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Continuous Ambulatory Peritoneal Dialysis
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Demystifying Dialysis: Understanding Treatment Options and Life Changes
Life on dialysis is a challenege for many, so NKF is here to help! Learn how to live well on dialysis with these tips and tricks. https://www.kidney.org/newsletter/demystifying-dialysis-understanding-treatment-options-and-life-changes
Life on dialysis is a challenege for many, so NKF is here to help! Learn how to live well on dialysis with these tips and tricks. https://www.kidney.org/newsletter/demystifying-dialysis-understanding-treatment-options-and-life-changes
JackieJ_NKF
Partner
in
Kidney Dialysis
1 year ago
First time dialysis outside of hospital
Can anyone give me hints, tips, tricks? im kind of nervous.
Can anyone give me hints, tips, tricks? im kind of nervous.
Cowboy41
in
Kidney Dialysis
1 year ago
And so it begins......home dialysis
This is a hard post to write. I am headed for dialysis within the next month or two. NO getting around it now. No chance for reversal or improvement at this point. It was a good fight. I have some questions to start learning about this process. I will be doing home hemodialysis. I am already did the
This is a hard post to write. I am headed for dialysis within the next month or two. NO getting around it now. No chance for reversal or improvement at this point. It was a good fight. I have some questions to start learning about this process. I will be doing home hemodialysis. I am already did the
Bassetmommer
in
Kidney Dialysis
1 year ago
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Down the rabbit hole I go.... the follow up to my journey
This is the follow up to my long post about what has been happening to me. A quick review. I was told after I did the whole evaluation progress in 2020-21 that I was overweight, BMI too high, and that I had an abnormal cardiac result from the nuclear test that I had done. I had a report or 6% ischemia
This is the follow up to my long post about what has been happening to me. A quick review. I was told after I did the whole evaluation progress in 2020-21 that I was overweight, BMI too high, and that I had an abnormal cardiac result from the nuclear test that I had done. I had a report or 6% ischemia
Bassetmommer
NKF Ambassador
in
Kidney Disease
1 year ago
Restless sleep
My husband was diagnosed with PSP in 2020. His sleep has become more restless lately kicking his legs, throwing his arms up and removing sheets and duvet then asking me to cover him up. He wears a CPAP mask but cannot always tolerate wearing it so pulls it off, something he would never do. All of this
My husband was diagnosed with PSP in 2020. His sleep has become more restless lately kicking his legs, throwing his arms up and removing sheets and duvet then asking me to cover him up. He wears a CPAP mask but cannot always tolerate wearing it so pulls it off, something he would never do. All of this
Licquoricelover
in
PSP Association
7 months ago
Severe OSA
morning all, on top of everything else I have now been diagnosed with severe OSA, which apparently is a contributing factor to AF! I am due for a CPAP machine on 12th April, it scares me when I go to sleep, has anyone else experienced this, good to hear your thoughts
morning all, on top of everything else I have now been diagnosed with severe OSA, which apparently is a contributing factor to AF! I am due for a CPAP machine on 12th April, it scares me when I go to sleep, has anyone else experienced this, good to hear your thoughts
Suesouth
in
Atrial Fibrillation Support
7 months ago
PIP change of circumstances
Hi everyone, I was awarded basic PIP for both daily activities and mobility. I’ve now become worse with symptoms and mobility and have now acquired severe sleep apnea with CPAP therapy machine. I was awarded 10 & 10 points in Sept 2023. I wrote a letter to PIP and explained the change in
Hi everyone, I was awarded basic PIP for both daily activities and mobility. I’ve now become worse with symptoms and mobility and have now acquired severe sleep apnea with CPAP therapy machine. I was awarded 10 & 10 points in Sept 2023. I wrote a letter to PIP and explained the change in
Onedaymore1
in
Fibromyalgia Action UK
7 months ago
CPAP first time user - your experience please, 4G etc
I picked up a Resmed CPAP machine with a nasal only mask yesterday from our local Guildford (Surrey) NHS hospital to hopefully remove my mild sleep apnoea and stop me waking around 3 times every night. Any comments on member's experience would be appreciated. In particular before I start, do members
I picked up a Resmed CPAP machine with a nasal only mask yesterday from our local Guildford (Surrey) NHS hospital to hopefully remove my mild sleep apnoea and stop me waking around 3 times every night. Any comments on member's experience would be appreciated. In particular before I start, do members
secondtry
in
Atrial Fibrillation Support
7 months ago
Fistula
Hi I am having an Endo vascular fistula proceedure next month in preparation for hemo dialysis. If anyone has any information or experience about this I would be very grateful to hear. Thank you
Hi I am having an Endo vascular fistula proceedure next month in preparation for hemo dialysis. If anyone has any information or experience about this I would be very grateful to hear. Thank you
MariaB27
in
Kidney Disease
1 year ago
Transplant Question
Hi, While doing Peritoneal Dialysis, do I need to change to Hemodialysis before transplant?
Hi, While doing Peritoneal Dialysis, do I need to change to Hemodialysis before transplant?
munirbraganca
in
Kidney Disease
1 year ago
Second kidney transplant
Hi, My nephrologist is putting in the application for me to go back onto the transplant list. I am very lucky as I have had my first transplant for over 28 years. My GFR is running at 12. Something I wondered about is do they remove my previous transplant and put the new one in the same place? I
Hi, My nephrologist is putting in the application for me to go back onto the transplant list. I am very lucky as I have had my first transplant for over 28 years. My GFR is running at 12. Something I wondered about is do they remove my previous transplant and put the new one in the same place? I
DoylerOz
in
Kidney Transplant
1 year ago
Transplant list..overwhelmed
After 18 long months of trying to get on the list, i got a phoncall on Thursday, telling me I was now live. I thought I would be over the moon, instead I'm feeling overwhelmed. I had an appointment with the transplant co-ordinator and Surgeon about 10 days ago. The surgeon told me I had to lose weight
After 18 long months of trying to get on the list, i got a phoncall on Thursday, telling me I was now live. I thought I would be over the moon, instead I'm feeling overwhelmed. I had an appointment with the transplant co-ordinator and Surgeon about 10 days ago. The surgeon told me I had to lose weight
Ziggydoodah
in
Kidney Transplant
1 year ago
insomnia 10 hours in 4 days
hi everyone. I have Mytonia Congenita and a lot of over conditions, arthritis etc. One of those is sleep apnea, which I wear a CPAP machine for. However the past 6 months I’ve had horrific insomnia! I’m talking it’s so bad I’m getting about 4 hours in every 24! I honestly don’t know what to do anymore
hi everyone. I have Mytonia Congenita and a lot of over conditions, arthritis etc. One of those is sleep apnea, which I wear a CPAP machine for. However the past 6 months I’ve had horrific insomnia! I’m talking it’s so bad I’m getting about 4 hours in every 24! I honestly don’t know what to do anymore
Hidden
in
Neuro Support
8 months ago
Stage 5 Chronic Kidney Disease (CKD)
Dialysis and kidney transplant are the only two treatments for people with kidney failure. It is also important for patients to continue managing any other health conditions they may have, including high blood pressure and/or diabetes. Learn more at: https://www.kidney.org/atoz/content/stage-5-chronic-kidney-disease-ckd
Dialysis and kidney transplant are the only two treatments for people with kidney failure. It is also important for patients to continue managing any other health conditions they may have, including high blood pressure and/or diabetes. Learn more at: https://www.kidney.org/atoz/content/stage-5-chronic-kidney-disease-ckd
JackieJ_NKF
Partner
in
Kidney Dialysis
1 year ago
I am in a dilema
have hi doesn't bicarbonate soda help with cod? I made the decision to refuse dialysis and have been told I have 12 to 18 moths to live
have hi doesn't bicarbonate soda help with cod? I made the decision to refuse dialysis and have been told I have 12 to 18 moths to live
eyeBRing
in
Kidney Disease
1 year ago
PERITONITIS SUCKS
Third night in my local hospital for a bacterial infection. Probably would not have caught it, if I hadn't decided to do a manual exchange after a rough night on the cyculor the night before and painful cramps all day. Sure enough the fluid that came out of me was cloudy. You don't see your fluid doing
Third night in my local hospital for a bacterial infection. Probably would not have caught it, if I hadn't decided to do a manual exchange after a rough night on the cyculor the night before and painful cramps all day. Sure enough the fluid that came out of me was cloudy. You don't see your fluid doing
SadMad
in
Kidney Disease
1 year ago
I’m Desperate for help
My husband is an active 81y.o. with CHF and Amyloidosis. He also has an enlarged prostate. His BP is well controlled and he has no history of diabetes. He currently takes: Vyndaquel - Amyloidosis Eliquis Torsemide (water pill) Finasteride (prostate) Amiodarone (heart) Potassium (heart) Atorvastatin
My husband is an active 81y.o. with CHF and Amyloidosis. He also has an enlarged prostate. His BP is well controlled and he has no history of diabetes. He currently takes: Vyndaquel - Amyloidosis Eliquis Torsemide (water pill) Finasteride (prostate) Amiodarone (heart) Potassium (heart) Atorvastatin
Readdaily
in
Kidney Disease
1 year ago
Transplant.vs dialysis
Hi. I am going through the process for a kidney transplant. I had my first appointment with the transplant deans was supposed by what he was saying. I felt like he was trying to talk me ougetting a transplant. He told me there was no guarantee a transplant would improve my life more than dialysis.
Hi. I am going through the process for a kidney transplant. I had my first appointment with the transplant deans was supposed by what he was saying. I felt like he was trying to talk me ougetting a transplant. He told me there was no guarantee a transplant would improve my life more than dialysis.
Jade1982
in
Kidney Transplant Patient Support
1 year ago
Sleep Apnea and afib
Greetings across the pond........I'm 81 and have been dealing with afib for 11years. I had my first ablation 2 weeks ago and was back in afib 4 days later. Today I had a cardioversion which was successful; and of course, I hope it lasts. The team who administered the procedure reported that sleep apnea
Greetings across the pond........I'm 81 and have been dealing with afib for 11years. I had my first ablation 2 weeks ago and was back in afib 4 days later. Today I had a cardioversion which was successful; and of course, I hope it lasts. The team who administered the procedure reported that sleep apnea
sealover
in
AF Association
8 months ago
swelling eyes
Hi everyone. How do you guys dealing with swelling eyes? After 2-3 days without dialysis I've got "huge" bags under my eyes especially when I waking up. During a day it getting little less. Its also affect on sight. Average weight gain between dialysis is 1-1.5 kg with 65 kg dry weight.
Hi everyone. How do you guys dealing with swelling eyes? After 2-3 days without dialysis I've got "huge" bags under my eyes especially when I waking up. During a day it getting little less. Its also affect on sight. Average weight gain between dialysis is 1-1.5 kg with 65 kg dry weight.
TomMilds
in
Kidney Dialysis
1 year ago
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