Neuropathy treatments

[CaraCara]

Unfortunately as we all know, good treatment for neuropathy is generally poor. I've tried as most people have everything. The only way I control my feet neuropathy is plenty of walking icing and messaging with deep heat before bed. The only medication I take is ibuprofen - one table 400mg give me 50% relief for 24 hours. I've given up on doctors, podiatrist etc. - they seem to dismiss it as something that is minor. Anyway that's my 2 bobs worth about this issue and keep putting ideas on this forum as that's all we got.

[Goldyukr]

I’m thinking about trying ketamine infusion. But it’s really expensive. Some insurance is now covering most of the cost but not the kind we have of course. I feel your pain. I have small fiber neuropathy. Gabapentin and tramadol help some but the pain is constant.

[CaraCara in reply to Goldyukr]

Yeah, I had a read about this treatment - sounds a bit extreme though even though it could be solution in the long term. I also rub deep heat cream onto my soles before bed. Anyway I'll keep searching and hope something pops up eventually. Best of luck.

[martino in reply to Goldyukr]

I am in the UK and a possible ketamine or lidocaine infusion has been mentioned. I have Restless Leg Syndrome as well as Small Fibre Neuropathy so have a sort of combined therapy which includes 600mg of Lyrica, 200mg of Tramadol and 30mg of Nortriptylene. Pain is lessened when I rise each day by 300mg of Lyrica. A pain consultant has recommended capsaicin cream on my legs. He wants me to keep increasing the Nortriptylene by 10mg to a max of 70. If pain continues even with 70 then we think about the infusion. I am on 30 at the moment. I have been on 40 but my head gets messy-a dilemma!

[CaraCara in reply to martino]

Hi - I forgot to mention, but have you tried walking (even though it's painful for a while) as I find walking 10,000 steps a day and at night while watching TV, i massage the soles with a spiky hard roller and then rub the soles with deep heat cream alternating with a cold pack. I've never taken any medication except the occasion asprin type tablet. It's still painful but it's 50% less to what it was when it commenced 8 years ago.

[Karjade in reply to martino]

I had a lidocaine infusion just over a week ago and my feet are so much worse! It definitely did not work for me but I had to try to see if it made any difference which it didn’t!

[Biscuitman in reply to martino]

My Father in law had restless leg syndrome and my wife saw an article in the paper about a specific drug for it called Pramipexole. He asked his Dr and got it prescribed and it actually worked. Worth a try?

[martino in reply to Biscuitman]

Thanks. I have tried pramipexole but couldn’t get on with it. I tried ropinerole like pramixole also a dopamine agonist but couldn’t get on with that either but finally used the rotigotine patch and still use this.

[Mislead599 in reply to Biscuitman]

I’ve been using this medication for a couple of years and it has kept my legs from hurting at night!

[orangecity41]

I am a senior in US on Medicare and find my health care is parceled out and have to rely on information can find, and sharing information on this forum.

[Atticus64]

Try red light and near red light therapy.

[Nerja2012]

Cara. I have Ulnar Nerve entrapment, had every test going but they carnt find it, being Asthmatic and also have Arrhythmia so choice of medication is extremely difficult. Pain turns your world around. I feel for you.

[CaraCara in reply to Nerja2012]

Thanks for your comment. Firstly my is only restricted to the soles of each foot - of all the luck we walk on our feet so its a issue. I've tried a lot of things and had all the tests but nothing has given me reasons for its cause. I don't take any medication except one nurofen (400mg) daily - it helps by about 50%. The condition started 7 years out of the blue. There is no pain or burning at night time. The most disappointing thing about all neuropathy issues that I found is that doctors it seems, don't know much about it and there-fore treatment is really no-existent. The best way would be I think if people wrote in on this platform with their experiences and ways they treat it - more on the natural way not so much the use of medication. In this way people can try a few natural therapies and assist them - like for example, does a 'Tens Machine' help. All the best.

[Cb1963 in reply to CaraCara]

There's numerous reasons why you can end up with neuropathy, diabetes, chemotherapy treatment, long term alcohol use, or trapped nerves, or back problems, unfortunately the health practitioner's/ specialist are limited to the treatments available as nerve damage is very difficult to treat, I have it in my feet and legs, and hands, the sensations vary from pins and needles to burning pains, and I've tried more or less everything on the market, I'm currently on pregabalin and take mirtrazapine at night to help with sleep, I have heard acupuncture has had some success, but I'm unsure of how successful this has been, and also I use vicks vapour rub on my feet, it might seem a little bit daft, but it's worth a try, best of luck 👍

[CaraCara in reply to Cb1963]

Thanks. I also use Vicks at night. Gives good relief. Regards.

[Motts in reply to CaraCara]

I put Vicks on the bottom of my feet at night... not sure it helps but at least l feel like l am doing something.

[Galoolie]

I have ICI induced PN that started in feet then hands. My oncologist prescribed IL6 inhibitor (actemra) as blood tests showed it was elevated. I start infusions in a couple weeks. Have been on 40 mg prednisone for a few months but still have some progression. Insurance would not cover the cost but Genetach will.

[Maisywhippet]

try Vicks vapour rub on feet at bedtime....has definitely improved my feet🤞

[CaraCara]

Thanks I've been using that every night. But it's sad how medical science has no solid treatments or answers for this condition, considering its so common

[Deesee]

I use Icyhot at night which really helps. I’ve also used Vicks.