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Progressive slecrosing chlongitis anyone ??????please
Hi everyone for years I have had raised liver fuction tests recently had a biopsy as I was told I had auto immune hepatitis but the results came back I have a very rare auto immune disease and there is no cure and very little is known about it it affects the bile ducts and they become blocked and stuff
Hi everyone for years I have had raised liver fuction tests recently had a biopsy as I was told I had auto immune hepatitis but the results came back I have a very rare auto immune disease and there is no cure and very little is known about it it affects the bile ducts and they become blocked and stuff
ezz2012
in
British Liver Trust
3 years ago
Waiting transplant
Hi all I am currently awaiting a liver transplant and my mind won’t stop I barely sleep , my wife worries constantly ( bless her this horrid disease has turned our lives upside down) I’m just reaching out there
Hi all I am currently awaiting a liver transplant and my mind won’t stop I barely sleep , my wife worries constantly ( bless her this horrid disease has turned our lives upside down) I’m just reaching out there
Pitmaster1
in
British Liver Trust
3 years ago
What makes transplant kidney last long
Can anyone above 10years + kidney transplant receipent kindly share their medicine protocol ...And food habits so that we could get some idea and learn from those experience .....
Can anyone above 10years + kidney transplant receipent kindly share their medicine protocol ...And food habits so that we could get some idea and learn from those experience .....
Kunalkath
in
Kidney Transplant
3 years ago
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Six month scanxiety.
Just going through my six month scanxiety. Will have my six month ultrasound and AFP test on July 20. All prayers appreciated. For those who don’t know, I suffer from cirrhosis cause by my right sided heart failure. Yep, the heart affects many of our organs. My cirrhosis is well compensated and will
Just going through my six month scanxiety. Will have my six month ultrasound and AFP test on July 20. All prayers appreciated. For those who don’t know, I suffer from cirrhosis cause by my right sided heart failure. Yep, the heart affects many of our organs. My cirrhosis is well compensated and will
Bluegirl52
in
British Liver Trust
3 years ago
Kidney Transplant Recipient Questions
What is a normal GFR 6 months after a kidney transplant? Is fluctuation in your creatinine and GFR normal at this stage?
What is a normal GFR 6 months after a kidney transplant? Is fluctuation in your creatinine and GFR normal at this stage?
Brownsfan22
in
Kidney Transplant
3 years ago
Kidney transplant
I have had a kidney transplant on the Tuesday 9th March and my kidney function is doing really well
I have had a kidney transplant on the Tuesday 9th March and my kidney function is doing really well
Naila_Bi1991
in
Kidney Dialysis
3 years ago
Kidney transplant and girdles
Hi everyone! I just had a transplant 6/3/2021. I wondering is it safe to wear a girdle? Do I have wait 6 months to a year to wear a girdle? Thanks in advance for the advice.
Hi everyone! I just had a transplant 6/3/2021. I wondering is it safe to wear a girdle? Do I have wait 6 months to a year to wear a girdle? Thanks in advance for the advice.
Diamondd7
in
Kidney Transplant
3 years ago
Lung Transplant: “Dry Run”
Hi, Of the people who have had or are listed for a lung transplant, can you tell me how you coped with “dry runs” ( not sure what else to call them) I got called to Harefield, 2 days ago, as they potentially had suitable lungs for me. I had all the bloods, swabs, was prepped for theatre etc. Then it
Hi, Of the people who have had or are listed for a lung transplant, can you tell me how you coped with “dry runs” ( not sure what else to call them) I got called to Harefield, 2 days ago, as they potentially had suitable lungs for me. I had all the bloods, swabs, was prepped for theatre etc. Then it
mary1956
in
Lung Conditions Community Forum
3 years ago
Is weight loss possible post transplant while on immunosuppressants?
I am almost 4 months post kidney transplant and I have gained over 15 kg. I have been exercising consistently and eating healthy for over 6 weeks now but my weight won’t budge at all. I have read that immunosuppressants can really mess with one’s metabolism and fat burning, and being 49 and likely
I am almost 4 months post kidney transplant and I have gained over 15 kg. I have been exercising consistently and eating healthy for over 6 weeks now but my weight won’t budge at all. I have read that immunosuppressants can really mess with one’s metabolism and fat burning, and being 49 and likely
Tallyn
in
Kidney Transplant Patient Support
3 years ago
I have had enough
Yes my name is Randy have had kidney transplant for nine yours I became allergic to my immunosuppressant drug no I go once a month for an IV for 7 years now I have prostate cancer and cancer on my lip I do not want to do radiation and I don't want my lip cut off I ask myself is this worth it I just let
Yes my name is Randy have had kidney transplant for nine yours I became allergic to my immunosuppressant drug no I go once a month for an IV for 7 years now I have prostate cancer and cancer on my lip I do not want to do radiation and I don't want my lip cut off I ask myself is this worth it I just let
Randy1805
in
Kidney Transplant
3 years ago
First Stem Cell Transplant Appointment done
Thanks to everyone who replied to my first post on this. My husband and I stayed over in Southampton and we got home today. To my great relief, the consultant was extremely approachable and excellent at explaining things. I didn't ask all of my questions as these initial discussions are being done over
Thanks to everyone who replied to my first post on this. My husband and I stayed over in Southampton and we got home today. To my great relief, the consultant was extremely approachable and excellent at explaining things. I didn't ask all of my questions as these initial discussions are being done over
Otterfield
in
MPN Voice
3 years ago
prednisone withdrawal symptoms
A cute little leaflet with surprisingly grim recommendations.... "A full recovery can take anywhere from a week to several months. Contact your doctor if you experience prednisone withdrawal symptoms as you are tapering off the drug. .......... Current Guidelines • Patients be informed of the signs
A cute little leaflet with surprisingly grim recommendations.... "A full recovery can take anywhere from a week to several months. Contact your doctor if you experience prednisone withdrawal symptoms as you are tapering off the drug. .......... Current Guidelines • Patients be informed of the signs
ignatz
in
PMRGCAuk
3 years ago
Study shows low or undetectable immune response to double COVID-19 vaccination in patients with impaired immune systems
The first data from the ongoing OCTAVE (Observational Cohort Trial-T-cells Antibodies and Vaccine Efficacy in SARS-CoV-2) study show that a significant proportion of clinically at-risk patients with certain immunocompromised or immunosuppressed conditions mount a low or undetectable immune response after
The first data from the ongoing OCTAVE (Observational Cohort Trial-T-cells Antibodies and Vaccine Efficacy in SARS-CoV-2) study show that a significant proportion of clinically at-risk patients with certain immunocompromised or immunosuppressed conditions mount a low or undetectable immune response after
2greys
in
Lung Conditions Community Forum
3 years ago
Fed up and don't know we're to turn
Hello everyone! I have not been on here for such a very long time, I was diagnosed with NAFLD in November 2017, it quickly progressed to cirrhosis within a year, My consultant did not openly tell me I just thought I had a fatty liver with slight scarring and diet change ect was the way forward I later
Hello everyone! I have not been on here for such a very long time, I was diagnosed with NAFLD in November 2017, it quickly progressed to cirrhosis within a year, My consultant did not openly tell me I just thought I had a fatty liver with slight scarring and diet change ect was the way forward I later
Brightstar15
in
British Liver Trust
3 years ago
First Appointment re Stem Cell Transplant
This week I have my first appointment with a stem cell transplant specialist. I haven't made up my mind yet and I'm seeing this as a fact finding appointment. I've made a list of questions to ask: What exactly does it involve, step by step? What can go wrong? And if something goes wrong, what is the
This week I have my first appointment with a stem cell transplant specialist. I haven't made up my mind yet and I'm seeing this as a fact finding appointment. I've made a list of questions to ask: What exactly does it involve, step by step? What can go wrong? And if something goes wrong, what is the
Otterfield
in
MPN Voice
3 years ago
Neck Rigidity relief??
Hi All, I’m hoping someone might me able to help. My dad was diagnosed with PSP in March this year, he has lots of other health issues (diabetes, kidney transplant, neuropathy, heart issues) He’s suffered for a long time and we think his other health issues have masked the PSP He’s suffering really
Hi All, I’m hoping someone might me able to help. My dad was diagnosed with PSP in March this year, he has lots of other health issues (diabetes, kidney transplant, neuropathy, heart issues) He’s suffered for a long time and we think his other health issues have masked the PSP He’s suffering really
HipsterChick
in
PSP Association
3 years ago
My PBC Journey
GI watched enzymes for 5 years 2015-2020. No symptoms except GI sent me to Ohio State in Dec of 2019 to make sure she wasn’t missing anything . Ordered MRI of liver—-best test to slice and dice liver. Found two spots of cancer on top ridge of liver and did a Microwave ablation to kill it. Successful
GI watched enzymes for 5 years 2015-2020. No symptoms except GI sent me to Ohio State in Dec of 2019 to make sure she wasn’t missing anything . Ordered MRI of liver—-best test to slice and dice liver. Found two spots of cancer on top ridge of liver and did a Microwave ablation to kill it. Successful
Miamomma
in
PBC Foundation
3 years ago
How are you living life with spouses both Vaccinated against Covid but one has a kidney transplant and one is healthy?
I cannot find direct information on this question where I am healthy and vaccinated against Covid19 and my spouse is vaccinated and has a kidney transplant but cannot make antibodies due to being on Cellcept antirejection med mainly. Do I live my life "normal" and he is living restricted like before
I cannot find direct information on this question where I am healthy and vaccinated against Covid19 and my spouse is vaccinated and has a kidney transplant but cannot make antibodies due to being on Cellcept antirejection med mainly. Do I live my life "normal" and he is living restricted like before
Gardner-NY
in
Kidney Transplant
3 years ago
Exciting News!
I got a call from the transplant center I wiling with. An altruistic donor had stepped forward, and I am a match! If things go as planned, I will receive a kidney transplant on July 13th Still a bit overwhelmed by the news.
I got a call from the transplant center I wiling with. An altruistic donor had stepped forward, and I am a match! If things go as planned, I will receive a kidney transplant on July 13th Still a bit overwhelmed by the news.
ILMA54
in
Kidney Transplant
3 years ago
3rd dose vaccine
Just came across an interesting article stating the benefits of a 3rd vaccine shot given to organ transplant recipients . https://www.acpjournals.org/doi/10.7326/L21-0282 In my limited understanding of the conclusions, it seemed to have resulted in a significant increase in antibody titers. Does anyone
Just came across an interesting article stating the benefits of a 3rd vaccine shot given to organ transplant recipients . https://www.acpjournals.org/doi/10.7326/L21-0282 In my limited understanding of the conclusions, it seemed to have resulted in a significant increase in antibody titers. Does anyone
Monetfan2017
in
CLL Support
3 years ago
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