PERITONITIS SUCKS: Third night in my local... - Kidney Disease

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PERITONITIS SUCKS

SadMad profile image
18 Replies

Third night in my local hospital for a bacterial infection. Probably would not have caught it, if I hadn't decided to do a manual exchange after a rough night on the cyculor the night before and painful cramps all day. Sure enough the fluid that came out of me was cloudy. You don't see your fluid doing the cyculor. I have been sick since June off and on. Don't know when I was infected. On IV antibiotics and antibiotics in my dialysis fluid. Good night and stay safe and smart!!! I will be smarter after I get back home!!!

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SadMad
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18 Replies
bumblebee_tuna profile image
bumblebee_tuna

Get well soon, that sucks you were not able to catch sooner.

Readdaily profile image
Readdaily

So sorry to hear that you’re not feeling well. Please don’t beat yourself up about the delay in recognizing the infection. Things happen. I pray that you have a speedy recovery.

Miss-guineapig profile image
Miss-guineapig

Sending you a big hug and healing prayers. Ride the storm and the IV antibiotics will do they’re job. Keep us posted xx

Bunkin profile image
Bunkin

Hope you feel better! Maybe you had it already which is why you were hurting on the cycler. I was always extra cautious which of course made me a nervous wreck. Hard not to be!!!

Are you using drain bags on the cycler or a drain hose to the sink or toilet? I used a drain hose and it had a viewing window in the line where it comes off the cycler. It's just a wider area on the line that allows you to get a better view of the draining fluid.

SadMad profile image
SadMad in reply to

It has always been clear.

Tolouse13 profile image
Tolouse13

Been there, know how you feel, take care xx

RDVR profile image
RDVR

Speedy recovery

half-glass-full profile image
half-glass-full

Best of luck. Get well soon

Beachgirl32 profile image
Beachgirl32

Sorry you are ill it is no fun being in hospital . Get well soon 🙏

RonZone profile image
RonZone

Wow, this is what we all dread happening. I don't have anything on my drain line that allows me to "see" if the fluid is cloudy or not, nor do I wake up in the middle of the night to look at it even if I did. So a LOT of this is going by faith when using he cycler and draining straight into the drain. The only time I get to see the fluid is during a kt/v test where I have to drain into a bag, but that only happens every three months I'm told, so if I get an infection, the pain would signal me before I ever got a visual. Except that what you just told me is a great way to check things out, simply do a daytime manual and see what the effluent looks like.

Now another difficult scenario with all this is that I get gas cramps at times and it makes me wonder immediately "do I have an infection?". Well a few hours go by and the cramps go away, so I assume that there's no infection. I assume that if it were an infection, the cramps would not go away.

Did you have other symptoms other than cramps, such as elevated temp or chills or anything to let you know it was something other than gas cramps? You said you had a "rough" night on the cycler. What does "rough" mean, symptom's wise?

Good question for my nurse. Can you get an infection and not have symptoms for several weeks, then wham? And can you get an infection from sources other than accidental. Meaning like a secondary bacterial infection after a viral infection? Inquiring minds.....

Really appreciate you posting on this. It's what all of us dread, but I'm sure a lot of us will experience.

bumblebee_tuna profile image
bumblebee_tuna in reply toRonZone

I don't know about a viral infection, but I know you can get an infection from your colon if it is backed up, that is one reason to make sure you are not constipated too often. The other reason would be that you also get better dialysis with an empty colon.

RonZone profile image
RonZone in reply tobumblebee_tuna

Well dang. I didn't know about that source of infection either. Thanks for the info!

SadMad profile image
SadMad

It was rough because the cramps woke me up. Had the same experience last Monday night and thought it was gas but evidently it wasn't. Got out at the hospital yesterday and I'm home but I'm exhausted and was told it would be a few weeks before I'd feel back to normal. Course I don't know what normal is anymore. I just know now that if I wake up with cramps that's it's not gas. They told my sister that if I'd waited one more day that I would have been dead which is very scary. Did my cycler last night and everything was fine. I guess I was lucky this time and God was with me. Woke up with a panic attack this morning and trembling for an hour or so. No more pool for me this year. I am quite embarrassed as I just said last week that you can get in the pool as long as it was maintained but after a lot of rain and then algae it is not safe for us at all. I think the algae got me. I can't think of any other scenario of how I picked up the infection. I will stick to indoor pools like the "Y" next summer. Didn't get my knees done this summer cuz I wanted to enjoy it but I might as well had gone ahead and got them done. Live and learn! Thank you all for the well wishes! God bless us all!!!

crackers2 profile image
crackers2

Hi, I'm very sorry. I hope that you feel better soon . My heart goes out to you. ❤️

Vprp profile image
Vprp

So sorry, other than healing good thoughts, don’t have any first hand or second hand experience or suggestions to offer.

MToQ profile image
MToQ

Totally sucks. Feel better soon!

When I was doing PD on the cycler, the drain line had a section near the machine that was wider and that is the inspection window to check for cloudiness.

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