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post stem cell transplant covid question
I am now approaching 21 months post transplant (MF) and feeling well. My last consultation and bloods was about 3 months ago. I've only had phone consultations since March last year and so I'm hoping my next appointment, due in June, will be face to face at the QE B'ham where I had the transplant. I'm
I am now approaching 21 months post transplant (MF) and feeling well. My last consultation and bloods was about 3 months ago. I've only had phone consultations since March last year and so I'm hoping my next appointment, due in June, will be face to face at the QE B'ham where I had the transplant. I'm
Dodders
in
MPN Voice
3 years ago
Stem cell replacement
Has anyone traveled down the road of having stem cell/bone marrow transplant? I have MF It looks like it maybe a possibility for me.
Has anyone traveled down the road of having stem cell/bone marrow transplant? I have MF It looks like it maybe a possibility for me.
Grizly
in
MPN Voice
3 years ago
17 Year old with unknown kidney disease given transplant in June now has Collapsing Glomerulopathy
Hello, After finding out my son had an unknown kidney disease and stage 4 failure in late September of 2018 we worked fast to try to find him a donor. Luckily we were able to find a donor and he had his transplant in June of 2020. He had one rejection episode just days after we came come from the hospital
Hello, After finding out my son had an unknown kidney disease and stage 4 failure in late September of 2018 we worked fast to try to find him a donor. Luckily we were able to find a donor and he had his transplant in June of 2020. He had one rejection episode just days after we came come from the hospital
Shieldmaiden
in
C3 Glomerulopathy
3 years ago
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Nobody Wants Cancer. But a ‘Big C’ Label Has Surprising Upsides.
« “The cancer designation did open up significant new funding opportunities, for example from the National Cancer Institute,” said Barbara Van Husen, board chair of the MPN Research Foundation. “It has definitely accelerated research.” There are more than 200 clinical trials underway for various MPNs
« “The cancer designation did open up significant new funding opportunities, for example from the National Cancer Institute,” said Barbara Van Husen, board chair of the MPN Research Foundation. “It has definitely accelerated research.” There are more than 200 clinical trials underway for various MPNs
Manouche
in
MPN Voice
3 years ago
Update after BMB
It's been awhile since my first BMB, but have been recovering & processing the results. I had a hard time with sedation & took me some time to reset myself from that ordeal (getting sick, having two veins blow out with blood draws & iv). I lost weight & only weighed at 104 lbs that day! I was diagnosed
It's been awhile since my first BMB, but have been recovering & processing the results. I had a hard time with sedation & took me some time to reset myself from that ordeal (getting sick, having two veins blow out with blood draws & iv). I lost weight & only weighed at 104 lbs that day! I was diagnosed
Androg
in
MPN Voice
3 years ago
Questions about stents and support
Update and questions I haven't posted on here for a while for many reasons (including the whole COVID thing) but as I'm still trying to get my head round stuff and had questions, I'm hoping there are some of you out there who can offer me some ideas/support. I'm currently seen at the Brompton, where
Update and questions I haven't posted on here for a while for many reasons (including the whole COVID thing) but as I'm still trying to get my head round stuff and had questions, I'm hoping there are some of you out there who can offer me some ideas/support. I'm currently seen at the Brompton, where
SomersetJo
in
British Heart Foundation
3 years ago
Creatine is 1.51 really worried had transplant in 2001 its been 20 years
Hi everyone hope everyone is doing well i have a question I had my kidney transplant in 2001 and I always been stable 4 years to now my creatine has been up and down im really concern im thinking that I don't have much time with my kidney do u guys think I should be concern that my creatine is now 1.51
Hi everyone hope everyone is doing well i have a question I had my kidney transplant in 2001 and I always been stable 4 years to now my creatine has been up and down im really concern im thinking that I don't have much time with my kidney do u guys think I should be concern that my creatine is now 1.51
jennifer24
in
Kidney Transplant
4 years ago
Sleeping kidney after transplant
Hi, My partner has just had a kidney transplant 6 days ago. He is 31 years old. He had 9% function before he received the kidney and wasn’t on dialysis beforehand. He’s in hospital and due to Covid he’s alone and I can’t go. He’s not great at talking to Doctors and I’m not getting any information. His
Hi, My partner has just had a kidney transplant 6 days ago. He is 31 years old. He had 9% function before he received the kidney and wasn’t on dialysis beforehand. He’s in hospital and due to Covid he’s alone and I can’t go. He’s not great at talking to Doctors and I’m not getting any information. His
Kwatts87
in
Kidney Transplant
4 years ago
Covid vaccine post liver transplant
Hello, newbie here. Could Iask if anybody that is post transplant has had a conversation with their consultant and or transplant coordinators re the Covid vaccine and what their opinions and views were? Many thanks, Martha.
Hello, newbie here. Could Iask if anybody that is post transplant has had a conversation with their consultant and or transplant coordinators re the Covid vaccine and what their opinions and views were? Many thanks, Martha.
MarthaRock
in
British Liver Trust
4 years ago
Kidney Transplant Recipient
Hi my name is Rachel I had a kidney transplant in December 2019
Hi my name is Rachel I had a kidney transplant in December 2019
Beachvibe
in
Kidney Disease
4 years ago
Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective immune response to Covid-19
Just read this and felt it might be of interest, especially to those in the UK (you could take part). "Study launched into Covid-19 vaccine response among cancer patients DPA, Mar 03, 2021, Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective
Just read this and felt it might be of interest, especially to those in the UK (you could take part). "Study launched into Covid-19 vaccine response among cancer patients DPA, Mar 03, 2021, Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective
Iupiter
in
CLL Support
3 years ago
Needing a little short-term assistance while recovering
After 2 weeks hospitalized post transplant, my friend is home after his kidney transplant, and removal of both diseased kidneys. He lives alone. His adult daughter was here from out of state for 3 weeks including his 2 week stay after transplant. I've come down for another week to help him out. My
After 2 weeks hospitalized post transplant, my friend is home after his kidney transplant, and removal of both diseased kidneys. He lives alone. His adult daughter was here from out of state for 3 weeks including his 2 week stay after transplant. I've come down for another week to help him out. My
Southernfriends
in
Kidney Transplant
4 years ago
Liver Transplant
A question, and I know that everyone is different. How long does the pain, tightness and general uncomfortable feelings last after having a transplant? I know I’ve added to my malaise by developing an infection where my gallbladder used to be (removed during the transplant) but the pain is still bad
A question, and I know that everyone is different. How long does the pain, tightness and general uncomfortable feelings last after having a transplant? I know I’ve added to my malaise by developing an infection where my gallbladder used to be (removed during the transplant) but the pain is still bad
Braveheart65
in
British Liver Trust
4 years ago
HCC Recurrence
Hello All, My husband had a liver transplant on November 1, 2019 due to HCC, so 14 months since transplant. He gets an MRI every 3 months to monitor him. On December 23, his MRI show a mass on his adrenal gland. He is scheduled this Thursday to have it removed, they may need to remove part of his
Hello All, My husband had a liver transplant on November 1, 2019 due to HCC, so 14 months since transplant. He gets an MRI every 3 months to monitor him. On December 23, his MRI show a mass on his adrenal gland. He is scheduled this Thursday to have it removed, they may need to remove part of his
Bluey2019
in
Blue Faery Liver Cancer
4 years ago
So....now an infection.
Had blood test tue, phone call from surgeon wed-go back for investigations as ALT elevated on blood results. He mentioned stents, liver rejection and told me not to worry. Pain is still absolutely hellish. So of course couldn’t sleep for worrying, even told my husband I need to go home to Scotland urgently
Had blood test tue, phone call from surgeon wed-go back for investigations as ALT elevated on blood results. He mentioned stents, liver rejection and told me not to worry. Pain is still absolutely hellish. So of course couldn’t sleep for worrying, even told my husband I need to go home to Scotland urgently
Braveheart65
in
British Liver Trust
4 years ago
Re: WARWICK's ASCT Journey Begins Today...
Afternoon all... Warwick has managed to POST a reply on MATES, and if any of you can, I am sure that he would love to say hi... He's not feeling terribly himself Eight (8) days into his Stem Cell Transplant, but he did manage to
[i]POST[/i]
the message below on MATES, and so I Posted here again
Afternoon all... Warwick has managed to POST a reply on MATES, and if any of you can, I am sure that he would love to say hi... He's not feeling terribly himself Eight (8) days into his Stem Cell Transplant, but he did manage to
[i]POST[/i]
the message below on MATES, and so I Posted here again
socrates_8
in
MPN Voice
3 years ago
Webinar 9.30am, Wednesday 3rd March - Acute promyelocytic leukaemia (APL) treatment update
Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Liver transplant
I had a liver problem back in August, can I still get a liver transplant
I had a liver problem back in August, can I still get a liver transplant
gordon76
in
British Liver Trust
4 years ago
A little bit of historical nonsense
Alcohol has become so inbred into our culture and I find the history of alcohol within our society rather interesting. It’s also fascinating to see just how times have changed over the years. Especially as more recently, the drinking of alcohol has become less sociable, and more self-indulgent due to
Alcohol has become so inbred into our culture and I find the history of alcohol within our society rather interesting. It’s also fascinating to see just how times have changed over the years. Especially as more recently, the drinking of alcohol has become less sociable, and more self-indulgent due to
Richard-Allen
in
British Liver Trust
4 years ago
Just miserable...
I am in such pain following this liver transplant. Been home almost a week it’s nearly 3 wks since the operation. No let up in this goddamn awful pain. Plus I can’t sleep not even a wink. And now constipated. Eating dates, guzzling cosmocol , and feeling really really hellish. When does this ease off
I am in such pain following this liver transplant. Been home almost a week it’s nearly 3 wks since the operation. No let up in this goddamn awful pain. Plus I can’t sleep not even a wink. And now constipated. Eating dates, guzzling cosmocol , and feeling really really hellish. When does this ease off
Braveheart65
in
British Liver Trust
4 years ago
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