Search
Search
About
Log in
Join
Experiences with
Conditions and diseases
Posts
Communities
94,672 public posts
Filter results
Newsystem23
Not posted for a while, hope everyone is managing their lupus symptoms as best they can. I did think that using 50spf sun screen and taking hydroxychloroquine would keep my skin lupus at bay. However, I'm beginning to realise it is not just the sun and artificial light that my skin is sensitive to.
Not posted for a while, hope everyone is managing their lupus symptoms as best they can. I did think that using 50spf sun screen and taking hydroxychloroquine would keep my skin lupus at bay. However, I'm beginning to realise it is not just the sun and artificial light that my skin is sensitive to.
Newsystem23
in
LUPUS UK
3 months ago
Weight Training
Hi, After some advice or thoughts really. I have glaucoma in one eye, damage already done, had a couple of surgeries to help with pressure (MIGS) and am now 6 months removed from that last one. Is like to start building muscle as I am not getting younger (49 at the moment) and have read conflicting
Hi, After some advice or thoughts really. I have glaucoma in one eye, damage already done, had a couple of surgeries to help with pressure (MIGS) and am now 6 months removed from that last one. Is like to start building muscle as I am not getting younger (49 at the moment) and have read conflicting
Jeffvader
in
Glaucoma UK
2 months ago
Nocturia
Ever since my radiotherapy and brachytherapy 2 months ago I have been suffering nocturia, sometimes being forced awake 5 times a night by a painful call and having little or no product when staggering once again to the toilet for a little dribble. I am now trying to limit the liquid I drink during the
Ever since my radiotherapy and brachytherapy 2 months ago I have been suffering nocturia, sometimes being forced awake 5 times a night by a painful call and having little or no product when staggering once again to the toilet for a little dribble. I am now trying to limit the liquid I drink during the
tunybgur
in
Advanced Prostate Cancer
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
REMINDER! Harrogate Lupus Group - Coffee and Chat meeting - 2nd March 10.30am
REMINDER! Saturday 2nd March, the Harrogate Lupus Group will be meeting at 10.30am, at the Woodlands Methodist Church Hall, 71 Wetherby Road, Harrogate, HG2 7SG. We will be joined by Frances Pearson, who will be talking about her ideas on the Lupus Observatory. Everyone is welcome to join! If you
REMINDER! Saturday 2nd March, the Harrogate Lupus Group will be meeting at 10.30am, at the Woodlands Methodist Church Hall, 71 Wetherby Road, Harrogate, HG2 7SG. We will be joined by Frances Pearson, who will be talking about her ideas on the Lupus Observatory. Everyone is welcome to join! If you
michaellasmith
Administrator
in
LUPUS UK
4 months ago
Going To Self Inject -Questions
Hi, I’ve had 4 inputs over several months from GP’s and consultants with hope being built up then crashed. I am on 3 monthly jabs, as with so many others, is no where near enough. I’ve had the loading doses which returned me to normal functioning half way through 2nd week. Took bloods after last jab
Hi, I’ve had 4 inputs over several months from GP’s and consultants with hope being built up then crashed. I am on 3 monthly jabs, as with so many others, is no where near enough. I’ve had the loading doses which returned me to normal functioning half way through 2nd week. Took bloods after last jab
B12again
in
Pernicious Anaemia Society
8 months ago
Any Tips re recovery from Peritonitis, ruptured caecum, appendicitis
Hello all Was ambulanced in just over a week ago due to all the above suddenly becoming acute They resectioned my bowel, removing the ileocecal valve & appendix am 70 with several infant onset immune dysfunction & connective tissue disorder illnesses long-diagnosed & responding ok to nhs treatments
Hello all Was ambulanced in just over a week ago due to all the above suddenly becoming acute They resectioned my bowel, removing the ileocecal valve & appendix am 70 with several infant onset immune dysfunction & connective tissue disorder illnesses long-diagnosed & responding ok to nhs treatments
Barnclown
in
Crohn's and Colitis Support
8 months ago
pulmonary hypertention
recently diagnosed with pulmonary hypertension with blood clots in my lungs i have had 2 right heart catheters and it is improving with some meditation of Adempst and a blood thinner…. The pulmonary dr wants to do a balloon angioplasty….. Has anyone had this procedure ?
recently diagnosed with pulmonary hypertension with blood clots in my lungs i have had 2 right heart catheters and it is improving with some meditation of Adempst and a blood thinner…. The pulmonary dr wants to do a balloon angioplasty….. Has anyone had this procedure ?
AllEars
in
MPN Voice
2 months ago
Journey to recovery
Hi everyone, I’m in my second month of recovery from IBS. Try Peppermint oil capsules (not the sweets) 30 minutes to 1 hour before your meal; 15 minutes it’s quite ok. The Holland & Barrets is highly recommended . I also take 2 glasses of water every morning before breakfast. Your mental health also
Hi everyone, I’m in my second month of recovery from IBS. Try Peppermint oil capsules (not the sweets) 30 minutes to 1 hour before your meal; 15 minutes it’s quite ok. The Holland & Barrets is highly recommended . I also take 2 glasses of water every morning before breakfast. Your mental health also
overcomer42
in
IBS Network
2 months ago
BLOOD RESULTS - HELP PLEASE
GP didn't do a great job of translating. My learned friends can probably do much better: ESR 5.8 CRP 5.0 LDL 3.89 HDL 1.89 TC 6.3 (should the LDL and HDL not add up) Triglycerides 1.48 Glucose 5 My BP is controlled with meds. I do not want to go on a statin. She wants me on one. What do you all think
GP didn't do a great job of translating. My learned friends can probably do much better: ESR 5.8 CRP 5.0 LDL 3.89 HDL 1.89 TC 6.3 (should the LDL and HDL not add up) Triglycerides 1.48 Glucose 5 My BP is controlled with meds. I do not want to go on a statin. She wants me on one. What do you all think
Missus835
in
PMRGCAuk
2 months ago
Ursodeoxycholic acid
Hi, I've been on urso 2000mg daily for 8 years now, but it seems to give me diarrhoea lately. Does anyone else have this trouble, also does it mean it has stopped working? Thank you for any help.
Hi, I've been on urso 2000mg daily for 8 years now, but it seems to give me diarrhoea lately. Does anyone else have this trouble, also does it mean it has stopped working? Thank you for any help.
Hidden
in
PBC Foundation
2 months ago
DVLA vision test
I am past 70 so needed to apply for license renewal. I know I have glaucoma in one eye so when I filled out the form online I ticked the box for eye conditions. I’m pretty certain that one of the questions was one or both eyes, I ticked one eye only. Few week later got the dreaded DVLA letter. This surprised
I am past 70 so needed to apply for license renewal. I know I have glaucoma in one eye so when I filled out the form online I ticked the box for eye conditions. I’m pretty certain that one of the questions was one or both eyes, I ticked one eye only. Few week later got the dreaded DVLA letter. This surprised
BadRob
in
Glaucoma UK
2 months ago
Baclofen pump
Hello my dear friends, My spasticity has gotten worse in my legs. I did a baclofen pump trial about 20 years ago. Made my legs too weak. Now I have much tone, especially my right leg. I don't think much had changed. I am still ambulatory, some days use nothing, trekking pole(s) or a rolator, depending
Hello my dear friends, My spasticity has gotten worse in my legs. I did a baclofen pump trial about 20 years ago. Made my legs too weak. Now I have much tone, especially my right leg. I don't think much had changed. I am still ambulatory, some days use nothing, trekking pole(s) or a rolator, depending
TonyiaR7
in
My MSAA Community
2 months ago
Laryngitis and lupus
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
Hi, I am having my 2nd bout of laryngitis in 10 weeks, having never having had it before. I have just looked on Doctor Google and it says that my laryngitis can be caused by my lupus. Is this correct? Is this something I need to mention to my lupus specialist? I am due to start on methotrexate next
pattypatchwork
in
LUPUS UK
4 months ago
MRI results…how long to wait?
Hi guys, hope you’re all okay. So I had my pelvic MRI scan on Monday, it was awful as I was in the scanner for an hour and 10mins 😥. I stayed strong and got through it though as I know it was important. Just wondered how long you’ve had to wait for results (with nhs). My letter said up to six weeks.
Hi guys, hope you’re all okay. So I had my pelvic MRI scan on Monday, it was awful as I was in the scanner for an hour and 10mins 😥. I stayed strong and got through it though as I know it was important. Just wondered how long you’ve had to wait for results (with nhs). My letter said up to six weeks.
endowarrior12
in
Endometriosis UK
2 months ago
Drops affecting eyelashes
I'm 41, had a combined trab & lens replacement in right eye 2 years ago and just lens replacement in left eye a few months later. Now the only drops I take are Dorzolamide timolol in the left eye, twice a day.I switched to the preservative free drops a few months ago but I think it's negatively affecting
I'm 41, had a combined trab & lens replacement in right eye 2 years ago and just lens replacement in left eye a few months later. Now the only drops I take are Dorzolamide timolol in the left eye, twice a day.I switched to the preservative free drops a few months ago but I think it's negatively affecting
LyndseyMoo
in
Glaucoma UK
2 months ago
New diagnosis
Hi there, I got I'll from glandular fever in my late teens and have been given different diagnosis over the years and now I have been told I have rheumatoid arthritis. I'm hopefully going to start sulfasalazine and just wondered has this been successful for people? I've been so fatigued for so long,
Hi there, I got I'll from glandular fever in my late teens and have been given different diagnosis over the years and now I have been told I have rheumatoid arthritis. I'm hopefully going to start sulfasalazine and just wondered has this been successful for people? I've been so fatigued for so long,
DogsMakeLifeGood
in
NRAS
4 months ago
TSH 37 - taking Levothyroxine 200mg
hi I was hoping to get some help / advice I have suffered with underactive thyroid for around 4/5 years Started on 75mg Levothyroxine had regular repeat tests over the years and doctor has just increased my Levothyroxine dose each time as my TSH has not reduced my latest result was a TSH of 37
hi I was hoping to get some help / advice I have suffered with underactive thyroid for around 4/5 years Started on 75mg Levothyroxine had regular repeat tests over the years and doctor has just increased my Levothyroxine dose each time as my TSH has not reduced my latest result was a TSH of 37
Jadewhitcombe
in
Thyroid UK
4 months ago
Apixaban rash
Diagnosed with DVT 4 weeks ago and prescribed Apixaban for life. This is my 3rd DVT. No problems for weeks and then a rash, very itchy, has developed on upper chest and top of arms. Occasional clusters elsewhere too. Just looking for general comments please before seeking potential switch to warfarin
Diagnosed with DVT 4 weeks ago and prescribed Apixaban for life. This is my 3rd DVT. No problems for weeks and then a rash, very itchy, has developed on upper chest and top of arms. Occasional clusters elsewhere too. Just looking for general comments please before seeking potential switch to warfarin
Falcon9
in
Atrial Fibrillation Support
2 months ago
New Sufferer advice
Hi Everybody My name is Daniel I have had to call out for some help or advice from this community please. I had never thought something like this would start to completely alter my life. I woke up one morning.... and had this "yinggggggg" sound in my left ear... it was annoying but i just thought
Hi Everybody My name is Daniel I have had to call out for some help or advice from this community please. I had never thought something like this would start to completely alter my life. I woke up one morning.... and had this "yinggggggg" sound in my left ear... it was annoying but i just thought
dannyboy1973
in
Tinnitus UK
2 months ago
Insomnia and Felodipine ?
Hi everyoneI have been on Felodipine for several weeks now after trying many other drugs for BP. While I feel a lot better on these drugs my existing insomnia is now off the scale!. I am now averaging 3 or 4 hours a night and over the counter sleeping pills aren't helping much. My GP says she has ran
Hi everyoneI have been on Felodipine for several weeks now after trying many other drugs for BP. While I feel a lot better on these drugs my existing insomnia is now off the scale!. I am now averaging 3 or 4 hours a night and over the counter sleeping pills aren't helping much. My GP says she has ran
BobbyCollins
in
High Blood Pressure Support
2 months ago
1
...
48
49
50
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
9651 results
Advanced Prostate Cancer
7826 results
Atrial Fibrillation Support
5373 results
View top 10 communities
Sort by
Most Relevant
Newest