Well last Friday was th first round of FCR. I felt quite positive, put on make up and a nice Lacey top to go to the party . All the staff were amazing, loads of reassurance and info... I was ready to go. Took the pills. Fine. Waited to start the infusion and was still quite jovial even though I did feel a little woozy.
The infusion started and about 20 mins in to it I felt really dizzy... Told staff and suddenly action stations. BP plummeted to 78/38 ; infusion stopped; put on a bed and taken to a side ward where I was given a concoction of something and normal saline put up in place .
They restarted the infusion after 3 hours and again 40 mins in felt yucky but not as bad as before. Anyway infusion stopped .
Restarted after further 2 hours.... As you can guess , after about 40 mins felt very hot but not too bad . However decided to abort.
On returning home felt like I had the worst hangover ever.
The next day I vomitted and felt so nauseous ... Food made me retch, flowers from well wishers the same. Appetite extremely poor, disgusting smell surrounded me but no one else could smell it!!! I became a nutter.
For days 2-4 I couldn't even smile ... The toilet bowl became my best friend and the cold bathroom floor my refuge.
However.... Feeling much brighter now... Eating a little more, drinking as much as I can, and generally watching as much rubbish TV as there is.
My lymph nodes have dramatically reduced in size so that's a huge positive. I managed a good chuckle yesterday when my son and daughter in law sent me a parcel in the post.....a bright yellow wig!