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Continuous Ambulatory Peritoneal Dialysis
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What to do with cramps?
I am just going to post a quick question..... what do you do about the friggin' cramps? I have had only three dialysis treatments and by the second one, I had cramps in my legs and feet. Yesterday, I administered saline back into my system and the cramps stopped at the treatment center. However, later
I am just going to post a quick question..... what do you do about the friggin' cramps? I have had only three dialysis treatments and by the second one, I had cramps in my legs and feet. Yesterday, I administered saline back into my system and the cramps stopped at the treatment center. However, later
Bassetmommer
in
Kidney Dialysis
7 months ago
First dialysis.... not for a wuss
As I promised, I am going to document my journey as I have done before. Now it is hemodialysis. Holy mackerel. Anyone who thinks this is easy, let them sit in the chair for a turn and see what they think. My husband came with me and will be attending the training with me for the next five weeks. I am
As I promised, I am going to document my journey as I have done before. Now it is hemodialysis. Holy mackerel. Anyone who thinks this is easy, let them sit in the chair for a turn and see what they think. My husband came with me and will be attending the training with me for the next five weeks. I am
Bassetmommer
in
Kidney Dialysis
7 months ago
**Last Update** Covid - Help!
For those who've had Covid at some point, when did your symptoms go away and did you need professional medical treatment for that to happen? My son was formally diagnosed on 9/18, and I developed symptoms the following day. I didn't bother getting tested. He was barely sick for about 3 days, but I've
For those who've had Covid at some point, when did your symptoms go away and did you need professional medical treatment for that to happen? My son was formally diagnosed on 9/18, and I developed symptoms the following day. I didn't bother getting tested. He was barely sick for about 3 days, but I've
NorasMom
in
My MSAA Community
7 months ago
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Am in need of a bit of tlc
My husband is 88 and has been having treatment for kidney stones, 3 different ops within a short space of time, and is within a whisker of having to have dialysis. My A/Fib has really come back and my bp which had been under control with no meds is now far too high and am taking increasing doses
My husband is 88 and has been having treatment for kidney stones, 3 different ops within a short space of time, and is within a whisker of having to have dialysis. My A/Fib has really come back and my bp which had been under control with no meds is now far too high and am taking increasing doses
GrannyE
in
AF Association
7 months ago
Fistula or Graft
Had my vein mapping today but other that verifying I have tiny veins it was a waste. I have to go back on Fri the 20th to redo it on a non dialysis day to see if a fistula would be possible. Otherwise I’ll have to get a graft. I’m not sure dialysis affected my vein size that much as they don’t take
Had my vein mapping today but other that verifying I have tiny veins it was a waste. I have to go back on Fri the 20th to redo it on a non dialysis day to see if a fistula would be possible. Otherwise I’ll have to get a graft. I’m not sure dialysis affected my vein size that much as they don’t take
horsie63
in
Kidney Dialysis
7 months ago
Switch diet to Vegetarian - save your kidneys
Please kidney patients switch your diet to plant based. I did and it saved me from dialysis. Look up Dadvice on faecbok, Jen Hernandez a dietician who worked in Dialysis patients who now promotes a plant based diet (vegetarian). You can type in Jen Hernandez as a search. Another source has a program
Please kidney patients switch your diet to plant based. I did and it saved me from dialysis. Look up Dadvice on faecbok, Jen Hernandez a dietician who worked in Dialysis patients who now promotes a plant based diet (vegetarian). You can type in Jen Hernandez as a search. Another source has a program
geewhiz
in
Kidney Disease
7 months ago
From Childhood Promise to Life Saving Act: A Kidney Donation Story
As a child, Aaron promised his father, who was on dialysis, that he would donate a kidney to him one day. When he grew up, he fulfilled that promise! Read his inspiring story. https://www.kidney.org/newsletter/childhood-promise-to-life-saving-act-kidney-donation-story
As a child, Aaron promised his father, who was on dialysis, that he would donate a kidney to him one day. When he grew up, he fulfilled that promise! Read his inspiring story. https://www.kidney.org/newsletter/childhood-promise-to-life-saving-act-kidney-donation-story
JackieJ_NKF
Partner
in
Kidney Donation
7 months ago
Hemodialysis Technician Teacher Turned TikTok Star
Lamarr Holland is not only an incredible dialysis educator, but also a TikTok star! Hear how his skills are allowing him to spread information on CKD and dialysis to patients world wide. Learn more at: https://www.kidney.org/newsletter/hemodialysis-technician-teacher-turned-tiktok-star
Lamarr Holland is not only an incredible dialysis educator, but also a TikTok star! Hear how his skills are allowing him to spread information on CKD and dialysis to patients world wide. Learn more at: https://www.kidney.org/newsletter/hemodialysis-technician-teacher-turned-tiktok-star
JackieJ_NKF
Partner
in
Kidney Dialysis
7 months ago
Lab work
Got my labs yesterday and. Was happy to see how well they were. ALB is still low but coming up. Kt/v was 2.41 not sure how they do that on hemo but I’ll take it. Potassium and phosphorus are in range as is hemoglobin. My PTH was low so I need to stop the calciteol. Since my BP at dialysis on Thursday
Got my labs yesterday and. Was happy to see how well they were. ALB is still low but coming up. Kt/v was 2.41 not sure how they do that on hemo but I’ll take it. Potassium and phosphorus are in range as is hemoglobin. My PTH was low so I need to stop the calciteol. Since my BP at dialysis on Thursday
horsie63
in
Kidney Dialysis
7 months ago
dialysis? Can’t decide
trying to decide whether or not to do dialysis
trying to decide whether or not to do dialysis
Merrittimesailing
in
Kidney Disease
7 months ago
AWAK Artificial Kidney Update
I’ve been watching this, among other, innovation research projects for several years. Many focus on HD dialysis, but the AWAK artificial kidney project targets PD dialysis. Below please find a link to a recent YouTube video with an update on this project. Jayhawker https://www.wsj.com/video/awak-wearable-artificial-kidney
I’ve been watching this, among other, innovation research projects for several years. Many focus on HD dialysis, but the AWAK artificial kidney project targets PD dialysis. Below please find a link to a recent YouTube video with an update on this project. Jayhawker https://www.wsj.com/video/awak-wearable-artificial-kidney
Jayhawker
in
Kidney Dialysis
7 months ago
Settling in on HHD, the good, bad and ugly….
It has been a while since I have posted about my journey with HHD. It has been five months. Big difference from when I started. A week ago, Friday was our first time totally alone. Up to this point, I had a med tech who was coming to make sure I cannulated ok and got on. She had stopped cannulating me
It has been a while since I have posted about my journey with HHD. It has been five months. Big difference from when I started. A week ago, Friday was our first time totally alone. Up to this point, I had a med tech who was coming to make sure I cannulated ok and got on. She had stopped cannulating me
Bassetmommer
NKF Ambassador
in
Kidney Disease
2 months ago
struggling with fatigue, anyone else?
I was recently in hospital and ended up very ill with sepsis and I’m also on dialysis 3 times a week but since I got discharged I’m really struggling and the simple tasks totally exhausts me. I’m hoping I will get better over time but I hate feeling so weak. Before I went in hospital
I was recently in hospital and ended up very ill with sepsis and I’m also on dialysis 3 times a week but since I got discharged I’m really struggling and the simple tasks totally exhausts me. I’m hoping I will get better over time but I hate feeling so weak. Before I went in hospital
SpringersRock
in
Kidney Dialysis
7 months ago
ckd stage 3 that is me now
hello i had covid two years ago ended up with renal failure kidneys working at 15% they are now at 50% after being on 80 mg of predinsone now on 5mg. not on dialysis have numerous medical conditions just need to loose 50 pounds because of prednisone i am 69 and need none pills to get healthy. i need
hello i had covid two years ago ended up with renal failure kidneys working at 15% they are now at 50% after being on 80 mg of predinsone now on 5mg. not on dialysis have numerous medical conditions just need to loose 50 pounds because of prednisone i am 69 and need none pills to get healthy. i need
Pattysckd69
in
Kidney Disease
8 months ago
Seeking advice and comfort, please help.
Hello, I’m a girlfriend to my boyfriend who is stage 4. And a step mom to his 11 year old daughter who is my own. My boyfriend was born with one kidney; took care of himself and now we are at the point where he needs dialysis. He’s already on the transplant list. It gets hard knowing how tired he is
Hello, I’m a girlfriend to my boyfriend who is stage 4. And a step mom to his 11 year old daughter who is my own. My boyfriend was born with one kidney; took care of himself and now we are at the point where he needs dialysis. He’s already on the transplant list. It gets hard knowing how tired he is
HopeAngel5
in
Kidney Disease
8 months ago
turned down transplant
Hi there comrades, My husband (age 56) just turned down ‘ the call’ and I am , we are absolutely shaken by the decision even though we spoke about it before I did not think he would really carry it through. He lived through 2 very complicated & traumatic transplants that didn’t necessarily give him
Hi there comrades, My husband (age 56) just turned down ‘ the call’ and I am , we are absolutely shaken by the decision even though we spoke about it before I did not think he would really carry it through. He lived through 2 very complicated & traumatic transplants that didn’t necessarily give him
Jfkh30
in
Kidney Dialysis
8 months ago
9-27-23 update
Just got back from appt with my new Nephrologist. Went over all my records, test results, current health, etc What a difference! As all are aware, my egfr dropped from 47 to 33 almost overnight. Have added Resveratrol for 6 weeks & found gfr up to 37 & now the last one is at 41. Creatinine is high
Just got back from appt with my new Nephrologist. Went over all my records, test results, current health, etc What a difference! As all are aware, my egfr dropped from 47 to 33 almost overnight. Have added Resveratrol for 6 weeks & found gfr up to 37 & now the last one is at 41. Creatinine is high
WalesPrincess
in
Kidney Disease
8 months ago
Stage 5 renal failure plus dialysis and cirrhosis of the liver
Wondering if anyone else in the world is dealing with these two together. My husband is, and we're scared. We're hopeful, but doctors don't know how this happened other than being diabetic for decades. Never a drop of alcohol, but a heavy meat eater. Diabetes is in control, A1C too, but hemodialysis
Wondering if anyone else in the world is dealing with these two together. My husband is, and we're scared. We're hopeful, but doctors don't know how this happened other than being diabetic for decades. Never a drop of alcohol, but a heavy meat eater. Diabetes is in control, A1C too, but hemodialysis
Cinderella60
in
British Liver Trust
8 months ago
Back home from hospital
Got released Thursday after dialysis and back home by 530 pm. Took forever to get the discharge paperwork, get the IV out and the supplies to change my dressing. I have several follow up appointments and new meds. I med to gain 10-15 pounds and get my strength back. For the most part my labs are good
Got released Thursday after dialysis and back home by 530 pm. Took forever to get the discharge paperwork, get the IV out and the supplies to change my dressing. I have several follow up appointments and new meds. I med to gain 10-15 pounds and get my strength back. For the most part my labs are good
horsie63
in
Kidney Dialysis
8 months ago
Amino Acids-Protein Hydrolysate - the generic form of Pro-Stat RC.
Does anyone on Dialysis use Amino Acids-Protein Hydrolysate, the generic form of Pro-Stat RC? If so, how does it taste. I've tried LiquaCel and it's just nasty.
Does anyone on Dialysis use Amino Acids-Protein Hydrolysate, the generic form of Pro-Stat RC? If so, how does it taste. I've tried LiquaCel and it's just nasty.
RonZone
in
Kidney Dialysis
8 months ago
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