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Continuous Ambulatory Peritoneal Dialysis
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Settling in on HHD, the good, bad and ugly….
It has been a while since I have posted about my journey with HHD. It has been five months. Big difference from when I started. A week ago, Friday was our first time totally alone. Up to this point, I had a med tech who was coming to make sure I cannulated ok and got on. She had stopped cannulating me
It has been a while since I have posted about my journey with HHD. It has been five months. Big difference from when I started. A week ago, Friday was our first time totally alone. Up to this point, I had a med tech who was coming to make sure I cannulated ok and got on. She had stopped cannulating me
Bassetmommer
NKF Ambassador
in
Kidney Disease
6 months ago
Low Blood pressure
Just out of interest, how low does your blood pressure go during dialysis?I am in a session now, and it went down to 74/ 41 a couple of hours ago. I felt really quite unwell. Having been told off in the past for not calling a nurse, today I pressed my call button. Unfortunately, it wasn't properly plugged
Just out of interest, how low does your blood pressure go during dialysis?I am in a session now, and it went down to 74/ 41 a couple of hours ago. I felt really quite unwell. Having been told off in the past for not calling a nurse, today I pressed my call button. Unfortunately, it wasn't properly plugged
Mich1949
in
Kidney Dialysis
10 months ago
The Seat of the Soul_Lili
Hello, my name is Arlene Hernandez and my 32 year old daughter has been on dialysis since she was in her early 20's. She received her first transplant in 2020 but it failed. We are now facing painful times because she is in dire need of a kidney transplant. She has a someone who is going through the
Hello, my name is Arlene Hernandez and my 32 year old daughter has been on dialysis since she was in her early 20's. She received her first transplant in 2020 but it failed. We are now facing painful times because she is in dire need of a kidney transplant. She has a someone who is going through the
lassirenas
in
Kidney Donation
10 months ago
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Need some support from fellow travelers
I have not posted in a while. I am still going to the center for my treatments and training. The training has been thorough on their behalf. I am cannot express how hard this has been for me. I have tried to learn as much as I can and now can get the machine prepped for dialysis and we, my husband and
I have not posted in a while. I am still going to the center for my treatments and training. The training has been thorough on their behalf. I am cannot express how hard this has been for me. I have tried to learn as much as I can and now can get the machine prepped for dialysis and we, my husband and
Bassetmommer
in
Kidney Dialysis
10 months ago
Cancer/AKI to low GFR
Forgive me if this is in the wrong forum, wasn't sure where to post. In March this year I was diagnosed with a large tumor (6 in, 4.5lbs) on my left kidney. I had no symptoms but had some lower abdominal pain that lasted about a week which caused me to get a CT scan and the tumor was discovered. The
Forgive me if this is in the wrong forum, wasn't sure where to post. In March this year I was diagnosed with a large tumor (6 in, 4.5lbs) on my left kidney. I had no symptoms but had some lower abdominal pain that lasted about a week which caused me to get a CT scan and the tumor was discovered. The
Jwbak
in
Kidney Disease
10 months ago
I feel angry and devalued.
Today, in our dialysis unit, we have an unusual number of agency nurses. Most of them are are from India.During my session this morning, the nurse looking after me today ( also from India) decided to do a flow test check on me, by hooking me up to a machine that checks the flow rate. This happens maybe
Today, in our dialysis unit, we have an unusual number of agency nurses. Most of them are are from India.During my session this morning, the nurse looking after me today ( also from India) decided to do a flow test check on me, by hooking me up to a machine that checks the flow rate. This happens maybe
Mich1949
in
Kidney Dialysis
10 months ago
New to in center HD
I'm in my 2nd week of in center HD and have been experiencing terrible bloating and gas. Is this related to the dialysis, or is something else going on? Juvenile diabetic, CHF, hypertension. Kidney function been decreasing last 5 years. I've been on transplant list (kidney/pancreas) for one year, was
I'm in my 2nd week of in center HD and have been experiencing terrible bloating and gas. Is this related to the dialysis, or is something else going on? Juvenile diabetic, CHF, hypertension. Kidney function been decreasing last 5 years. I've been on transplant list (kidney/pancreas) for one year, was
HersheeKisses
in
Kidney Dialysis
10 months ago
pd dialysis how many hours do you do
I just wanted to say thank you to those who. Told me dialysis drain pain will get better. When I started in February on pd dialysis I was on my knee every time it drain . I was like no way my nurse and yall kept saying giving it time I admit I thought you all were crazy . But I may have a little time
I just wanted to say thank you to those who. Told me dialysis drain pain will get better. When I started in February on pd dialysis I was on my knee every time it drain . I was like no way my nurse and yall kept saying giving it time I admit I thought you all were crazy . But I may have a little time
Beachgirl32
in
Kidney Dialysis
10 months ago
Augmentation and how to move on.
Hi I have kidney failure and am on dialysis 3 times a week. I have severe RLS. My specialist has prescribed me 100mg Pre Gablin together with 0.44mg of pramipexole daily. I have, over a period of 3 Months been increasing my dose of pramipexole from the minimum to where we are now. The combination
Hi I have kidney failure and am on dialysis 3 times a week. I have severe RLS. My specialist has prescribed me 100mg Pre Gablin together with 0.44mg of pramipexole daily. I have, over a period of 3 Months been increasing my dose of pramipexole from the minimum to where we are now. The combination
TonyLewry
in
Restless Legs Syndrome
10 months ago
What does having a NEW KIDNEY feel like?
Hi All, I have been in the transplant list for a year now and still waiting to get called. I can’t just help to wonder what having a kidney transplant will feel like. Apart from the fact that it will be a gift of life and freedom from being tied down to dialysis. What does it feel like? Will you
Hi All, I have been in the transplant list for a year now and still waiting to get called. I can’t just help to wonder what having a kidney transplant will feel like. Apart from the fact that it will be a gift of life and freedom from being tied down to dialysis. What does it feel like? Will you
Imaanforever
in
Kidney Dialysis
10 months ago
Dialysis / RLS
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
bumblebee_tuna
in
Restless Legs Syndrome
1 year ago
ureter strictures
hey all! 76 y/0 male with grade 4 kidney disease for about 2 years now. GFR runs about 27.5, creatinine about 2.4, and BUN about 39. I have to go every 4 months for urinary stent replacements, due to ureter strictures. Would a cadavers transplant be of benefit, or would I even qualify? What about
hey all! 76 y/0 male with grade 4 kidney disease for about 2 years now. GFR runs about 27.5, creatinine about 2.4, and BUN about 39. I have to go every 4 months for urinary stent replacements, due to ureter strictures. Would a cadavers transplant be of benefit, or would I even qualify? What about
Phillip46
in
Kidney Disease
10 months ago
Lee75glom
I have a eGFR of 10 and still avoiding dialysis. I am 75 and the transplant team will not consider a deceased kidney. So I am searching for a live donor. I have 2 people I know who are being evaluated. I am awaiting approval of my story on National Kidney Registry. I also am waiting for my story
I have a eGFR of 10 and still avoiding dialysis. I am 75 and the transplant team will not consider a deceased kidney. So I am searching for a live donor. I have 2 people I know who are being evaluated. I am awaiting approval of my story on National Kidney Registry. I also am waiting for my story
Lee75glom
in
Kidney Disease
10 months ago
Update
Hi all. It has been 3 yrs now since my brother came out of ICU and then to a ward and into a home to clear space in Hospital during Covid. Unfortunately his muscles wasted away within a month of being in ICU and the inability to move from the neck down . He is classed as quadrapleagic. His legs have
Hi all. It has been 3 yrs now since my brother came out of ICU and then to a ward and into a home to clear space in Hospital during Covid. Unfortunately his muscles wasted away within a month of being in ICU and the inability to move from the neck down . He is classed as quadrapleagic. His legs have
Twoblu
in
ICUsteps
10 months ago
Niki10.
I am new to Dialysis. Does anyone have cramping during Dialysis?
I am new to Dialysis. Does anyone have cramping during Dialysis?
Niki10
in
Kidney Dialysis
10 months ago
Sick for weeks
Have been sick for weeks. Went into hospital with a drowning feeling and heart rate would go up to 140/160. The drowning feeling has improved just happens after a few hours of dialysis with chest pain. My heartrate is controlled by medication now. Have had ECGs CT Scans xrays and an angiogram my heart
Have been sick for weeks. Went into hospital with a drowning feeling and heart rate would go up to 140/160. The drowning feeling has improved just happens after a few hours of dialysis with chest pain. My heartrate is controlled by medication now. Have had ECGs CT Scans xrays and an angiogram my heart
Jinnyjin
in
Kidney Dialysis
10 months ago
Help Get a Job
Are there any resources that can help someone on Dialysis get a Job? I graduated college about a year ago and have yet to find gainful employment.
Are there any resources that can help someone on Dialysis get a Job? I graduated college about a year ago and have yet to find gainful employment.
StormCl0ud
in
Kidney Dialysis
10 months ago
No desire for sex,Elevated psa levels,biopsy
they say the biopsy is painful like having twelve bee stings all at once. Is that true? I am taking fenbendozole. Diabetic also on dialysis.
they say the biopsy is painful like having twelve bee stings all at once. Is that true? I am taking fenbendozole. Diabetic also on dialysis.
theclevergiver
in
Men's Health Forum (Penis Health)
10 months ago
dialysis question?
i was wondering if they tell you you re not a candidate for a transplant is there a time limit you can be on dialysis or can insurance put a limit on it?
i was wondering if they tell you you re not a candidate for a transplant is there a time limit you can be on dialysis or can insurance put a limit on it?
S_dillow
in
Kidney Disease
10 months ago
Kidney transplant stage 4 20 percent kidney function but don't have symptoms.
Hi everyone I hope everyone is doing well . Well it's been 22 years years with my kidney transplant and unfortunately I'm already at stage 4 20 percent kidney function. I have was hoping that this second time going to the dr my percent will be a little higher but no 😔. I'm so worried and scare I don't
Hi everyone I hope everyone is doing well . Well it's been 22 years years with my kidney transplant and unfortunately I'm already at stage 4 20 percent kidney function. I have was hoping that this second time going to the dr my percent will be a little higher but no 😔. I'm so worried and scare I don't
jennifer24
in
Kidney Transplant
10 months ago
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