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Experiences with
D-bifunctional protein (DBP) deficiency
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Anyone know anything about ferritin and trans ferritin saturation levels?
OK so I got some results back re iron and B12 and would so appreciate some expert understanding from anyone of you. I believe I might have lowish ferritin. It's 39ug but my transferritin saturation is 52%, which is high. How do I increase my iron levels if I need to, with high transferritin saturation
OK so I got some results back re iron and B12 and would so appreciate some expert understanding from anyone of you. I believe I might have lowish ferritin. It's 39ug but my transferritin saturation is 52%, which is high. How do I increase my iron levels if I need to, with high transferritin saturation
Auntbessy
in
Thyroid UK
9 months ago
Help with iron results - follow up from 3 arrows nutra
Hi everyone, I did an iron panel and I’m quite amazed with my ferritin level. I have been lax with my iron supps since going to T3 only and thought I would definitely have ranked my previously low results. To my disbelief, my ferritin is the highest I’ve ever seen it! I was previously taking the 3 arrows
Hi everyone, I did an iron panel and I’m quite amazed with my ferritin level. I have been lax with my iron supps since going to T3 only and thought I would definitely have ranked my previously low results. To my disbelief, my ferritin is the highest I’ve ever seen it! I was previously taking the 3 arrows
Beau55
in
Thyroid UK
10 months ago
Iron Level for RLS
It is proven that we sufferers r[i]equire over 100 when it comes to Iron . I have had RLS for 21'years and have a vast knowledge base. Now I am on 250 mg Pregabalin combined with 7.5 mg Targin.[/i][i]Symptoms are all over the place and waking me up during the night. [/i] [i]My recent Iron blood test
It is proven that we sufferers r[i]equire over 100 when it comes to Iron . I have had RLS for 21'years and have a vast knowledge base. Now I am on 250 mg Pregabalin combined with 7.5 mg Targin.[/i][i]Symptoms are all over the place and waking me up during the night. [/i] [i]My recent Iron blood test
Katyparis
in
Restless Legs Syndrome
10 months ago
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Anaemia anyone?
So the latest is diagnosed with anaemia. Add iron supplements to the steroid list !! Whatever next…. 🤪 Doc seems happy with everything else
So the latest is diagnosed with anaemia. Add iron supplements to the steroid list !! Whatever next…. 🤪 Doc seems happy with everything else
gillsky8
in
PMRGCAuk
10 months ago
My body did not get the memo.
I accept that a test had been done measuring the amount of Hydroxocobalamin and Cynocabalamin that can be measured in the urine at different times after the injection and that the numbers are likely repeatable. I do not know if any testing was done on a subject that was B12 deficient. I find it unlikely
I accept that a test had been done measuring the amount of Hydroxocobalamin and Cynocabalamin that can be measured in the urine at different times after the injection and that the numbers are likely repeatable. I do not know if any testing was done on a subject that was B12 deficient. I find it unlikely
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
Mayo Clinic studies B12 def, are very interesting!!
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century ago, it is still difficult to establish the correct diagnosis and prescribe the right treatment. Symptoms related to vitamin B12 deficiency may
brenanddave
in
Pernicious Anaemia Society
10 months ago
Milestones.
Seems to me that my milestones associated with my cobalamin issues tend to be known to me only in hindsight. I thought about it and came to understand that is the way most milestones actually happen and it is only in hindsight and my narrative of the past that milestones become apparent. I need to
Seems to me that my milestones associated with my cobalamin issues tend to be known to me only in hindsight. I thought about it and came to understand that is the way most milestones actually happen and it is only in hindsight and my narrative of the past that milestones become apparent. I need to
WIZARD6787
in
Pernicious Anaemia Society
10 months ago
Dr's Appointment
HI Everyone (Especially Slow Dragon) I have just returned from a Dr's appointment as he wanted to discuss my thyroid results, (see previous posts, TSH 0.03. He has reduced dose from 100/75 to 75 and said that I can take Iron pills for extreme tiredness even though my iron levels are fine, but my ferritin
HI Everyone (Especially Slow Dragon) I have just returned from a Dr's appointment as he wanted to discuss my thyroid results, (see previous posts, TSH 0.03. He has reduced dose from 100/75 to 75 and said that I can take Iron pills for extreme tiredness even though my iron levels are fine, but my ferritin
Carri3
in
Thyroid UK
10 months ago
Paper preprint: Transcobalamin Receptor Autoantibodies in Central Vitamin B12 Deficiency
The following paper is a preprint, which means it has not been peer reviewed yet. https://www.medrxiv.org/content/10.1101/2023.08.21.23294253v1.full Pluvinage et al, "Transcobalamin Receptor Autoantibodies in Central Vitamin B12 Deficiency" medRxiv 2023.08.21.23294253; doi: https://doi.org/10.1101/
The following paper is a preprint, which means it has not been peer reviewed yet. https://www.medrxiv.org/content/10.1101/2023.08.21.23294253v1.full Pluvinage et al, "Transcobalamin Receptor Autoantibodies in Central Vitamin B12 Deficiency" medRxiv 2023.08.21.23294253; doi: https://doi.org/10.1101/
jade_s
in
Pernicious Anaemia Society
10 months ago
Very low ferritin with top of range haemoglobin can you then safely supplement iron to get ferritin up?
hi last iron haemoglobin was 15.7 top range of 15 and ferritin was 22 (as usual although that’s quite good for me! Range 15- 200(?)). I was beginning to get that rubbish short of breath way I do when ferritin goes very low (been at 3 few years ago). TSH was jumping about a bit and I don’t have other
hi last iron haemoglobin was 15.7 top range of 15 and ferritin was 22 (as usual although that’s quite good for me! Range 15- 200(?)). I was beginning to get that rubbish short of breath way I do when ferritin goes very low (been at 3 few years ago). TSH was jumping about a bit and I don’t have other
Holiday12345
in
Thyroid UK
10 months ago
US names first 10 drugs for Medicare price negotiation
US names first 10 drugs for Medicare price negotiation-By Patrick Wingrove and Michael Erman August 29, 202310:46 AM EDT https://www.reuters.com/business/healthcare-pharmaceuticals/us-name-first-10-drugs-medicare-price-negotiation-2023-08-29/ Aug 29(Reuters) - The Biden administration on Tuesday
US names first 10 drugs for Medicare price negotiation-By Patrick Wingrove and Michael Erman August 29, 202310:46 AM EDT https://www.reuters.com/business/healthcare-pharmaceuticals/us-name-first-10-drugs-medicare-price-negotiation-2023-08-29/ Aug 29(Reuters) - The Biden administration on Tuesday
lankisterguy
Volunteer
in
CLL Support
10 months ago
Ferrous Fumerate and pre-existing Reflux
Any tips on how to take ferrous ferritin when you are already prone to reflux (for which I take a PPI)? My guts have just about put up with FF since December, and it has greatly improved my RLS, but increasingly given I take it at night it’s caused bad reflux and I had a massive flare recently during
Any tips on how to take ferrous ferritin when you are already prone to reflux (for which I take a PPI)? My guts have just about put up with FF since December, and it has greatly improved my RLS, but increasingly given I take it at night it’s caused bad reflux and I had a massive flare recently during
Hellio
in
Restless Legs Syndrome
10 months ago
Which DBS device to use?
I am planning to go through a DBS surgery in near future. I believe there are two brands supplying the devices - Boston Scientific - Medtronix Can someone refer me to some literature where two devices are compared for directional rechargeable type? As I patient should I even care or let the neurologist
I am planning to go through a DBS surgery in near future. I believe there are two brands supplying the devices - Boston Scientific - Medtronix Can someone refer me to some literature where two devices are compared for directional rechargeable type? As I patient should I even care or let the neurologist
sutensera
in
Cure Parkinson's
4 days ago
mucana
Hi everyone My husband had DBS done a 1 1/2 years ago. Very successful for him , he doesn’t take any medication anymore but I found that he is slowing down. I saw that there has been studies on mucana supplements. I would like to try but I don’t know where to buy it( good quality) and how much he should
Hi everyone My husband had DBS done a 1 1/2 years ago. Very successful for him , he doesn’t take any medication anymore but I found that he is slowing down. I saw that there has been studies on mucana supplements. I would like to try but I don’t know where to buy it( good quality) and how much he should
gigi9
in
Cure Parkinson's
10 days ago
Noninvasive deep brain stimulation shows promise for Parkinson’s. Is it an advanced form of CUE1?
Stimvia’s URIS device uses electrodes placed near the peroneal nerve in the lower leg to modulate electrical activity that stimulates specific nerve pathways in the brain. It functions as a noninvasive alternative for DBS to modulate the activity of specific brain nerve pathways. A built-in monitoring
Stimvia’s URIS device uses electrodes placed near the peroneal nerve in the lower leg to modulate electrical activity that stimulates specific nerve pathways in the brain. It functions as a noninvasive alternative for DBS to modulate the activity of specific brain nerve pathways. A built-in monitoring
Farooqji
in
Cure Parkinson's
12 days ago
Deep Brain Stimulation Therapy
I am seriously considering having DBS but am wondering if there are others who have successfully had this surgery to alleviate pain in the neck, shoulders, upper back & lower back. Please share any experiences with this as well as anything else you may have found that works. I am desperate. Thank you
I am seriously considering having DBS but am wondering if there are others who have successfully had this surgery to alleviate pain in the neck, shoulders, upper back & lower back. Please share any experiences with this as well as anything else you may have found that works. I am desperate. Thank you
Kingsdaughter1
in
Cure Parkinson's
18 days ago
Aside from easing motor symptoms of Parkinson’s disease, deep brain stimulation (DBS) may also slow disease progression
https://parkinsonsnewstoday.com/news/dbs-reduces-toxic-clumping-parkinsons-rat-brain-cells-study/
https://parkinsonsnewstoday.com/news/dbs-reduces-toxic-clumping-parkinsons-rat-brain-cells-study/
Farooqji
in
Cure Parkinson's
25 days ago
Baby Observation Kent
Hello, I am a psychotherapist completing a clinical doctorate, I live in East Kent. Part of my psychotherapy training involves an Infant Observation. As such, I am looking for an expecting mum, or mum and newborn under 4 weeks. The observation takes place at the home and is once-weekly for 12 months.
Hello, I am a psychotherapist completing a clinical doctorate, I live in East Kent. Part of my psychotherapy training involves an Infant Observation. As such, I am looking for an expecting mum, or mum and newborn under 4 weeks. The observation takes place at the home and is once-weekly for 12 months.
InfantObs
in
Women's Health
26 days ago
Baby observation
Hello, I am a psychotherapist completing a clinical doctorate, I live in East Kent. Part of my psychotherapy training involves an Infant Observation. As such, I am looking for a pregnant mum, or mum and newborn under 4 weeks. The observation takes place at the home and is once-weekly for 12 months
Hello, I am a psychotherapist completing a clinical doctorate, I live in East Kent. Part of my psychotherapy training involves an Infant Observation. As such, I am looking for a pregnant mum, or mum and newborn under 4 weeks. The observation takes place at the home and is once-weekly for 12 months
InfantObs
in
Pregnancy and Parenting Support
27 days ago
East Kent
Hello, I am a psychotherapist in intensive training, I live in East Kent. Part of my psychotherapy training involves an Infant Observation. As such, I am looking for a pregnant mum, or mum and newborn under 4 weeks. The observation takes place at the home and is once-weekly for 12 months. It is an observation
Hello, I am a psychotherapist in intensive training, I live in East Kent. Part of my psychotherapy training involves an Infant Observation. As such, I am looking for a pregnant mum, or mum and newborn under 4 weeks. The observation takes place at the home and is once-weekly for 12 months. It is an observation
InfantObs
in
Baby and Us
1 month ago
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