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And another question, this for the people who have the AV fistula but are not yet on dialysis or had it for a while before dialysis.
My neph, at my last visit, suggested I get the AV fistula right away. She said it could take a year to heal. My eGFR is at 30 and I think she is rushing me to get it. I'm 80 and maybe she is thinking that I'm going to go into an emergency situation and then the catheter thingy they use then. I would
My neph, at my last visit, suggested I get the AV fistula right away. She said it could take a year to heal. My eGFR is at 30 and I think she is rushing me to get it. I'm 80 and maybe she is thinking that I'm going to go into an emergency situation and then the catheter thingy they use then. I would
jodaer
in
Kidney Disease
9 months ago
pd dialysis and swimming ?
last week it was so hot here I wanted to get in a pool so bad. But I’m extra careful with my exit site . But I read stories where people say they swim in the salt water ocean or a pool . And had no problems. I am wanting to hear from any of you who have gone swimming have you gone in an ocean or a
last week it was so hot here I wanted to get in a pool so bad. But I’m extra careful with my exit site . But I read stories where people say they swim in the salt water ocean or a pool . And had no problems. I am wanting to hear from any of you who have gone swimming have you gone in an ocean or a
Beachgirl32
in
Kidney Dialysis
9 months ago
Navigating College, Dialysis, and Transplant: One Advocate’s Kidney Disease Journey
From living the carefree college life to living life on dialysis, Lance Mason's CKD journey was anything but easy. See how he turned his struggle into passion as a Voices for Kidney Health Advocate. #MyKidneyVoice Learn more: https://www.kidney.org/newsletter/advocacy/navigating-college-dialysis-and-transplant-one-advocate-s-kidney-disease-journey
From living the carefree college life to living life on dialysis, Lance Mason's CKD journey was anything but easy. See how he turned his struggle into passion as a Voices for Kidney Health Advocate. #MyKidneyVoice Learn more: https://www.kidney.org/newsletter/advocacy/navigating-college-dialysis-and-transplant-one-advocate-s-kidney-disease-journey
JackieJ_NKF
Partner
in
Parents of Children with Kidney Disease
10 months ago
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Dialysis and transplant.
I want to tell everyone my experience, with dialysis and trying to be put transplant list.The experiences I have had at have been good and bad. The good is when I no cramps and good blood pressure. The is when the total opposite. This has happened several times. I would say be your own advocate.
I want to tell everyone my experience, with dialysis and trying to be put transplant list.The experiences I have had at have been good and bad. The good is when I no cramps and good blood pressure. The is when the total opposite. This has happened several times. I would say be your own advocate.
Fsgs57
in
Kidney Dialysis
10 months ago
For anyone and everyoneand those that dont see the helpfullness. Thank you
Ive randomly come on here and read alot of posts...my heart pours out to anyone feeling down...as I struggle everyday and thats beimg completely honest...STORMCLOUDS POST MAKES ME cry as even in my 40s i get it beimg new to dialysis my self...i couldnt evem begin to realize the journey most of you have
Ive randomly come on here and read alot of posts...my heart pours out to anyone feeling down...as I struggle everyday and thats beimg completely honest...STORMCLOUDS POST MAKES ME cry as even in my 40s i get it beimg new to dialysis my self...i couldnt evem begin to realize the journey most of you have
Sod6pnts
in
Kidney Dialysis
10 months ago
Frustrations
I have been on PD since November '22. Since that time I have been experiencing nightly issues with the cycler to which my husband and I have had one week in nine months of being able to sleep the night through. (No clue why it worked that one week.) We have been doing as suggested by our care team to
I have been on PD since November '22. Since that time I have been experiencing nightly issues with the cycler to which my husband and I have had one week in nine months of being able to sleep the night through. (No clue why it worked that one week.) We have been doing as suggested by our care team to
Sharon421
in
Kidney Disease
10 months ago
Why it is important to advocate for yourself
I have been on this journey for many years and have shared most of my experience. I want to share the latest snafu, because it is so infuriating. I went through the transplant evaluation in 2021. Completed all the tests and was told this: My BMI was too high and that on the nuclear test, they found
I have been on this journey for many years and have shared most of my experience. I want to share the latest snafu, because it is so infuriating. I went through the transplant evaluation in 2021. Completed all the tests and was told this: My BMI was too high and that on the nuclear test, they found
Bassetmommer
NKF Ambassador
in
Kidney Disease
10 months ago
Worried about withdrawing from DHC Continus
Due to a spinal injury some 20+ yrs ago, I was put on Dihydrocodeine Continus, 60mg tabs 3 times a day. GP has just been reissuing the prescription for the last 20 odd yrs without really discussing these meds with me, or about changing for another drug. Now after 20yrs they just suddenly stop the prescription
Due to a spinal injury some 20+ yrs ago, I was put on Dihydrocodeine Continus, 60mg tabs 3 times a day. GP has just been reissuing the prescription for the last 20 odd yrs without really discussing these meds with me, or about changing for another drug. Now after 20yrs they just suddenly stop the prescription
D95GAS
in
Pain Concern
4 months ago
grade 5 reflux with a neurogenic bladder
my son (now 8 months old) was diagnosed with a grade 5 reflux along with a neurogenic bladder post his mcu and cystoscopy which were performed when he was almost a month old, after a life threatening episode of sepsis. The reflux situation caused urine to build up in the kidneys, so much so that one
my son (now 8 months old) was diagnosed with a grade 5 reflux along with a neurogenic bladder post his mcu and cystoscopy which were performed when he was almost a month old, after a life threatening episode of sepsis. The reflux situation caused urine to build up in the kidneys, so much so that one
Anxiousmom97
in
Parents of Children with Kidney Disease
10 months ago
HeRO graft
Hi, I’m new onto dialysis which I’ve been getting for the last 2 months or so, I have a femoral line in at the moment but due to get a hero graft, does anyone know much about it or experience of one please. I’m not really sure what to expect. I have seen vascular surgeon who said they will take an artery
Hi, I’m new onto dialysis which I’ve been getting for the last 2 months or so, I have a femoral line in at the moment but due to get a hero graft, does anyone know much about it or experience of one please. I’m not really sure what to expect. I have seen vascular surgeon who said they will take an artery
SpringersRock
in
Kidney Dialysis
10 months ago
I’m hospital
I’ve been here since Tuesday because I have this uncontrollable shaking/tremors. Happy to say that dialysis here follows protocol but with a liberty cycler. They have run a bunch of tests but no answer. They even did 5 cycles.
I’ve been here since Tuesday because I have this uncontrollable shaking/tremors. Happy to say that dialysis here follows protocol but with a liberty cycler. They have run a bunch of tests but no answer. They even did 5 cycles.
horsie63
in
Kidney Dialysis
10 months ago
liver dialysis
hello Has anyone heard of this new treatment “Liver Dialysis’ apparently cleans your liver out of toxins, improves your bloods? I’m seeing my transplant team for the first time on 9th Aug and apparently I think I’m boarderline if I need a transplant, so was wondering if this treatment would be better
hello Has anyone heard of this new treatment “Liver Dialysis’ apparently cleans your liver out of toxins, improves your bloods? I’m seeing my transplant team for the first time on 9th Aug and apparently I think I’m boarderline if I need a transplant, so was wondering if this treatment would be better
Harriet-sarah
in
British Liver Trust
10 months ago
After 22 years with my transplant and 5 years on stage 3 now just recently at stage 4 really worried terrified!!!
Hi everyone hope you guys are well. Well I'm really worried have mix emotions after 22 years and 5 years on ckd stage 3 I'm recently reach stage 4 . I feel hopeless my gfr was at 28i. Two months at 21 my dr was shocked he was sure it will go back up. Ever since I change jobs where I work at is busy I'm
Hi everyone hope you guys are well. Well I'm really worried have mix emotions after 22 years and 5 years on ckd stage 3 I'm recently reach stage 4 . I feel hopeless my gfr was at 28i. Two months at 21 my dr was shocked he was sure it will go back up. Ever since I change jobs where I work at is busy I'm
jennifer24
in
Kidney Transplant
10 months ago
AAAGGGHHHH
I have been having issues with my fistula arm. My hand has been going numb and I have also had really bad pins and needles. This has been going on, since Christmas. I have been telling the staff at the dialysis unit, nearly every week but they didn't seem bothered. The nurse practitioner diagnosed it
I have been having issues with my fistula arm. My hand has been going numb and I have also had really bad pins and needles. This has been going on, since Christmas. I have been telling the staff at the dialysis unit, nearly every week but they didn't seem bothered. The nurse practitioner diagnosed it
Ziggydoodah
in
Kidney Disease
10 months ago
Garden 15
Good morning fellow sufferers. Reading your news feeds I see many of you have a much higher gfr than me. Not sure if this is encouraging, nor how long it will last, but my gfr was 15 last November. I have not had dialysis, and am on a strict vegan diet. No alcohol. Some exercise but limited due to skeletal
Good morning fellow sufferers. Reading your news feeds I see many of you have a much higher gfr than me. Not sure if this is encouraging, nor how long it will last, but my gfr was 15 last November. I have not had dialysis, and am on a strict vegan diet. No alcohol. Some exercise but limited due to skeletal
ellen3
in
dRTA (distal Renal Tubular Acidosis)
10 months ago
CKD, Fistuala and exercise
I'm 60 and have CKD for around 3.5 years. The medicos thought I'd be on dialysis by now so I have an unused brachiocephalic fistula in left arm. It is just above the elbow crack. The transplant folks wanted me to lose weight. I started Wegovy, go to the YMCA 5 nights a week and eat once a day. I got
I'm 60 and have CKD for around 3.5 years. The medicos thought I'd be on dialysis by now so I have an unused brachiocephalic fistula in left arm. It is just above the elbow crack. The transplant folks wanted me to lose weight. I started Wegovy, go to the YMCA 5 nights a week and eat once a day. I got
barbara55109
in
Kidney Disease
10 months ago
3 years later
I know it's 3 years later but I wanted to write this in case someone needed to see. This thread helped me so much when my dad was in the ICU on a ventilator. When they took my dad off of sedation he didn't wake up right away. He is a peritoneal dialysis patient and drugs leave his system much slower.
I know it's 3 years later but I wanted to write this in case someone needed to see. This thread helped me so much when my dad was in the ICU on a ventilator. When they took my dad off of sedation he didn't wake up right away. He is a peritoneal dialysis patient and drugs leave his system much slower.
Sandwichesandchips
in
ICUsteps
1 year ago
Just getting started in this process.
My good friend is 66 and has had CKF for quite a few years, He is at the #4 stage and holding. He hopes to get a transplant as he won't do dialysis. I'm hoping to be considered as a donor, but don't know anything about the health requirements. My main questions are concerning my obesity and former status
My good friend is 66 and has had CKF for quite a few years, He is at the #4 stage and holding. He hopes to get a transplant as he won't do dialysis. I'm hoping to be considered as a donor, but don't know anything about the health requirements. My main questions are concerning my obesity and former status
kangafan
in
Kidney Donation
10 months ago
Low kt/v score
Ok time for a 6 month update: So after 6 months of PD dialysis, my kt/v score from my 48 hour urine collection, PD sample, and blood test this week came back as 1.43. This was after they increased my volume to 2300ml per exchange, 4 exchanges a night over 10 hours. So I'm still flunking that test. At
Ok time for a 6 month update: So after 6 months of PD dialysis, my kt/v score from my 48 hour urine collection, PD sample, and blood test this week came back as 1.43. This was after they increased my volume to 2300ml per exchange, 4 exchanges a night over 10 hours. So I'm still flunking that test. At
RonZone
in
Kidney Dialysis
10 months ago
when to start dialysis
My GFR just hit 15 and my nephrologist says I can start PD dialysis as soon as I want and it may improve the way I feel. Seems like a huge decision to make as I dont think I feel that bad but who knows. How did people decide when to start dialysis and do you feel better now that you are doing it.
My GFR just hit 15 and my nephrologist says I can start PD dialysis as soon as I want and it may improve the way I feel. Seems like a huge decision to make as I dont think I feel that bad but who knows. How did people decide when to start dialysis and do you feel better now that you are doing it.
Oceanviewed
in
Kidney Dialysis
10 months ago
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