Jim now has COVID, his bay all have covid all 5 of them. We cannot visit now and he is much worse. His CT scan came back and one of his kidneys has died. The doctor has rang Jim's son up to explain the CT scan. Jim says he is dieing and he wants all the family round, but we can't go now!!! It's horrible and he is still in agony. He had 2 blood transfusions today and 3 hrs of dialysis. I don't want any time of work until I absolutely have too. I think work would be ok about having time off . I want to try and carry on as much as possible. Thank you everyone for your kind replies. Take care everyone.
Update : Jim now has COVID, his bay all have covid all... - NRAS
Update
Oh Carol, I’m so sorry for the situation, and for poor Jim, who only wants to die with his family around him. Perhaps if this is really the end, the hospital may be able to arrange for you all to be in a room together.
I think, for your own well being, you need to keep working. If things aren’t as bad as they seem and Jim comes out of hospital, that might be the time to take some time off.
Sending gentle hugs to you all.
how awful for you,take care of yourself xx
I'm so sorry to hear this Carol, it really is awful especially now when he needs you and his family around him. I hope you get the strength you need to cope with all that's going on. Thinking of you all. xx
I'm so sorry. I can't believe a terrible situation has gotten worse. I hope he can recover from the covid, and you can see him again very soon. I wish I could say something that would make things better xx
Hi Carol,
So sorry to hear what is happening to your partner. My Uncle was in HRI in July and he caught COVID and family were still allowed to visit as long as they understood the risks. May be worth asking if you want to visit, of course it’s a very difficult decision to make for anyone vulnerable or otherwise.
Take care
Karen
I am so sorry and saddened to hear this. Thinking of you both xx
Oh no. That's so awful for you all. I have no words to help you just that you are all in my prayers.
I am praying for strength for you and your family and peace for Jim and above all relief from his pain. I pray that doors open to allow you and the family to be with him at this time.
All i can do is send you both hugs and love darling. xxxx
Oh Carol, I’m so sorry - what an awful time you are all having. I hope for Jim’s sake you can get to see him at some point. I agree with going to work for as long as you can, it’s probably the only normal thing in your life right now. (((Big hugs to you both)))
Thinking of you all and sending love and best wishes.
I am so sorry to read your partner has got Covid and is still in pain. All I can do is send you both my best wishes and caring thoughts .
Try and push to be with him, as it will give you and your family so much peace when the end comes. I can only speak from personal experience. 🙏
i am so sorry. They really should arrange for at least two people to visit him in PPE. It is cruel. Big hugs 🙏
What a hideous situation you're all in, especially Jim in pain and wanting family round him.
Not great but is a video call possible?
Hope things resolve asap sending hugs 🤗
Jesus. You are dealing with so much. It must be difficult not being able to go in/ but this will also give you a rest which you desperately need. This is a lot. Can you face-time? My friend’s partner is in a hospice, and this is what they did over Covid. Take care and be gentle with yourself x
So sorry Carol. Sending love ❤
I'm thinking of you Carol and hope that things improve soon, at least regarding Covid so that you can visit. God Bless, xx
Oh you poor darlings. Sending you my best wishes. X
I'm so sorry Carol. Praying for you and your family and sending hugs. Horrible times. Xxx
My thoughts are with you at such a difficult time.Be strong.x
I don't mean to sound mean but why hasn't he had a shunt put in? And one kidney isn't a problem as people live well with one, think of transplant people who only have one. Kidney function is an overall measurement and so you do need to ask more questions or at least his next of kin does. I'm not medically qualified but it does sound very odd why would they dialyse him if no hope ? surely it would be kinder to go for palliative care and these days pain relief is very good and I know from experience that dialysis really doesn't hurt. Is his line pressing on a nerve and why hasn't he been given anti platelet meds to bust the clots and pass through a catheter. With regard to Covid I'd ask about going in with proper masks as they must be being nursed so someone goes in and especially if you've been vaccinated when the risk is lower. Please just ask questions and has be been offered chemo or radiotherapy or an operation to prolong his life as their surely has to be hope if dialysis is being used. Can his Nephrologist or Oncologist put your mind at rest as screaming with pain is really not acceptable in this day and age. So what is causing the pain would be foremost in my mind and why is treatment being continued if the first rule of medicine is do no harm.
Best of luck and get enough rest and make sure you eat properly to as this is such a hard thing to deal with even at the best of times. Most dialysis patients eat and drink during treatment, read books or watch tv and it is used to make people feel a lot better not worse. XX
Sending healing thoughts and big virtual hugs to you all.
So sorry Carol. This is as bad as the pandemic worst of times. You and his family should be able to see him with protection masks in a hospital room for one patient if he is near death. Heartbreaking for everyone. Thinking of you all xx
Thinking of you all
what dreadful news. Thinking of you. Keep well and try to eat your family will need you. 💐
my thoughts and prayers are with you 🙏
I'm so very sorry Carol. Sending gentle hugs xxx
Sorry to hear this. My thoughts are with you. ❤️
With my mum Carol, the family were brought round as we had not been able to see her for 3 months, but she did not have covid. Two of us were allowed to stay with her for the final week. I know that feeling of not been able to see them as this happened only last year. What you Jim and the family are going through is horrendous and I'm sorry I can't do much to help but send you all much love and hugs. My dad's name was Jim, which another reason why I can relate to you.
oh what a fragile time you are in, I have been reading your posts but haven’t commented until now as so many have sent caring & warming thoughts to you.., I am so so sorry for all you are dealing with daily, you are holding are remarkably well, easy for us to say as I’m sure inside you feel quite the reverse. Not being able to be beside him at this time.., my heartfelt thoughts & one massive virtual hug 🙏🏻Xx
Thinking about you all at this very difficult time xx
I’m so sorry to hear all this and for what you are going though -my thoughts & prayers are with you xx
So sorry to hear this, sending you big gentle hugs & praying Jim turns a corner very soon for the better, you take care too x
So sorry to hear that Jim also now has Covid to deal with. I can’t imagine how you are keeping on going right now. Sending much love to you both and hoping for some improvement as soon as possible. Xx
Right just found out Jim doesn't have covid but the ward does. We cannot visit for 14 days. He was much better yesterday and today. A different person really , he is quite chirpy which is lovely to hear after so many horrible days. Thanks everyone for your input. Take care.
Oh thank goodness Carol. Obviously it is difficult not being able to visit, but really good to hear his spirits are so much better today. Big hug to you both 🤗
I'm so sorry Carol, I really do hope that things improve soon.
So sorry. 💗
my thoughts and prayers are with you at this horrendous time. 💐
I can't imagine what you're going through and I hope you have the support that you need. Carrying on is good if it helps, but do take some time off to take care of yourself if you need it.
So sorry you are going through all this. If he hasn't got covid, surely they can find a way to facilitate visits? Take care, and have a rest if possible. Thinking of you all xx
Another update Jim now has COVID so no visiting again until 14 days. He is getting moved to another hospital called castle hill from the royal hopefully soon. He is feeling so much better and he has stopped dialysis.
That’s good to know (not him having Covid obvs). Take this time to recuperate yourself. You need a rest. Take care x
oh gosh! What a rollercoaster you are both on. Fingers crossed the covid doesn't hit him too hard and that his overall improvement continues. Take care x