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Re: WARWICK's ASCT Journey Begins Today...
Afternoon all... Warwick has managed to POST a reply on MATES, and if any of you can, I am sure that he would love to say hi... He's not feeling terribly himself Eight (8) days into his Stem Cell Transplant, but he did manage to
[i]POST[/i]
the message below on MATES, and so I Posted here again
Afternoon all... Warwick has managed to POST a reply on MATES, and if any of you can, I am sure that he would love to say hi... He's not feeling terribly himself Eight (8) days into his Stem Cell Transplant, but he did manage to
[i]POST[/i]
the message below on MATES, and so I Posted here again
socrates_8
in
MPN Voice
3 years ago
Webinar 9.30am, Wednesday 3rd March - Acute promyelocytic leukaemia (APL) treatment update
Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Liver transplant
I had a liver problem back in August, can I still get a liver transplant
I had a liver problem back in August, can I still get a liver transplant
gordon76
in
British Liver Trust
4 years ago
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A little bit of historical nonsense
Alcohol has become so inbred into our culture and I find the history of alcohol within our society rather interesting. It’s also fascinating to see just how times have changed over the years. Especially as more recently, the drinking of alcohol has become less sociable, and more self-indulgent due to
Alcohol has become so inbred into our culture and I find the history of alcohol within our society rather interesting. It’s also fascinating to see just how times have changed over the years. Especially as more recently, the drinking of alcohol has become less sociable, and more self-indulgent due to
Richard-Allen
in
British Liver Trust
4 years ago
Just miserable...
I am in such pain following this liver transplant. Been home almost a week it’s nearly 3 wks since the operation. No let up in this goddamn awful pain. Plus I can’t sleep not even a wink. And now constipated. Eating dates, guzzling cosmocol , and feeling really really hellish. When does this ease off
I am in such pain following this liver transplant. Been home almost a week it’s nearly 3 wks since the operation. No let up in this goddamn awful pain. Plus I can’t sleep not even a wink. And now constipated. Eating dates, guzzling cosmocol , and feeling really really hellish. When does this ease off
Braveheart65
in
British Liver Trust
4 years ago
ITCH and disillusionment
Hello. I'm in the UK. Waiting on an MRI to diagnose pbc for sure. ITCH is the worse thing. I dont know how people cope. Nothing helps. I'm 60 so relatively old, worry its the end for me as if I need a liver transplant I won't have it, as it would be too much at my age. I have a partner who is not supportive
Hello. I'm in the UK. Waiting on an MRI to diagnose pbc for sure. ITCH is the worse thing. I dont know how people cope. Nothing helps. I'm 60 so relatively old, worry its the end for me as if I need a liver transplant I won't have it, as it would be too much at my age. I have a partner who is not supportive
geraldine60
in
PBC Foundation
4 years ago
Last Christmas
I have chronic cirrhosis and am crying every day, I know how much I have hurt my family. I know it is too late now for a liver transplant. I am only 44. I wish I never had touched the whiskey. I am leaving behind a beautiful wife,daughter, a wonderful mum and dad and lovely sister. This will my
I have chronic cirrhosis and am crying every day, I know how much I have hurt my family. I know it is too late now for a liver transplant. I am only 44. I wish I never had touched the whiskey. I am leaving behind a beautiful wife,daughter, a wonderful mum and dad and lovely sister. This will my
gordon76
in
British Liver Trust
4 years ago
Does anyone know anything about the use of deflazacort instead of prednisone for PMR?
Searching the web tonight for prednisone information, I came across deflazacort for the first time. It seems to have better characteristics in terms of less bone loss and other side effects. The article I found (link below) talks about kidney transplantation; does anyone know whether it is being used
Searching the web tonight for prednisone information, I came across deflazacort for the first time. It seems to have better characteristics in terms of less bone loss and other side effects. The article I found (link below) talks about kidney transplantation; does anyone know whether it is being used
benhemp
in
PMRGCAuk
4 years ago
My husband is in his 2nd kidney transplant and suffering chronic failure , Cr 3,7 and eGFR 18. How long will it be before he needs dialysis?
Chronic kidney transplant rejection
Chronic kidney transplant rejection
Jfkh30
in
Kidney Disease
4 years ago
Can kidney transplant patients be architects?
I am an architecture student possibly having a living donor kidney soon (stable on HD) I was wondering, does the tac tremor mean that architecture would be unrealistic? Are there any architects on here? Thanks.
I am an architecture student possibly having a living donor kidney soon (stable on HD) I was wondering, does the tac tremor mean that architecture would be unrealistic? Are there any architects on here? Thanks.
Mollymoo100
in
Kidney Transplant
4 years ago
Post op Liver transplant.
Hi I'm 3 years post liver transplant and taking immuno-suppressants/anti-reflection drugs. As my immunity is very low I do not yet know if any of the Covid-19 vaccines will protect me by stimulating my body to produce antibodies to fight the virus. I'd be very keen to hear if anyone has any information
Hi I'm 3 years post liver transplant and taking immuno-suppressants/anti-reflection drugs. As my immunity is very low I do not yet know if any of the Covid-19 vaccines will protect me by stimulating my body to produce antibodies to fight the virus. I'd be very keen to hear if anyone has any information
Bikafella
in
British Liver Trust
4 years ago
WARWICK's ASCT Journey Begins Today...
Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met
Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met
socrates_8
in
MPN Voice
3 years ago
Has anyone had more than one FISH test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
steve_canada
in
CLL Support
3 years ago
Good news(?)
so i had some follow ups with my doctor and turns out there was a miscommunication on my dosage of amlodipine, it’s now been fixed and i’m taking the proper dosage, my blood pressure has been really well! and i’m glad it’s working☺️dont have to take the Coreg and i’m not experiencing the side effects
so i had some follow ups with my doctor and turns out there was a miscommunication on my dosage of amlodipine, it’s now been fixed and i’m taking the proper dosage, my blood pressure has been really well! and i’m glad it’s working☺️dont have to take the Coreg and i’m not experiencing the side effects
celestw
in
High Blood Pressure Support
4 years ago
Finding a Personalized Approach To Treating Chronic Rejection After Lung Transplantation.
Two new papers examine the processes of lung scarring and chronic rejection of the organ after transplantation, and potential therapies to stop the graft, or transplanted organ and its tissue, from failing. “Chronic graft failure due to progressive scarring is the number one worry of all transplant
Two new papers examine the processes of lung scarring and chronic rejection of the organ after transplantation, and potential therapies to stop the graft, or transplanted organ and its tissue, from failing. “Chronic graft failure due to progressive scarring is the number one worry of all transplant
2greys
in
Lung Conditions Community Forum
4 years ago
Tacrolimus, Covid-19
I have for some time been concerned (like a lot of people) how any covid-19 vaccine would work with Tacrolimus, my concerns where that any vaccine might inhibit the tacrolimus and thus making us more venerable to organ rejection. There just didn’t seem to be any science available to change my point of
I have for some time been concerned (like a lot of people) how any covid-19 vaccine would work with Tacrolimus, my concerns where that any vaccine might inhibit the tacrolimus and thus making us more venerable to organ rejection. There just didn’t seem to be any science available to change my point of
Richard-Allen
in
British Liver Trust
4 years ago
Bladder neck constriction
I was having trouble urinating, a little twinge of pain like when you’re driving long time then really gotta go! Doc gave me antibiotics for possible UTI, didn’t help. Then he did Swab to identify what if any bacteria was there it came back negative. Ultrasound and another dye injection test showed
I was having trouble urinating, a little twinge of pain like when you’re driving long time then really gotta go! Doc gave me antibiotics for possible UTI, didn’t help. Then he did Swab to identify what if any bacteria was there it came back negative. Ultrasound and another dye injection test showed
Uncutdad
in
Men's Health Forum
4 years ago
Short Update on Ibrutinib + Idelalisib + Venetoclax "N of 1" trial after lower dose.
A update on my very surprising results when combining Ibrutinib + Idelalisib + Venetoclax. Initial Post with more detail: https://healthunlocked.com/cllsupport/posts/145327977/my-n-of-1-trial-with-ibrutinib-idelalisib-venetoclax-that-lead-to-remission-of-richters-in-three-weeks. I just had a second [
A update on my very surprising results when combining Ibrutinib + Idelalisib + Venetoclax. Initial Post with more detail: https://healthunlocked.com/cllsupport/posts/145327977/my-n-of-1-trial-with-ibrutinib-idelalisib-venetoclax-that-lead-to-remission-of-richters-in-three-weeks. I just had a second [
UniversallyPersonal
in
CLL Support
3 years ago
Quick Question to anyone previously shielding, over 70 and in Scotland
Hi all, It’s been a while since I’ve posted on the site but I’ve been keeping up to date with all your posts. I hope you’re all keeping safe and as well as you can. I have a question to anyone in their 70s who was/is officially shielding and lives in Scotland. Have you received your letter inviting
Hi all, It’s been a while since I’ve posted on the site but I’ve been keeping up to date with all your posts. I hope you’re all keeping safe and as well as you can. I have a question to anyone in their 70s who was/is officially shielding and lives in Scotland. Have you received your letter inviting
Froggie70
in
LUPUS UK
3 years ago
Liver transplant
I have had liver cirrhosis now since August, but still not had the courage to see a doctor, I am going to talk to doctor today. I know that in reality I am going to die, I am only 44 but I succumbed to the dreadful drinking of whiskey. My only hope is a liver transplant, but I fear that I am too
I have had liver cirrhosis now since August, but still not had the courage to see a doctor, I am going to talk to doctor today. I know that in reality I am going to die, I am only 44 but I succumbed to the dreadful drinking of whiskey. My only hope is a liver transplant, but I fear that I am too
gordon76
in
British Liver Trust
4 years ago
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