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Pegasys side effects
I was switched from 500 Hydroxyurea/day to 90mg Pegasys every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on Pegasys. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
I was switched from 500 Hydroxyurea/day to 90mg Pegasys every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on Pegasys. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
Dusty777
in
MPN Voice
4 months ago
Efficacy of Trihexyphenidyl on Apraxia of Eyelid Opening in Parkinsonism: A Case Report
Apraxia of eyelid opening (AEO) is occasionally seen in Parkinson’s disease (PD) or related diseases. However, many clinicians have trouble with the management of AEO by Parkinsonism. The following link mentions a case of apraxia of eyelids opening in PD patient which was successfully treated with the
Apraxia of eyelid opening (AEO) is occasionally seen in Parkinson’s disease (PD) or related diseases. However, many clinicians have trouble with the management of AEO by Parkinsonism. The following link mentions a case of apraxia of eyelids opening in PD patient which was successfully treated with the
Farooqji
in
Cure Parkinson's
4 months ago
Covid
Two members of my family have Covid.. My mum is suffering from ET. She bever got vaccinated cos she got scared at that time due to many cases of thrombosis and sudden deaths we had in my country.. Anyone else who hasn't got the vaccine and went through Covid. We were maked and kept distance and all but
Two members of my family have Covid.. My mum is suffering from ET. She bever got vaccinated cos she got scared at that time due to many cases of thrombosis and sudden deaths we had in my country.. Anyone else who hasn't got the vaccine and went through Covid. We were maked and kept distance and all but
PHGR
in
MPN Voice
7 months ago
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FSH going from 8 to 43 just in few weeks while preparing for a FET, is it temporary or menopause?
Hi Ladies Can anyone help put a light to my issue of FSH going from 8 to 43 just in 2-3 weeks while I was doing tests before a frozen transfer. I am devastated as I cannot find a logic to this. Background I am preparing for a FET cycle but my hormons all of a sudden messed up besides my thin lining
Hi Ladies Can anyone help put a light to my issue of FSH going from 8 to 43 just in 2-3 weeks while I was doing tests before a frozen transfer. I am devastated as I cannot find a logic to this. Background I am preparing for a FET cycle but my hormons all of a sudden messed up besides my thin lining
Bebe294
in
Fertility Network UK
11 months ago
Pelvic pain and sex
Hi , sorry sounds like a stupid question - Does sex hurt with reoccurring pelvic pain ? Can it trigger the pain to come back or an infection to start if someone has abscess in pelvic area such as fallopian tubes or near ovaries?
Hi , sorry sounds like a stupid question - Does sex hurt with reoccurring pelvic pain ? Can it trigger the pain to come back or an infection to start if someone has abscess in pelvic area such as fallopian tubes or near ovaries?
Hannah818
in
Pelvic Pain Support Network
4 months ago
Free Covid Rapid Lateral Flow Test
Does anyone know how to obtain Covid Rapid Lateral Flow Tests free-of-charge in the U.K.? The Gov U.K. site says they are not available direct but are available via your local Pharmacy. None of my local pharmacy stores issue these tests free-of-charge under the NHS but are happy to charge £13 each, even
Does anyone know how to obtain Covid Rapid Lateral Flow Tests free-of-charge in the U.K.? The Gov U.K. site says they are not available direct but are available via your local Pharmacy. None of my local pharmacy stores issue these tests free-of-charge under the NHS but are happy to charge £13 each, even
Richardmint
in
CLL Support
7 months ago
My rheumy tele-consultation due to Covid.
HAPPY NEW YEAR. Hope you all enjoy much better health in 2024. An update. A couple of weeks back I had a tele-consultation with my rheumy as I had Covid. This was my 1st encounter with Covid after 3 years and 8 months! On the tele-consult app I was able to upload a brief resumé of my last
HAPPY NEW YEAR. Hope you all enjoy much better health in 2024. An update. A couple of weeks back I had a tele-consultation with my rheumy as I had Covid. This was my 1st encounter with Covid after 3 years and 8 months! On the tele-consult app I was able to upload a brief resumé of my last
IdasMum
in
PMRGCAuk
7 months ago
PMR symptoms after steroid injection 12 days ago
Happy New Year everyone. I hope you all had a wonderful Christmas .🎄 I posted just before Christmas about awful shoulder and neck pain and that I saw a private doctor who thinks my symptoms are PMR. He gave me a steroid injection. It has helped dampen down the pain. It was excruciating but has since
Happy New Year everyone. I hope you all had a wonderful Christmas .🎄 I posted just before Christmas about awful shoulder and neck pain and that I saw a private doctor who thinks my symptoms are PMR. He gave me a steroid injection. It has helped dampen down the pain. It was excruciating but has since
MsWhistledown
in
PMRGCAuk
7 months ago
steroid injection
Hi everyone Happy New Year to you all. Can anyone answer my question if it's safe to have a steroid injection for frozen shoulder if you have open angle glaucoma? Don't know what to do. Many thanks in advance.
Hi everyone Happy New Year to you all. Can anyone answer my question if it's safe to have a steroid injection for frozen shoulder if you have open angle glaucoma? Don't know what to do. Many thanks in advance.
callie77
in
Glaucoma UK
7 months ago
Synthetic Hormones, Chemo & Radiotherapy
Hello, I am 60 years old, female,in the U.K., have had Primary Myelofibrosis for 20 years, treated with Aspirin & HU until recently, now switched to Anagrelide. I have recently been diagnosed with breast cancer, due to have lumpectomy next month, then there will be decisions to make about further treatments
Hello, I am 60 years old, female,in the U.K., have had Primary Myelofibrosis for 20 years, treated with Aspirin & HU until recently, now switched to Anagrelide. I have recently been diagnosed with breast cancer, due to have lumpectomy next month, then there will be decisions to make about further treatments
CraftySpider
in
MPN Voice
11 months ago
First gynaecology appointment
Hi everyone. I finally had my first gynae appointment the other day. Been waiting for it since December. I took the advice of everyone on here and wrote down all my symptoms and a timeline of everything that I've experienced for the last couple years. This was especially important for me because I have
Hi everyone. I finally had my first gynae appointment the other day. Been waiting for it since December. I took the advice of everyone on here and wrote down all my symptoms and a timeline of everything that I've experienced for the last couple years. This was especially important for me because I have
CitizenErased
in
Endometriosis UK
11 months ago
Hep B immunity blood test positive
Hi all I was asked by my clinic to do a Hep B core blood test which I believe is same as immunity one and I asked my GP for the tests. It’s come back as not immune to hep b. Does that mean I won’t be entitled to a donor egg treatment? I’m freaking out 😟 Please share your thoughts and experience
Hi all I was asked by my clinic to do a Hep B core blood test which I believe is same as immunity one and I asked my GP for the tests. It’s come back as not immune to hep b. Does that mean I won’t be entitled to a donor egg treatment? I’m freaking out 😟 Please share your thoughts and experience
Milo2011
in
Fertility Network UK
4 months ago
steroid injection for back pain with pain team?
hello, I have had back pain for as long as I remember however 3 years ago was the first episode of severe spasm in my whole back making me collapse and couldn’t be moved for hours. I was put on gabapentin for 2.5 years which I have tapered off because I’m not sure the problem was nerve pain and the mri
hello, I have had back pain for as long as I remember however 3 years ago was the first episode of severe spasm in my whole back making me collapse and couldn’t be moved for hours. I was put on gabapentin for 2.5 years which I have tapered off because I’m not sure the problem was nerve pain and the mri
Louiseelaine
in
Stanmore Young Spine Group
7 months ago
FISH TESTING - ‘Admin Edit’ - please read sad update on this post before replying.
I apologize if I am incorrect with the name of the testing results below. My husbands first CLL Dr 5 years ago had him on watch and wait. When he received the following results Tumor/ Prognostic Markers: CD38+ ZAP70+ Trisomy 12. IgVH unmutated, I researched the results which were very concerning to
I apologize if I am incorrect with the name of the testing results below. My husbands first CLL Dr 5 years ago had him on watch and wait. When he received the following results Tumor/ Prognostic Markers: CD38+ ZAP70+ Trisomy 12. IgVH unmutated, I researched the results which were very concerning to
Debcap61
in
CLL Support
7 months ago
PAF well controlled till I got covid
hi, I’m new to this forum and hope you can give me some hope. I’ve had PAF for 13 years, well controlled on propranolol 80mg slow release - other beta blockers seem to affect my chest/throat and give me dreadful indigestion and can’t tolerate the newer ones. However in November whilst on holiday in
hi, I’m new to this forum and hope you can give me some hope. I’ve had PAF for 13 years, well controlled on propranolol 80mg slow release - other beta blockers seem to affect my chest/throat and give me dreadful indigestion and can’t tolerate the newer ones. However in November whilst on holiday in
Clifflove
in
Atrial Fibrillation Support
7 months ago
Shingles
Has anyone had shingles? I've been hit with it, I havent had any treatment for my CLL, it's been 11 years. I need to know what to do about the shingles pain. In the almost 3 week.
Has anyone had shingles? I've been hit with it, I havent had any treatment for my CLL, it's been 11 years. I need to know what to do about the shingles pain. In the almost 3 week.
sallylou
in
CLL Support
4 months ago
On Venetoclax, lymph node appeared
Trying not to worry but a lymph node in my armpit swelled up. I feel fine, no colds, fevers or recent vaccinations. Even did a Covid test because I have had Covid totally asymptomatic but negative. Has anyone have this happen and it turned out to be nothing. Hoping this is just a fluke but it seems
Trying not to worry but a lymph node in my armpit swelled up. I feel fine, no colds, fevers or recent vaccinations. Even did a Covid test because I have had Covid totally asymptomatic but negative. Has anyone have this happen and it turned out to be nothing. Hoping this is just a fluke but it seems
Alex830
in
CLL Support
7 months ago
First Injection of Pegasys
I FINALLY got approved for Pegasys, and am to pick it up at the pharmacy by Wednesday. My question is does the first injection happen in the Drs. office, or at home?? Were you given physical instructions for how to give the injection? I have written instructions that were sent to me with the approval
I FINALLY got approved for Pegasys, and am to pick it up at the pharmacy by Wednesday. My question is does the first injection happen in the Drs. office, or at home?? Were you given physical instructions for how to give the injection? I have written instructions that were sent to me with the approval
dogsandhorses
in
MPN Voice
4 months ago
Covid 19 vaccine UK
Hi there, I’d welcome any information you have on eligibility for Covid 19 vaccination in the U.K. I’ve looked at the .gov.uk website and in one place it includes epilepsy under neurological conditions, in another place it doesn’t. I did have an in invitation from my GP for flu, but not for Covid.
Hi there, I’d welcome any information you have on eligibility for Covid 19 vaccination in the U.K. I’ve looked at the .gov.uk website and in one place it includes epilepsy under neurological conditions, in another place it doesn’t. I did have an in invitation from my GP for flu, but not for Covid.
GillyA
in
Epilepsy Action
7 months ago
INVOLVEMENT OPPORTUNITY: Have you been diagnosed with hepatitis C and interested in sharing your story? (England)
Have you been diagnosed with hepatitis C and would you be interested in sharing your story with the national press to promote an NHS campaign? The NHS has launched a new service for people to test at home for hepatitis C. To help make more people aware, we are looking for individuals in England who
Have you been diagnosed with hepatitis C and would you be interested in sharing your story with the national press to promote an NHS campaign? The NHS has launched a new service for people to test at home for hepatitis C. To help make more people aware, we are looking for individuals in England who
BritishLiverTrust1
Partner
in
British Liver Trust
4 months ago
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