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INVOLVEMENT OPPORTUNITY: Have you been diagnosed with hepatitis C and interested in sharing your story? (England)
Have you been diagnosed with hepatitis C and would you be interested in sharing your story with the national press to promote an NHS campaign? The NHS has launched a new service for people to test at home for hepatitis C. To help make more people aware, we are looking for individuals in England who
Have you been diagnosed with hepatitis C and would you be interested in sharing your story with the national press to promote an NHS campaign? The NHS has launched a new service for people to test at home for hepatitis C. To help make more people aware, we are looking for individuals in England who
BritishLiverTrust1
Partner
in
British Liver Trust
4 months ago
Update after3years
I was in a covid coma 3years ago and posted in here to soon after I got home my brain was so hyper for a bout a month I felt so.guilty that I survived when ppl were loosing husband's wives children mum's dad's etc when I still do but I did survive I went to therapist who helped a lot and helped me
I was in a covid coma 3years ago and posted in here to soon after I got home my brain was so hyper for a bout a month I felt so.guilty that I survived when ppl were loosing husband's wives children mum's dad's etc when I still do but I did survive I went to therapist who helped a lot and helped me
Drewc
in
ICUsteps
7 months ago
QUICK TAPER; CRP RISING STEADILY; FLARING
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
As suspected, the very quick taper rheumy thought up (2.5 mg per week til I get to 10, then reducing 1 mg per month), has caused a flare and I'm in pre-PMR pain - almost). Currently at 12 mg but should be down to 9 by now, if I was to go with her guidelines. GP refuses to let me up the pred saying "it's
Missus835
in
PMRGCAuk
4 months ago
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Travel Vaccinations
Hi. I have already emailed my Rheumatology Team but thought I would also ask for others experiences. I am considering travelling to countries which recommend vaccinations for things like Polio, Diphtheria, Hep A and B, Cholera, Tetanus etc. Now, I have had some of these in the past but longer than 10
Hi. I have already emailed my Rheumatology Team but thought I would also ask for others experiences. I am considering travelling to countries which recommend vaccinations for things like Polio, Diphtheria, Hep A and B, Cholera, Tetanus etc. Now, I have had some of these in the past but longer than 10
grumpygirl
in
NRAS
4 months ago
Keep getting chest infections
hello I had open heart surgery in June to repair my mitral valve. The surgery was a great success, I’ve recovered well and I am back to working full time. However, whereas before surgery I very rarely got Ill , I now seem to pick up every big going 🤦🏻♀️ And end up quite poorly. I am on statins and
hello I had open heart surgery in June to repair my mitral valve. The surgery was a great success, I’ve recovered well and I am back to working full time. However, whereas before surgery I very rarely got Ill , I now seem to pick up every big going 🤦🏻♀️ And end up quite poorly. I am on statins and
Plum44
in
British Heart Foundation
7 months ago
Live vaccine for dengue fever
My son lives in Bali. He is in the middle of a very severe bout of dengue fever. I am going to visit him for 3 weeks in July. He has suggested I should have a vaccine before I go. I can find that it is called a " live attenuated dengue tetravalent vaccine". Even the vaccine side effects can be pretty
My son lives in Bali. He is in the middle of a very severe bout of dengue fever. I am going to visit him for 3 weeks in July. He has suggested I should have a vaccine before I go. I can find that it is called a " live attenuated dengue tetravalent vaccine". Even the vaccine side effects can be pretty
Graham64
in
CLL Support
4 months ago
alternating amount of meds question
Is anyone else doing the things where they take extra medication 2 days a week. I'm on 120 armour and I'm splitting a pill between two days.. The days I have the extra I feel like I'm too energetic let's say and the days when I don't I'm kind of tired.. Should I split the pill between 4 days? The problem
Is anyone else doing the things where they take extra medication 2 days a week. I'm on 120 armour and I'm splitting a pill between two days.. The days I have the extra I feel like I'm too energetic let's say and the days when I don't I'm kind of tired.. Should I split the pill between 4 days? The problem
tresa56
in
Thyroid UK
11 months ago
Covid day four....U.K
Hi all. This sounds so stupid but I thought it was a regular cold. Just did a COVID test and it's positive. I think it maybe too late to access antivirals now? What should I do? Sorry, just a bit panicked. Thank you in advance.
Hi all. This sounds so stupid but I thought it was a regular cold. Just did a COVID test and it's positive. I think it maybe too late to access antivirals now? What should I do? Sorry, just a bit panicked. Thank you in advance.
Basil01
in
CLL Support
7 months ago
Found out coils are sometimes replaced after 4 yrs instead of 5, when used for managing endo symptoms!
It's amazing that at 37 I'm still finding out about these different options and ways of being treated. Thought I'd share this here for anyone this might help! I've had my coil for 4 years and am starting to get this sense of a cycle reappearing. Getting fatigue and PMS like you wouldn't believe on a
It's amazing that at 37 I'm still finding out about these different options and ways of being treated. Thought I'd share this here for anyone this might help! I've had my coil for 4 years and am starting to get this sense of a cycle reappearing. Getting fatigue and PMS like you wouldn't believe on a
SofaGoblin
in
Endometriosis UK
11 months ago
Overactive thyroid and possibly Graves due to symptoms -not medically diagnosed.
Hi there , I am very new to this and I struggle at the moment as I’m falling apart. The whole of December I been basically bedridden and was wondering if you could give me some advice for when I see my doctor. I have an appointment on the 8th and I really want to understand what he is going to discuss
Hi there , I am very new to this and I struggle at the moment as I’m falling apart. The whole of December I been basically bedridden and was wondering if you could give me some advice for when I see my doctor. I have an appointment on the 8th and I really want to understand what he is going to discuss
Danathediva1
in
Thyroid UK
7 months ago
My husband still on sedation after 30 days going in for a peritonitis
Hello my husband went in the ER for stomach pains and could not really breath .He was admitted immediately with the diagnosis peritonitis which leaked in his stomach so he got surgery soon after surgery he started septic shock and next thing we knew he wasn't able to get off the ventilator and in the
Hello my husband went in the ER for stomach pains and could not really breath .He was admitted immediately with the diagnosis peritonitis which leaked in his stomach so he got surgery soon after surgery he started septic shock and next thing we knew he wasn't able to get off the ventilator and in the
CarlMc116
in
ICUsteps
4 months ago
Anyone here with cervical arthritis?
I recently found out that the pains I've been having in my neck, shoulders and arms is arthritis. Specifically c4-c5, c6-c7. I don't want ibuprofen, Tylenol isn't working and I'm allergic to sulfa drugs; I'm kinda concerned about all the drugs, but need something to help so I can continue to work. I
I recently found out that the pains I've been having in my neck, shoulders and arms is arthritis. Specifically c4-c5, c6-c7. I don't want ibuprofen, Tylenol isn't working and I'm allergic to sulfa drugs; I'm kinda concerned about all the drugs, but need something to help so I can continue to work. I
Fleur29
in
Osteoarthritis Action
7 months ago
Stopped Prednisone Completely
Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the discomfort of PMR was immediate; overnight to be specific. The next month, began reducing my dosage about 1mg/mo. On 2023-10-06, began every other day dosage of 1mg. On 2023-12-26 I took my last dose and so far, so good
Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the discomfort of PMR was immediate; overnight to be specific. The next month, began reducing my dosage about 1mg/mo. On 2023-10-06, began every other day dosage of 1mg. On 2023-12-26 I took my last dose and so far, so good
Mansplainer101
in
PMRGCAuk
7 months ago
Latest re -Lupus and Covid?
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
Hello All - I hope you all had a very happy Christmas. Does anyone know the latest position regarding Lupus patients testing positive for Covid please. My wife has had cold symptoms for the past couple of days and we decided to test for Covid this morning and we were both positive. My wife (who has
BeeManShrop
in
LUPUS UK
7 months ago
New RLS member
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
Ddski5
in
Restless Legs Syndrome
7 months ago
today/tonight
this afternoon I am going to the casino to hang out with some friends from college. We’re going to shop at the outlets before checking into our air bnb and getting ready for the evening. Our plan is to gamble a bit and go to a nightclub after. Because of my anxiety I already plan on not drinking. But
this afternoon I am going to the casino to hang out with some friends from college. We’re going to shop at the outlets before checking into our air bnb and getting ready for the evening. Our plan is to gamble a bit and go to a nightclub after. Because of my anxiety I already plan on not drinking. But
Daisy425
in
Anxiety and Depression Support
7 months ago
Untreated hypothyroid and early pregnancy
I hope someone of here can offer some advice, or at least reassure me I’m not being a crazy/hysterical woman! I had blood tests at the start of July to try and diagnose the reason why my periods had disappeared for 7months. The Thyroid tests came back as: TSH 5.23mlU/L (0.270-4.2), FT4 11.9pmol/L (12
I hope someone of here can offer some advice, or at least reassure me I’m not being a crazy/hysterical woman! I had blood tests at the start of July to try and diagnose the reason why my periods had disappeared for 7months. The Thyroid tests came back as: TSH 5.23mlU/L (0.270-4.2), FT4 11.9pmol/L (12
Holly_Tree
in
Thyroid UK
11 months ago
Christmas Covid present…
My husband tested positive for Covid Christmas Day evening after feeling ill for a couple of days. I tested negative and felt ok. We avoided each other and masked up. Today, after a couple of disturbed nights and drained days I’ve tested positive. I am on 4mg pred. Do I need to contact the doctor re
My husband tested positive for Covid Christmas Day evening after feeling ill for a couple of days. I tested negative and felt ok. We avoided each other and masked up. Today, after a couple of disturbed nights and drained days I’ve tested positive. I am on 4mg pred. Do I need to contact the doctor re
Bluey-1
in
PMRGCAuk
7 months ago
covid
I had covid two weeks ago. Thankyou by the way for those who answered my post when I didn’t realise I had covid, I had pains which I thought were the pmr returning. I am recovering quite slowly, no longer feel rotten but very breathless ( I have asthma) and having pmr type pains. I don’t know what to
I had covid two weeks ago. Thankyou by the way for those who answered my post when I didn’t realise I had covid, I had pains which I thought were the pmr returning. I am recovering quite slowly, no longer feel rotten but very breathless ( I have asthma) and having pmr type pains. I don’t know what to
Yellow-dog
in
PMRGCAuk
7 months ago
Advice on the pill
I want Advice l am on the microgynon 30 pill and l am still getting a period whenever l am on it should l be getting a period
I want Advice l am on the microgynon 30 pill and l am still getting a period whenever l am on it should l be getting a period
Shannongilly
in
Women's Health
11 months ago
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