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Parents Advisory Board
bluebird bio plans to host a caregiver advisory board on November 7th in advance of the ALD Connect meeting in Waltham, MA. bluebird is looking for 6-8 caregivers of boys with ALD who have received allogeneic hematopoietic stem cell transplant (allo-HSCT) to gain insight and better understanding into
bluebird bio plans to host a caregiver advisory board on November 7th in advance of the ALD Connect meeting in Waltham, MA. bluebird is looking for 6-8 caregivers of boys with ALD who have received allogeneic hematopoietic stem cell transplant (allo-HSCT) to gain insight and better understanding into
fightald
Administrator
in
Parents of ALD Newborns
5 years ago
And so it begins!
Well here we go I am just beginning the tests to qualify for a Liver transplant under the VA system. It does not guarantee you a liver and you must still wait till you are at or near the top of the list, But it does determine if the VA will consider you for a transplant.
Well here we go I am just beginning the tests to qualify for a Liver transplant under the VA system. It does not guarantee you a liver and you must still wait till you are at or near the top of the list, But it does determine if the VA will consider you for a transplant.
utep99
in
Living with Fatty Liver and NASH
5 years ago
Post liver transplant NASH ???
Hi new person - husband has had liver transplant 2014 - now been diagnosed with F4 fibrosis ??? NASH/NAFLD - we cant seem to get a proper diagnosis - liver bloods ok but fibroscan was 16kpa and had liver biopsy shower no graft rejection but FVR??? 4 and something else I can’t remember - doesn’t drink
Hi new person - husband has had liver transplant 2014 - now been diagnosed with F4 fibrosis ??? NASH/NAFLD - we cant seem to get a proper diagnosis - liver bloods ok but fibroscan was 16kpa and had liver biopsy shower no graft rejection but FVR??? 4 and something else I can’t remember - doesn’t drink
cherrygirl13
in
Living with Fatty Liver and NASH
5 years ago
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What are the-major-findings-of-the-united-kingdom-prospective-Diabetes-study-ukpds??
UKPDS has been conducting studies on Diabetes since 1977 and during last 42 years they have generated 93 original research papers based upon their trial studies on large number of Diabetes. It is a Bible on diabetes .. giving below few links.....the first link gives the brief summary ... and the second
UKPDS has been conducting studies on Diabetes since 1977 and during last 42 years they have generated 93 original research papers based upon their trial studies on large number of Diabetes. It is a Bible on diabetes .. giving below few links.....the first link gives the brief summary ... and the second
namaha
Administrator
in
Diabetes India
5 years ago
A little change on the forums
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
Realfoodieclub
Marathon
in
Fun Beyond 10K & Race Support
5 years ago
A little change on the forums
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
Realfoodieclub
Graduate
in
Couch to 5K
5 years ago
A little change in the forums
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
Realfoodieclub
Graduate10
in
Bridge to 10K
5 years ago
A little change on the forums
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
Realfoodieclub
in
Strength & Flex
5 years ago
A little change to the forum.
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
I am stepping down as lead Admin on all my forums. (C25K, Bridge to 10km, Strength and Flex and Active 10) I will still be on the forums but as one of the community members. I am leaving you in very capable hands and I hope everyone on here will do their best to help ease any transition the admins
Realfoodieclub
in
Active 10
5 years ago
stage 4 ckd and decompensated end stage cirrhosis with ascites
Hi I'm Sharon/60/Massachusetts USA I was dx'd with end stage cirrhosis 2 years ago and have since been diagnosed with stage 4 chronic kidney disease, I also have primary fibromyalgia with rheumatoid arthritis and hyperparathyroidism. I am getting close to having to make a decision about dialysis, I
Hi I'm Sharon/60/Massachusetts USA I was dx'd with end stage cirrhosis 2 years ago and have since been diagnosed with stage 4 chronic kidney disease, I also have primary fibromyalgia with rheumatoid arthritis and hyperparathyroidism. I am getting close to having to make a decision about dialysis, I
Cape_Cod_Sharon
in
Kidney Disease
5 years ago
Post Kidney Transplant patient
Hi I'm a post transplant kidney paitent. Just attempted the 1st run...anyone out there with tips really struggling!
Hi I'm a post transplant kidney paitent. Just attempted the 1st run...anyone out there with tips really struggling!
rkoking
in
Couch to 5K
5 years ago
New Here!
Even though I joined in May, it appears as though I didn’t introduce myself. I just turned 67 and found out I had something going on with my liver via a CT scan. I am a heart patient, in heart failure (with an artificial mitral valve, pacemaker and defibrillator). Diagnosed with heart problem when I
Even though I joined in May, it appears as though I didn’t introduce myself. I just turned 67 and found out I had something going on with my liver via a CT scan. I am a heart patient, in heart failure (with an artificial mitral valve, pacemaker and defibrillator). Diagnosed with heart problem when I
Bluegirl52
in
Living with Fatty Liver and NASH
5 years ago
Transplant list
Hello again Hope everyone doing well 😊 I posted on here a few weeks back as my husband was going through tests as part of the work up for liver transplant. We had our Assessment in Kings last week and flew back to Belfast on Wednesday, we got the call on Friday to say he has been put on the list!!!
Hello again Hope everyone doing well 😊 I posted on here a few weeks back as my husband was going through tests as part of the work up for liver transplant. We had our Assessment in Kings last week and flew back to Belfast on Wednesday, we got the call on Friday to say he has been put on the list!!!
Dannythedog
in
British Liver Trust
5 years ago
What symptoms did you have from having CMV virus?
My spouse had his kidney transplant 9 months ago and for 7 months still has low iron stores and hemoglobin. Last week new issue of UTI (he does not feel symptoms) and also CVM is at 13,000 count in blood work. I am not sure if 13,000 is super bad or what to think. If you had CMV before, and I know it
My spouse had his kidney transplant 9 months ago and for 7 months still has low iron stores and hemoglobin. Last week new issue of UTI (he does not feel symptoms) and also CVM is at 13,000 count in blood work. I am not sure if 13,000 is super bad or what to think. If you had CMV before, and I know it
Gardner-NY
in
Kidney Transplant
5 years ago
Liver transplant one month in
Hi all just a quick update. Jason doing great. Just over one month in. He was out of hospital after 9 days. Bloods and liver function have been told is perfect. He’s a new man. Breathing good. He’s sleeping well now. We so thank the liver donor for this second chance in life. Never thought it
Hi all just a quick update. Jason doing great. Just over one month in. He was out of hospital after 9 days. Bloods and liver function have been told is perfect. He’s a new man. Breathing good. He’s sleeping well now. We so thank the liver donor for this second chance in life. Never thought it
Whitelock
in
British Liver Trust
5 years ago
LIVING LIFE
Just wanted to share some pictures of one of the most fantastic places in the US! My daughter and her husband joined for a week in Glacier National Park, MT - one of the most beautiful places! We have been coming here since the '80's when my husband was active duty Air Force and stationed in Montana
Just wanted to share some pictures of one of the most fantastic places in the US! My daughter and her husband joined for a week in Glacier National Park, MT - one of the most beautiful places! We have been coming here since the '80's when my husband was active duty Air Force and stationed in Montana
WYOAnne
NKF Ambassador
in
Kidney Transplant
5 years ago
Help
Hi I feel terrible and guilty. I had a streeful couple of days I had a kidney transplant last year I had a few cigarettes yesterday. I ha e not had any since Can I get advice. I am depressed
Hi I feel terrible and guilty. I had a streeful couple of days I had a kidney transplant last year I had a few cigarettes yesterday. I ha e not had any since Can I get advice. I am depressed
Roadrunner1954
in
Kidney Transplant Patient Support
5 years ago
Hydronephrosis
Happy to be member of kidney tranplant i am year post kidney transplant and yesterday i just did for follow up ultrasound i discover i got mild hydronephrosis also i feel some leakage anyone who find that also thanks
Happy to be member of kidney tranplant i am year post kidney transplant and yesterday i just did for follow up ultrasound i discover i got mild hydronephrosis also i feel some leakage anyone who find that also thanks
Lusha19
in
Kidney Transplant
5 years ago
Transplant survival rate India VS US
Why is Kidney transplant survival low in India than in US? In India, only 5 to 10 yrs have been observed for a successful transplant but 15 to 20 yrs is common in US. My transplant failed in just 3 yrs, though it was a related live donor.
Why is Kidney transplant survival low in India than in US? In India, only 5 to 10 yrs have been observed for a successful transplant but 15 to 20 yrs is common in US. My transplant failed in just 3 yrs, though it was a related live donor.
ashok5085
in
Kidney Disease
5 years ago
Transplant Recovery Equated to One Year on Chemotherapy?
One of our contributors on HealthUnlocked was told, in her evaluation for transplant by the Hospital Transplant Team, that the first year of recovering from a kidney transplant was similar to that of being on chemotherapy for a year. I have NEVER been told that -- not by my Transplant Team, PD Dialysis
One of our contributors on HealthUnlocked was told, in her evaluation for transplant by the Hospital Transplant Team, that the first year of recovering from a kidney transplant was similar to that of being on chemotherapy for a year. I have NEVER been told that -- not by my Transplant Team, PD Dialysis
TaffyTwoshoes27
in
Kidney Dialysis
5 years ago
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