Search
Search
About
Log in
Join
Experiences with
Continuous Ambulatory Peritoneal Dialysis
Posts
Communities
3,161 public posts
Filter results
APPROVED FOR KIDNEY TRANSPLANT BUT NEED A DONOR...HOW DO I GET MY STORY OUT? So scared about dialysis before getting a kidney.
Hi Sweet Friends.... hope everyone is hanging in there and doing well. I was approved for transplant at Mayo and am so grateful. My dear husbandand wanted to give me on of his kidneys but during his testing they found dangerously low platelets and found he has idiopathic ITP. After 2 hospitalizations
Hi Sweet Friends.... hope everyone is hanging in there and doing well. I was approved for transplant at Mayo and am so grateful. My dear husbandand wanted to give me on of his kidneys but during his testing they found dangerously low platelets and found he has idiopathic ITP. After 2 hospitalizations
Highgfr
in
Kidney Disease
2 years ago
Dialysis is upon me!
So, coming out of a not so great weekend. On Friday, I had my routine bloodwork done. That evening, my nephrologists office called and asked that I go to the hospital for admission. After laying in there all weekend, I discovered that I was having a tunnel placed in my chest as a temporary access for
So, coming out of a not so great weekend. On Friday, I had my routine bloodwork done. That evening, my nephrologists office called and asked that I go to the hospital for admission. After laying in there all weekend, I discovered that I was having a tunnel placed in my chest as a temporary access for
MSWwv
in
Kidney Disease
2 years ago
Muscle cramps
Good evening all. I was wondering if anyone experiences foot cramps in the pre dialysis stage. Im generally well, but recently have been getting these painful cramps but dont want to unduly panic about it by calling my dr. So easy to become slightly hypochondriac with this disease. Any guidance would
Good evening all. I was wondering if anyone experiences foot cramps in the pre dialysis stage. Im generally well, but recently have been getting these painful cramps but dont want to unduly panic about it by calling my dr. So easy to become slightly hypochondriac with this disease. Any guidance would
wheezoids21
in
Kidney Disease
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
struggle to breathe when trying to use cpap since Copd
hi I can’t seem to catch my breath whilst using cpap as Copd has got worse any ideas
hi I can’t seem to catch my breath whilst using cpap as Copd has got worse any ideas
Slaphead
in
Lung Conditions Community Forum
1 year ago
Heart trouble, 32 years old.
Hi Folks, I'm 32 years old and have been going through an incredibly difficult time the last few months. It all started in September, wakening panicked, heart racing and feeling like I was going to pass out. This kick started months of torment, which with the help of therapy, I now believe was a panic
Hi Folks, I'm 32 years old and have been going through an incredibly difficult time the last few months. It all started in September, wakening panicked, heart racing and feeling like I was going to pass out. This kick started months of torment, which with the help of therapy, I now believe was a panic
Pjh1002
in
British Heart Foundation
1 year ago
PD Dialysis - Week 16 after PD catheter surgery - Success!
Ok, I'm going to pick up where I left off 3 months ago with this post: https://healthunlocked.com/nkf-dialysis/posts/148442287/pd-dialysis-week-6-houston-we-have-a-problem Since that post, when I stopped doing manual PD because of the extreme lower back pain I was experiencing, I had visits with my
Ok, I'm going to pick up where I left off 3 months ago with this post: https://healthunlocked.com/nkf-dialysis/posts/148442287/pd-dialysis-week-6-houston-we-have-a-problem Since that post, when I stopped doing manual PD because of the extreme lower back pain I was experiencing, I had visits with my
RonZone
in
Kidney Dialysis
2 years ago
Living with dialysis
My name is Vicki and I myself have had 2 years of dialysis before I got a kidney transplant . I was very young just 32 with two boys ages 2 and 3 at that time . I received a perfect matching kidney in 1996 and it lasted for 27 years . I am and have been back on hemo-dialysis for another 3 years . I am
My name is Vicki and I myself have had 2 years of dialysis before I got a kidney transplant . I was very young just 32 with two boys ages 2 and 3 at that time . I received a perfect matching kidney in 1996 and it lasted for 27 years . I am and have been back on hemo-dialysis for another 3 years . I am
bubbaboo2
in
Kidney Dialysis
2 years ago
Attendance allowance
Hi my hubby has stage 4 ckd he's 71 receives a state pension, will he be able to apply for attendance allowance, he's waiting to start his dialysis,.any help.to help him through the roots to follow pleaseThanks all x
Hi my hubby has stage 4 ckd he's 71 receives a state pension, will he be able to apply for attendance allowance, he's waiting to start his dialysis,.any help.to help him through the roots to follow pleaseThanks all x
joannieandmike
in
Kidney Dialysis
2 years ago
Energy and motivation hasn't really returned after Pred
Hi friends, I'm down to one mg Pred after diagnosed with PMR back in Aug 21. We killed that with 50 mgs initial dose and now I'm down at one mg per day. I take that one mg between 0700 and 0830 every morning. It's been a battle to get here and I've had some shocking episodes of desperate, crushing fatigue
Hi friends, I'm down to one mg Pred after diagnosed with PMR back in Aug 21. We killed that with 50 mgs initial dose and now I'm down at one mg per day. I take that one mg between 0700 and 0830 every morning. It's been a battle to get here and I've had some shocking episodes of desperate, crushing fatigue
Hidden
in
PMRGCAuk
1 year ago
Insomnia- solutions?
Many of you will know that I have been battling insomnia for quite a while. I went to a sleep clinic in August and discovered I also had sleep apnoea. I have been treated by the clinic since then with “ infallible” treatments. The problem is, I don’t think my sleep is getting any better and part of
Many of you will know that I have been battling insomnia for quite a while. I went to a sleep clinic in August and discovered I also had sleep apnoea. I have been treated by the clinic since then with “ infallible” treatments. The problem is, I don’t think my sleep is getting any better and part of
suzy1959
in
PMRGCAuk
1 year ago
had b12 results and called in to discuss
hello… I’ve just had my b12 levels done and they are >2000 (range 200-900) I started my supplement with oral b12 and decided to trial SI after much reading as very symptomatic and matched myself to possible b12d. I have been hypothyroid for app 32 years and am on Levothyroxine t4 and more recently
hello… I’ve just had my b12 levels done and they are >2000 (range 200-900) I started my supplement with oral b12 and decided to trial SI after much reading as very symptomatic and matched myself to possible b12d. I have been hypothyroid for app 32 years and am on Levothyroxine t4 and more recently
Delilahmy
in
Pernicious Anaemia Society
1 year ago
Why can’t I breathe and move? Advice needed.
I have HF 4 and Hyperthrophic Cardiomyopathy. This year I ended up in hospital as I couldn't breathe or move. My first visit lasted three weeks and I was sent home with new meds but did not feel any better. A month later I found myself in ICU with the same symptoms but with Kidney and Liver problems.
I have HF 4 and Hyperthrophic Cardiomyopathy. This year I ended up in hospital as I couldn't breathe or move. My first visit lasted three weeks and I was sent home with new meds but did not feel any better. A month later I found myself in ICU with the same symptoms but with Kidney and Liver problems.
Heartylove
in
British Heart Foundation
2 years ago
HF and HCM. Ablation and Pace. Breathlessness and the inability to move.
I have HF 4 and Hyperthrophic Cardiomyopathy. This year I ended up in hospital as I couldn't breathe or move. My first visit lasted three weeks and I was sent home with new meds but did not feel any better. A month later I found myself in ICU with the same symptoms but with Kidney and Liver problems.
I have HF 4 and Hyperthrophic Cardiomyopathy. This year I ended up in hospital as I couldn't breathe or move. My first visit lasted three weeks and I was sent home with new meds but did not feel any better. A month later I found myself in ICU with the same symptoms but with Kidney and Liver problems.
Heartylove
in
AF Association
2 years ago
Update
Jim now has COVID, his bay all have covid all 5 of them. We cannot visit now and he is much worse. His CT scan came back and one of his kidneys has died. The doctor has rang Jim's son up to explain the CT scan. Jim says he is dieing and he wants all the family round, but we can't go now!!! It's horrible
Jim now has COVID, his bay all have covid all 5 of them. We cannot visit now and he is much worse. His CT scan came back and one of his kidneys has died. The doctor has rang Jim's son up to explain the CT scan. Jim says he is dieing and he wants all the family round, but we can't go now!!! It's horrible
Carolsos
in
NRAS
2 years ago
update on jmy partner jim
well and you know Jim got transferred to Hull on last Friday but not castle hill The Royal instead. He is having dialysis 4 times a week and blood transfusions too. He's in pain, constantly screaming pain! I saw him today, he had just come back from a CT scan and hopefully we will get the results
well and you know Jim got transferred to Hull on last Friday but not castle hill The Royal instead. He is having dialysis 4 times a week and blood transfusions too. He's in pain, constantly screaming pain! I saw him today, he had just come back from a CT scan and hopefully we will get the results
Carolsos
in
NRAS
2 years ago
mountain air stone house problems?
I grew up on the coast of Maine, USA, so elevation 0 and wooden houses and salty sea air. I attended college inland in a small city elevation ~100m. But was only there for 4 years and lived half the time in a concrete apartment and the rest in a wooden house. Then I moved to Munich, Germany, elevation
I grew up on the coast of Maine, USA, so elevation 0 and wooden houses and salty sea air. I attended college inland in a small city elevation ~100m. But was only there for 4 years and lived half the time in a concrete apartment and the rest in a wooden house. Then I moved to Munich, Germany, elevation
stevedavid
in
Lung Conditions Community Forum
1 year ago
It’s so noisy!
As l am a new cpap user can anybody possibly help me ,l have been trying to use the Fisher and Parker Eason nasal mask. The one I originally received was medium and much to large .l now have a small one,it fits ok and no air leaks but ,should l be able to hear myself breathe? The idea of this device
As l am a new cpap user can anybody possibly help me ,l have been trying to use the Fisher and Parker Eason nasal mask. The one I originally received was medium and much to large .l now have a small one,it fits ok and no air leaks but ,should l be able to hear myself breathe? The idea of this device
Limping-along
in
Sleep Matters
1 year ago
Asthma/copd and tracheobronchomalacia
been diagnosed with tracheobronchomalacia, I’m only mild at the moment but my breathlessness is already awful, I’m struggling to get out and about, I have cpap for at home but does anyone know of anything I can have/use when out and about. Thank you x
been diagnosed with tracheobronchomalacia, I’m only mild at the moment but my breathlessness is already awful, I’m struggling to get out and about, I have cpap for at home but does anyone know of anything I can have/use when out and about. Thank you x
Cooperhart
in
Lung Conditions Community Forum
1 year ago
How kidney patients should protect themselves from COVID-19 in 2022
COVID-19 is still top of mind for those who are immunocompromised and we're here to offer resources and support. Our guests will answer your questions about how COVID-19 affects early-stage CKD, dialysis, and transplant patients. Listen today: https://www.podbean.com/ew/pb-eb5fm-1283386
COVID-19 is still top of mind for those who are immunocompromised and we're here to offer resources and support. Our guests will answer your questions about how COVID-19 affects early-stage CKD, dialysis, and transplant patients. Listen today: https://www.podbean.com/ew/pb-eb5fm-1283386
JackieJ_NKF
Partner
in
Kidney Disease
2 years ago
Reducing phlebotomy in hemodialysis patients
Because routine venous access for IV therapy or phlebotomy is limited to one unilateral arm for those of us who are dialysis patients many of us have poor access in the remaining limb for blood draws or IV therapy possibly secondary to scarring through multiple attempts at enous access. Is there any
Because routine venous access for IV therapy or phlebotomy is limited to one unilateral arm for those of us who are dialysis patients many of us have poor access in the remaining limb for blood draws or IV therapy possibly secondary to scarring through multiple attempts at enous access. Is there any
woundrn
in
Kidney Dialysis
2 years ago
1
...
23
24
25
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Kidney Dialysis
598 results
Kidney Disease
554 results
Dialysis Support
263 results
View top 10 communities
Sort by
Most Relevant
Newest