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Shielding updates and Q&A, webinars for each UK country are now opening for registration
Good morning friends With imminent announcements of changes to shielding guidance and the different rates of implementation and advice given by the different UK countries. Leukaemia Care and sister charities are working with specialist haematologists in each country to support you through changes.
Good morning friends With imminent announcements of changes to shielding guidance and the different rates of implementation and advice given by the different UK countries. Leukaemia Care and sister charities are working with specialist haematologists in each country to support you through changes.
HAIRBEAR_UK
Administrator
in
CLL Support
4 years ago
Shielding updates and Q&A, the webinars for each UK country are now opening for registration
Good morning With imminent announcements about government shielding guidance and the different rates of implementation and advice given by the different UK countries. Leukaemia Care are working with specialist haematologists in each country to support you through changes. Each webinar will update
Good morning With imminent announcements about government shielding guidance and the different rates of implementation and advice given by the different UK countries. Leukaemia Care are working with specialist haematologists in each country to support you through changes. Each webinar will update
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
CLL - Extremely Vulnerable clarified
Previous posts have discussed the contentious issue of which CLL patients in the UK are classed as Extremely Vulnerable and are therefore eligible for government support. Members on watch and wait in Scotland have been excluded as they are not among those "who are at any stage of treatment". While few
Previous posts have discussed the contentious issue of which CLL patients in the UK are classed as Extremely Vulnerable and are therefore eligible for government support. Members on watch and wait in Scotland have been excluded as they are not among those "who are at any stage of treatment". While few
bennevisplace
in
CLL Support
4 years ago
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Dexamethasone
Is anyone on Dexamethasone ? I was speaking to my Endo as I also have addison's and asked why was I not on Dexamethasone in addition to my Solu-Cortef (I am on the cortisol Pump) as the Cortef is for addion's but I need a strong anti inflammatory in addition, as Cortef has 30 x more anti inflammatory
Is anyone on Dexamethasone ? I was speaking to my Endo as I also have addison's and asked why was I not on Dexamethasone in addition to my Solu-Cortef (I am on the cortisol Pump) as the Cortef is for addion's but I need a strong anti inflammatory in addition, as Cortef has 30 x more anti inflammatory
sloppydog
in
LUPUS UK
4 years ago
Why ?
My partner (f 48) was transferred per emergency to a Northern hospital with liver failure - during the first 5 days she was held on a ward where othing was done except giving her blood (7 units) and antibio's (Just to note that on this ward she contracted Cov19 and it was a so called "Green Ward" = virus
My partner (f 48) was transferred per emergency to a Northern hospital with liver failure - during the first 5 days she was held on a ward where othing was done except giving her blood (7 units) and antibio's (Just to note that on this ward she contracted Cov19 and it was a so called "Green Ward" = virus
Sadpartner
in
British Liver Trust
4 years ago
Stem cell transplant anniversary
It is now exactly 12 months almost to the minute since I watched the bag of stem cells slowly drain into the Hickman line. It's been a very eventful 12 months to say the least. Since my last post 9 months ago I had a difficult end to 2019. I was hospitalised for pneumonia in October which turned out
It is now exactly 12 months almost to the minute since I watched the bag of stem cells slowly drain into the Hickman line. It's been a very eventful 12 months to say the least. Since my last post 9 months ago I had a difficult end to 2019. I was hospitalised for pneumonia in October which turned out
Dodders
in
MPN Voice
4 years ago
overload
Has anyone been diagnosed with hemochromatosis-- iron overload and been has had a liver transplant or liver issues?
Has anyone been diagnosed with hemochromatosis-- iron overload and been has had a liver transplant or liver issues?
pduggan9011
in
British Liver Trust
4 years ago
Transplant of liver
In Pakistan their is no transplant for liver can any one help a person who can help him.in liver transplant
In Pakistan their is no transplant for liver can any one help a person who can help him.in liver transplant
Bilalrazakhan83
in
British Liver Trust
4 years ago
Lung transplant 3 day accesment
As anybody ad to have the 3 day tests done again cause they been on the list so long
As anybody ad to have the 3 day tests done again cause they been on the list so long
skylas
in
Lung Conditions Community Forum
4 years ago
Elevated ALKALINE PHOSPHATE LEVEL
Hello Worriers, Is there anybody who has faced/facing elevated Alkaline phosphate level after kidney transplant??? how to deal with such a situation? I am 18 Month post kidney transplant wit creatinine level 1.8-2.0. #Alkalinephosphate #kidneyworrier
Hello Worriers, Is there anybody who has faced/facing elevated Alkaline phosphate level after kidney transplant??? how to deal with such a situation? I am 18 Month post kidney transplant wit creatinine level 1.8-2.0. #Alkalinephosphate #kidneyworrier
pateldev
in
Kidney Transplant
4 years ago
Post kidney transplant
Since kidney transplant in January I have had to drain off fluid containing chyle through my PD tube. Has anyone had this experience?
Since kidney transplant in January I have had to drain off fluid containing chyle through my PD tube. Has anyone had this experience?
BarryWright
in
Active 10
4 years ago
Liver Transplant - coronavirus Wales
There will no doubt be a number of people out there who have had a liver transplant, and who are still expecting to receive a letter from the government informing them that they are on the, "high at risk" scale, due to their bodies immune system being turned down. It would appear that some of these
There will no doubt be a number of people out there who have had a liver transplant, and who are still expecting to receive a letter from the government informing them that they are on the, "high at risk" scale, due to their bodies immune system being turned down. It would appear that some of these
Richard-Allen
in
Liver4Life
4 years ago
Celebrating Fourteen Years Today!
I am so blessed and happy to be celebrating fourteen years of having my kidney transplant today! I was called prior to April 13, 2006, but I had bronchitis. I thought I would never hear from them again, but they called me and I was so glad and happy!! I set my phone back then and up till now as to take
I am so blessed and happy to be celebrating fourteen years of having my kidney transplant today! I was called prior to April 13, 2006, but I had bronchitis. I thought I would never hear from them again, but they called me and I was so glad and happy!! I set my phone back then and up till now as to take
JEanes55
in
Kidney Transplant
4 years ago
Anyone following a specific diet after kidney transplant??
Hello. I am curious if anyone is following a specific diet after their transplant? I know we can eat everything (except grapefruit in my case due to tacro interaction), but after my creatinine increased, I have started a soft vegetarian diet (no meat but seafood and light dairy is okay). Vegetarian,
Hello. I am curious if anyone is following a specific diet after their transplant? I know we can eat everything (except grapefruit in my case due to tacro interaction), but after my creatinine increased, I have started a soft vegetarian diet (no meat but seafood and light dairy is okay). Vegetarian,
Dna4christ
in
Kidney Transplant
4 years ago
E/M Codes for Kidney Transplant Evaluation
Did my pre-transplant testing day in January and received invoice from practice. They billed traditional Evaluation/Management codes E/M codes and expected some type of pre-transplant screening CPT. Does anyone have deeper billing coding guidance on this?
Did my pre-transplant testing day in January and received invoice from practice. They billed traditional Evaluation/Management codes E/M codes and expected some type of pre-transplant screening CPT. Does anyone have deeper billing coding guidance on this?
garysum
in
Kidney Disease
4 years ago
UK government's 12 week shielding group.
Everyday there is people asking "I have ,x,y,z conditions, should I be shielding for 12 weeks?" or "I have not received a letter from government, but should I be shielding for 12 weeks?" The following is the list of conditions where patients should have received the "12 weeks shielding/isolation" letter
Everyday there is people asking "I have ,x,y,z conditions, should I be shielding for 12 weeks?" or "I have not received a letter from government, but should I be shielding for 12 weeks?" The following is the list of conditions where patients should have received the "12 weeks shielding/isolation" letter
gilders
in
Early CKD Support
4 years ago
Let’s try “Dry Covid” – lockdown is the time to kick our national alcohol habit for good
"Off licenses aren't essential services – and closing them during the coronavirus pandemic would yield more for the nation’s health than almost any other policy intervention." Just to let people know, that at the moment the QE Hospital in Birmingham have put liver transplants on hold for the time being
"Off licenses aren't essential services – and closing them during the coronavirus pandemic would yield more for the nation’s health than almost any other policy intervention." Just to let people know, that at the moment the QE Hospital in Birmingham have put liver transplants on hold for the time being
Richard-Allen
in
Liver4Life
4 years ago
Hello everyone
I am a liver transplant recipient, long wait on the transplant list, 19 months, due to my type B blood. Usual complications that come with end stage decompensated cirrhosis. Transplanted August 2018 at the Royal Free and making an excellent recovery after a long journey. Happy to ask for and give support
I am a liver transplant recipient, long wait on the transplant list, 19 months, due to my type B blood. Usual complications that come with end stage decompensated cirrhosis. Transplanted August 2018 at the Royal Free and making an excellent recovery after a long journey. Happy to ask for and give support
TT-2018
in
Liver4Life
4 years ago
Just joined, hello everyone.
Hello I have just joined. I am a 69 year old female. My interest is to hopefully chat and maybe, support anyone who has been diagnosed with liver disease in its many silent killer forms. A few good people stood beside me, when I was diagnosed, this changed me, because they cared, they supported
Hello I have just joined. I am a 69 year old female. My interest is to hopefully chat and maybe, support anyone who has been diagnosed with liver disease in its many silent killer forms. A few good people stood beside me, when I was diagnosed, this changed me, because they cared, they supported
Hidden
in
Liver4Life
4 years ago
I have just joined this site
I have recently joined this group with the intention of trying to help others. I had to delete my previous profile as I was associated with another HU Liver site. I have personally experienced of nearly all forms of medical conditions associated with alcohol-related liver disease. These include,
I have recently joined this group with the intention of trying to help others. I had to delete my previous profile as I was associated with another HU Liver site. I have personally experienced of nearly all forms of medical conditions associated with alcohol-related liver disease. These include,
Richard-Allen
in
Liver4Life
4 years ago
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