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passionflower
I’m now 70 and have had rheumatoid arthritis since I was a teenager this is in my family I went into remission at 15 married in my 20 ‘s had two children it came back when I hit the menopause and I’ve been on lots of medication and dmard the last being benipali injections that was very good until I contracted
I’m now 70 and have had rheumatoid arthritis since I was a teenager this is in my family I went into remission at 15 married in my 20 ‘s had two children it came back when I hit the menopause and I’ve been on lots of medication and dmard the last being benipali injections that was very good until I contracted
Passionflower
in
NRAS
6 months ago
Tinnitus for six weeks for no reason
Hi, I've now had tinnitus for six weeks. It's very high pitched (like one of those sonic cat scarers) and sounds like it's in my head rather than in my ears. I've also had on and off daily headaches for nine weeks. Been to the docs and she doesn't care - said the headaches and tinnitus weren't related
Hi, I've now had tinnitus for six weeks. It's very high pitched (like one of those sonic cat scarers) and sounds like it's in my head rather than in my ears. I've also had on and off daily headaches for nine weeks. Been to the docs and she doesn't care - said the headaches and tinnitus weren't related
guineapig10
in
Tinnitus UK
6 months ago
Cold water therapy
Hi everyone, Generally painkillers don't cut through my pain and they give me many side effects, so I am looking into alternatives. I was reading some research about cold water therapy helping with fibromyalgia and other autoimmune pain. I was wondering if anyone tried it for Endo?
Hi everyone, Generally painkillers don't cut through my pain and they give me many side effects, so I am looking into alternatives. I was reading some research about cold water therapy helping with fibromyalgia and other autoimmune pain. I was wondering if anyone tried it for Endo?
OlgaSz
in
Endometriosis UK
6 months ago
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3year Updates w/PSA Graph
Hi Everyone, I'd like to report my 3 year journey. Initial PSA 27 in 6/20. Diagnosed w/PC 10/20. Gleason score is 3+4 (high-risk). My T-stage is T2a/T2b. CT Scan showed no lymph node & Bone Scan showed some indication of met. PSMA/PET in 1/12/21 showed no met outside. Started ADT (Lupron
Hi Everyone, I'd like to report my 3 year journey. Initial PSA 27 in 6/20. Diagnosed w/PC 10/20. Gleason score is 3+4 (high-risk). My T-stage is T2a/T2b. CT Scan showed no lymph node & Bone Scan showed some indication of met. PSMA/PET in 1/12/21 showed no met outside. Started ADT (Lupron
brucesam
in
Advanced Prostate Cancer
3 months ago
Chemo Vs ADT
So this is possibly the dumbest question I have asked. But the knowledge on this forum is worth tapping into even for people like me who struggle with all the complexities of PC. So, - ADT suppresses PC but will not kill it. Chemo on the other hand finds the PC cells and kills them. So why do
So this is possibly the dumbest question I have asked. But the knowledge on this forum is worth tapping into even for people like me who struggle with all the complexities of PC. So, - ADT suppresses PC but will not kill it. Chemo on the other hand finds the PC cells and kills them. So why do
Mike58
in
Advanced Prostate Cancer
6 months ago
Duloxetine - cold turkey and afterwards?
One of my tasks in the New Year (after discussing with GP) was to decrease Duloxetine and possibly try something else as the hyperhidrosis side effects were becoming so problematical for me and, after working well for nigh-on 3 years they also now had reduced effectiveness at controlling my pain despite
One of my tasks in the New Year (after discussing with GP) was to decrease Duloxetine and possibly try something else as the hyperhidrosis side effects were becoming so problematical for me and, after working well for nigh-on 3 years they also now had reduced effectiveness at controlling my pain despite
denny_the_wench
in
Fibromyalgia Action UK
6 months ago
Maglyn
I reside in the UK and was diagnosed with Afib in early October and had a mild heart attack, in hospital for five days and given flecainide (50mg twice daily), apixaban (5mg twice daily), statins (40mg once daily) Losartan 5mg (once daily). I have always been intolerant to a lot of medication and vaccinations
I reside in the UK and was diagnosed with Afib in early October and had a mild heart attack, in hospital for five days and given flecainide (50mg twice daily), apixaban (5mg twice daily), statins (40mg once daily) Losartan 5mg (once daily). I have always been intolerant to a lot of medication and vaccinations
Maglyn
in
AF Association
6 months ago
Spike
So my Christmas present was a spike in my Tinnitus. It seem to lower then spike again until New Year when the spike has remained. Its driving me nuts. I had made an appt with Audiology dept but to be honest what can they do? I find reading about Tinnitus & people's experience quite overwhelming.
So my Christmas present was a spike in my Tinnitus. It seem to lower then spike again until New Year when the spike has remained. Its driving me nuts. I had made an appt with Audiology dept but to be honest what can they do? I find reading about Tinnitus & people's experience quite overwhelming.
EvilAries
in
Tinnitus UK
6 months ago
Sustaining friendships in the 21st century
When I got Parkinsons, I knew that there'd be a few years before I became housebound (and I'm not there yet). When that point was actually reached, I comforted myself with the knowledge that I had many friends, some of whome have admittedly moved away either to far flung place in the UK, or abroad.
When I got Parkinsons, I knew that there'd be a few years before I became housebound (and I'm not there yet). When that point was actually reached, I comforted myself with the knowledge that I had many friends, some of whome have admittedly moved away either to far flung place in the UK, or abroad.
jeeves19
in
Cure Parkinson's
3 months ago
AASLD organization
www.aasld.org This is the site for the [u][i]
American
[/i][/u] Association for the Study of Liver Diseases. They make the AASLD Guidelines for the Diagnosis and Treatment of PBC. Every one should take the time to read this. Take a copy of it to your doctor as well. They should be familiar
www.aasld.org This is the site for the [u][i]
American
[/i][/u] Association for the Study of Liver Diseases. They make the AASLD Guidelines for the Diagnosis and Treatment of PBC. Every one should take the time to read this. Take a copy of it to your doctor as well. They should be familiar
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Coping
My story starting in 2020,light headed,weight loss,in and out if the toilet.When i eventually went to the hospital was tokd Cirrhosis,been in and out since,they never explained diet so i have had a couple of burst blood vessels not nice. Now i am aware this us my 1st week of rabbit food!! No booze for
My story starting in 2020,light headed,weight loss,in and out if the toilet.When i eventually went to the hospital was tokd Cirrhosis,been in and out since,they never explained diet so i have had a couple of burst blood vessels not nice. Now i am aware this us my 1st week of rabbit food!! No booze for
Rawai
in
British Liver Trust
3 months ago
Levodopa effect on AF?
Diagnosed with Parkinsons last year.....medication (Levodopa) seems to be helping AF...anyone else feel the same?
Diagnosed with Parkinsons last year.....medication (Levodopa) seems to be helping AF...anyone else feel the same?
fleckynyde
in
Atrial Fibrillation Support
3 months ago
7 weeks and blood in stool
7 weeks of stomach discomfort which can be a little painful but consistently feels like a squeezing feeling and inflamed stool. Didn't have the bleeding but started noticing little blood in my stool. Can anyone take a look and see what they think. I have been referred to gastro but it's a long wait just
7 weeks of stomach discomfort which can be a little painful but consistently feels like a squeezing feeling and inflamed stool. Didn't have the bleeding but started noticing little blood in my stool. Can anyone take a look and see what they think. I have been referred to gastro but it's a long wait just
Aceofspace
in
Colon Cancer Connected
10 months ago
Recent Glaucoma diagnose
Recently diagnosed with bilateral chronic simple glaucoma, which I have presumed is open angle? Not had much information and also not one person has told me that I need to inform the dvla!After reading posts on here I'm so worried that I may lose my driving licence. I've completed the form and waiting
Recently diagnosed with bilateral chronic simple glaucoma, which I have presumed is open angle? Not had much information and also not one person has told me that I need to inform the dvla!After reading posts on here I'm so worried that I may lose my driving licence. I've completed the form and waiting
Lucky200
in
Glaucoma UK
6 months ago
Introduction
Hello everyone, I am new to this site so let me introduce myself I live with my husband on the outskirts of Llandudno on the North Wales coast. I am very fortunate that both my children & grandchildren live locally. We have a 2 year old cavapoo who together with our 2 year old grand-twins provide
Hello everyone, I am new to this site so let me introduce myself I live with my husband on the outskirts of Llandudno on the North Wales coast. I am very fortunate that both my children & grandchildren live locally. We have a 2 year old cavapoo who together with our 2 year old grand-twins provide
Ildivolover
in
Scleroderma & Raynaud's UK (SRUK)
23 days ago
bowel obstruction
hello, my Mum is now in palliative care (12 days) for a total bowel obstruction because of a 6 sigmoid volvulus. At 92 an operation is not possible. Almost two weeks now and so far she is coping remarkably - her tummy is huge but otherwise only moderate pain now and then and a need to pee quite often
hello, my Mum is now in palliative care (12 days) for a total bowel obstruction because of a 6 sigmoid volvulus. At 92 an operation is not possible. Almost two weeks now and so far she is coping remarkably - her tummy is huge but otherwise only moderate pain now and then and a need to pee quite often
Anjidav
in
Bowel Disease Support
10 months ago
Has anyone found Mebeverine/Buscopan helpful?
Following a Laparoscopy, it is highly likely that I have Adenomyosis. One of the hardest symptoms is the uncomfortable bowel issues. I get bloating and constipation. I am wondering if it is worth trying Mebeverine or Buscopan. I've tried dietary and peppermint oil but neither really helped.Thank you
Following a Laparoscopy, it is highly likely that I have Adenomyosis. One of the hardest symptoms is the uncomfortable bowel issues. I get bloating and constipation. I am wondering if it is worth trying Mebeverine or Buscopan. I've tried dietary and peppermint oil but neither really helped.Thank you
Mindfullness4791
in
Endometriosis UK
10 months ago
A quick update for those that remember my recent posts about the Ablation complications!
Ablation 16/3, artery got damaged, 3 outpatient appointments, 2 failed attempts at thrombin infusion under ultrasound, emergency 3 day admission to hospital with emergency pseudoaneurysm and arteriovenous fistula repair (pretty major surgery involving patching the damaged artery with cow veins) . Most
Ablation 16/3, artery got damaged, 3 outpatient appointments, 2 failed attempts at thrombin infusion under ultrasound, emergency 3 day admission to hospital with emergency pseudoaneurysm and arteriovenous fistula repair (pretty major surgery involving patching the damaged artery with cow veins) . Most
AmandaLouise77
in
Atrial Fibrillation Support
2 months ago
Has methotrexate caused liver damage
I had a blood test which showed raised levels of ALP 136, Aspartate Transaminase 68. My GP said that my RA meds have caused damage to my liver!!! I am having a liver fibroscan tommorrow to check for fatty liver. Very anxious but will need to take it one step at a time. Any guidance and advice welcome
I had a blood test which showed raised levels of ALP 136, Aspartate Transaminase 68. My GP said that my RA meds have caused damage to my liver!!! I am having a liver fibroscan tommorrow to check for fatty liver. Very anxious but will need to take it one step at a time. Any guidance and advice welcome
Beanyynwa
in
NRAS
3 months ago
for all new members of late.....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. First of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop googling for information - get your
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
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