects?
Blueberry211
in
Fertility Network UK
3 years ago
Matt Eagles: Positivity in Adversity – 46 years living with Parkinson’s
As many of you know, I am part of a small group of PWPs who regularly invite speakers to inspire or educate us on how to manage our symptoms. Our next zoom session will be taking place at 7:30 p.m. London time on Monday the 22nd of November. I will have the pleasure of interviewing Matt Eagles on the
As many of you know, I am part of a small group of PWPs who regularly invite speakers to inspire or educate us on how to manage our symptoms. Our next zoom session will be taking place at 7:30 p.m. London time on Monday the 22nd of November. I will have the pleasure of interviewing Matt Eagles on the
Michel0220
in
Cure Parkinson's
3 years ago
Approved: FDA Expands Exablate Neuro’s Use as Motor Symptom Treatment in Parkinson’s disease (focused ultrasound)
The U.S. Food and Drug Administration has approved Insightec’s incision-free brain “surgery” technology — Exablate Neuro — for the treatment of motor symptoms in Parkinson’s disease patients. According to the company, the device is indicated to use in patients with moderate-to-severe motor complications
The U.S. Food and Drug Administration has approved Insightec’s incision-free brain “surgery” technology — Exablate Neuro — for the treatment of motor symptoms in Parkinson’s disease patients. According to the company, the device is indicated to use in patients with moderate-to-severe motor complications
Hidden
in
Cure Parkinson's
3 years ago
I can’t take this pain any longer
I have been suffering with bad pain for about a year now in my lower back knees elbows and sometimes wrist. My back is the most painful but only hurts when I walk where as they rest hurt all the time. I can’t sleep I can’t go places, so far i have tried cocodamol, codydramol, cbd oil and cream, deep
I have been suffering with bad pain for about a year now in my lower back knees elbows and sometimes wrist. My back is the most painful but only hurts when I walk where as they rest hurt all the time. I can’t sleep I can’t go places, so far i have tried cocodamol, codydramol, cbd oil and cream, deep
Claire-Rose
in
Pain Concern
3 years ago
Upcoming webinar – Deep Brain Stimulation (DBS)
The Journal of Parkinson’s Disease, Cure Parkinson’s and Van Andel Institute are pleased to present our upcoming webinar. Join a panel of experts at 5.00 pm GMT, noon ET to discuss DBS. Professor Patrik Brundin will chair a panel of experts featuring: Professor Helen Bronte-Stewart Stanford University
The Journal of Parkinson’s Disease, Cure Parkinson’s and Van Andel Institute are pleased to present our upcoming webinar. Join a panel of experts at 5.00 pm GMT, noon ET to discuss DBS. Professor Patrik Brundin will chair a panel of experts featuring: Professor Helen Bronte-Stewart Stanford University
SuzeCP
Administrator
in
Cure Parkinson's
3 years ago
I cant believe for 4 nights ive not had RLS
After 20+ years of suffering RLS being on all types of medication, sleepless nights etc, ive just done my 4th night without any medication and no symptoms. A few of you will remember my horrendous journey. Still waiting on my DBS surgery. I fell badly 2 weeks ago, injured my left leg and side. In
After 20+ years of suffering RLS being on all types of medication, sleepless nights etc, ive just done my 4th night without any medication and no symptoms. A few of you will remember my horrendous journey. Still waiting on my DBS surgery. I fell badly 2 weeks ago, injured my left leg and side. In
Banjo1
in
Restless Legs Syndrome
3 years ago
Using muscle relaxing creams
My son who has hypertrophic cardiomyopathy takes ramipril and bisoprolol, can he apply the likes of deep heat? Thanks in advance for replies
My son who has hypertrophic cardiomyopathy takes ramipril and bisoprolol, can he apply the likes of deep heat? Thanks in advance for replies
Cooperburns
in
British Heart Foundation
3 years ago
DBS for depression
Just stumbled on this https://www.dw.com/en/pacemaker-for-the-brain-relieves-womans-severe-depression/a-59472106
Just stumbled on this https://www.dw.com/en/pacemaker-for-the-brain-relieves-womans-severe-depression/a-59472106
Hidden
in
Cure Parkinson's
3 years ago
GlutenAtaxia
I have gluten ataxia however after three years on the gluten free diet I continue to get worse . The dietician can see I'm sticking to the gluten-free diet . What else can I be ?
I have gluten ataxia however after three years on the gluten free diet I continue to get worse . The dietician can see I'm sticking to the gluten-free diet . What else can I be ?
Sheffield6
in
Gluten Free Guerrillas
3 years ago
Tips for coping with Gluten Ataxia
Ataxia UK Annual Conference: Gluten-free diet tips for gluten ataxia patients At the 2021 Ataxia UK Annual Conference, there was an interesting session from Professor Marios Hadjivassiliou and Emma Foster on immune and gluten ataxias. During the Q and A session, Emma Foster, who is a Senior Ataxia Nurse
Ataxia UK Annual Conference: Gluten-free diet tips for gluten ataxia patients At the 2021 Ataxia UK Annual Conference, there was an interesting session from Professor Marios Hadjivassiliou and Emma Foster on immune and gluten ataxias. During the Q and A session, Emma Foster, who is a Senior Ataxia Nurse
wobblybee
in
Ataxia UK
3 years ago
Levothyroxine overmedicated?
Hi Everyone Just wondering could I be over medicated I started taking 100 mg in June, my last blood test was 27 August Results being Serum free T4 level / normality - above range/ results 22.3 pmol/L (12-22) Serum TSH Level 0.76 mu/L (0.3-4.2) I don’t particularly feel myself, blood pressure is high
Hi Everyone Just wondering could I be over medicated I started taking 100 mg in June, my last blood test was 27 August Results being Serum free T4 level / normality - above range/ results 22.3 pmol/L (12-22) Serum TSH Level 0.76 mu/L (0.3-4.2) I don’t particularly feel myself, blood pressure is high
Aniba
in
Thyroid UK
3 years ago
Neuropathy treatments
Unfortunately as we all know, good treatment for neuropathy is generally poor. I've tried as most people have everything. The only way I control my feet neuropathy is plenty of walking icing and messaging with deep heat before bed. The only medication I take is ibuprofen - one table 400mg give me 50%
Unfortunately as we all know, good treatment for neuropathy is generally poor. I've tried as most people have everything. The only way I control my feet neuropathy is plenty of walking icing and messaging with deep heat before bed. The only medication I take is ibuprofen - one table 400mg give me 50%
CaraCara
in
Neuropathy Support
3 years ago
Spices?
I find that following a gluten free diet is very difficult because I have always had a love for spicy foods, but to make up for not going out to eat, or buying takeaways, we always cook our meat, fish, and vegetables with plenty of spices added. But I’m still getting Coeliac symptoms like bloating,
I find that following a gluten free diet is very difficult because I have always had a love for spicy foods, but to make up for not going out to eat, or buying takeaways, we always cook our meat, fish, and vegetables with plenty of spices added. But I’m still getting Coeliac symptoms like bloating,
nomorebeer
in
Gluten Free Guerrillas
3 years ago
Can anyone help me interpret my results so I can articulate myself better with my GP?
Hello! Can anyone help me with my blood test results please? My symptoms are tiredness, weight gain, brain fog, difficulty forming sentences, heart palpitations, joint pain, inflamed gallbladder. I’ve described my symptoms to the GP and have been dismissed three times now, and can’t afford to pay for
Hello! Can anyone help me with my blood test results please? My symptoms are tiredness, weight gain, brain fog, difficulty forming sentences, heart palpitations, joint pain, inflamed gallbladder. I’ve described my symptoms to the GP and have been dismissed three times now, and can’t afford to pay for
vq290
in
Thyroid UK
3 years ago
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