Experiences with

Cornea transplant

I had sort of given up hope of my vision returning in my left eye due to cornea damage after many procedures due to Glaucoma and Uveitis and was told last year that a cornea transplant was off the table as too risky , I have been trying to adjust to life with vision in one eye but it takes a long time

Hi Everyone.....I hope you're all doing well. I'm not sure how my liver is going......I see the specialist in 3 weeks. I have no fluid retention, no jaundice, no HE, but I do have portal hypertension for which I take carvedilol. I have had one varice banded. I won't know my blood readings until I see

To all the parents going through tough times: If you're facing challenges, hold on and have faith in God. No matter how difficult the journey, keep moving forward—there is hope. I want to share my story to give strength to those in similar situations. After three miscarriages, I was blessed with

Please check out our recent workshop featuring patients who have received treatments for different liver conditions! They will share their stories, followed by a Q&A session. This event is perfect for liver cancer patients, caregivers, providers, or anyone interested in learning more about liver health

[i]I'm pretty sure I've shared some of these thoughts before but I just want to say it again..... You are brave!![/i] [i]Don't ever underestimate how brave you are in some way - likely almost every single day. Whether it's dealing with the fatigue ( and still carrying on ), knowing how awful

looking for some advice I’m looking into going to Australia for a year although I’ve got so many reservations and worries to do with health care and being transplanted 3 years ago Has anyone gone abroad and can advice/ reassure me

Hi I now have Bronchiectasis on the back of Pulmonary Fibrosis. Consequently I’ve had chest infections this winter which I haven’t really had before. I have a consultation coming up with my hospital consultant in a couple of weeks & knowing there are many on here with greater experience just wondering

I have been away for a while due to a poor bowel prep for a required colonoscopy. Penn Med Transplant recipient team states that the colonoscopy has to be successful in the prep and needs to rule out colon cancer. I have a tortuous colon which interferes with the procedure to begin with. I visited

I was diagnosed with decompensated liver cirrhosis after a hospital admission in May 2024. I had a seizure at home ( never had one before) had a further seizure in the ambulance whilst on my way to hospital. I have no recall of any of this. I was given steroids whilst in hospital which led to me having

[i]What are you looking forward to in the coming months?[/i] For me, I am celebrating having had my liver transplant for 20 years on April 13th. I'm even having a 'birthday' party including those who have shared this long journey with me.

Hi everyone! I’m an undergraduate senior psychology student, and I'm conducting a research study to explore the neuropsychological experiences of solid organ transplant recipients. I'm a kidney transplant recipient myself. If you've had a kidney, liver, heart, or lung transplant, your participation would

Hello everyone, Please meet  Heather_BFProgramMgr, Blue Faery's new program manager and another moderator in our community. Heather has personal experience with liver cancer. Her father survived liver cancer by receiving a liver transplant. However, he died ten years later of another disease. Heather has a deep

hi all what steroids you take and dose for your kidney transplant? My nephrologist said if I go ahead with the transplant I will need to take steroids for life! And I know steroids long term suppresses our adrenals etc.. Thanks!

Hi everyone! I’m an undergraduate senior psychology student, and I'm conducting a research study to explore the neuropsychological experiences of solid organ transplant recipients. I'm a kidney transplant recipient myself. If you've had a kidney, liver, heart, or lung transplant, your participation would

Hello everyone: I've been on this site for a few years now. I came on here today to ask about other's experience with their kidney transplant and any tips they may have for the evaluations. Any and all advice is appreciated, negative and positive. If you could give one one piece of advice to another

Hello- I'm new to the transplant list and New to posting in this community. I met with the transplant team on 3/3. This would be for a preemptive kidney transplant. I'm stuck between ignorance is bliss and information is power. Lol. Anyways, I was approved that day and put on transplant list. I feel

Just wondering if anyone else out here has had this diagnosis? My husband has been diagnosed this week, his pancreas is now barely functioning at all, so mimicking Type 1. Care has been quite slow, as it seems quite rare, not often seen by GP, likewise patients with Liver Transplant! They always seem

Hi Everyone, I am hoping to hear about your experience with having your Polycystic Kidneys removed. I had a kidney transplant three years ago and I was hoping my kidneys would shrink down and I would not have to worry about having them removed. Unfortunately mine are not and might be continuing to

Hello, I had a preemptive, living donor kidney transplant 7 weeks ago. The following morning after the transplant, I had to be rushed back into surgery for compartment syndrome (the new kidney wasn't getting enough blood and was becoming cyanotic). They cut the fascia and inserted a 6 inch piece of

Having just been diagnosed with mild PBC and not being on any liver transplant list, I was astonished to discover that our annual worldwide travel policy has quadrupled in cost!! Is anyone able to recomment a travel insurance provider that is more reasonable? Especially as my condition is mild and