Free Covid Rapid Lateral Flow Test: Does anyone... - CLL Support

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Free Covid Rapid Lateral Flow Test

Richardmint profile image
32 Replies

Does anyone know how to obtain Covid Rapid Lateral Flow Tests free-of-charge in the U.K.? The Gov U.K. site says they are not available direct but are available via your local Pharmacy. None of my local pharmacy stores issue these tests free-of-charge under the NHS but are happy to charge £13 each, even for blood cancer patients.

Has anyone else experienced this dilemma?

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Richardmint
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32 Replies
Newdawn profile image
NewdawnAdministrator

I’d recommend contacting your local integrated care board Richard. Click on this click. There is a contact link at the top usually with an email address. You’re quite right in saying pharmacies are supposed to dispense these free to the eligible who can produce evidence. Usual case of making us jump through hoops! 🙄

nhs.uk/nhs-services/find-yo...

Newdawn

Richardmint profile image
Richardmint in reply toNewdawn

Thankyou Newdawn, I’ve sent ICB an email in the hope I get a positive reply.

Newdawn profile image
NewdawnAdministrator in reply toRichardmint

Thanks Richard. I do too. Please let us all know.

Newdawn

mrsjsmith profile image
mrsjsmith in reply toRichardmint

Richard as I understand it’s down to the individual pharmacies to sign up to distribution of testing kits. What I noticed recently was that the one’s sent from the NHS were very close to expiry date and some were unusable because the liquid was drying up. I decided to purchase some online from Boots and it will be interesting to see what the expiry date is.

Colette

Ghounds profile image
Ghounds in reply tomrsjsmith

I found that too. Had to throw a box away as there wasn't any liquid to process the test.

mrsjsmith profile image
mrsjsmith in reply toGhounds

Just reading about all the soon to be out of date Paxlovid the NHS have in stock. Depressing.

Colette

Ghounds profile image
Ghounds in reply tomrsjsmith

Very. Also the mask mandate being withdrawn from healthcare, it's as if we have no worth and the people who should be invested in keeping us safe don't care.

mrsjsmith profile image
mrsjsmith in reply toGhounds

My hospital haematology department still insists on mask wearing and we are checked before entering the department, but that may be in part to a very vocal patient group.

Colette

Leo71 profile image
Leo71 in reply toGhounds

I agree about masks; my husband has his regular blood tests at home and now has to supply the community nurse with a mask each time.

Ghounds profile image
Ghounds in reply toLeo71

How truly appalling but sadly not that surprising.

RSilver profile image
RSilver in reply tomrsjsmith

I have a friend who just took the expired Paxlovid. It did NOT seem to make any difference at all. Especially compared to the amazing relief it provided me a year ago.

mrsjsmith profile image
mrsjsmith in reply toRSilver

Goodness they shouldn’t have prescribed it if it was out of date.

Sadly I always check everything, especially since a friend and fellow patient was given Venetoclax that was 6 months out of date. Luckily his nurse noticed in time.

RSilver profile image
RSilver in reply tomrsjsmith

Apparently the pharmaceutical company got approval to say that it is still good.

Ghounds profile image
Ghounds in reply toNewdawn

I didn't know they were still available free so thank you. They certainly keep that quiet don't they.

RosettaClapp profile image
RosettaClapp in reply toNewdawn

Sadly Somerset ICB could/would not help Just reccomened to shop around local pharmacies. But when I put in a search for 'community pharmacies' I did eventually find a chemist fairly close which had signed up for the scheme(the scheme is voluntary Nd not all rural pharmacies have either the space or the staff to deal with us evidently....)

Richardmint profile image
Richardmint

What I’ve learned so far is, yes it is only a few Pharmacies that have signed up to the free distribution to registered patients.

The ICB Integrated Care Board for Berks, Oxon Bucks (Part of NHS) issued a map with the participating pharmacies indicated. A quick ring round did locate one pharmacy that has been set up to issue free of charge Covid Test Packs, they were currently out of stock but were expecting new deliveries this week.

I was also told that Boots also were expecting a delivery under this scheme.

The map can be found on

bucksoxonberksw.icb.nhs.uk/...

Click ‘Your Health’ and then scroll down to ‘Pharmacies offering free Covid-19 tests for eligible patients’

Then click on ‘Map of Pharmacies’

This system looks to be in its infancy and I can only talk from experience with Berks, Oxon and Bucks area, but I would expect it to cover nationwide.

I certainly found it needs a bit of persistence, so best of luck everyone.

mrsjsmith profile image
mrsjsmith in reply toRichardmint

You are lucky your care board has a map. I checked mine and nothing showing or mentioned.

Colette

Pekingese profile image
Pekingese

Hi Richard, I’m from the UK and got mine free from boots last week, I took my Hematologist letter in for proof of my CLL . Hope this helps. You will have to fill a form in at the chemist.

Richardmint profile image
Richardmint

Thanks Pekingese, I think Boots would be my best source as well.

RosettaClapp profile image
RosettaClapp in reply toRichardmint

Not all Boots chemists have opted into the scheme sadly

Fran57 profile image
Fran57

Hi.

Our local pharmacy did provide us with a box of tests, free of charge, thankfully ( and surprisingly).

Our tests (dated Jan. 2024 were beginning to dry up.

Good luck with your mission!

Fran 😉🤞🏻

stevesmith1964 profile image
stevesmith1964

£2.15 for flexiflow Covid test from local pharmacy. Cheap I thought considering only use 3 or 4 times a year.

Dawson21 profile image
Dawson21

Since time to test us important I simply picked up a box of 5 from Boots for < £10. While wearing a mask of course.

turbomotive60 profile image
turbomotive60 in reply toDawson21

And me a box of 5 for £10 from Boots but you can get them cheaper off Ebay for £7 ..

Dawson21 profile image
Dawson21 in reply toturbomotive60

Hopefully we won't need too many of these in the future

Bubnojay profile image
Bubnojay

Thanks for this post, I see that my last half box of tests is due to expire this January too. Of more concern even, is that the haematology nurse has advised that I should stop semi shielding and get out and about and live normally. Hmm, if I were not over 80 and living alone maybe I would.

Bubnojay

Dawson21 profile image
Dawson21 in reply toBubnojay

I had similar advice way back - perhaps being of a certain age with the end post on the horizon prompts me to get out and live as normally as possible - make the most of every day as it were - in the end though you have to do what you feel comfortable with

Admiral1 profile image
Admiral1

hi Richard

In short I was advised by GP that for £30 they would write a letter that I could present to pharmacies saying that I was eligible for free Covid tests. I have taken the opinion that it will be cheaper to buy them.

Richardmint profile image
Richardmint

Good news, just happened to pass a Superdrug Store (UK) and after filling out a short profile type form and supplying my NHS No. they were happy to supply me with a ‘Free’ Covid Test kit.

mrsjsmith profile image
mrsjsmith in reply toRichardmint

Result

prbs2707 profile image
prbs2707

Hi. My local pharmacy provides free tests for immunocompromised. I thought they all did!

Shooey profile image
Shooey

hi, only two of the 5 pharmacies listed on the government website in my area are partaking in the scheme. Tried Well pharmacy, brilliant, bar code zapped and I was away. Boots was a little more a case of I will not be defeated and I will persevere, finally got a box of 5 today only to be told that I can only have one pack of 5 per month. Ok, maybe I’m the over cautious type but I generally test at least twice a week and did so more over the holiday period.

I’m fortunate that I can afford to buy them but am sure that for some CEV people this is an expense they can’t afford.

Were sensible mitigations in place throughout the population, especially healthcare I might slightly relax my attitude but that’s not going to happen is it.

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